Everyone in the #NEISvoid, let's welcome Beth Dobbin to Bsky:
Hi everyone, I’m new to Bluesky but we’ve been working on something 🙏🏼 I’ve written a second letter to Andy Burnham, alongside 360 sports people, to urge him to meet with me and fund research into my much neglected health issue which impacts millions of others.
November 3, 2026 at 12:06 PM
Everyone in the #NEISvoid, let's welcome Beth Dobbin to Bsky:
October 31, 2026 at 6:34 PM
The movie #Suzume is playing next in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#AnimeMonday #anime #animation #NEISvoid #mecfs #spoonie #ChronicPain #cannabiscommunity #medicalmarijuana
mzelo.com/app/rooms/ch...
#AnimeMonday #anime #animation #NEISvoid #mecfs #spoonie #ChronicPain #cannabiscommunity #medicalmarijuana
November 2, 2026 at 5:36 PM
The movie #Suzume is playing next in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#AnimeMonday #anime #animation #NEISvoid #mecfs #spoonie #ChronicPain #cannabiscommunity #medicalmarijuana
mzelo.com/app/rooms/ch...
#AnimeMonday #anime #animation #NEISvoid #mecfs #spoonie #ChronicPain #cannabiscommunity #medicalmarijuana
#ChickenLittle is playing in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#RIPPatrickStewart #MemorialStream #ForTinu #AnimeMonday #animation #neisvoid #mecfs #DisCo #disability #longcovid #ChronicPain
mzelo.com/app/rooms/ch...
#RIPPatrickStewart #MemorialStream #ForTinu #AnimeMonday #animation #neisvoid #mecfs #DisCo #disability #longcovid #ChronicPain
November 2, 2026 at 8:41 PM
#AKillerStory, docuseries, just started in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#Criptober #documentary #MurderMystery #ForTinu #TrueCrime #spoonies #NEISvoid #mecfs #DisabilityCommunity
mzelo.com/app/rooms/ch...
#Criptober #documentary #MurderMystery #ForTinu #TrueCrime #spoonies #NEISvoid #mecfs #DisabilityCommunity
November 1, 2026 at 8:13 PM
#AKillerStory, docuseries, just started in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#Criptober #documentary #MurderMystery #ForTinu #TrueCrime #spoonies #NEISvoid #mecfs #DisabilityCommunity
mzelo.com/app/rooms/ch...
#Criptober #documentary #MurderMystery #ForTinu #TrueCrime #spoonies #NEISvoid #mecfs #DisabilityCommunity
"The Emoji Movie" just started in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#AnimeMonday #RIPPatrickStewart #DisCo #animation #neisvoid #mecfs #ForTinu #cannabisculture #MemorialStream
mzelo.com/app/rooms/ch...
#AnimeMonday #RIPPatrickStewart #DisCo #animation #neisvoid #mecfs #ForTinu #cannabisculture #MemorialStream
November 3, 2026 at 12:25 AM
"The Emoji Movie" just started in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#AnimeMonday #RIPPatrickStewart #DisCo #animation #neisvoid #mecfs #ForTinu #cannabisculture #MemorialStream
mzelo.com/app/rooms/ch...
#AnimeMonday #RIPPatrickStewart #DisCo #animation #neisvoid #mecfs #ForTinu #cannabisculture #MemorialStream
Ninth circle of medical bureaucracy hell:
Website - call this number to set up your pre operative interview
Phone recording - do NOT use this number to set up a pre op interview. Someone will call you
MyChart - your pre op questionairre is overdue! Click here to complete
#NEISvoid
Website - call this number to set up your pre operative interview
Phone recording - do NOT use this number to set up a pre op interview. Someone will call you
MyChart - your pre op questionairre is overdue! Click here to complete
#NEISvoid
November 2, 2026 at 6:56 PM
Ninth circle of medical bureaucracy hell:
Website - call this number to set up your pre operative interview
Phone recording - do NOT use this number to set up a pre op interview. Someone will call you
MyChart - your pre op questionairre is overdue! Click here to complete
#NEISvoid
Website - call this number to set up your pre operative interview
Phone recording - do NOT use this number to set up a pre op interview. Someone will call you
MyChart - your pre op questionairre is overdue! Click here to complete
#NEISvoid
Cc #NEISvoid
We want to hear from women with autoimmune conditions who received an incorrect or delayed diagnosis
Women: was your autoimmune condition misdiagnosed?
www.theguardian.com
October 28, 2026 at 4:08 AM
Cc #NEISvoid
#Charmed is playing in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#insomnia #neisvoid #ChronicPain #ForTinu #spoonie #cannabisculture #mecfs #DisCo #DisabilityCommunity #longcovid #autism
mzelo.com/app/rooms/ch...
#insomnia #neisvoid #ChronicPain #ForTinu #spoonie #cannabisculture #mecfs #DisCo #DisabilityCommunity #longcovid #autism
November 2, 2026 at 10:04 AM
It's not yet 6am, and my day is basically done, because I cleaned the sink, and my POTS body is now on strike until certain conditions are met. #NEISvoid
November 3, 2026 at 11:49 AM
It's not yet 6am, and my day is basically done, because I cleaned the sink, and my POTS body is now on strike until certain conditions are met. #NEISvoid
"The cruel irony? Many of us have heard “you must be your own #advocate ” from #healthcare professionals who don’t realise they’re handing us yet another exhausting #responsibility " (Understanding #DecisionFatigue in #ChronicIllness): buff.ly/vLPvvVZ
by @remotetherapy.space
#disability #NEisVoid
by @remotetherapy.space
#disability #NEisVoid
Understanding Decision Fatigue in Chronic Illness
Welcome to this week’s post!
buff.ly
November 3, 2026 at 5:30 AM
"The cruel irony? Many of us have heard “you must be your own #advocate ” from #healthcare professionals who don’t realise they’re handing us yet another exhausting #responsibility " (Understanding #DecisionFatigue in #ChronicIllness): buff.ly/vLPvvVZ
by @remotetherapy.space
#disability #NEisVoid
by @remotetherapy.space
#disability #NEisVoid
[Medical BS]
I am glad don't have to explain chronic illnesses like POTS and MCAS to my doctors anymore
But also I'm...concerned about the number of doctors who have picked up frankly incorrect info about POTS and MCAS
(Not even just the "it's over diagnosed" bias)
#NEISvoid
I am glad don't have to explain chronic illnesses like POTS and MCAS to my doctors anymore
But also I'm...concerned about the number of doctors who have picked up frankly incorrect info about POTS and MCAS
(Not even just the "it's over diagnosed" bias)
#NEISvoid
October 30, 2026 at 3:27 PM
[Medical BS]
I am glad don't have to explain chronic illnesses like POTS and MCAS to my doctors anymore
But also I'm...concerned about the number of doctors who have picked up frankly incorrect info about POTS and MCAS
(Not even just the "it's over diagnosed" bias)
#NEISvoid
I am glad don't have to explain chronic illnesses like POTS and MCAS to my doctors anymore
But also I'm...concerned about the number of doctors who have picked up frankly incorrect info about POTS and MCAS
(Not even just the "it's over diagnosed" bias)
#NEISvoid
#TheMenu is playing in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#Criptober #HalloweenFreestyle #ForTinu #spookyseason #Mutation #HappyHalloween #DisabilityCommunity #NEISvoid
mzelo.com/app/rooms/ch...
#Criptober #HalloweenFreestyle #ForTinu #spookyseason #Mutation #HappyHalloween #DisabilityCommunity #NEISvoid
October 31, 2026 at 4:30 AM
As promised I'll be running a #PatrickStewartMemorialStream this week in the #ChronicLoaf stream
Today we'll spend #AnimeMonday watching some of Stewart's animated work. And there's a lot of it!
mzelo.com/app/rooms/ch...
#RIPPatrickStewart #spoonies #NEISvoid #TinusFavoriteTings #mecfs #DisCo
Today we'll spend #AnimeMonday watching some of Stewart's animated work. And there's a lot of it!
mzelo.com/app/rooms/ch...
#RIPPatrickStewart #spoonies #NEISvoid #TinusFavoriteTings #mecfs #DisCo
November 2, 2026 at 8:18 PM
As promised I'll be running a #PatrickStewartMemorialStream this week in the #ChronicLoaf stream
Today we'll spend #AnimeMonday watching some of Stewart's animated work. And there's a lot of it!
mzelo.com/app/rooms/ch...
#RIPPatrickStewart #spoonies #NEISvoid #TinusFavoriteTings #mecfs #DisCo
Today we'll spend #AnimeMonday watching some of Stewart's animated work. And there's a lot of it!
mzelo.com/app/rooms/ch...
#RIPPatrickStewart #spoonies #NEISvoid #TinusFavoriteTings #mecfs #DisCo
October 29, 2026 at 1:24 AM
#AmericanPsycho is playing in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#Criptober #spookyseason #MEcfs #ForTinu #Halloween2026 #spoonie #horror #NEISvoid #DisabilityCommunity
mzelo.com/app/rooms/ch...
#Criptober #spookyseason #MEcfs #ForTinu #Halloween2026 #spoonie #horror #NEISvoid #DisabilityCommunity
October 29, 2026 at 6:46 PM
taught another doctor how to pronounce "myalgic encephalomyelitis" today!
i like to think i'm contributing to medical providers' continuing education voluntarily! not because nobody knows, of course!
#mecfs #longcovid #chronicillness #neisvoid
i like to think i'm contributing to medical providers' continuing education voluntarily! not because nobody knows, of course!
#mecfs #longcovid #chronicillness #neisvoid
October 30, 2026 at 8:00 AM
taught another doctor how to pronounce "myalgic encephalomyelitis" today!
i like to think i'm contributing to medical providers' continuing education voluntarily! not because nobody knows, of course!
#mecfs #longcovid #chronicillness #neisvoid
i like to think i'm contributing to medical providers' continuing education voluntarily! not because nobody knows, of course!
#mecfs #longcovid #chronicillness #neisvoid
Protip: Benzonatate (Tessalon pearls) works better if used on a schedule rather than as needed. I've been on it twice daily for years; does a good job of keeping my chronic cough in check.
October 29, 2026 at 7:57 AM
“People assumed someone else was checking in on me, so very few did. Months of avoidance turned to years. Eventually, the party went on & my #illness was the bad smell in the room noticed only by me.”: buff.ly/fji1J5L
via @thesicktimes.org
#LongHauler #ChronicIllness #disabled #NEisVoid #LongCOVID
via @thesicktimes.org
#LongHauler #ChronicIllness #disabled #NEisVoid #LongCOVID
You know someone with Long COVID. They need you to ask about it genuinely. - The Sick Times
If community-building is a bulwark against autocracy, then asking after one another might be a good place to start.
buff.ly
November 3, 2026 at 1:31 PM
“People assumed someone else was checking in on me, so very few did. Months of avoidance turned to years. Eventually, the party went on & my #illness was the bad smell in the room noticed only by me.”: buff.ly/fji1J5L
via @thesicktimes.org
#LongHauler #ChronicIllness #disabled #NEisVoid #LongCOVID
via @thesicktimes.org
#LongHauler #ChronicIllness #disabled #NEisVoid #LongCOVID
It really sucks when it feels like your whole body is revolting, but you have to wait until January to be seen by someone about it.
#neisvoid
#neisvoid
November 1, 2026 at 8:51 PM
It really sucks when it feels like your whole body is revolting, but you have to wait until January to be seen by someone about it.
#neisvoid
#neisvoid
"I kept hoping for better days to come because how unfortunate could 1 really be? There had to be a #RockBottom & then u climbed back up... isn’t that how it’s supposed to work? Aren’t u supposed to emerge a hero after an ordeal?": buff.ly/FGfm6ia
#MondayBlogs #disability #NEisVoid #ChronicPain
#MondayBlogs #disability #NEisVoid #ChronicPain
November 3, 2026 at 4:01 AM
"I kept hoping for better days to come because how unfortunate could 1 really be? There had to be a #RockBottom & then u climbed back up... isn’t that how it’s supposed to work? Aren’t u supposed to emerge a hero after an ordeal?": buff.ly/FGfm6ia
#MondayBlogs #disability #NEisVoid #ChronicPain
#MondayBlogs #disability #NEisVoid #ChronicPain
"Not only do we experience pain and fatigue more often than most, but we’re frequently running on just a few hours’ sleep as a result of the beast we call painsomnia." themighty.com/topic/chroni...
#ChronicIllness #ChronicPain #Painsomnia #NEISVoid
#ChronicIllness #ChronicPain #Painsomnia #NEISVoid
Inside the Mind of Someone Kept Up at Night by Chronic Pain
She wants you to know what it feels like.
themighty.com
November 2, 2026 at 6:03 PM
"Not only do we experience pain and fatigue more often than most, but we’re frequently running on just a few hours’ sleep as a result of the beast we call painsomnia." themighty.com/topic/chroni...
#ChronicIllness #ChronicPain #Painsomnia #NEISVoid
#ChronicIllness #ChronicPain #Painsomnia #NEISVoid
[food]
so a thing that really fucked over my ability to cook for *checks notes* years is : meal planning
the way it's typically described in books and whatnot just does not work for my chronically unpredictable body
plus it just doesn't work for my flavor of neurodivergence, either
#NEISvoid
so a thing that really fucked over my ability to cook for *checks notes* years is : meal planning
the way it's typically described in books and whatnot just does not work for my chronically unpredictable body
plus it just doesn't work for my flavor of neurodivergence, either
#NEISvoid
October 29, 2026 at 2:08 PM
[food]
so a thing that really fucked over my ability to cook for *checks notes* years is : meal planning
the way it's typically described in books and whatnot just does not work for my chronically unpredictable body
plus it just doesn't work for my flavor of neurodivergence, either
#NEISvoid
so a thing that really fucked over my ability to cook for *checks notes* years is : meal planning
the way it's typically described in books and whatnot just does not work for my chronically unpredictable body
plus it just doesn't work for my flavor of neurodivergence, either
#NEISvoid
#Scream3 and #Scream4 are playing next in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#Criptober #HalloweenFreestyle #horror #neisvoid #mecfs #DisCo #ForTinu #spoonie #ChronicPain #longcovid #disability
mzelo.com/app/rooms/ch...
#Criptober #HalloweenFreestyle #horror #neisvoid #mecfs #DisCo #ForTinu #spoonie #ChronicPain #longcovid #disability
October 29, 2026 at 9:42 PM
#Scream3 and #Scream4 are playing next in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#Criptober #HalloweenFreestyle #horror #neisvoid #mecfs #DisCo #ForTinu #spoonie #ChronicPain #longcovid #disability
mzelo.com/app/rooms/ch...
#Criptober #HalloweenFreestyle #horror #neisvoid #mecfs #DisCo #ForTinu #spoonie #ChronicPain #longcovid #disability