#ProgressiveDisease
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achronicvoice.com
"The #CAMHS & a specialist team from Great Ormond Street #Hospital created a #progress chart that would help motivate me to achieve my #dreams. I would get a point..whenever I moved an arm or finger.": buff.ly/epCpeIW

#ChronicIllness #FND #ProgressiveDisease #disability #NeurologicalDisorder
Liam’s FND Story — Read about Liam’s diagnosis and recovery process, and how me achieved his dream of visiting London.
September 25, 2026 at 3:30 PM
achronicvoice.com
"I have #MS. That means I live in a 24/7 haunted house, except the ghost is me. Every step, every breath, every smile—a bloody-minded act of rebellion.": buff.ly/3OU2BVr

by goblinbloggeruk
#MultipleSclerosis #ProgressiveDisease #ChronicIllness #ChronicPain #disability
If You Could See MS – Part 2 The Horror Sequel You Can’t Unsee
Part 2 of “If You Could See MS” drags you deeper into the neurological horror of living with multiple sclerosis. Raw, furious, and darkly funny—this isn’t feel-good fluff. It’s blood, spoons, and…
buff.ly
July 30, 2026 at 12:30 PM
achronicvoice.com
“ #MS isn’t just some misunderstood condition that makes you “a bit tired.” It’s a chronic possession. A #neurological horror that turns your own #body into a traitor.”: buff.ly/Ggg1Ivn

by goblinbloggeruk
#ChronicIllness #ProgressiveDisease #MultipleSclerosis #disabled #NEisVoid
If You Could See MS – Part 2 The Horror Sequel You Can’t Unsee
Part 2 of “If You Could See MS” drags you deeper into the neurological horror of living with multiple sclerosis. Raw, furious, and darkly funny—this isn’t feel-good fluff. It’s blood, spoons,...
buff.ly
April 13, 2026 at 12:30 PM
achronicvoice.com
"MS is not a single #disease it is a collection of personalised #neurological catastrophes wearing the same name tag.. #MS is a fingerprint, not a formula.": buff.ly/15k77Cr

by goblinbloggeruk
#MultipleSclerosis #ProgressiveDisease #ChronicIllness #disability #awareness
MS One Disease, Millions of Realities — Why Medicine Still Gets It Wrong
“MS isn’t one condition — it’s millions of personal realities. A raw, lived-experience breakdown of why no two cases are the same and why real patients know more than textbooks.”
buff.ly
February 17, 2026 at 8:30 PM
achronicvoice.com
"So when that first #symptom finally hits when your #balance goes, or your legs go dead, or your words turn to fog it’s not the start. It’s the reveal. The curtain finally lifting on years of hidden damage.": buff.ly/EcKO1sy

by goblinbloggeruk
#MS #ProgressiveDisease #InvisibleIllness #disability
The Damage Before the Diagnosis — MS’s Silent War Inside the Brain
New research from UCSF reveals multiple sclerosis starts damaging the brain years before any symptoms appear. Early warning proteins, hidden inflammation, and a silent war all before you even know…
buff.ly
January 30, 2026 at 2:30 PM
achronicvoice.com
"Andrew was diagnosed with young-onset #AlzheimersDisease, a rare variant form called posterior cortical #atrophy, or #PCA. Before this, I had never even heard of PCA. Now it defines our lives.": buff.ly/Mb87gSq

via globeandmail
#ProgressiveDisease #marriage
The shift from wife to caregiver was instant and soul crushing
My heart broke as I realized life is changing, but despite that we are still a team, just now navigating uncharted waters
buff.ly
December 27, 2025 at 5:30 PM
achronicvoice.com
“If you have #balance issues, you can’t afford to have other #FallRisk factors in your life as well. For example, people with #MS may develop #vision problems, such as blurriness, optic neuritis, and double vision.”: buff.ly/ODVFYOU

from MyMSTeam
#ProgressiveDisease
5 Ways To Prevent Falls With MS and Balance Problems | MyMSTeam
If you’re living with multiple sclerosis (MS), you may find that sometimes it’s difficult to maintain your balance, causing you to fall down. In fact, more
buff.ly
June 19, 2025 at 1:31 PM
achronicvoice.com
“#Dying is different for everyone, but I’m facing a #RareDisease with not enough information or specificity. There are multiple paths progression could take which decides how things play out": https://buff.ly/3zy7SmL #ProgressiveDisease #Dermatomyositis #TerminalIllness
Writer’s Block, Good Ideas, Reality, and Hospice
I haven’t been able to write these last two months, or I’ll start and lose any motivation. It’s taken time to adjust to my new trajectory of transitioning to hospice. The simplicity of my plan in s…
buff.ly
February 12, 2025 at 6:30 PM
jeantw.bsky.social
Sometimes my #RareDisease, #ChronicDisease, #ProgressiveDisease loses cause a lot of frustration that is actually an expression of grief.

friedreichsataxianews.com/columns/when...
When losing our abilities to FA, the feeling of grief is real
Grief is real whether it's for a lost function or for a lost loved one, columnist Jean Walsh has found in her life with FA.
friedreichsataxianews.com
February 10, 2025 at 10:17 PM