Christine Bienvenu
@suissepatient.bsky.social
Swiss🇨🇭Montrealer🇨🇦 #ePatient #ASD/Aspie #ADHD Mom💙 #PatientPartner Université Patients @USorbonne graduate #BCSM #cancerdusein #TheWalkingGallery jacket313 #impliquonslespatients! #letpatientshelp! #PatientsUseAI enseignement recherche🔬 #PPI #PPIR 🧩 @HE_Arc
Pinned
My thing: #patientadvocacy #patientpartnership #PPI #PPIR (patient&public involvement in #research) #coproduction #patientempowerment #letpatientshelp! 🧩
Started 15yrs ago on Twitter, when #patients got together to build #patientcommunities, mentor one another, find their peers & become #empowered.
Started 15yrs ago on Twitter, when #patients got together to build #patientcommunities, mentor one another, find their peers & become #empowered.
Reposted by Christine Bienvenu
Honored to co-author with @cvonraesfeld.bsky.social jopm.jmir.org/2026/1/e97972 @suissepatient.bsky.social @bengoldacre.bsky.social @patientled.bsky.social @lexfridman.bsky.social @hmkyale.bsky.social
Real-World Data Needs Real-World Doctors: When Automation Advances Faster Than Clinical Workflow
Health care is entering an era of unprecedented detection. Artificial intelligence (AI)–driven monitors and real-world data streams now identify clinical risks in minutes, promising a future of proact...
jopm.jmir.org
May 30, 2026 at 5:57 AM
Proud to have been part of this project #patientpartner #PPI and to share our publication.
"Comparative inpatient care of #cancer vs. non-cancer #patients in #Switzerland during the #COVID_19 lockdown: a nationwide interrupted time series analysis."
bmccancer.biomedcentral.com/articles/10....
"Comparative inpatient care of #cancer vs. non-cancer #patients in #Switzerland during the #COVID_19 lockdown: a nationwide interrupted time series analysis."
bmccancer.biomedcentral.com/articles/10....
Comparative inpatient care of cancer vs. non-cancer patients in Switzerland during the national COVID-19 lockdown: a nationwide interrupted time series analysis - BMC Cancer
Background The COVID-19 pandemic exerted unprecedented pressure on healthcare systems worldwide, leading governments and hospitals to postpone elective procedures to prioritize care for COVID-19 patie...
bmccancer.biomedcentral.com
March 27, 2025 at 5:40 PM
Proud to have been part of this project #patientpartner #PPI and to share our publication.
"Comparative inpatient care of #cancer vs. non-cancer #patients in #Switzerland during the #COVID_19 lockdown: a nationwide interrupted time series analysis."
bmccancer.biomedcentral.com/articles/10....
"Comparative inpatient care of #cancer vs. non-cancer #patients in #Switzerland during the #COVID_19 lockdown: a nationwide interrupted time series analysis."
bmccancer.biomedcentral.com/articles/10....
Reposted by Christine Bienvenu
Trump officials are trying to sneak around federal judges’ orders.
They could be held in civil contempt of court, which can include jail time and can’t be undone with a presidential pardon, according to @sbagen.bsky.social .
My latest for @theguardian.com
www.theguardian.com/us-news/2025...
They could be held in civil contempt of court, which can include jail time and can’t be undone with a presidential pardon, according to @sbagen.bsky.social .
My latest for @theguardian.com
www.theguardian.com/us-news/2025...
Trump halts medical research funding in apparent violation of judge’s order
Health department orders NIH to hold Federal Register submissions – critical step in process for funding studies
www.theguardian.com
February 23, 2025 at 5:17 PM
Trump officials are trying to sneak around federal judges’ orders.
They could be held in civil contempt of court, which can include jail time and can’t be undone with a presidential pardon, according to @sbagen.bsky.social .
My latest for @theguardian.com
www.theguardian.com/us-news/2025...
They could be held in civil contempt of court, which can include jail time and can’t be undone with a presidential pardon, according to @sbagen.bsky.social .
My latest for @theguardian.com
www.theguardian.com/us-news/2025...
In 2025... what a dark new world we're in. 😔
So.
It has officially happened. I have been officially let go from my position at CDC. I wasn’t a probationary employee. I had stellar performance reviews every year.
I’ll be ok. But please understand that many worked HARD to get into these positions and were doing great public health work.
It has officially happened. I have been officially let go from my position at CDC. I wasn’t a probationary employee. I had stellar performance reviews every year.
I’ll be ok. But please understand that many worked HARD to get into these positions and were doing great public health work.
February 21, 2025 at 9:57 PM
In 2025... what a dark new world we're in. 😔
#We seek #collaboration, not control!"
Great article by @epatientdave.bsky.social with helpful tips to create #partnership with #patients. #PatientsUseAI. So #HCPs, come join us! #patientpartners #collaboration #coproduction #LetPatientsHelp!
patientsuseai.substack.com/p/patientsus...
Great article by @epatientdave.bsky.social with helpful tips to create #partnership with #patients. #PatientsUseAI. So #HCPs, come join us! #patientpartners #collaboration #coproduction #LetPatientsHelp!
patientsuseai.substack.com/p/patientsus...
#PatientsUseAI: We seek collaboration, not control
AI’s potential to revolutionize healthcare dominates headlines and academic journals. But one critical voice is underrepresented: patients. By Gilles Frydman, pioneer (since the 1990s) of patient comm...
patientsuseai.substack.com
January 13, 2025 at 9:30 PM
#We seek #collaboration, not control!"
Great article by @epatientdave.bsky.social with helpful tips to create #partnership with #patients. #PatientsUseAI. So #HCPs, come join us! #patientpartners #collaboration #coproduction #LetPatientsHelp!
patientsuseai.substack.com/p/patientsus...
Great article by @epatientdave.bsky.social with helpful tips to create #partnership with #patients. #PatientsUseAI. So #HCPs, come join us! #patientpartners #collaboration #coproduction #LetPatientsHelp!
patientsuseai.substack.com/p/patientsus...
Que 2️⃣0️⃣2️⃣5️⃣ vous apporte le meilleur: santé, bonheur, amour, moments partagés, sérénité, rêves, accomplissements, joie de vivre, paix, légèreté, couleurs, magie, surprises, musique, projets, mystères, amitiés, ...
🌺🏵🌸🌼🎋🌻🪻⚘️
B✨️O🥂N🍾N🥳E❤️🍀A🐖N🎩N💟É🎊E🌝🍸2🎆0🎉2🌞5🕺💃B🌿I☮️S💜E😘S🌹🪻🌷💐🌻🌿🌼🌺
🌺🏵🌸🌼🎋🌻🪻⚘️
B✨️O🥂N🍾N🥳E❤️🍀A🐖N🎩N💟É🎊E🌝🍸2🎆0🎉2🌞5🕺💃B🌿I☮️S💜E😘S🌹🪻🌷💐🌻🌿🌼🌺
January 1, 2025 at 9:16 AM
Que 2️⃣0️⃣2️⃣5️⃣ vous apporte le meilleur: santé, bonheur, amour, moments partagés, sérénité, rêves, accomplissements, joie de vivre, paix, légèreté, couleurs, magie, surprises, musique, projets, mystères, amitiés, ...
🌺🏵🌸🌼🎋🌻🪻⚘️
B✨️O🥂N🍾N🥳E❤️🍀A🐖N🎩N💟É🎊E🌝🍸2🎆0🎉2🌞5🕺💃B🌿I☮️S💜E😘S🌹🪻🌷💐🌻🌿🌼🌺
🌺🏵🌸🌼🎋🌻🪻⚘️
B✨️O🥂N🍾N🥳E❤️🍀A🐖N🎩N💟É🎊E🌝🍸2🎆0🎉2🌞5🕺💃B🌿I☮️S💜E😘S🌹🪻🌷💐🌻🌿🌼🌺
Reposted by Christine Bienvenu
just blurted out in class "yes, you have to cite where you got your info. in a world in which lying loudly is the only thing that seems to get rewarded, citing your sources is an act of resistance" and folks, I really believe that.
December 19, 2024 at 3:35 PM
just blurted out in class "yes, you have to cite where you got your info. in a world in which lying loudly is the only thing that seems to get rewarded, citing your sources is an act of resistance" and folks, I really believe that.
Reposted by Christine Bienvenu
December 19, 2024 at 7:05 PM
Reposted by Christine Bienvenu
Reposted by Christine Bienvenu
On Thursday the 2024 issue of @theneweuropean.bsky.social comes out and they have given me the platform to explain why Gisèle Pelicot is my hero and how she radically changed the conversation about shame and sexual assault
It is my proudest writing.
app.theneweuropean.co.uk/2024/10/26/v...
It is my proudest writing.
app.theneweuropean.co.uk/2024/10/26/v...
December 10, 2024 at 10:43 PM
On Thursday the 2024 issue of @theneweuropean.bsky.social comes out and they have given me the platform to explain why Gisèle Pelicot is my hero and how she radically changed the conversation about shame and sexual assault
It is my proudest writing.
app.theneweuropean.co.uk/2024/10/26/v...
It is my proudest writing.
app.theneweuropean.co.uk/2024/10/26/v...
Reposted by Christine Bienvenu
“We share the same fight.”
Gisèle Pelicot pays tribute to other victims of sexual abuse after her husband & 50 other men were jailed for her rape.
Impossible to find the words to adequately describe this lady’s courage.
Unquestionably, irrefutably 2024’s Person of the Year.
Merci Madame.
Gisèle Pelicot pays tribute to other victims of sexual abuse after her husband & 50 other men were jailed for her rape.
Impossible to find the words to adequately describe this lady’s courage.
Unquestionably, irrefutably 2024’s Person of the Year.
Merci Madame.
December 19, 2024 at 1:06 PM
“We share the same fight.”
Gisèle Pelicot pays tribute to other victims of sexual abuse after her husband & 50 other men were jailed for her rape.
Impossible to find the words to adequately describe this lady’s courage.
Unquestionably, irrefutably 2024’s Person of the Year.
Merci Madame.
Gisèle Pelicot pays tribute to other victims of sexual abuse after her husband & 50 other men were jailed for her rape.
Impossible to find the words to adequately describe this lady’s courage.
Unquestionably, irrefutably 2024’s Person of the Year.
Merci Madame.
Reposted by Christine Bienvenu
Tagging for 🧪 🩺💻 #MLSky
We found in a small study that using AI to translate patient instructions worked reasonably well across a variety of languages - AI could provide the starting point and a native speaker clinician could edit. mededu.jmir.org/2024/1/e51435
ChatGPT May Improve Access to Language-Concordant Care for Patients With Non–English Language Preferences
Background: Chat Generative Pre-training Transformer (ChatGPT) is an artificial intelligence natural language model developed by OpenAI. It generates new texts, responds to user inputs conversationall...
mededu.jmir.org
December 19, 2024 at 4:14 PM
Tagging for 🧪 🩺💻 #MLSky
9months after stopping my #Herceptin & #Perjeta infusions (147 - 9yrs!) I got my #PET-SCAN & #ctDNA results back: ALL IS GOOD! 🥳
After being told, at age 35, that I had 32% chance of celebrating my 40th bday, Tuesday I will be celebrating my 50th!
Take that #TNBC #HER2+ #breastcancer #fuckcancer!
After being told, at age 35, that I had 32% chance of celebrating my 40th bday, Tuesday I will be celebrating my 50th!
Take that #TNBC #HER2+ #breastcancer #fuckcancer!
a yellow smiley face wearing a party hat and confetti .
ALT: a yellow smiley face wearing a party hat and confetti .
media.tenor.com
December 19, 2024 at 5:53 PM
9months after stopping my #Herceptin & #Perjeta infusions (147 - 9yrs!) I got my #PET-SCAN & #ctDNA results back: ALL IS GOOD! 🥳
After being told, at age 35, that I had 32% chance of celebrating my 40th bday, Tuesday I will be celebrating my 50th!
Take that #TNBC #HER2+ #breastcancer #fuckcancer!
After being told, at age 35, that I had 32% chance of celebrating my 40th bday, Tuesday I will be celebrating my 50th!
Take that #TNBC #HER2+ #breastcancer #fuckcancer!
Reposted by Christine Bienvenu
Key @hsruk.bsky.social recommendation for #HealthResearch:
7. Emphasise Diversity & #PublicInvolvement
✅ Develop inclusive strategies to engage underrepresented communities in research & service design
✅ Co-create research & services to enhance trust, improve outcomes & reduce inequalities
7. Emphasise Diversity & #PublicInvolvement
✅ Develop inclusive strategies to engage underrepresented communities in research & service design
✅ Co-create research & services to enhance trust, improve outcomes & reduce inequalities
December 19, 2024 at 10:49 AM
Key @hsruk.bsky.social recommendation for #HealthResearch:
7. Emphasise Diversity & #PublicInvolvement
✅ Develop inclusive strategies to engage underrepresented communities in research & service design
✅ Co-create research & services to enhance trust, improve outcomes & reduce inequalities
7. Emphasise Diversity & #PublicInvolvement
✅ Develop inclusive strategies to engage underrepresented communities in research & service design
✅ Co-create research & services to enhance trust, improve outcomes & reduce inequalities
Article about #SCAPE Swiss Cancer Patient Experience study, where I was a #patientpartner in the steering committee. This was my first #PPI #PPIR experience w/ @chantalarditi.bsky.social
Training #patients & #researchers to work together creates meaningful research.
www.mdpi.com/2072-6694/16...
Training #patients & #researchers to work together creates meaningful research.
www.mdpi.com/2072-6694/16...
Experiences and Needs of Swiss Cancer Survivors in the Domains of Health-Related Information and the Healthcare System
Background/Objectives: In recent years, the number of cancer survivors has rapidly increased in Switzerland, as well as worldwide. As cancer increasingly becomes a chronic condition, numerous bio-psyc...
www.mdpi.com
December 19, 2024 at 5:43 AM
Article about #SCAPE Swiss Cancer Patient Experience study, where I was a #patientpartner in the steering committee. This was my first #PPI #PPIR experience w/ @chantalarditi.bsky.social
Training #patients & #researchers to work together creates meaningful research.
www.mdpi.com/2072-6694/16...
Training #patients & #researchers to work together creates meaningful research.
www.mdpi.com/2072-6694/16...
Reposted by Christine Bienvenu
💭ADHD medications effective at reducing symptoms in adults but not improving quality of life, study finds
www.abc.net.au/news/health/...
#PatientExperience #LivedExperience #PatientEngagement
#CommunityEngagement #Health #RuralHealth #RegionalHealth #Research #ClinicalTrials #Codesign
www.abc.net.au/news/health/...
#PatientExperience #LivedExperience #PatientEngagement
#CommunityEngagement #Health #RuralHealth #RegionalHealth #Research #ClinicalTrials #Codesign
ADHD drugs reduce symptoms in adults but don't improve quality of life, study finds
A major review of evidence on ADHD treatment in adults has found stimulant drugs and one type of non-stimulant are the only effective treatments for reducing core symptoms in the short term.
www.abc.net.au
December 18, 2024 at 5:00 AM
💭ADHD medications effective at reducing symptoms in adults but not improving quality of life, study finds
www.abc.net.au/news/health/...
#PatientExperience #LivedExperience #PatientEngagement
#CommunityEngagement #Health #RuralHealth #RegionalHealth #Research #ClinicalTrials #Codesign
www.abc.net.au/news/health/...
#PatientExperience #LivedExperience #PatientEngagement
#CommunityEngagement #Health #RuralHealth #RegionalHealth #Research #ClinicalTrials #Codesign
Reposted by Christine Bienvenu
Good morning, Blue Sky.
Being resilient is easier when you're surrounded by the right people.
Build communities that make you smarter and tougher for the battles ahead.
Never give up hope. Never stop fighting for what is right. And just.
Whatever comes our way, we will face it together.
Being resilient is easier when you're surrounded by the right people.
Build communities that make you smarter and tougher for the battles ahead.
Never give up hope. Never stop fighting for what is right. And just.
Whatever comes our way, we will face it together.
November 25, 2024 at 1:44 PM
Good morning, Blue Sky.
Being resilient is easier when you're surrounded by the right people.
Build communities that make you smarter and tougher for the battles ahead.
Never give up hope. Never stop fighting for what is right. And just.
Whatever comes our way, we will face it together.
Being resilient is easier when you're surrounded by the right people.
Build communities that make you smarter and tougher for the battles ahead.
Never give up hope. Never stop fighting for what is right. And just.
Whatever comes our way, we will face it together.
Reposted by Christine Bienvenu
Reposted by Christine Bienvenu
Thank you to everyone who's booked so far - we should have some interesting discussions!
#PPI people: It's filling up fast if you haven't booked already.
#PPI people: It's filling up fast if you haven't booked already.
@nihrarcs.bsky.social webinar: 'the invisible labour of #PublicInvolvement' with me & Stan Papoulias, chaired by @elspethma.bsky.social. Thurs 5/12/24 15:30-17:00
Info & booking: url.uk.m.mimecastprotect.com/s/Fcz7CzBW2u...
@arceastofengland.bsky.social @nihrarcs.bsky.social
@penarc.bsky.social #PPI
Info & booking: url.uk.m.mimecastprotect.com/s/Fcz7CzBW2u...
@arceastofengland.bsky.social @nihrarcs.bsky.social
@penarc.bsky.social #PPI
November 25, 2024 at 8:24 AM
Thank you to everyone who's booked so far - we should have some interesting discussions!
#PPI people: It's filling up fast if you haven't booked already.
#PPI people: It's filling up fast if you haven't booked already.
Reposted by Christine Bienvenu
We’re not going back.
November 24, 2024 at 10:07 PM
We’re not going back.
Reposted by Christine Bienvenu
Reposted by Christine Bienvenu
I will not hide my inner convictions anymore. Be the change you want to see in the world !
#AcademicSky 🧪
#AcademicSky 🧪
November 20, 2024 at 11:04 AM
I will not hide my inner convictions anymore. Be the change you want to see in the world !
#AcademicSky 🧪
#AcademicSky 🧪
Reposted by Christine Bienvenu
November 22, 2024 at 9:18 PM