#ResearchAutisticsWant
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christineajenkins.bsky.social
#ResearchAutisticsWant and need. Ours is on autism and (peri)menopause but other conditions overlap.
dr-chrissy-jay.bsky.social Dr Chrissy Jay @dr-chrissy-jay.bsky.social · Mar 13
We still have much to learn about how pregnancy, postpartum hormonal shifts, and the transition to motherhood shape the brain and influence mental health conditions like OCD.

Also other women’s health conditons like #PMS #PMDD #menopause & #endometriosis are vastly underfunded & under-researched
March 14, 2025 at 6:41 AM
christineajenkins.bsky.social
I’m part of this team as a consultant and #AutisticElder.
#NothingAboutUsWithoutUs
#ResearchAutisticsWant
respectlabkcl.bsky.social Re:Spect Lab KCL @respectlabkcl.bsky.social · Oct 1
📣The ARCH seminar is back!
Join us on October 22nd to hear from Nell Fahey (with introduction from Dr Gavin Stewart) about their work on the social experiences of middle-aged and older autistic adults.
More info on our mailout - sign up and get tickets @ www.eventbrite.co.uk/e/arch-semin...
This is a poster advertising the ARCH (or Autism Research) Seminar Series. This talk takes place on the 22nd of October, 2025, at 2pm on Zoom. The talk is being given by Nell Fahey, who uses she and her pronouns, and is an MSc graduate from King's College London. She is being introduced by Dr Gavin Stewart, who uses he and him pronouns, and is a senior research fellow at King's College London. The talk title is "Exploring the Social Experiences of Autistic Adults in Midlife and Old Age: a co-produced qualitative study". The abstract reads "Being connected to other people and having good access to social support are often linked to a better quality of life as we get older. However, autistic people often experience barriers to being socially connected. Our co-produced study set out to explore the social experiences of middle-aged and older autistic adults, with a particular focus on the types of social connections they would like as they age. We interviewed 33 autistic people in midlife and old age and conducted a reflexive thematic analysis of their responses. Our findings highlighted the varying impact that ageing can have on people’s social experiences and suggest that social motivations and barriers to social interaction may differ for autistic adults in midlife compared with those in old age. In this talk, we will describe our co-production process and highlight these key findings and what they mean for autistic people."
October 10, 2025 at 1:55 PM
christineajenkins.bsky.social
A3: #AutINSAR I can’t see the whole program because I don’t qualify to be a member, but the biomedical stream still seems overpowering. Not enough lifespan issues (past 25 or 30 yrs of age). If we want to save lives, then Autistic people need to co-create and co-produce #ResearchAutisticsWant
May 3, 2025 at 8:09 PM
christineajenkins.bsky.social
My #Autistic #Menopause paper is the third reference, Brady et al. Even more detail here: tinyurl.com/StrugglingPDF
“Struggling for Years” survey Autistic menopause Dec 2024 | Christine A Jenkins | 12 comments
The free PDF version of our Phase 3 research, the international survey of 508 people on Autistic menopause. #AutRes #ResearchAutisticsWant #Menopause #AuDHD | 12 comments on LinkedIn
tinyurl.com
April 19, 2026 at 11:48 AM
christineajenkins.bsky.social
Over 3400 views in 11 weeks of our latest #AutRes paper. #Menopause is finally getting attention. #EndTheStigma
Here’s a free PDF—
Original version below.
“Struggling for Years” survey Autistic menopause Dec 2024 | Christine A Jenkins
The free PDF version of our Phase 3 research, the international survey of 508 people on Autistic menopause. #AutRes #ResearchAutisticsWant #Menopause #AuDHD
www.linkedin.com
March 11, 2025 at 10:51 PM
christineajenkins.bsky.social
Thanks for sharing our research. More results from this study soon. #Menopause #ResearchAutisticsWant
#AutisticAging
craeioe.bsky.social Centre for Research in Autism and Education @craeioe.bsky.social · Oct 18
#WorldMenopauseDay: autistic life experiences and adversity can converge at midlife. Barriers to support and care compound this transition. Research points to the need for knowledge, human connection, and better healthcare access.
Brady et al. (2024)

journals.sagepub.com...
November 1, 2024 at 8:52 PM
christineajenkins.bsky.social
And 54% of our international survey participants didn’t KNOW yet they were Autistic when peri symptoms started. tinyurl.com/StrugglingPDF
“Struggling for Years” survey Autistic menopause Dec 2024 | Christine A Jenkins | 12 comments
The free PDF version of our Phase 3 research, the international survey of 508 people on Autistic menopause. #AutRes #ResearchAutisticsWant #Menopause #AuDHD | 12 comments on LinkedIn
Tinyurl.com
September 5, 2025 at 1:11 PM
christineajenkins.bsky.social
We found this in our #Autistic #Menopause research. tinyurl.com/StrugglingPDF Doctors are not informed of this time of hormonal shift.
June 5, 2025 at 12:30 PM
christineajenkins.bsky.social
#Autism and #Menopause are both still taboo subjects. That’s why we need to bridge the silos. See my latest paper— tinyurl.com/StrugglingPDF
May 7, 2025 at 1:00 AM
christineajenkins.bsky.social
You’re welcome. #ResearchAutisticsWant
April 27, 2026 at 1:57 PM
christineajenkins.bsky.social
New letter to the editor published by @profmarg.bsky.social and me. Quick link tinyurl.com/AutMenopauseAction We do need more and better #ResearchAutisticsWant #Menopause #Autism #AutisticElders
Autistic menopause: Where should research go from here? - PubMed
Plain language summaryThis letter lists seven priorities for future research on autism and menopause. It is written by an early career researcher/assistant professor and a community researcher. Both a...
tinyurl.com
September 8, 2026 at 5:16 PM
christineajenkins.bsky.social
#ResearchAutisticsWant I’ll be introduced as a collaborative team member by Nell and Gavin. Find the Check Availability tab to sign up. Replay available later on the YouTube channel.
See you there!
respectlabkcl.bsky.social Re:Spect Lab KCL @respectlabkcl.bsky.social · Oct 1
📣The ARCH seminar is back!
Join us on October 22nd to hear from Nell Fahey (with introduction from Dr Gavin Stewart) about their work on the social experiences of middle-aged and older autistic adults.
More info on our mailout - sign up and get tickets @ www.eventbrite.co.uk/e/arch-semin...
This is a poster advertising the ARCH (or Autism Research) Seminar Series. This talk takes place on the 22nd of October, 2025, at 2pm on Zoom. The talk is being given by Nell Fahey, who uses she and her pronouns, and is an MSc graduate from King's College London. She is being introduced by Dr Gavin Stewart, who uses he and him pronouns, and is a senior research fellow at King's College London. The talk title is "Exploring the Social Experiences of Autistic Adults in Midlife and Old Age: a co-produced qualitative study". The abstract reads "Being connected to other people and having good access to social support are often linked to a better quality of life as we get older. However, autistic people often experience barriers to being socially connected. Our co-produced study set out to explore the social experiences of middle-aged and older autistic adults, with a particular focus on the types of social connections they would like as they age. We interviewed 33 autistic people in midlife and old age and conducted a reflexive thematic analysis of their responses. Our findings highlighted the varying impact that ageing can have on people’s social experiences and suggest that social motivations and barriers to social interaction may differ for autistic adults in midlife compared with those in old age. In this talk, we will describe our co-production process and highlight these key findings and what they mean for autistic people."
October 13, 2025 at 12:11 PM
christineajenkins.bsky.social
#Menopause the scoping review above (Grant et al, Sept 1) cites this paper Ref 40 and rates the research highly. Here is a free version. tinyurl.com/StrugglingPDF
“Struggling for Years” survey Autistic menopause Dec 2024 | Christine A Jenkins | 12 comments
The free PDF version of our Phase 3 research, the international survey of 508 people on Autistic menopause. #AutRes #ResearchAutisticsWant #Menopause #AuDHD | 12 comments on LinkedIn
tinyurl.com
September 5, 2025 at 1:19 PM
christineajenkins.bsky.social
Thanks Kit. It was arduous but worthwhile. #ResearchAutisticsWant
Thanks to all who participated in the 3 phases.
December 23, 2024 at 12:26 PM
christineajenkins.bsky.social
Yes we found this in our research. tinyurl.com/StrugglingPDF Doctors are not informed of this time of hormonal shift.
“Struggling for Years” survey Autistic menopause Dec 2024 | Christine A Jenkins | 10 comments
The free PDF version of our Phase 3 research, the international survey of 508 people on Autistic menopause. #AutRes #ResearchAutisticsWant #Menopause #AuDHD | 10 comments on LinkedIn
tinyurl.com
June 5, 2025 at 12:26 PM
christineajenkins.bsky.social
HSD was a co-existing symptom for some of our survey participants. tinyurl.com/StrugglingPDF @jgjanegreenmbe.bsky.social is well informed on connective tissue matters. There are more resources on #ADHD though.
“Struggling for Years” survey Autistic menopause Dec 2024 | Christine A Jenkins | 10 comments
The free PDF version of our Phase 3 research, the international survey of 508 people on Autistic menopause. #AutRes #ResearchAutisticsWant #Menopause #AuDHD | 10 comments on LinkedIn
tinyurl.com
May 9, 2025 at 11:02 AM
christineajenkins.bsky.social
Our study showed 46% do either self or officially identify. tinyurl.com/StrugglingPDF
The free PDF version of our Phase 3 research, the international survey of 508 people on Autistic menopause. | Christine A Jenkins
The free PDF version of our Phase 3 research, the international survey of 508 people on Autistic menopause. #AutRes #ResearchAutisticsWant #Menopause #AuDHD | 11 comments on LinkedIn
Tinyurl.com
July 4, 2025 at 5:41 PM
christineajenkins.bsky.social
#ResearchAutisticsWant and are actually consulted on.
annmemmott.bsky.social Ann Memmott @annmemmott.bsky.social · Mar 13
A few autism research teams are shocked that autistic researchers query some of their papers. After all, for decades, they've been allowed to...
Do all their research without consulting us or co-producing it with us.
Write, "Yeah, University ethics board rubber-stamped this" on papers (paraphrased)/
March 15, 2025 at 1:53 PM