#epatient
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openehr.bsky.social
'Tis the season! During a trip to the US this week, our CEO, Rachel Dunscombe paid a visit to a very festive ePatient Dave deBronkart... 🎅
#Christmas #Holidays #HoHoHopenEHR @ukpenguin.bsky.social @epatientdave.bsky.social
December 1, 2025 at 8:32 PM
suissepatient.bsky.social
Hello @Bluesky! I left the other place that became disgusting, and I'm hoping to come here and build it all over again. I'd like to find #patientpartner #epatient community #patientpublicinvolvement #research #PPIR related topics. #letpatientshelp #codesign #collaboration #partnership #Healthcare.
October 29, 2023 at 8:45 PM
downing.bsky.social
Hi! 👏Also here hoping to bring ePatient community who create a culture of love and support + embrace science to improve outcomes.
May 7, 2023 at 7:18 PM
fredtrotter.bsky.social
I will be running the streaming booth at #health #datapalooza. Find me on the show floor. As always trying to provide content that appeals to #epatient and #hcldr #healthIT communities! More here: https://academyhealth.org/Datapalooza
September 11, 2024 at 2:30 PM
tomkindlon.bsky.social
‪2/‬

‪"The point is not that science doesn’t matter (it does, very much) but that the path from lived experience to research to care can be bidirectional."‬

‪#PostCovid #PwME‬ #PostCovid19 #CFS #epatient #epatients #chronicillness
February 6, 2026 at 12:01 AM
suissepatient.bsky.social
#patientpartner #epatient in Switzerland here! One of my mentors is #ePatientDave, and I graduated the Patient University of La Sorbonne.

I have a teaching and research #PPI position as patient partner in the health sciences faculty of Western Switzerland. 👋
November 17, 2024 at 8:46 AM
grohol.com
I don’t want or need a for-profit CEO “protecting” me against my physicians’ recommendations. I’m an adult. I can make those decisions as an epatient on my own, thank you very much.
December 11, 2024 at 11:09 PM
achronicvoice.com
“This is just a part of #surgery that thanks to my #health, the ratio of #medical personal to girlfriends that have seen me naked will probably be forever skewed to the medical side": buff.ly/43hxGjN by <a href="https://bsky.app/profile/did:plc:rwvq4zfbjcixn3wxqkozkyxb" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link" target="_blank" rel="noopener" data-link="bsky-mention">@abrewi3010.bsky.social #HipReplacement #ChronicIllness
Alan Brewington | Personal Blog and Insights on Health, Lifestyle, and Beyond
Welcome to my life. I'm Alan Brewington, the author, epatient advocate, skier, hiker, photographer, and chronic pain patient. Sometimes I hike, sometimes I eat cookies, sometimes I have surgeries, and...
buff.ly
March 1, 2025 at 2:30 AM
medinfode.bsky.social
Wie tickt der digitale Patient? Mit #EPatient Analytics erhebt und sammelt Dr. A. Schachinger Daten rund um das Digitalverhalten der deutschen Patientenschaft – und ermöglicht Arzneimittelherstellern damit neue Einblicke in die Lebenswelt ihrer Zielgruppen www.healthrelations....
Wie tickt der digitale Patient? | Health Relations
Mit Daten rund um das Digitalverhalten der deutschen Patientenschaft eröffnet EPatient Analytics neue Zielgruppen-Einblicke.
www.healthrelations.de
February 26, 2024 at 5:19 PM
liastot.bsky.social
DONATE! Even a small sum to patient @medstartr travel fund. Lets Support #patients & advocacy!@ReginaHolliday http://www.medstartr.com/projects/113-doctors-2-0-you-funding-epatient-travel-scholarships #HITsm
December 4, 2024 at 10:03 AM
jonhanix.bsky.social
SY je Seret Jesus ressucite arrivant sur un petit nuage
ou ce sont les astronautes ?
et moi, en tant qu epatient ; j ai des limites!
les bailleurs sont des lions ?
les rois de la terre : les agriculteurs
dixit le palais
j ai bien ramper en basket pour william
www.youtube.com/watch?v=aC4B...
Puff Daddy - Come With Me - Godzilla soundtrack (song uncensored)
YouTube video by Snarl The4th
www.youtube.com
December 20, 2024 at 1:22 AM
achronicvoice.com
“Since #nudity is such a #taboo subject coupled with the weirdness of having that many drugs running through your system at once, it is easy to forget this one small, yet surreal experience of #surgery ": buff.ly/43hxGjN

by @abrewi3010.bsky.social
#ChronicIllness #patients
Alan Brewington | Personal Blog and Insights on Health, Lifestyle, and Beyond
Welcome to my life. I'm Alan Brewington, the author, epatient advocate, skier, hiker, photographer, and chronic pain patient. Sometimes I hike, sometimes I eat cookies, sometimes I have surgeries,…
www.alanbrewington.com
April 17, 2025 at 3:30 AM
abrewi3010.bsky.social
Here is my most popular blog post. Ironically it’s about nudity & surgery. It’s a little tongue in cheek but it also is true, this was one of my most socially awkward moments of my life. #MedSky #Healthcare #Share www.alanbrewington.com/blog/2017/11...
Alan Brewington | Personal Blog and Insights on Health, Lifestyle, and Beyond
Welcome to my life. I'm Alan Brewington, the author, epatient advocate, skier, hiker, photographer, and chronic pain patient. Sometimes I hike, sometimes I eat cookies, sometimes I have surgeries, and...
www.alanbrewington.com
February 27, 2025 at 2:22 PM
marcusbaw.com
The presentations from last year's #openEHR @openehr.bsky.social conference are now publicly available!

I can highly recommend this great talk by Dave deBronkart ("ePatient Dave") called "Let Patients Help". Truly inspiring and exciting.

www.youtube.com/watch?v=Da7H...
‘e-Patient’ Dave deBronkart: Let Patients Help
YouTube video by openEHR
www.youtube.com
July 14, 2025 at 2:39 PM
burtrosen.bsky.social
I will think about it. not sure it's DIY because you still make decisions with inputs beyond only AI (doctor, caregivers, community, etc). But it's a very qualified input (and will only get more so). Honestly, it's an evolution of ePatient that includes all of the "e" elements and now includes "AI"
March 15, 2025 at 2:12 AM
jonhanix.bsky.social
et moi, en tant qu epatient ; j ai des limites ; je suis patient !
les bailleurs sont des lions ?

les rois de la terre : les agriculteurs
dixit le palais
j ai bien ramper en basket pour william
www.youtube.com/shorts/vzCqx...
Fernandel... y a une p'tite erreur
YouTube video by Rarebird
www.youtube.com
December 20, 2024 at 1:04 AM
jonhanix.bsky.social
SY je Seret Jesus ressucite arrivant sur un petit nuage
ou ce sont les astronautes ?
man chest her
et moi, en tant qu epatient ; j ai des limites ; je suis patient !
les bailleurs sont des lions ?

les rois de la terre : les agriculteurs
dixit le palais
j ai bien ramper en basket pour william
December 20, 2024 at 1:15 AM
jonhanix.bsky.social
SY je Seret Jesus .... ressucite arrivant sur un petit nuage
ou ce sont les astronautes ?
et moi, en tant qu epatient ; j ai des limites
les bailleurs sont des lions ?
les rois de la terre : les agriculteurs
dixit le palais
j ai bien ramper en basket pour william www.youtube.com/watch?v=rWh7...
Ne crains pas - Les Padrés
YouTube video by Diocèse aux armées françaises
www.youtube.com
December 20, 2024 at 1:20 AM
jonhanix.bsky.social
SY je Seret Jesus .... ressucite arrivant sur un petit nuage
ou ce sont les astronautes ?
et moi, en tant qu epatient ; j ai des limites !
les bailleurs sont des lions ?
les rois de la terre : les agriculteurs
dixit le palais
j ai bien ramper en basket pour william
www.youtube.com/watch?v=V0-q...
King Philippe & Queen Mathilde Of The Belgians State Dinner In Portugal
YouTube video by ⚜️Royalty⚜️
www.youtube.com
December 20, 2024 at 1:27 AM
subatomicdoc.bsky.social
To make sure we get some great people that care about defaults protecting the vulnerable and for a collaborative approach, my first invites to help make Bluesky better were @belikelight.bsky.social and @audun.bsky.social . More epatient advocates and e-doctors to come soon as permitted 🤞🙂
May 7, 2023 at 8:09 PM
marcusbaw.com
I'll add this to my "Must Watch" list - in fact this video was the one I really wanted to share but the openEHR conference videos were not at that point public, so I shared ePatient Dave's very similar TED Talk
July 14, 2025 at 2:39 PM
davisliumd.bsky.social
thoughts? -> RT @kevinmd: Not knowing what we don’t know: How can we help doctors?#DXerror #epatient #meded

goo.gl/fb/WqpGg6
Not knowing what we don't know: How can we help doctors?
Not getting the right diagnosis isn’t necessarily a problem of health care in general.
t.co
January 8, 2025 at 1:42 AM
davisliumd.bsky.social
my new post! -> RT @kevinmd: Not knowing what we don’t know: How can we help doctors?#DXerror #epatient #meded

goo.gl/fb/WqpGg6
Not knowing what we don't know: How can we help doctors?
Not getting the right diagnosis isn’t necessarily a problem of health care in general.
t.co
January 8, 2025 at 1:40 AM
davisliumd.bsky.social
What are the 6 vital skills for patients to get better health and save money?#pted #epatient #cdhp

ow.ly/z2Xql
How Patients Can Save Money On Medical and Health Care Costs
With the new year looming, it is increasingly becoming the year of the Thrifty Patient. People are paying for more medical care and are more responsible for the costs of getting that care via higher deductibles and co-pays. Patients don’t have a choice but to be involved in their care. Though the recent 2008 recession saw a decrease in overall medical and health care utilization as a sign of better informed patients, I believe that was simply because people deferred needed care in order to keep their jobs. With the economy getting better, more people will begin to seek care again. The question is how can they save money on medical and health care costs? Here are a few tips, of which many are covered in my book – The Thrifty Patient: Vital Insider Tips for Saving Money and Staying Healthy. Use Dr. Google and the internet thoughtfully. The first […] Read More »
t.co
January 7, 2025 at 10:54 PM
davisliumd.bsky.social
Was a panelist -> Doctors, Patients, and Social Media - future looks bright! -#smcsac #epatient

ow.ly/fE0UT
Doctors, Patients, and Social Media
I was thrilled to be on a panel with other experts in social media at the Sacramento Media Social Club. Experts like Liz Salmi, a brain cancer blogger and young adult cancer survivor – @thelizarmy Christian Hollingsworth, Founder/CEO of Smart Boy Designs and Social Media consultant for the Sacramento Valley affiliate of the Susan G Komen for the Cure – @smartboydesigns Katie Kreps, Team in Training Triathalon and Cycle Manager for the Greater Sacramento Area Chapter of the Leukemia and Lymphoma Society – @tntsacramento. There were other people from health care systems like UC Davis and Sutter. Questions and comments revealed that there is a need by patients which is not currently fulfilled. Patients want connections to their doctors and medical information that is easily accessible and available real-time. Already they are engaging with other patients with similar illnesses or problems and finding humanity in virtual encounters because it is […] Read More »
t.co
January 7, 2025 at 6:44 PM