Merci à Pauline Oustric et à toutes les personnes impliquées dans cette démarche pour avoir porté cette expérience au niveau européen.
#LongCovid #Recherche #PPI #PatientPartners #PatientEngagement #LongCOVIDResearch #Europe
#LongCovid #Recherche #PPI #PatientPartners #PatientEngagement #LongCOVIDResearch #Europe
September 26, 2026 at 11:02 AM
Merci à Pauline Oustric et à toutes les personnes impliquées dans cette démarche pour avoir porté cette expérience au niveau européen.
#LongCovid #Recherche #PPI #PatientPartners #PatientEngagement #LongCOVIDResearch #Europe
#LongCovid #Recherche #PPI #PatientPartners #PatientEngagement #LongCOVIDResearch #Europe
Just transferred over from X. Looking to reconnect with people who are interested in #PatientPartners #Researchers #PatientEngagement #OrganDonation #Transplant #Healthcare #IntegratedCare #PeopleCenteredCare #DigitalHealth #KidneyDisease #LiverDisease #Ostomies #SocialDeterminantsofHealth
November 25, 2024 at 2:46 AM
Just transferred over from X. Looking to reconnect with people who are interested in #PatientPartners #Researchers #PatientEngagement #OrganDonation #Transplant #Healthcare #IntegratedCare #PeopleCenteredCare #DigitalHealth #KidneyDisease #LiverDisease #Ostomies #SocialDeterminantsofHealth
Hey research teams/orgs that engage #PatientPartners! Please build in a very large chunk of time at your 1st team or other type of mtg for intros. This is really key to starting to build your relationship and trust. #PatientEngagement #ConsumerInvolvement #PPI /1
December 12, 2024 at 7:01 PM
Hey research teams/orgs that engage #PatientPartners! Please build in a very large chunk of time at your 1st team or other type of mtg for intros. This is really key to starting to build your relationship and trust. #PatientEngagement #ConsumerInvolvement #PPI /1
👋 Welcome to PAN on BlueSky!
We’re the Patient Advisors Network — a community of patient and caregiver partners across Canada working to make healthcare more inclusive, equitable, and people-centered.
Follow us for info on #PatientPartners #healthcare #PatientExperience
We’re the Patient Advisors Network — a community of patient and caregiver partners across Canada working to make healthcare more inclusive, equitable, and people-centered.
Follow us for info on #PatientPartners #healthcare #PatientExperience
April 7, 2025 at 2:22 PM
👋 Welcome to PAN on BlueSky!
We’re the Patient Advisors Network — a community of patient and caregiver partners across Canada working to make healthcare more inclusive, equitable, and people-centered.
Follow us for info on #PatientPartners #healthcare #PatientExperience
We’re the Patient Advisors Network — a community of patient and caregiver partners across Canada working to make healthcare more inclusive, equitable, and people-centered.
Follow us for info on #PatientPartners #healthcare #PatientExperience
If we can get together, there is nothing we cannot achieve.
One day, we will eradicate this disease called cancer
#PublicEngagement #Cancer #Advocacy #Immigration #Immigrants #Science #InternationalScientists #Hope #Dreams #PatientPartners #NewfoundlandAndLabrador
One day, we will eradicate this disease called cancer
#PublicEngagement #Cancer #Advocacy #Immigration #Immigrants #Science #InternationalScientists #Hope #Dreams #PatientPartners #NewfoundlandAndLabrador
July 13, 2025 at 2:01 PM
If we can get together, there is nothing we cannot achieve.
One day, we will eradicate this disease called cancer
#PublicEngagement #Cancer #Advocacy #Immigration #Immigrants #Science #InternationalScientists #Hope #Dreams #PatientPartners #NewfoundlandAndLabrador
One day, we will eradicate this disease called cancer
#PublicEngagement #Cancer #Advocacy #Immigration #Immigrants #Science #InternationalScientists #Hope #Dreams #PatientPartners #NewfoundlandAndLabrador
Very humbled and excited to bring this recognition to our province❤️
Thanking everyone I worked with, especially patient partners who made our work possible👍❤️
www.capo.ca/CAPO-Innovat...
#NewfoundlandAndLabardor #AtlanticCanada #Innovation #Patientpartners
Thanking everyone I worked with, especially patient partners who made our work possible👍❤️
www.capo.ca/CAPO-Innovat...
#NewfoundlandAndLabardor #AtlanticCanada #Innovation #Patientpartners
www.capo.ca
May 12, 2026 at 11:57 AM
Very humbled and excited to bring this recognition to our province❤️
Thanking everyone I worked with, especially patient partners who made our work possible👍❤️
www.capo.ca/CAPO-Innovat...
#NewfoundlandAndLabardor #AtlanticCanada #Innovation #Patientpartners
Thanking everyone I worked with, especially patient partners who made our work possible👍❤️
www.capo.ca/CAPO-Innovat...
#NewfoundlandAndLabardor #AtlanticCanada #Innovation #Patientpartners
📢 Weekend reading on power dynamics in #PatientEngagement in #Research. Preprint (that means not peer reviewed yet) from our team that includes #PatientPartners and research allies and is about 4 themes concerning power on #PPI teams - osf.io/preprints/os... A bit of a 🧵 for you .../1
February 14, 2025 at 4:00 PM
📢 Weekend reading on power dynamics in #PatientEngagement in #Research. Preprint (that means not peer reviewed yet) from our team that includes #PatientPartners and research allies and is about 4 themes concerning power on #PPI teams - osf.io/preprints/os... A bit of a 🧵 for you .../1
"It is time for this mindset to shift from treating females as passive research participants to active collaborators."
Read the newest blog today: ow.ly/g89v50ZhwSv
#womenshealth #patientpartners #patientorientedresearch
Read the newest blog today: ow.ly/g89v50ZhwSv
#womenshealth #patientpartners #patientorientedresearch
June 26, 2026 at 4:12 PM
"It is time for this mindset to shift from treating females as passive research participants to active collaborators."
Read the newest blog today: ow.ly/g89v50ZhwSv
#womenshealth #patientpartners #patientorientedresearch
Read the newest blog today: ow.ly/g89v50ZhwSv
#womenshealth #patientpartners #patientorientedresearch
I agree Linda - how can #PatientPartners support each other? Are there mentoring programs for them to learn from each other? I would love to hear from anyone who has experience with mentoring #PatientPartners!
December 14, 2024 at 4:10 PM
I agree Linda - how can #PatientPartners support each other? Are there mentoring programs for them to learn from each other? I would love to hear from anyone who has experience with mentoring #PatientPartners!
Interested in reading scientific papers but not sure where to start or what the parts of a paper are? We've co-created a resource with #PatientPartners for you! See our blog pxphub.org/how-to-read-... and the resource laid out like a scientific paper pxphub.org/wp-content/u... /1 #PatientEngagement
How to Read a Scientific Paper - PxP
Co-Created by Dawn Richards and Jim Kempster with input from CIHR-IMHA PERA members Graphics created by Tianna Magel Scientific […]
pxphub.org
June 10, 2025 at 12:52 PM
Interested in reading scientific papers but not sure where to start or what the parts of a paper are? We've co-created a resource with #PatientPartners for you! See our blog pxphub.org/how-to-read-... and the resource laid out like a scientific paper pxphub.org/wp-content/u... /1 #PatientEngagement
Listen to Judy, Stephanie, and Tracy talking about patient voice in cancer ❤️
-How does it look?
-Does it work?
-What needs to change?
-How can we make scientist-healthcare-public partnerships better?
#PatientVoice #PublicOutreach #PatientPartners
open.spotify.com/episode/6cna...
-How does it look?
-Does it work?
-What needs to change?
-How can we make scientist-healthcare-public partnerships better?
#PatientVoice #PublicOutreach #PatientPartners
open.spotify.com/episode/6cna...
Episode 29 - Patient voice in cancer
Public Interest Group on Cancer Research · Episode
open.spotify.com
July 17, 2026 at 12:10 PM
Listen to Judy, Stephanie, and Tracy talking about patient voice in cancer ❤️
-How does it look?
-Does it work?
-What needs to change?
-How can we make scientist-healthcare-public partnerships better?
#PatientVoice #PublicOutreach #PatientPartners
open.spotify.com/episode/6cna...
-How does it look?
-Does it work?
-What needs to change?
-How can we make scientist-healthcare-public partnerships better?
#PatientVoice #PublicOutreach #PatientPartners
open.spotify.com/episode/6cna...
⭐Webinar reminder! Join us tomorrow, February 5th.
Find out how our panelists have navigated working as part of a research team, including what supports and facilitators they have asked for or created for themselves.
#PatientEngagement #PatientPartners #PPI #PxP25
Find out how our panelists have navigated working as part of a research team, including what supports and facilitators they have asked for or created for themselves.
#PatientEngagement #PatientPartners #PPI #PxP25
Sign up for our webinar on Patient Partner Perspectives on Barriers & Facilitators to Patient Engagement in Research.
📅Date: February 5, 2025
⏰ Time: 2:30 PM PT / 5:30 PM ET / 10:30 PM UTC
🔗https://zoom.us/webinar/register/WN_v7Cp_QzFTWSzFUajeUQBYg#/registration
#PatientEngagement #PxP
📅Date: February 5, 2025
⏰ Time: 2:30 PM PT / 5:30 PM ET / 10:30 PM UTC
🔗https://zoom.us/webinar/register/WN_v7Cp_QzFTWSzFUajeUQBYg#/registration
#PatientEngagement #PxP
February 4, 2025 at 4:26 PM
⭐Webinar reminder! Join us tomorrow, February 5th.
Find out how our panelists have navigated working as part of a research team, including what supports and facilitators they have asked for or created for themselves.
#PatientEngagement #PatientPartners #PPI #PxP25
Find out how our panelists have navigated working as part of a research team, including what supports and facilitators they have asked for or created for themselves.
#PatientEngagement #PatientPartners #PPI #PxP25
Take a moment and read our report back to community as the Atlantic Cancer Consortium Patient Advisory Committee 💓
It has been an honour to represent and work for the benefit of Atlantic Canadians, particularly those who were affected by cancer
www.saltwire.com/newfoundland...
#PatientPartners
It has been an honour to represent and work for the benefit of Atlantic Canadians, particularly those who were affected by cancer
www.saltwire.com/newfoundland...
#PatientPartners
LETTER: Science borrows a page from art: farewell message from the Atlantic Cancer Consortium Patient Advisory Committee
Farewell message from the Atlantic Cancer Consortium Patient Advisory Committee
www.saltwire.com
March 27, 2026 at 6:22 PM
Take a moment and read our report back to community as the Atlantic Cancer Consortium Patient Advisory Committee 💓
It has been an honour to represent and work for the benefit of Atlantic Canadians, particularly those who were affected by cancer
www.saltwire.com/newfoundland...
#PatientPartners
It has been an honour to represent and work for the benefit of Atlantic Canadians, particularly those who were affected by cancer
www.saltwire.com/newfoundland...
#PatientPartners
This is fantastic! When #PatientPartners engage in #PPI #PPIR, they want to do coproduction work, but sometimes their full-time job of being a #patient needs to take all of the space. Be mindful of that, we are doing our best! ❤️
(Thank you @kellieocallaghan.bsky.social for this lovely piece!)
(Thank you @kellieocallaghan.bsky.social for this lovely piece!)
When Life Happens:
Being Vulnerable About Your Reality As A Research Partner
💭Rae Martens
tinyurl.com/yrxy2vf4
#PatientExperience #LivedExperience
#CommunityEngagement #Health #RuralHealth #RegionalHealth
Being Vulnerable About Your Reality As A Research Partner
💭Rae Martens
tinyurl.com/yrxy2vf4
#PatientExperience #LivedExperience
#CommunityEngagement #Health #RuralHealth #RegionalHealth
When Life Happens: Being Vulnerable About Your Reality As A Research Partner
Rae Martens, FER Training Program Knowledge Broker
tinyurl.com
November 20, 2024 at 7:12 AM
This is fantastic! When #PatientPartners engage in #PPI #PPIR, they want to do coproduction work, but sometimes their full-time job of being a #patient needs to take all of the space. Be mindful of that, we are doing our best! ❤️
(Thank you @kellieocallaghan.bsky.social for this lovely piece!)
(Thank you @kellieocallaghan.bsky.social for this lovely piece!)
Take a look at our conversation😊
www.youtube.com/watch?v=oJJo...
#PublicInterestGroupOnCancerResearch #NewfoundlandAndLabrador #PEI #PatientVoice #Cancer #CancerCare #HealthCare #CancerResearch #PublicOutreach #PatientPartners #Podcasting
(PS: podcast will air on Friday)
www.youtube.com/watch?v=oJJo...
#PublicInterestGroupOnCancerResearch #NewfoundlandAndLabrador #PEI #PatientVoice #Cancer #CancerCare #HealthCare #CancerResearch #PublicOutreach #PatientPartners #Podcasting
(PS: podcast will air on Friday)
Episode 29 - Patient voice in cancer
YouTube video by svt svs
www.youtube.com
July 15, 2026 at 6:09 PM
Take a look at our conversation😊
www.youtube.com/watch?v=oJJo...
#PublicInterestGroupOnCancerResearch #NewfoundlandAndLabrador #PEI #PatientVoice #Cancer #CancerCare #HealthCare #CancerResearch #PublicOutreach #PatientPartners #Podcasting
(PS: podcast will air on Friday)
www.youtube.com/watch?v=oJJo...
#PublicInterestGroupOnCancerResearch #NewfoundlandAndLabrador #PEI #PatientVoice #Cancer #CancerCare #HealthCare #CancerResearch #PublicOutreach #PatientPartners #Podcasting
(PS: podcast will air on Friday)
That sounds familiar! #PatientPartners
October 5, 2025 at 7:13 PM
That sounds familiar! #PatientPartners
My colleague Dr. Holly Etchegary talks to Jason Wiseman and Janine-Taylor Cutting about how patients and family members influence the health-related research
take a look ❤️
#NewfoundlandAndLabrador #PatientOrientedResearch #Podcasting #Advocacy #PatientPartners
creators.spotify.com/pod/show/sev...
take a look ❤️
#NewfoundlandAndLabrador #PatientOrientedResearch #Podcasting #Advocacy #PatientPartners
creators.spotify.com/pod/show/sev...
Episode 24 – Patient influencers of research by Public Interest Group on Cancer Research
Welcome to our new podcast episode! Our guest today is Dr. Holly Etchegary!Holly is one of the founders of the Public Interest Group on Cancer Research, an Associate Professor at Memorial University, ...
creators.spotify.com
May 17, 2025 at 10:43 AM
My colleague Dr. Holly Etchegary talks to Jason Wiseman and Janine-Taylor Cutting about how patients and family members influence the health-related research
take a look ❤️
#NewfoundlandAndLabrador #PatientOrientedResearch #Podcasting #Advocacy #PatientPartners
creators.spotify.com/pod/show/sev...
take a look ❤️
#NewfoundlandAndLabrador #PatientOrientedResearch #Podcasting #Advocacy #PatientPartners
creators.spotify.com/pod/show/sev...
Health research study: "FActors influencing faMIly pLanning with an Inflammatory ARthritis". Preconception care, family planning, rheumatoid, psoriatic, juvenile idiopathic arthritis and axial spondyloarthritis. #RA #PsA #JIA #AxSpA - #CoProduction #CoDesign #PatientPartners #HealthResearch
November 19, 2024 at 9:14 PM
Health research study: "FActors influencing faMIly pLanning with an Inflammatory ARthritis". Preconception care, family planning, rheumatoid, psoriatic, juvenile idiopathic arthritis and axial spondyloarthritis. #RA #PsA #JIA #AxSpA - #CoProduction #CoDesign #PatientPartners #HealthResearch
This is a must read for #patientpartners #researchers
“Compensation policies must be transparent and consistently applied across all research programmes, eliminating the burden on patient partners to negotiate their worth”
“Compensation policies must be transparent and consistently applied across all research programmes, eliminating the burden on patient partners to negotiate their worth”
Patient partner research has a compensation crisis. Lived experience is central to meaningful research, but participants face a labyrinth of institutional barriers to fair payment -- if it's offered at all, by @amyprice.bsky.social @dawnrichards.bsky.social www.bmj.com/content/388/... via @bmj.com
The BMJ: browse by volume/issue, medical specialty or clinical topic
Full archive, searchable by print issue, specialty, clinical & non-clinical topic. See also for podcasts, videos, infographics, blogs, reader comments, print cover images
www.bmj.com
March 16, 2025 at 9:11 AM
This is a must read for #patientpartners #researchers
“Compensation policies must be transparent and consistently applied across all research programmes, eliminating the burden on patient partners to negotiate their worth”
“Compensation policies must be transparent and consistently applied across all research programmes, eliminating the burden on patient partners to negotiate their worth”
This is a hot topic in #Switzerland. It's difficult to get proper contracts & ethical+sustainable remuneration. We #patientpartners #PPIR are trying very hard to get this recognised.
Expliciting roles & tasks is very important: a junior #patientpartner does not know/do everything a senior does.
Expliciting roles & tasks is very important: a junior #patientpartner does not know/do everything a senior does.
November 21, 2024 at 2:00 PM
This is a hot topic in #Switzerland. It's difficult to get proper contracts & ethical+sustainable remuneration. We #patientpartners #PPIR are trying very hard to get this recognised.
Expliciting roles & tasks is very important: a junior #patientpartner does not know/do everything a senior does.
Expliciting roles & tasks is very important: a junior #patientpartner does not know/do everything a senior does.
🎤 Take a look at the exciting keynote panel opening #eHealth2025! Pleased that the patient perspective is included with the participation of PAN member, @amaybee.bsky.social
📍June 1–3 | Toronto
💻 Canada’s leading digital health event
🔗 e-healthconference.com/e-health-2025
#patientpartners
📍June 1–3 | Toronto
💻 Canada’s leading digital health event
🔗 e-healthconference.com/e-health-2025
#patientpartners
April 23, 2025 at 12:29 PM
🎤 Take a look at the exciting keynote panel opening #eHealth2025! Pleased that the patient perspective is included with the participation of PAN member, @amaybee.bsky.social
📍June 1–3 | Toronto
💻 Canada’s leading digital health event
🔗 e-healthconference.com/e-health-2025
#patientpartners
📍June 1–3 | Toronto
💻 Canada’s leading digital health event
🔗 e-healthconference.com/e-health-2025
#patientpartners
My next manuscript is about how university, funder or federal government policies or practices prevent (or make it harder) to compensate public partners
Stay tuned 😠
#PublicEngagement #Compensation #PatientPartners #Advocacy #Inequity #WhatIsWrongWithUs
Stay tuned 😠
#PublicEngagement #Compensation #PatientPartners #Advocacy #Inequity #WhatIsWrongWithUs
a person is holding a wallet with a picture of a man inside of it .
ALT: a person is holding a wallet with a picture of a man inside of it .
media.tenor.com
August 28, 2025 at 4:08 PM
My next manuscript is about how university, funder or federal government policies or practices prevent (or make it harder) to compensate public partners
Stay tuned 😠
#PublicEngagement #Compensation #PatientPartners #Advocacy #Inequity #WhatIsWrongWithUs
Stay tuned 😠
#PublicEngagement #Compensation #PatientPartners #Advocacy #Inequity #WhatIsWrongWithUs
* Studies that have #patientpartners within their steering committee create trust within the study. Patient participants who know that there are patient partners on the steering committee will be more inclined to participate because the study has been "patient vetted".
November 18, 2024 at 1:34 PM
* Studies that have #patientpartners within their steering committee create trust within the study. Patient participants who know that there are patient partners on the steering committee will be more inclined to participate because the study has been "patient vetted".
📢 Calling all #patientpartners #patientadvocates #patientchampions Let's reconnect here and rebuild the community and conversations!
#healthcare #coproduction #collaboration #letpatientshelp #PPI #PPIR #patientandpublicinvolvementinresearch #research #digitalhealth
☺️🧩🤝
#healthcare #coproduction #collaboration #letpatientshelp #PPI #PPIR #patientandpublicinvolvementinresearch #research #digitalhealth
☺️🧩🤝
November 18, 2024 at 8:06 AM
📢 Calling all #patientpartners #patientadvocates #patientchampions Let's reconnect here and rebuild the community and conversations!
#healthcare #coproduction #collaboration #letpatientshelp #PPI #PPIR #patientandpublicinvolvementinresearch #research #digitalhealth
☺️🧩🤝
#healthcare #coproduction #collaboration #letpatientshelp #PPI #PPIR #patientandpublicinvolvementinresearch #research #digitalhealth
☺️🧩🤝
We would like to invite you to our study, if you ever collaborated (or wanted to collaborate) with researchers in health related initiatives or studies
For information, please see: strength-in-community.ca/2026/02/06/n...
#NewfoundlandAndLabrador #PatientPartners
For information, please see: strength-in-community.ca/2026/02/06/n...
#NewfoundlandAndLabrador #PatientPartners
New study on patient-partner experience is recruiting!
We are conducting a pilot study on patient and public partnerships in Newfoundland and Labrador! Please see the poster below – if you are interested in participating in this study, please pro…
strength-in-community.ca
April 27, 2026 at 11:15 AM
We would like to invite you to our study, if you ever collaborated (or wanted to collaborate) with researchers in health related initiatives or studies
For information, please see: strength-in-community.ca/2026/02/06/n...
#NewfoundlandAndLabrador #PatientPartners
For information, please see: strength-in-community.ca/2026/02/06/n...
#NewfoundlandAndLabrador #PatientPartners