"Did you know that you have two vaginas?" UH, NO??? WTF? 😳
I waited almost a year to share this. 🐱🐱 And now, I go back to my cave.
youtu.be/DB14rj1J0ho
#doublevagina #uterusdidelphys #mullerianductanomaly #birthdifferences #hysterectomy #rarecondition #reproductivehealth
I waited almost a year to share this. 🐱🐱 And now, I go back to my cave.
youtu.be/DB14rj1J0ho
#doublevagina #uterusdidelphys #mullerianductanomaly #birthdifferences #hysterectomy #rarecondition #reproductivehealth
"Did you know that you have two vaginas?" UH, NO??? WTF? 😳 #borndifferent #rarecondition
YouTube video by New Hologram
youtu.be
December 3, 2025 at 1:27 AM
"Did you know that you have two vaginas?" UH, NO??? WTF? 😳
I waited almost a year to share this. 🐱🐱 And now, I go back to my cave.
youtu.be/DB14rj1J0ho
#doublevagina #uterusdidelphys #mullerianductanomaly #birthdifferences #hysterectomy #rarecondition #reproductivehealth
I waited almost a year to share this. 🐱🐱 And now, I go back to my cave.
youtu.be/DB14rj1J0ho
#doublevagina #uterusdidelphys #mullerianductanomaly #birthdifferences #hysterectomy #rarecondition #reproductivehealth
(⚠️‼️WARNING: SCARY FACE JUMPSCARE WARNING!!!⚠️‼️)
✨🧪🧬🥼💜W.I.P💜🥼🧬🧪✨
#WIP #W.I.P #Sprunki #SprunkiOC #Sprunkiincredibox #OC #OCArt #Art #DigitalArt #MadScientist #Science #MentalCondition #MentalHealthAwarenessDay #MentalIllness #Disorder #RareCondition #RareDisorder #Mental #Crazy #Freak
✨🧪🧬🥼💜W.I.P💜🥼🧬🧪✨
#WIP #W.I.P #Sprunki #SprunkiOC #Sprunkiincredibox #OC #OCArt #Art #DigitalArt #MadScientist #Science #MentalCondition #MentalHealthAwarenessDay #MentalIllness #Disorder #RareCondition #RareDisorder #Mental #Crazy #Freak
January 21, 2026 at 3:11 PM
(⚠️‼️WARNING: SCARY FACE JUMPSCARE WARNING!!!⚠️‼️)
✨🧪🧬🥼💜W.I.P💜🥼🧬🧪✨
#WIP #W.I.P #Sprunki #SprunkiOC #Sprunkiincredibox #OC #OCArt #Art #DigitalArt #MadScientist #Science #MentalCondition #MentalHealthAwarenessDay #MentalIllness #Disorder #RareCondition #RareDisorder #Mental #Crazy #Freak
✨🧪🧬🥼💜W.I.P💜🥼🧬🧪✨
#WIP #W.I.P #Sprunki #SprunkiOC #Sprunkiincredibox #OC #OCArt #Art #DigitalArt #MadScientist #Science #MentalCondition #MentalHealthAwarenessDay #MentalIllness #Disorder #RareCondition #RareDisorder #Mental #Crazy #Freak
My daughter just loves to see the sumatran tiger at Edinburgh zoo. Very weekend she is there 🙂 #edinburghzoo #disability #rarecondition #zoo #species #tigers
November 19, 2024 at 5:15 PM
My daughter just loves to see the sumatran tiger at Edinburgh zoo. Very weekend she is there 🙂 #edinburghzoo #disability #rarecondition #zoo #species #tigers
Join CamRARE on Wednesday 7 October for a packed programme of talks, panels and interactive workshops at #RAREsummit26 - exploring policy, care, health data, partnerships and innovation.
📍 In person or online
🎟️ www.camraredisease.org/raresummit26...
#RAREsummit26 #RareDisease #RareCondition
📍 In person or online
🎟️ www.camraredisease.org/raresummit26...
#RAREsummit26 #RareDisease #RareCondition
September 7, 2026 at 2:01 PM
Join CamRARE on Wednesday 7 October for a packed programme of talks, panels and interactive workshops at #RAREsummit26 - exploring policy, care, health data, partnerships and innovation.
📍 In person or online
🎟️ www.camraredisease.org/raresummit26...
#RAREsummit26 #RareDisease #RareCondition
📍 In person or online
🎟️ www.camraredisease.org/raresummit26...
#RAREsummit26 #RareDisease #RareCondition
Posting this again after being dismissed, yet again by a male Dr who stated, "it's just your usual woman problems. You'll just have to learn to live with it." Turns out the twat-sparkle was wrong and that I have a are congenital condition. #chronicillness #spooniesky #rarecondition
February 17, 2025 at 1:09 PM
Posting this again after being dismissed, yet again by a male Dr who stated, "it's just your usual woman problems. You'll just have to learn to live with it." Turns out the twat-sparkle was wrong and that I have a are congenital condition. #chronicillness #spooniesky #rarecondition
Join @camrare.bsky.social on Wednesday 7 October for a packed programme of talks, panels and interactive workshops at #RAREsummit26 - exploring policy, care, health data, partnerships and innovation.
📍 In person or online
🎟️ www.camraredisease.org/raresummit26...
#RareDisease #RareCondition
📍 In person or online
🎟️ www.camraredisease.org/raresummit26...
#RareDisease #RareCondition
September 15, 2026 at 2:13 PM
Join @camrare.bsky.social on Wednesday 7 October for a packed programme of talks, panels and interactive workshops at #RAREsummit26 - exploring policy, care, health data, partnerships and innovation.
📍 In person or online
🎟️ www.camraredisease.org/raresummit26...
#RareDisease #RareCondition
📍 In person or online
🎟️ www.camraredisease.org/raresummit26...
#RareDisease #RareCondition
Alright, I bought my drugs. Now I wait 5-7 business days. I might need to start opening up my art shop again so I can make some cash to keep paying for these.
I only have my spouses insurance. It doesn't cover everything. I keep getting stuff like this popping up because I have a #rarecondition. 👿
I only have my spouses insurance. It doesn't cover everything. I keep getting stuff like this popping up because I have a #rarecondition. 👿
June 17, 2025 at 10:05 PM
Alright, I bought my drugs. Now I wait 5-7 business days. I might need to start opening up my art shop again so I can make some cash to keep paying for these.
I only have my spouses insurance. It doesn't cover everything. I keep getting stuff like this popping up because I have a #rarecondition. 👿
I only have my spouses insurance. It doesn't cover everything. I keep getting stuff like this popping up because I have a #rarecondition. 👿
"I was frustrated by the lack of info out there when I was searching for answers. Such occurrences are extremely rare..But that doesn’t mean that I cannot contribute my experience and knowledge as a #patient in some ways.": buff.ly/0tuWaCi
#KneeSurgery #Lupus #disabled #RareCondition #KeepInjury
#KneeSurgery #Lupus #disabled #RareCondition #KeepInjury
June 25, 2026 at 4:30 AM
"I was frustrated by the lack of info out there when I was searching for answers. Such occurrences are extremely rare..But that doesn’t mean that I cannot contribute my experience and knowledge as a #patient in some ways.": buff.ly/0tuWaCi
#KneeSurgery #Lupus #disabled #RareCondition #KeepInjury
#KneeSurgery #Lupus #disabled #RareCondition #KeepInjury
Woman with a rare tissue-growth condition says the growth has now reached 60 pounds, highlighting the severe challenges she faces.
#RareCondition #Health #Medical #Awareness
#News
🔗 Tap to see more – www.hypefresh.com/woman-with-r...
#RareCondition #Health #Medical #Awareness
#News
🔗 Tap to see more – www.hypefresh.com/woman-with-r...
September 9, 2026 at 1:56 PM
Woman with a rare tissue-growth condition says the growth has now reached 60 pounds, highlighting the severe challenges she faces.
#RareCondition #Health #Medical #Awareness
#News
🔗 Tap to see more – www.hypefresh.com/woman-with-r...
#RareCondition #Health #Medical #Awareness
#News
🔗 Tap to see more – www.hypefresh.com/woman-with-r...
Delighted to share our paper out now at Lancet Neurology which describes a novel genetic #rarecondition
Acute-onset axonal neuropathy following infection in children with biallelic RCC1 variants: a case series
www.thelancet.com/journals/lan...
Acute-onset axonal neuropathy following infection in children with biallelic RCC1 variants: a case series
www.thelancet.com/journals/lan...
Acute-onset axonal neuropathy following infection in children with biallelic RCC1 variants: a case series
We describe an autosomal recessive, acute-onset paediatric axonal neuropathy, seemingly
triggered by infection, that affects individuals with biallelic RCC1 variants. In
these children, the disease ca...
www.thelancet.com
July 18, 2025 at 10:11 AM
Delighted to share our paper out now at Lancet Neurology which describes a novel genetic #rarecondition
Acute-onset axonal neuropathy following infection in children with biallelic RCC1 variants: a case series
www.thelancet.com/journals/lan...
Acute-onset axonal neuropathy following infection in children with biallelic RCC1 variants: a case series
www.thelancet.com/journals/lan...
#Findom #BestofbothworldsSmallandbig #Rarecondition #XXX #Glasses #Viral #boobs #Paypig #Findom
people have been liking my #Breasts because they are #Unique and #Different. I have a case of #Anisomastia . My breasts don't #lineup.
you do ;) #Paypig.
people have been liking my #Breasts because they are #Unique and #Different. I have a case of #Anisomastia . My breasts don't #lineup.
you do ;) #Paypig.
February 26, 2026 at 7:14 PM
#Findom #BestofbothworldsSmallandbig #Rarecondition #XXX #Glasses #Viral #boobs #Paypig #Findom
people have been liking my #Breasts because they are #Unique and #Different. I have a case of #Anisomastia . My breasts don't #lineup.
you do ;) #Paypig.
people have been liking my #Breasts because they are #Unique and #Different. I have a case of #Anisomastia . My breasts don't #lineup.
you do ;) #Paypig.
Jay & Pamela Defy Odds With “Super-Rare” Osteogenesis Imperfecta — Know How They Live Life Fully!
Read More: buff.ly/p8wTi7b
#JayAndPamela #TLC #RealityTV #JayAndPamelaTLC #LoveStory #RareCondition #Inspiration #CoupleGoals #DogCheddar #JayAndPamelaJourney #TLCShows
Read More: buff.ly/p8wTi7b
#JayAndPamela #TLC #RealityTV #JayAndPamelaTLC #LoveStory #RareCondition #Inspiration #CoupleGoals #DogCheddar #JayAndPamelaJourney #TLCShows
Jay & Pamela Defy Odds With "Super-Rare" Osteogenesis Imperfecta — Know How They Live Life Fully!
TLC’s introduction of Jay & Pamela on reality TV has been the best. The married couple on their show were born with Osteogenesis...
buff.ly
March 12, 2025 at 4:58 PM
Jay & Pamela Defy Odds With “Super-Rare” Osteogenesis Imperfecta — Know How They Live Life Fully!
Read More: buff.ly/p8wTi7b
#JayAndPamela #TLC #RealityTV #JayAndPamelaTLC #LoveStory #RareCondition #Inspiration #CoupleGoals #DogCheddar #JayAndPamelaJourney #TLCShows
Read More: buff.ly/p8wTi7b
#JayAndPamela #TLC #RealityTV #JayAndPamelaTLC #LoveStory #RareCondition #Inspiration #CoupleGoals #DogCheddar #JayAndPamelaJourney #TLCShows
A huge thank you to Nicole for sharing her emotional #GuillainBarreSyndrome story.
#GBS struck at the height of the pandemic - Christmas 2020. Here's her story:
inflammatoryneuropathies.uk/post/nicoles-story-gbs
#InflammatoryNeuropathiesUK #RareCondition #covid #NHS
#GBS struck at the height of the pandemic - Christmas 2020. Here's her story:
inflammatoryneuropathies.uk/post/nicoles-story-gbs
#InflammatoryNeuropathiesUK #RareCondition #covid #NHS
August 1, 2025 at 11:27 AM
A huge thank you to Nicole for sharing her emotional #GuillainBarreSyndrome story.
#GBS struck at the height of the pandemic - Christmas 2020. Here's her story:
inflammatoryneuropathies.uk/post/nicoles-story-gbs
#InflammatoryNeuropathiesUK #RareCondition #covid #NHS
#GBS struck at the height of the pandemic - Christmas 2020. Here's her story:
inflammatoryneuropathies.uk/post/nicoles-story-gbs
#InflammatoryNeuropathiesUK #RareCondition #covid #NHS
Little #Ayla, the #BabyGirl who always smiles, charms everyone with her #rare #MouthCondition zorz.it/WNeRv | #FamilyAndKids #NewbornBaby #JoyfulEvent #SenseOfProtection #story #RareCondition #BeautifulSmile
April 17, 2025 at 4:36 PM
Little #Ayla, the #BabyGirl who always smiles, charms everyone with her #rare #MouthCondition zorz.it/WNeRv | #FamilyAndKids #NewbornBaby #JoyfulEvent #SenseOfProtection #story #RareCondition #BeautifulSmile
It's #MentalHealth Awareness Week. The Rareminds Wellbeing Hub is filled with resources and information to help you live as well as possible with your #RareCondition and covers a wide range of topics.
Take a look around and find a resource or strategy that works for you: https://ow.ly/Xwxi50YYa5N
Take a look around and find a resource or strategy that works for you: https://ow.ly/Xwxi50YYa5N
May 13, 2026 at 7:00 AM
It's #MentalHealth Awareness Week. The Rareminds Wellbeing Hub is filled with resources and information to help you live as well as possible with your #RareCondition and covers a wide range of topics.
Take a look around and find a resource or strategy that works for you: https://ow.ly/Xwxi50YYa5N
Take a look around and find a resource or strategy that works for you: https://ow.ly/Xwxi50YYa5N
Juvenile Huntington’s Disease is rare and relentless, but Andrew’s spirit is stronger. #rarecondition #10percenthappier
July 28, 2025 at 8:52 PM
Juvenile Huntington’s Disease is rare and relentless, but Andrew’s spirit is stronger. #rarecondition #10percenthappier
May 2, 2025 at 2:45 PM
“For years we could only dream about getting treatment here. Please let everyone at Chive Charities know how grateful we are. This lift didn’t just open doors—it opened a whole new world.” 💚
Read her full update at l.thechive.com/4jw7GGQ
#FredricksAtaxia #rarecondition #support #access #FA
Read her full update at l.thechive.com/4jw7GGQ
#FredricksAtaxia #rarecondition #support #access #FA
Alexandria B. - Catching Up With Alexandria!
l.thechive.com
April 25, 2025 at 3:13 PM
“For years we could only dream about getting treatment here. Please let everyone at Chive Charities know how grateful we are. This lift didn’t just open doors—it opened a whole new world.” 💚
Read her full update at l.thechive.com/4jw7GGQ
#FredricksAtaxia #rarecondition #support #access #FA
Read her full update at l.thechive.com/4jw7GGQ
#FredricksAtaxia #rarecondition #support #access #FA
Get ready to have all the feels 💚 🥺 #LevelUp25 #KCCO #Veteran #firstresponder #militaryfamily #rarecondition #support #generosity #10percenthappier #team10percent
thechive.com/chive-charit...
thechive.com/chive-charit...
The incomplete wall and what we’re doing about it (15 Photos)
See the full gallery on thechive.com
thechive.com
April 22, 2025 at 8:35 PM
Get ready to have all the feels 💚 🥺 #LevelUp25 #KCCO #Veteran #firstresponder #militaryfamily #rarecondition #support #generosity #10percenthappier #team10percent
thechive.com/chive-charit...
thechive.com/chive-charit...
🔥 Don't ever tell Gabi she can't do something! #rarecondition #determination
April 11, 2025 at 9:35 PM
🔥 Don't ever tell Gabi she can't do something! #rarecondition #determination
Baby Born Twice After Rare Prenatal Surgery Is Getting Ready to Celebrate His First Birthday www.growingyourbaby.com/baby-born-tw... #ParentingNews #MedicalMiracle #NICUBaby #BabyNews #FamilyStories #OrlandoHealth #PregnancyNews #RareCondition
Baby Born Twice After Rare Prenatal Surgery Is Getting Ready to Celebrate His First Birthday
A Florida baby with a rare airway condition is preparing to celebrate his first birthday after doctors performed a groundbreaking prenatal surgery that helped save his life.
www.growingyourbaby.com
May 18, 2026 at 3:15 PM
Baby Born Twice After Rare Prenatal Surgery Is Getting Ready to Celebrate His First Birthday www.growingyourbaby.com/baby-born-tw... #ParentingNews #MedicalMiracle #NICUBaby #BabyNews #FamilyStories #OrlandoHealth #PregnancyNews #RareCondition