#PostCovidSyndrome
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virvavalkea.bsky.social
Learning the hard way that just because I don't get the immediate autonomic crashes anymore, doesn't mean I am not getting delayed immune inflammatory crashes. 😔

#LongCovid #PostCovidSyndrome
October 31, 2026 at 2:56 PM
tomkindlon.bsky.social
From Brazil 🇧🇷

Multifactorial biomarker profiles in fatigued and non-fatigued post-COVID-19 patients: insights from a one-year follow-up

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome

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Graphical abstract Post-COVID fatigue is linked to persistent inflammation and neuroendocrine dysregulation. Genetic variants (COMT, NR3C1, MMP9) are associated with fatigue, while hs-CRP emerges as the strongest predictor of severity.
November 5, 2026 at 1:27 AM
tomkindlon.bsky.social
Outcome measures in long COVID clinical trials: a review

www.frontiersin.org/journals/pub...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome
Outcome measures in long COVID clinical trials: a review — Rhijn-Brouwer et al "Patient-relevant measures such as hours of upright activity and return to work, and clinical measurements such as actimetry can support data from functional capacity PROMs and deserve a more prominent place in clinical trials." Article | Thread
October 28, 2026 at 1:32 AM
tomkindlon.bsky.social
Effects of prolonged SARS-CoV2 spike protein exposure in long COVID and a mouse model of the disease

ajp.amjpathol.org/article/S000...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome
Effects of prolonged SARS-CoV2 spike protein exposure in long COVID and a mouse model of the disease — Nuovo et al "1) the SARS-CoV2 spike glycoprotein is able to persist in endothelia for at least 1.5 months in the CNS microvasculature in mice and probably up to several years in humans; 2) the persistent endothelial cell injury syndrome along with the microvasculature pro-inflammatory milieu associated with the viral spike protein and complement pathway activation can induce a chronic microangiopathy with the thickened vessels exhibiting type I collagen deposition." Article | Thread
October 28, 2026 at 1:25 AM
tomkindlon.bsky.social
From the US

Multi-omic analysis of post-acute sequelae of COVID-19 (PASC)

www.nature.com/articles/s41...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome
Multi-omic analysis of post-acute sequelae of COVID-19 (PASC) — Beimers et al "Despite the diversity of complaints our cohort patients expressed, we found a consistent global multi-omic signature that was captured with bulk analyses." "We found that many of the PASC-associated biomolecules are in a transitional state between acute COVID-19 and recovered or healthy, which implies a failure to regain a normal molecular profile in PASC individuals." Article | Thread
October 27, 2026 at 1:48 AM
virvavalkea.bsky.social
Today I learnt that "adrenaline masking" is part of my #PostCovidSyndrome as I crash after two weeks of cumulative load. It will take some time to find my new push-crash cycle pacing pattern now that uni has started, but considering what I went through recently I'm confident I'll find it quick.
October 24, 2026 at 11:38 AM
castltrastondrs.medsky.network
#LongCOVID/ #postcovidsyndrome , is the best example & has raised public awareness of infection-associated chronic conditions and illnesses (IACCIs). It is estimated that at least 400 million individuals worldwide currently suffer from LC.
October 17, 2026 at 1:27 PM
castltrastondrs.medsky.network
this review elaborates comprehensively on the pathogenesis, potential therapeutic targets, and pharmacological interventions for #postCOVIDsyndrome ( #Longcovid) , aiming to provide evidence for drug research and development as well as clinical application
www.frontiersin.org/journals/pha...
Frontiers | The Post-COVID syndrome caused by excessive inflammation: pathogenesis, potential targets and therapeutic agents
Post-COVID syndrome is predominantly characterized by persistent fatigue that cannot be attributed to other underlying diseases or relieved by conventional r...
www.frontiersin.org
October 10, 2026 at 6:38 AM
tomkindlon.bsky.social
From Sweden

Booster dose of COVID-19 vaccine and its effectiveness against post COVID-19 condition in individuals with pre-existing immunity

www.thelancet.com/journals/ecl...

Screenshot from Science for ME update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome
Booster dose of COVID-19 vaccine and its effectiveness against post COVID-19 condition in individuals with pre-existing immunity: a sequential propensity score-matched cohort study — Morris et al "we demonstrate that receiving a fourth dose of COVID-19 vaccine is associated with a decreased risk of being diagnosed with post COVID-19 condition during the first 6 months after vaccination, although the incidence rate difference was small." Article | Thread
October 2, 2026 at 12:41 AM
discover.holos.social.web.brid.gy
Tom Kindlon (@tomkindlon@disabled.social)
From Spain 🇪🇸 Clinical-cognitive profiles in long COVID and their associations with inflammatory-endothelial biomarkers and vascular measureshttps://www.nature.com/articles/s41598-026-67210-9Screenshot from latest Science for ME weekly updateHashtags:@longcovid#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
disabled.social
September 5, 2026 at 12:09 AM
tomkindlon.bsky.social
RECOVER Representatives create resources for people living with Long COVID

recovercovid.org/news/recover...

#LongCovid #PwLC #PostCovidSyndrome #LC #PASC #postcovid
#CovidBrain
community. Together, these tools aim to make it easier for people with Long COVID to find information, advocate for themselves, and access support. The tools include: A symptom tracker, which prompts people with Long COVID to take note of and record their daily symptoms to improve conversations with healthcare providers. A workplace resource guide, which provides tips for navigating work while living with Long COVID and how to best communicate with employers. A mental health resource guide, which helps people living with Long COVID take steps toward accessing mental health care. A financial resource guide, which includes advice for people who may need financial support because of their Long COVID.
August 29, 2026 at 11:35 AM
tomkindlon.bsky.social
From Germany

Peripheral metabolic signatures in patients with neuropsychiatric long COVID syndrome

www.medrxiv.org/content/10.6...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome
Peripheral metabolic signatures in patients with neuropsychiatric long COVID syndrome — Bergmann et al "We revealed subtle, but biologically coherent alterations, with increases in tri- and diacylglycerides as compared to healthy survivors and a decrease in several acylcarnitines, including acetylcarnitine." Preprint | Thread
August 21, 2026 at 11:23 PM
tomkindlon.bsky.social
Healthcare utilisation and cost among individuals with Long COVID in England and Wales: potential value of specialised post-COVID services

journals.sagepub.com/doi/10.1177/...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome
Healthcare utilisation and cost among individuals with Long COVID in England and Wales: potential value of specialised post-COVID services — Dashtban et al "This robust health economic evaluation confirms LC costs exceed pre-pandemic and contemporary benchmarks in both absolute and relative terms, providing – for the first time – direct quantitative comparisons between England and Wales." Article | Thread
August 22, 2026 at 12:10 AM
meassociation.org.uk
CLINICAL TRIAL: Treatment of PoTS (Postural orthostatic tachycardia syndrome) in Long Covid with ivabradine.

https://www.pharmacytimes.com/view/heart-rate-vs-quality-of-life-new-data-challenge-the-standard-approach-to-long-covid-pots 

#MECFS #pwME #POTS #LongCovid #PostCovidSyndrome
Heart Rate vs Quality of Life: New Data Challenge the Standard Approach to Long COVID POTS | Pharmacy Times
The RECOVER-AUTONOMIC trial underscores the necessity of better clinical end points to assess interventions in the long COVID population.
www.pharmacytimes.com
March 30, 2026 at 10:41 AM
meassociation.org.uk
**Trigger Warning - contains upsetting content**

The Sick Times: “It felt like a life-or-death choice”: Pregnancy with Long COVID has many unknowns

https://tinyurl.com/mwxrm24v 

#LongCovid #PostCovidSyndrome #Pregnancy #Fertility #MECFS
“It felt like a life-or-death choice”: Pregnancy with Long COVID has many unknowns - The Sick Times
Little is known so far about how people with Long COVID experience pregnancy, but some insights can be gleaned from myalgic encephalomyelitis (ME) as well as several ongoing studies in this area.
tinyurl.com
March 25, 2026 at 2:11 PM
meassociation.org.uk
BBC News: 'Long Covid sufferers have been abandoned and forgotten about' 

Read more: https://www.bbc.co.uk/news/articles/cvg3lmxm04po 

#LongCovid #PostCovid #PostCovidSyndrome
Bradford man says long Covid sufferers have been 'abandoned'
Darren Parkinson from Bradford got Covid in 2021 and five years later struggles to leave the house.
www.bbc.co.uk
March 24, 2026 at 11:42 AM
meassociation.org.uk
Think Global Health: England Closes Several Long COVID Clinics, Deserting Patients 

The MEA helped provide a lot of background information for this article, and would like to thank the journalist, Emma Smith.

Read more: https://tinyurl.com/2pd37259

#LongCovid #PostCovidSyndrome
England Closes Several Long COVID Clinics, Deserting Patients  | Think Global Health
The closures mark a funding reversal by the National Health Service and come even as Long COVID's prevalence remains steady
tinyurl.com
March 17, 2026 at 4:31 PM
meassociation.org.uk
Dorset Echo: New Long Covid Kids campaign calls on MPs to take action

Read more: https://www.dorsetecho.co.uk/news/25933330.new-long-covid-kids-campaign-calls-mps-take-action/ 

#LongCovid #PostCovidSyndrome #LongCovidKids
Teenager calls for better support for young people suffering with Long Covid
A TEENAGER from Weymouth is calling on MPs to take more action over supporting children and young people with Long Covid as a new campaign gathers…
www.dorsetecho.co.uk
March 16, 2026 at 3:10 PM
meassociation.org.uk
Our online community, ME Connected, has over 1,400 members supporting each other and discussing topics ranging from tips and tricks on managing ME/CFS, to our popular book club!

Join today:  https://meassociation.org.uk/discord

#pwME #MECFS #LongCovid #PostCovidSyndrome #Discord #OnlineCommunity
March 9, 2026 at 3:30 PM
meassociation.org.uk
News Medical: Study identifies antiviral protein IFN-γ as a potential biomarker for Long COVID fatigue 

Read more: https://meassociation.org.uk/vpow

#LongCovid #LongCovidResearch #PostCovidSyndrome
News Medical: Study identifies antiviral protein IFN-γ as a potential biomarker for Long COVID fatigue - The ME Association
A study, led by The University of Cambridge, has identified […]
meassociation.org.uk
February 26, 2026 at 5:11 PM
meassociation.org.uk
Show your support with an ME Association pin badge - only £3.80 with free shipping from our online shop: https://meassociation.org.uk/product/mea-round-pin-badges/

#MECFS #pwME #MyalgicEncephalomyelitis #MyalgicE #MyalgicEncephalopathy #MEAssociation #pwLongCovid #LongCovid #PostCovidSyndrome
IMAGE DESCRIPTION: Photo of the dark blue ME Association pin badge on a wooden background. Wording reads: Show your support with an ME Association pin badge. Only £3.80 with free shipping. MEA logo.
January 20, 2026 at 2:11 PM
meassociation.org.uk
Please mark the following key dates in your diaries, and start to think about how you can get involved in raising awareness of ME/CFS and Long Covid, and funds for the ME Association to continue our vital work.

#pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #PostCovidSyndrome
IMAGE DESCRIPTION: Photo of a calendar to the left-hand side. Purple background. Wording reads: 2026 dates to save with an arrow pointing to the the right. MEA logo bottom right. IMAGE DESCRIPTION: Photo of a calendar to the right-hand side. Purple background. Wording reads: 15th March: Long Covid Day; 11th-17th May: ME Awareness Week; 12th May: ME Awareness Day; 17th May: Blue Sunday; 8th-14th June: Carers Week; 3rd-9th August: Severe ME Week; 8th August: Severe ME Awareness Day. MEA logo bottom right.
January 12, 2026 at 11:11 AM
meassociation.org.uk
The results of this new study adds further support to the hypothesis that low level neurological inflammation, caused by the immune response to the initial infection, is involved in Long Covid.

https://meassociation.org.uk/pnzw

#pwME #MECFS #LongCovid #PostCovidSyndrome #CognitiveDysfunction
The Journal of Nuclear Medicine: Varying Levels of Inflammatory Activity in Patients with Persistent Fatigue and Difficulty Concentrating After COVID-19 - The ME Association
The results of this new study, ‘Varying Levels of Inflammatory […]
meassociation.org.uk
September 15, 2025 at 2:16 PM
meassociation.org.uk
"Using total-body PET imaging to get a better understanding of long COVID disease is the goal of a new project at the University of California, Davis, in collaboration with UC San Francisco." 

https://tinyurl.com/3zxuvfy5

#LongCovid #PostCovidSyndrome #LongCovidResearch
Total-Body PET Imaging Takes a Look at Long COVID
Using total-body PET imaging to get a better understanding of long COVID disease is the goal of a new project at the University of California, Davis, in collaboration with UC San Francisco. The project is funded by a grant of $3.2 million over four years from the National Institute of Allergy and Infectious Diseases, part of the National Institutes of Health. 
tinyurl.com
August 29, 2025 at 11:10 AM
meassociation.org.uk
Hope 4 ME & Fibro: QUB Nursing Students Learn About Long COVID & M.E. 

Nursing students at Queen's University Belfast heard from Rebecca Logan about her lived experience.

https://tinyurl.com/4u5zvuuh

#LongCovid #PVFS #PostCovid #PostCovidSyndrome #QUB #NursingStudents
QUB Nursing Students Learn About Long COVID & M.E. - Hope 4 ME & Fibro
A huge thank you to our Long Covid representative Rebecca Logan for her powerful presentation to over 70, 2nd year nursing students at QUB!
tinyurl.com
August 26, 2025 at 1:11 PM