#MeAwarenesshour
Wie menschenverachtend die ticken.
Sektenmäßiges Glaubensgebilde geht über Wissenschaft.
Immer die Schuld auf die Betroffenen.

Das ist unterlassene Hilfeleistung – auch mit tödlichen Folgen!

Deshalb und trotzdem verteilen wir Flyer!

3/4
#MEAwarenessHour
November 4, 2026 at 8:37 PM
Ich bin geschockt
Obwohl es nicht neu ist

Heute #MEcfs im #Neurologie Kongress:

- „ME“ zugunsten von „CFS“ abgelehnt verbunden mit Psychologisierung.
- PEM als Angst vor Anstrengungsstörung (Gutachterin) wurde beklatscht
- Existenz von ME angezweifelt, auch Viren als Auslöser
1/4

#MEAwarenessHour
November 4, 2026 at 8:37 PM
It’s #MEawarenesshour. I’m tweeting in the hope that if more people are aware of M.E. and the way it devastates lives, more effort and funding will be allocated to investigating and searching for answers. We need an agreed, objective diagnostic test for detailed clinical trials.
November 4, 2026 at 8:07 PM
"The assumption appears to be that because there is a Delivery Plan, concerns are already being addressed and additional action is either unnecessary or premature."

www.mefoggydog.org/2026/10/28/t...

Contains 🔗 to a social media day of action tomorrow as part of #BedForSevereME

#MEAwarenessHour
https://www.mefoggydog.org/2026/10/28/the-m-e-c-f-s-delivery-plan-is-becoming-a-barrier-to-progress/
www.mefoggydog.org
October 28, 2026 at 8:00 PM
It’s #MEawarenesshour. I’m tweeting in the hope that if more people are aware of M.E. and the way it devastates lives, more effort and funding will be allocated to investigating and searching for answers. We need an agreed, objective diagnostic test for detailed clinical trials.
October 28, 2026 at 8:05 PM
Myth #5: Long Covid is entirely different from ME/CFS. ❌

Many with Long Covid meet the diagnostic criteria for ME/CFS, including PEM, its main symptom.

Swipe to see what the science shows. ➡️

Part 5 of our six-part Myth vs. Fact series.

#MECFS #LongCovid #ChronicIllness #MEAwarenessHour
October 21, 2026 at 7:05 PM
It’s #MEawarenesshour. I’m tweeting in the hope that if more people are aware of M.E. and the way it devastates lives, more effort and funding will be allocated to investigating and searching for answers. We need an agreed, objective diagnostic test for detailed clinical trials.
October 21, 2026 at 7:07 PM
Take part from your bed, sofa, office or school.

#BEDforSevereME is for everyone.

Wear PJs, share, donate if you can and support. 💙

www.mefoggydog.org/bed-for-seve...

#Fundraiser #MEAwarenessHour #pwME #ME #SevereME
BED for Severe M.E. | ME Foggy Dog
29th October is the annual date for this new awareness day for Severe M.E. 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound…
www.mefoggydog.org
October 14, 2026 at 7:02 PM
ME/CFS is widely misunderstood, and those misconceptions can have real consequences for people living with the disease.

Swipe through as we separate some of the most common myths about ME/CFS from the facts. ➡️

#MEAwarenessHour #MECFS
October 14, 2026 at 8:55 PM
It’s #MEawarenesshour. I’m tweeting in the hope that if more people are aware of M.E. and the way it devastates lives, more effort and funding will be allocated to investigating and searching for answers. We need an agreed, objective diagnostic test for detailed clinical trials.
October 14, 2026 at 7:02 PM
It’s #MEawarenesshour. I’m tweeting in the hope that if more people are aware of M.E. and the way it devastates lives, more effort and funding will be allocated to investigating and searching for answers. We need an agreed, objective diagnostic test for detailed clinical trials.
October 7, 2026 at 7:12 PM
Today, we're celebrating advocacy in action! Advocate & caregiver to her son, Gabe, Rebecca Groble secured an Illinois Senate Resolution acknowledging the prevalence & impact of ME/CFS across the state. Thanks, Rebecca, for your dedication to raising awareness!
#MEAwarenessHour
September 30, 2026 at 7:05 PM
It’s #MEawarenesshour. I’m tweeting in the hope that if more people are aware of M.E. and the way it devastates lives, more effort and funding will be allocated to investigating and searching for answers. We need an agreed, objective diagnostic test for detailed clinical trials.
September 30, 2026 at 7:12 PM
Wir brauchen eine #AufklärungskampagneMECFS!

@bmg-bund.bsky.social, nehmen Sie sich ein Vorbild an #RitaSuessmuth!

#MEcfs tötet.
Aufklärung rettet Leben.

Apropos: Medizinische Versorgung ist ein #Menschenrecht

#MEAWarenessHour
September 21, 2026 at 11:33 PM
It’s #MEawarenesshour. I’m tweeting in the hope that if more people are aware of M.E. and the way it devastates lives, more effort and funding will be allocated to investigating and searching for answers. We need an agreed, objective diagnostic test for detailed clinical trials.
September 16, 2026 at 7:49 PM
ICYMI: Watch the recording of our webinar with Dr. Jay H. Chung re: his Catalyst Award-winning study of the mitochondrial stabilizer IVO-21 as a therapy for #MECFS.

https://ow.ly/Hfp450ZLzT3

#MEAwarenessHour
September 9, 2026 at 7:05 PM
It’s #MEawarenesshour. I’m tweeting in the hope that if more people are aware of M.E. and the way it devastates lives, more effort and funding will be allocated to investigating and searching for answers. We need an agreed, objective diagnostic test for detailed clinical trials.
September 9, 2026 at 7:39 PM
It’s #MEawarenesshour. I’m tweeting in the hope that if more people are aware of M.E. and the way it devastates lives, more effort and funding will be allocated to investigating and searching for answers. We need an agreed, objective diagnostic test for detailed clinical trials.
September 2, 2026 at 7:23 PM
I miss restorative sleep.
I barely remember ye.
Always sleeping, never rested.

#MyalgicEncephalomyelitis
#MEAwarenessHour #MeCFS
August 26, 2026 at 12:13 PM
It’s #MEawarenesshour. I’m tweeting in the hope that if more people are aware of M.E. and the way it devastates lives, more effort and funding will be allocated to investigating and searching for answers. We need an agreed, objective diagnostic test for detailed clinical trials.
August 26, 2026 at 7:02 PM
Join us on 9/22 for a free webinar with Brain Inflammation Collaborative (BIC) to discuss using the unhide® real-world data platform to recognize health patterns & trends to support conversations with healthcare providers.
Register here:
https://ow.ly/o1Iq50ZyLBO
#MECFS #MEAwarenessHour
August 26, 2026 at 7:10 PM
It’s #MEawarenesshour. I’m tweeting in the hope that if more people are aware of M.E. and the way it devastates lives, more effort and funding will be allocated to investigating and searching for answers. We need an agreed, objective diagnostic test for detailed clinical trials.
August 19, 2026 at 7:03 PM
On Fri., Aug. 21, 2026 @ 11 am PT / 2 pm ET, Solve VP of Scientific Programs Dr. Jessica Maya joins Renegade Research for the webinar "Vagus Nerve Stimulation (VNS) Informal Tracking Project for #MECFS & Long Covid.”

Register here:
https://ow.ly/4YSg50ZyhnC

#MEAwarenessHour
August 19, 2026 at 7:10 PM
3/3
Mit dem Licht dieser Finsternis forme ich den Schriftzug ME/CFS aus kleinen Sonnensicheln auf dem Boden. Ein Zeichen, um Aufmerksamkeit in die Dunkelheit dieser Erkrankung zu bringen.

#Sonnenfinsternis #SoFi #SolarEclipse #MEAwarenessHour #MECFS #MillionsMissing #PwME
August 12, 2026 at 7:56 PM
Wenn man seine Träume nicht begraben würde, würde man an der ständigen enttäuschten Hoffnung zerbrechen. Das "Begraben" ist ein notwendiger, wenn auch schmerzhafter Akt der psychischen Selbsterhaltung, um in der neuen, eingeschränkten Realität zu überleben.

#MEAwarenessHour
May 6, 2026 at 7:07 PM