#ME/CFS is....
... Matschkopf, Schmerzen & Behinderung.
Aber der Mensch dahinter ist immer noch 'ne Perle!

Kampagne #mecfsis zum #MECFSAWARENESSmonth
#openmedicinefoundation @openmedf.bsky.social

Completed @OpenMedicineFoundation

This is a badly worded questionnaire for #pwME or #LC

When you get to the section on their idea of the different types of PEM crashes TAKE A SCREENSHOT OF THE 5 DIFFERENT TYPES. Otherwise you’ll have no idea what they’re referring to later in the questionnaire

📢 Every ME/CFS patient deserves informed care. That’s why @openmedicinefoundation(OMF) & BHC created MERC — training clinicians & building tools to close the gap.
May 9: Clinical Care Guide drops!
💙 loom.ly/LpBtE5w
#MERC #MECFS #LongCOVID

MassME is proud to sign on to this letter encouraging subgroup tracking and analysis in the NIH RECOVER TLC clinical trials for Long COVID.
massmecfs.org/advocacy/nat...

#massmecfs #MEAction #SolveMe #openmedicinefoundation #batemanhornecenter #renegaderesearch #redefiningmecfs #corecommunity

#MyalgicE #MEPEM #LongCovid @OpenMedicineFoundation
"MAJOR OMF SUPPORTED #RESEARCH INITIATIVES
With oversight from OMF’s Boards of Directors and Scientific Advisory Board, the following research projects further OMF’s Strategic Goals to improve the diagnosis and treatment of ME/CFS and LongCOVID."

MERC has taught 15K+ providers in 89 countries—changing how ME/CFS, Long COVID & IACCs are diagnosed and treated. 🌍🩺

🧰 Our new Clinical Care Guide launches May 9!
🔗 MERC info: loom.ly/nA_3REM
💙 Donate Now: loom.ly/KiU4n_4
@openmedicinefoundation(OMF)
#MERC #MECFS #LongCOVID

Ron Davis, PhD, discusses a groundbreaking new method developed by his team to assess neutrophils in ME/CFS patients.
#MECFS #OpenMedicineFoundation

📺 Vous pouvez visionner l’intervention du Dr Systrom ici 👉 www.youtube.com/watch?v=YIq1...

#OpenMedicineFoundation #MillionsMissingFrance #EM