#LetPatientsHelp
My thing: #patientadvocacy #patientpartnership #PPI #PPIR (patient&public involvement in #research) #coproduction #patientempowerment #letpatientshelp! 🧩

Started 15yrs ago on Twitter, when #patients got together to build #patientcommunities, mentor one another, find their peers & become #empowered.
November 21, 2024 at 9:15 AM
Hello @Bluesky! I left the other place that became disgusting, and I'm hoping to come here and build it all over again. I'd like to find #patientpartner #epatient community #patientpublicinvolvement #research #PPIR related topics. #letpatientshelp #codesign #collaboration #partnership #Healthcare.
October 29, 2023 at 8:45 PM
November 18, 2024 at 8:06 AM
Thanks to @chantalarditi.bsky.social who involved me #patientpartner from the beginning (2018) in #SCAPE steering committee www.scape-enquete.ch/e/the-study-... I discovered the fascinating world of #PPIR (patient and public involvement in research).
#coproduction #collaboration #letpatientshelp!
Patient experiences with cancer care
The SCAPE studies collect experiences of care of people treated for all types of cancer in Swiss hospitals.
www.scape-enquete.ch
November 19, 2024 at 8:19 PM