#NEisVoid
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exceedhergrasp1.bsky.social
Everyone in the #NEISvoid, let's welcome Beth Dobbin to Bsky:
bethdobbin.bsky.social bethdobbin.bsky.social @bethdobbin.bsky.social · 2d
Hi everyone, I’m new to Bluesky but we’ve been working on something 🙏🏼 I’ve written a second letter to Andy Burnham, alongside 360 sports people, to urge him to meet with me and fund research into my much neglected health issue which impacts millions of others.
November 3, 2026 at 12:06 PM
exceedhergrasp1.bsky.social
I'm noticing worsened dyspnea is a big issue this fall. Anybody else with an IACC? #MECFS #LongCOVID #NEISvoid
exceedhergrasp1.bsky.social It's ME(Jaime) @exceedhergrasp1.bsky.social · 13h
Amidst all the election chatter, I am too sick to be at RECOVER TLC in person this AM. I will do my best to go tomorrow if I'm able.
November 4, 2026 at 4:02 PM
chronicloaf.bsky.social
#GalaxyQuest is playing in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#wakenbake #NEISvoid #mecfs #DisCo #cannabiscommunity #spoonie #ChronicPain #longcovid
Never Give Up Never Surrender
Alt: Never Give Up Never Surrender
static.klipy.com
November 4, 2026 at 4:22 PM
chronicloaf.bsky.social
#ChickenLittle is playing in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#RIPPatrickStewart #MemorialStream #ForTinu #AnimeMonday #animation #neisvoid #mecfs #DisCo #disability #longcovid #ChronicPain
November 2, 2026 at 8:41 PM
chronicloaf.bsky.social
The movie "Jeffrey" is playing next in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#RIPPatrickStewart #MemorialStream #DisCo #ForTinu #cannabiscommunity #ChronicPain #spoonie #FilmDis #NEISvoid #mecfs
Jeffrey movie poster
November 4, 2026 at 9:06 PM
admowrites.bsky.social
Flare ups are ass.

#neisvoid
October 31, 2026 at 6:34 PM
chronicloaf.bsky.social
The movie #Suzume is playing next in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#AnimeMonday #anime #animation #NEISvoid #mecfs #spoonie #ChronicPain #cannabiscommunity #medicalmarijuana
Suzume movie poster
November 2, 2026 at 5:36 PM
chronicloaf.bsky.social
#1000WomeninHorror is playing in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#documentary #NEISvoid #mecfs #DisCo #ForTinu #spoonie #cannabiscommunity #ChronicPain #disability #AuADHD
1000 Women in Horror movie poster
November 4, 2026 at 10:22 PM
chronicloaf.bsky.social
"The Emoji Movie" just started in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#AnimeMonday #RIPPatrickStewart #DisCo #animation #neisvoid #mecfs #ForTinu #cannabisculture #MemorialStream
The emoji movie
November 3, 2026 at 12:25 AM
nwayne66.bsky.social
Painsomnia blows. #NEISvoid
October 29, 2026 at 9:03 AM
chronicloaf.bsky.social
We're watching the Doja Cat amazon music concert and some #Dragvestigations this morning in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#wakenbake #mecfs #NEISvoid #ForTinu #spoonie #cannabisculture #autism #longcovid #ChronicPain #DisabilityCommunity
November 4, 2026 at 6:08 PM
purplegril.bsky.social
Are you aware of #NEISvoid? Might be something vaguely similar, although it isn't about being alone specifically.

Nor about being alien *stares at autocorrect*
November 4, 2026 at 2:52 PM
chronicloaf.bsky.social
#AKillerStory, docuseries, just started in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#Criptober #documentary #MurderMystery #ForTinu #TrueCrime #spoonies #NEISvoid #mecfs #DisabilityCommunity
A Killer Story series poster
November 1, 2026 at 8:13 PM
spooniechels.bsky.social
Did not make good physical choices today so far (as in, haven't moved enough), and my back is yelling at me. Hopefully Krav will help. #chronicpain #spoonie #neisvoid
November 4, 2026 at 11:14 PM
untonuggan.myatproto.social
Ninth circle of medical bureaucracy hell:

Website - call this number to set up your pre operative interview

Phone recording - do NOT use this number to set up a pre op interview. Someone will call you

MyChart - your pre op questionairre is overdue! Click here to complete

#NEISvoid
November 2, 2026 at 6:56 PM
chronicloaf.bsky.social
Hop into the #ChronicLoaf stream for a dance movie double feature

#BestoftheBest is playing now and up next we're watching the movie #10Dance

mzelo.com/app/rooms/ch...

#WeedyWednesday #NEISvoid #mecfs #DisCo #TinusFavoriteTings #spoonie #cannabiscommunity #lgbtqiaplusrepresentation
Best of the Best movie poster 10Dance movie poster
November 5, 2026 at 12:05 AM
tyrotcm.bsky.social
Got the drugs just right and slept well (I typically can't sleep through the night and have to nap a lot), but I still woke up exhausted. #NEISVoid
November 4, 2026 at 3:51 PM
chronicloaf.bsky.social
#Charmed is playing in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#insomnia #neisvoid #ChronicPain #ForTinu #spoonie #cannabisculture #mecfs #DisCo #DisabilityCommunity #longcovid #autism
Charmed season two poster
November 2, 2026 at 10:04 AM
pumpkinstars.bsky.social
Assistive tech to get the Tobii eye tracker to work on Macs

lots of disclaimers here, so please read the thread

but yay accessibility!

#NEISvoid
coolhand.bsky.social Luke Ontario @coolhand.bsky.social · 1d
My day job is building assistive tech for motor and communication disorders, and once I was director of PM at an eye tracking company.

I’ve been asked several times on here recently for a way to use those trackers to control Macs, so I put a tool together. This will flash the firmware from OSX.
GitHub - lukeslp/eye-tracker-5-mac: Notes and tools for activating and using a Tobii Eye Tracker 5 on macOS
Notes and tools for activating and using a Tobii Eye Tracker 5 on macOS - lukeslp/eye-tracker-5-mac
github.com
November 4, 2026 at 6:22 AM
rivalconga.bsky.social
It's not yet 6am, and my day is basically done, because I cleaned the sink, and my POTS body is now on strike until certain conditions are met. #NEISvoid
November 3, 2026 at 11:49 AM
achronicvoice.com
"The cruel irony? Many of us have heard “you must be your own #advocate ” from #healthcare professionals who don’t realise they’re handing us yet another exhausting #responsibility " (Understanding #DecisionFatigue in #ChronicIllness): buff.ly/vLPvvVZ

by @remotetherapy.space
#disability #NEisVoid
Understanding Decision Fatigue in Chronic Illness
Welcome to this week’s post!
buff.ly
November 3, 2026 at 5:30 AM
chronicloaf.bsky.social
As promised I'll be running a #PatrickStewartMemorialStream this week in the #ChronicLoaf stream

Today we'll spend #AnimeMonday watching some of Stewart's animated work. And there's a lot of it!

mzelo.com/app/rooms/ch...

#RIPPatrickStewart #spoonies #NEISvoid #TinusFavoriteTings #mecfs #DisCo
Patrick Stewart voice roles
November 2, 2026 at 8:18 PM
dazerla.bsky.social
Oh that's just great! Everyone be careful not to get glutened.

#allergies #Disability #NEISVoid #GlutenIntolerance

www.theguardian.com/food/2026/no...
Snap and crackle but no pop: Rice Krispies reformulated due to lack of rice
Kellogg’s substitutes ingredient with rice flour, as climate crisis affects availability of some grains
www.theguardian.com
November 4, 2026 at 5:47 AM
redrocket.bsky.social
#Neuropathy this might help someone in #neisvoid

Things they don't tell you when you are diagnosed but should
November 4, 2026 at 11:39 AM
achronicvoice.com
“People assumed someone else was checking in on me, so very few did. Months of avoidance turned to years. Eventually, the party went on & my #illness was the bad smell in the room noticed only by me.”: buff.ly/fji1J5L

via @thesicktimes.org
#LongHauler #ChronicIllness #disabled #NEisVoid #LongCOVID
You know someone with Long COVID. They need you to ask about it genuinely. - The Sick Times
If community-building is a bulwark against autocracy, then asking after one another might be a good place to start.
buff.ly
November 3, 2026 at 1:31 PM