🚨 Reminder: RDI Rare Disease Day Webinar is Today! 🚨
Nearly 300 attendees registered! 🎉Join us today at 14:30 CET!🔗 Register here: events.teams.microsoft.com/event/7a6020... #RareDiseaseDay #MoreThanYouCanImagine
Nearly 300 attendees registered! 🎉Join us today at 14:30 CET!🔗 Register here: events.teams.microsoft.com/event/7a6020... #RareDiseaseDay #MoreThanYouCanImagine
February 27, 2025 at 7:46 AM
🚨 Reminder: RDI Rare Disease Day Webinar is Today! 🚨
Nearly 300 attendees registered! 🎉Join us today at 14:30 CET!🔗 Register here: events.teams.microsoft.com/event/7a6020... #RareDiseaseDay #MoreThanYouCanImagine
Nearly 300 attendees registered! 🎉Join us today at 14:30 CET!🔗 Register here: events.teams.microsoft.com/event/7a6020... #RareDiseaseDay #MoreThanYouCanImagine
November 7, 2025 at 1:54 AM
💜 Rare, but not alone!
🌍 On #RareDiseaseDay, we stand with the families who have been waiting years for a diagnosis
At CNAG, it’s our mission to help improve their quality of life by identifying the genetic causes
📹Press play!
#RareDiseases #MoreThanYouCanImagine #Research #CNAG #TogetherForRare
🌍 On #RareDiseaseDay, we stand with the families who have been waiting years for a diagnosis
At CNAG, it’s our mission to help improve their quality of life by identifying the genetic causes
📹Press play!
#RareDiseases #MoreThanYouCanImagine #Research #CNAG #TogetherForRare
Rare, but not alone!
YouTube video by CNAG
youtu.be
February 28, 2025 at 9:32 AM
💜 Rare, but not alone!
🌍 On #RareDiseaseDay, we stand with the families who have been waiting years for a diagnosis
At CNAG, it’s our mission to help improve their quality of life by identifying the genetic causes
📹Press play!
#RareDiseases #MoreThanYouCanImagine #Research #CNAG #TogetherForRare
🌍 On #RareDiseaseDay, we stand with the families who have been waiting years for a diagnosis
At CNAG, it’s our mission to help improve their quality of life by identifying the genetic causes
📹Press play!
#RareDiseases #MoreThanYouCanImagine #Research #CNAG #TogetherForRare
#RareDiseaseDay | 🗣 Alexandre Méjat, a rare disease patient, PhD scientist in the field of rare diseases, and @eurordis.bsky.social Director, shares his invaluable insight on the vital role of data collection in achieving quicker diagnoses. 📊⏱ #MoreThanYouCanImagine #RareDiseases #ERDERA
Rare Disease Community | Alexandre Méjat
YouTube video by ERDERA
youtu.be
February 26, 2025 at 8:28 AM
#RareDiseaseDay | 🗣 Alexandre Méjat, a rare disease patient, PhD scientist in the field of rare diseases, and @eurordis.bsky.social Director, shares his invaluable insight on the vital role of data collection in achieving quicker diagnoses. 📊⏱ #MoreThanYouCanImagine #RareDiseases #ERDERA
February 28th is International Rare Disease Day.
This year’s motto, “More than you can imagine”, reminds us that rare diseases are not as rare as they seem. Together, they affect more than 300 million people worldwide.
#RareDiseaseDay #MoreThanYouCanImagine #RareDiseases #Nanomedicine #IQAC #RERCSIC
This year’s motto, “More than you can imagine”, reminds us that rare diseases are not as rare as they seem. Together, they affect more than 300 million people worldwide.
#RareDiseaseDay #MoreThanYouCanImagine #RareDiseases #Nanomedicine #IQAC #RERCSIC
February 27, 2026 at 3:57 PM
February 28th is International Rare Disease Day.
This year’s motto, “More than you can imagine”, reminds us that rare diseases are not as rare as they seem. Together, they affect more than 300 million people worldwide.
#RareDiseaseDay #MoreThanYouCanImagine #RareDiseases #Nanomedicine #IQAC #RERCSIC
This year’s motto, “More than you can imagine”, reminds us that rare diseases are not as rare as they seem. Together, they affect more than 300 million people worldwide.
#RareDiseaseDay #MoreThanYouCanImagine #RareDiseases #Nanomedicine #IQAC #RERCSIC
📢 In the week of #RareDiseaseDay, we raise awareness of #RareDisease research and how centres like ours help end the diagnostic odyssey for many patients
🔬 One example is the European project #ERDERA, dedicated to improving rare disease diagnosis
▶️ Press play!
#Genomics #MoreThanYouCanImagine
🔬 One example is the European project #ERDERA, dedicated to improving rare disease diagnosis
▶️ Press play!
#Genomics #MoreThanYouCanImagine
Rare Disease Day 2025 | Daria Julkowska
YouTube video by ERDERA
www.youtube.com
February 26, 2025 at 11:19 AM
📢 In the week of #RareDiseaseDay, we raise awareness of #RareDisease research and how centres like ours help end the diagnostic odyssey for many patients
🔬 One example is the European project #ERDERA, dedicated to improving rare disease diagnosis
▶️ Press play!
#Genomics #MoreThanYouCanImagine
🔬 One example is the European project #ERDERA, dedicated to improving rare disease diagnosis
▶️ Press play!
#Genomics #MoreThanYouCanImagine
🦓 Today is #RareDiseaseDay 2025 - A global movement to support and spread awareness for 300 million people affected by #rarediseases.
This year's theme: #MoreThanYouCanImagine.
Learn more: rarediseaseday.org:
#ShowYourStripes
This year's theme: #MoreThanYouCanImagine.
Learn more: rarediseaseday.org:
#ShowYourStripes
February 28, 2025 at 9:16 AM
🦓 Today is #RareDiseaseDay 2025 - A global movement to support and spread awareness for 300 million people affected by #rarediseases.
This year's theme: #MoreThanYouCanImagine.
Learn more: rarediseaseday.org:
#ShowYourStripes
This year's theme: #MoreThanYouCanImagine.
Learn more: rarediseaseday.org:
#ShowYourStripes
Today is #RareDiseaseDay.
300 million people worldwide live with a rare disease. There are 6,000+ rare diseases — 72% are genetic and 70% begin in childhood.
Let’s advocate for equitable access to diagnosis, treatment, care and inclusion.
#MoreThanYouCanImagine #HealthEquity
300 million people worldwide live with a rare disease. There are 6,000+ rare diseases — 72% are genetic and 70% begin in childhood.
Let’s advocate for equitable access to diagnosis, treatment, care and inclusion.
#MoreThanYouCanImagine #HealthEquity
February 27, 2026 at 9:00 PM
Today is #RareDiseaseDay.
300 million people worldwide live with a rare disease. There are 6,000+ rare diseases — 72% are genetic and 70% begin in childhood.
Let’s advocate for equitable access to diagnosis, treatment, care and inclusion.
#MoreThanYouCanImagine #HealthEquity
300 million people worldwide live with a rare disease. There are 6,000+ rare diseases — 72% are genetic and 70% begin in childhood.
Let’s advocate for equitable access to diagnosis, treatment, care and inclusion.
#MoreThanYouCanImagine #HealthEquity
February 28, 2025 at 11:59 AM
📣 It's #RareDiseaseDay
📹 Watch this video from ERDERA National Mirror Group Austria featuring Eric Vermeulen, Chair of BBMRI-ERIC's Stakeholder Forum, on the importance of #PatientInvolvement and #biobanking in advancing rare disease research.
🔗 buff.ly/43bcv37
<a href="/hashtag/MoreThanYouCanImagine" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#MoreThanYouCanImagine
📹 Watch this video from ERDERA National Mirror Group Austria featuring Eric Vermeulen, Chair of BBMRI-ERIC's Stakeholder Forum, on the importance of #PatientInvolvement and #biobanking in advancing rare disease research.
🔗 buff.ly/43bcv37
<a href="/hashtag/MoreThanYouCanImagine" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#MoreThanYouCanImagine
February 28, 2025 at 8:00 AM
📣 It's #RareDiseaseDay
📹 Watch this video from ERDERA National Mirror Group Austria featuring Eric Vermeulen, Chair of BBMRI-ERIC's Stakeholder Forum, on the importance of #PatientInvolvement and #biobanking in advancing rare disease research.
🔗 buff.ly/43bcv37
<a href="/hashtag/MoreThanYouCanImagine" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#MoreThanYouCanImagine
📹 Watch this video from ERDERA National Mirror Group Austria featuring Eric Vermeulen, Chair of BBMRI-ERIC's Stakeholder Forum, on the importance of #PatientInvolvement and #biobanking in advancing rare disease research.
🔗 buff.ly/43bcv37
<a href="/hashtag/MoreThanYouCanImagine" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#MoreThanYouCanImagine
💜One of our contributions to advancing rare disease research is through GPAP, our genetic analysis platform
🧬Developed at #CNAG, GPAP enables researchers to share, analyse, and interpret genetic and phenotypic data
More in the video ⬇️
#RareDiseaseDay #Genomics #RareDiseases #MoreThanYouCanImagine
🧬Developed at #CNAG, GPAP enables researchers to share, analyse, and interpret genetic and phenotypic data
More in the video ⬇️
#RareDiseaseDay #Genomics #RareDiseases #MoreThanYouCanImagine
RD-Connect Genome-Phenome Analysis Platform (GPAP)
YouTube video by CNAG
youtu.be
February 24, 2025 at 9:08 AM
💜One of our contributions to advancing rare disease research is through GPAP, our genetic analysis platform
🧬Developed at #CNAG, GPAP enables researchers to share, analyse, and interpret genetic and phenotypic data
More in the video ⬇️
#RareDiseaseDay #Genomics #RareDiseases #MoreThanYouCanImagine
🧬Developed at #CNAG, GPAP enables researchers to share, analyse, and interpret genetic and phenotypic data
More in the video ⬇️
#RareDiseaseDay #Genomics #RareDiseases #MoreThanYouCanImagine
It’s Rare Disease Week!
In the ERDERA project we aim to establish better prevention, diagnosis, and treatment of rare diseases. See our campaign on LinkedIn!
www.linkedin.com/posts/erdera...
In the ERDERA project we aim to establish better prevention, diagnosis, and treatment of rare diseases. See our campaign on LinkedIn!
www.linkedin.com/posts/erdera...
ERDERA on LinkedIn: #rarediseaseday #morethanyoucanimagine #rarediseases #erdera
Rare Disease Day | More than you can imagine 🌟
How can data help patients with undiagnosed rare diseases receive a faster diagnosis? 🤔
Professor Ronald…
www.linkedin.com
February 27, 2025 at 1:16 PM
It’s Rare Disease Week!
In the ERDERA project we aim to establish better prevention, diagnosis, and treatment of rare diseases. See our campaign on LinkedIn!
www.linkedin.com/posts/erdera...
In the ERDERA project we aim to establish better prevention, diagnosis, and treatment of rare diseases. See our campaign on LinkedIn!
www.linkedin.com/posts/erdera...
✨ Amelia’s Hyperinsulinism Journey
#CHISuperhero Amelia is a true warrior who has faced Hyperinsulinism with incredible Courage, Hope, and Inspiration. In this video, she shares her journey from birth to now, raising awareness for #RareDiseaseDay #MoreThanYouCanImagine
#CHISuperhero Amelia is a true warrior who has faced Hyperinsulinism with incredible Courage, Hope, and Inspiration. In this video, she shares her journey from birth to now, raising awareness for #RareDiseaseDay #MoreThanYouCanImagine
February 27, 2026 at 10:01 AM
✨ Amelia’s Hyperinsulinism Journey
#CHISuperhero Amelia is a true warrior who has faced Hyperinsulinism with incredible Courage, Hope, and Inspiration. In this video, she shares her journey from birth to now, raising awareness for #RareDiseaseDay #MoreThanYouCanImagine
#CHISuperhero Amelia is a true warrior who has faced Hyperinsulinism with incredible Courage, Hope, and Inspiration. In this video, she shares her journey from birth to now, raising awareness for #RareDiseaseDay #MoreThanYouCanImagine
#RareDiseaseDay Aujourd'hui c'est la Journée Internationale des Maladies Rares, une journée pour sensibiliser aux maladies rares et à leur impact sur la vie quotidienne des personnes qui en sont atteintes. 🩷💜💙💚
#RaiseYourVoice #ShareYourColors #MoreThanYouCanImagine
#RaiseYourVoice #ShareYourColors #MoreThanYouCanImagine
February 28, 2026 at 4:49 PM
#RareDiseaseDay Aujourd'hui c'est la Journée Internationale des Maladies Rares, une journée pour sensibiliser aux maladies rares et à leur impact sur la vie quotidienne des personnes qui en sont atteintes. 🩷💜💙💚
#RaiseYourVoice #ShareYourColors #MoreThanYouCanImagine
#RaiseYourVoice #ShareYourColors #MoreThanYouCanImagine
🌍 For #RareDiseaseDay, ERDERA joins the global movement to promote equity, visibility and progress for people living with rare diseases and their families. 💚 Find out how we turn #ResearchCollaboration into real impact👉 https://loom.ly/_JM9nYw #MoreThanYouCanImagine #ERDERA
February 18, 2026 at 9:40 AM
🌍 For #RareDiseaseDay, ERDERA joins the global movement to promote equity, visibility and progress for people living with rare diseases and their families. 💚 Find out how we turn #ResearchCollaboration into real impact👉 https://loom.ly/_JM9nYw #MoreThanYouCanImagine #ERDERA
Today is #RareDiseaseDay2025! As a proud member of this community, I stand with millions worldwide facing unique health challenges. Let’s raise awareness for conditions like left ventricular cardiac fibromas—so rare, yet so impactful. Together, we’re #MoreThanYouCanImagine
February 28, 2025 at 1:36 PM
Today is #RareDiseaseDay2025! As a proud member of this community, I stand with millions worldwide facing unique health challenges. Let’s raise awareness for conditions like left ventricular cardiac fibromas—so rare, yet so impactful. Together, we’re #MoreThanYouCanImagine
Today is Rare Disease Day, and the theme for this year is 'more than you can imagine', which aims to highlight the impact rare conditions can have on a person's sense of self, relationships and wellbeing. Read more here: ow.ly/6YF650V88V7
#RareDiseaseDay #MoreThanYouCanImagine
#RareDiseaseDay #MoreThanYouCanImagine
February 28, 2025 at 10:00 AM
Today is Rare Disease Day, and the theme for this year is 'more than you can imagine', which aims to highlight the impact rare conditions can have on a person's sense of self, relationships and wellbeing. Read more here: ow.ly/6YF650V88V7
#RareDiseaseDay #MoreThanYouCanImagine
#RareDiseaseDay #MoreThanYouCanImagine
Rare Disease Day raises awareness for the 300 million people worldwide living with a rare disease, along with their families and carers. A disease is rare when it affects fewer than 1 in 2000 people. More information can be found at:
www.rarediseaseday.org
#RareDiseaseDay #MoreThanYouCanImagine
www.rarediseaseday.org
#RareDiseaseDay #MoreThanYouCanImagine
February 28, 2026 at 10:59 AM
Rare Disease Day raises awareness for the 300 million people worldwide living with a rare disease, along with their families and carers. A disease is rare when it affects fewer than 1 in 2000 people. More information can be found at:
www.rarediseaseday.org
#RareDiseaseDay #MoreThanYouCanImagine
www.rarediseaseday.org
#RareDiseaseDay #MoreThanYouCanImagine
This #rarediseaseday, we are calling for a greater ambition to make the UK a more attractive place to develop and launch new medicines for rare diseases.
www.abpi.org.uk/media/news/2...
#MoreThanYouCanImagine.
www.abpi.org.uk/media/news/2...
#MoreThanYouCanImagine.
UK must do more on access to rare disease medicines, says ABPI
The latest England action plan on rare diseases (published 28 February 2025) does not do enough to ensure NHS patients get access to potentially life-changing new medicines, according to the Associati...
www.abpi.org.uk
February 28, 2025 at 10:15 AM
This #rarediseaseday, we are calling for a greater ambition to make the UK a more attractive place to develop and launch new medicines for rare diseases.
www.abpi.org.uk/media/news/2...
#MoreThanYouCanImagine.
www.abpi.org.uk/media/news/2...
#MoreThanYouCanImagine.
Learn more about Rare Disease Day and how you can get involved by visiting
https://www.rarediseaseday.org/ 💚
Learn more about lupus, which affects 1 in 1000 people in the UK, by visiting
https://lupusuk.org.uk/ 💜
#RareDiseaseDay #Lupus #SLE #MoreThanYouCanImagine
https://www.rarediseaseday.org/ 💚
Learn more about lupus, which affects 1 in 1000 people in the UK, by visiting
https://lupusuk.org.uk/ 💜
#RareDiseaseDay #Lupus #SLE #MoreThanYouCanImagine
Lupus UK |
Welcome To The Home Of LUPUS UK LUPUS UK is the only national registered charity supporting people with lupus and helping those being diagnosed. We offer information, resources and medical talks, a free helpline, regional support groups and an online forum with over 30,000 members and a grant progra...
lupusuk.org.uk
February 28, 2025 at 9:30 AM
Learn more about Rare Disease Day and how you can get involved by visiting
https://www.rarediseaseday.org/ 💚
Learn more about lupus, which affects 1 in 1000 people in the UK, by visiting
https://lupusuk.org.uk/ 💜
#RareDiseaseDay #Lupus #SLE #MoreThanYouCanImagine
https://www.rarediseaseday.org/ 💚
Learn more about lupus, which affects 1 in 1000 people in the UK, by visiting
https://lupusuk.org.uk/ 💜
#RareDiseaseDay #Lupus #SLE #MoreThanYouCanImagine
For #RareDiseaseDay, Jenn shares her diagnosis of
Sheehan’s Syndrome, causing secondary adrenal insufficiency & multiple adrenal crises.
Jenn discovered Medical Detection Dogs & now Joy is her cortisol alert dog 🐶: www.addisonsdisease.org.uk/blog/jenns-s... #MoreThanYouCanImagine. (6/9)
Sheehan’s Syndrome, causing secondary adrenal insufficiency & multiple adrenal crises.
Jenn discovered Medical Detection Dogs & now Joy is her cortisol alert dog 🐶: www.addisonsdisease.org.uk/blog/jenns-s... #MoreThanYouCanImagine. (6/9)
February 28, 2025 at 9:54 AM
For #RareDiseaseDay, Jenn shares her diagnosis of
Sheehan’s Syndrome, causing secondary adrenal insufficiency & multiple adrenal crises.
Jenn discovered Medical Detection Dogs & now Joy is her cortisol alert dog 🐶: www.addisonsdisease.org.uk/blog/jenns-s... #MoreThanYouCanImagine. (6/9)
Sheehan’s Syndrome, causing secondary adrenal insufficiency & multiple adrenal crises.
Jenn discovered Medical Detection Dogs & now Joy is her cortisol alert dog 🐶: www.addisonsdisease.org.uk/blog/jenns-s... #MoreThanYouCanImagine. (6/9)
On #RareDiseaseDay our community show how life with a rare condition is #MoreThanYouCanImagine.
Siblings Eddie & Grace share how Eddie was diagnosed with Addison's during Grace's medical training, leading Grace to join @medicsforrare.bsky.social (5/9)
👉 www.addisonsdisease.org.uk/blog/eddie-g...
Siblings Eddie & Grace share how Eddie was diagnosed with Addison's during Grace's medical training, leading Grace to join @medicsforrare.bsky.social (5/9)
👉 www.addisonsdisease.org.uk/blog/eddie-g...
February 28, 2025 at 9:54 AM
On #RareDiseaseDay our community show how life with a rare condition is #MoreThanYouCanImagine.
Siblings Eddie & Grace share how Eddie was diagnosed with Addison's during Grace's medical training, leading Grace to join @medicsforrare.bsky.social (5/9)
👉 www.addisonsdisease.org.uk/blog/eddie-g...
Siblings Eddie & Grace share how Eddie was diagnosed with Addison's during Grace's medical training, leading Grace to join @medicsforrare.bsky.social (5/9)
👉 www.addisonsdisease.org.uk/blog/eddie-g...
We achieved #MoreThanYouCanImagine. But we’re still imagining more. 🌍
Millions came together for #RareDiseaseDay 2026 to raise awareness and call for greater equity. Now, we’re building on that momentum for 2027.
🔗 See what we achieved: https://go.eurordis.org/RDDArticle
Millions came together for #RareDiseaseDay 2026 to raise awareness and call for greater equity. Now, we’re building on that momentum for 2027.
🔗 See what we achieved: https://go.eurordis.org/RDDArticle
September 21, 2026 at 12:00 PM
We achieved #MoreThanYouCanImagine. But we’re still imagining more. 🌍
Millions came together for #RareDiseaseDay 2026 to raise awareness and call for greater equity. Now, we’re building on that momentum for 2027.
🔗 See what we achieved: https://go.eurordis.org/RDDArticle
Millions came together for #RareDiseaseDay 2026 to raise awareness and call for greater equity. Now, we’re building on that momentum for 2027.
🔗 See what we achieved: https://go.eurordis.org/RDDArticle
"CHI doesn’t define me, but it’s a big part of my life—the reason behind my learning, developmental & medical challenges. But I am much more.."
💙 I am the beat of a drum
💙 I am the song that’s sung
💙 I am more than you can see
💙 I am me
More than a diagnosis
#MoreThanYouCanImagine
#RareDiseaseDay
💙 I am the beat of a drum
💙 I am the song that’s sung
💙 I am more than you can see
💙 I am me
More than a diagnosis
#MoreThanYouCanImagine
#RareDiseaseDay
February 17, 2025 at 12:50 PM
"CHI doesn’t define me, but it’s a big part of my life—the reason behind my learning, developmental & medical challenges. But I am much more.."
💙 I am the beat of a drum
💙 I am the song that’s sung
💙 I am more than you can see
💙 I am me
More than a diagnosis
#MoreThanYouCanImagine
#RareDiseaseDay
💙 I am the beat of a drum
💙 I am the song that’s sung
💙 I am more than you can see
💙 I am me
More than a diagnosis
#MoreThanYouCanImagine
#RareDiseaseDay
💡#ERDERA
Supporting #RareDiseaseDay, #ERDERA launched a series of posts under the motto “Rare Disease Day | More than you can imagine 🌟” compiling short interviews and facts about rare disease research and care.
💡 A few examples:
🔗 https://buff.ly/41jVBwq
🔗 https://buff.ly/41vLbuW
🧵 7/12
#rarediseaseday #morethanyoucanimagine #rarediseases #erdera | ERDERA
Rare Disease Day | More Than You Can Imagine 🌟 Rare Disease Community 🗣 dorica dan, rare disease carer and EURORDIS-Rare Diseases Europe Vice-Director, highlights the profound importance of early…
buff.ly
February 27, 2025 at 8:16 AM
💡#ERDERA
Supporting #RareDiseaseDay, #ERDERA launched a series of posts under the motto “Rare Disease Day | More than you can imagine 🌟” compiling short interviews and facts about rare disease research and care.
💡 A few examples:
🔗 https://buff.ly/41jVBwq
🔗 https://buff.ly/41vLbuW
🧵 7/12