#SENDparent
Life is one battle after another for SEN families. Between fighting for diagnosis, support, healthcare, school needs being met, respite & everything else, it’s relentless. Im 13+ years in & can confirm that caring for my children is the easy part 😔 #SEND #SENDPARENT #EHCP #PersonalBudget
March 4, 2025 at 6:44 PM
Aaaaannnd the youngest has been in town with friends, is maxed out of junk food and stimulation, has been trying to pick a fight since she got in. Finally got herself in full meltdown mode screaming the house down. Excellent start to the holidays. 6 of these in the Easter break #SENDparent
May 23, 2026 at 9:15 PM
Maybe it’s as simple as I’ve (again) had to cancel the only thing I do for myself (yoga) to attended to everyone else and no one else would like this movie so I’m going to watch it to annoy them.

#mumlife #sendparent
March 8, 2026 at 7:50 PM
Hello! I'm looking to speak to parents of kids with SEND who have struggled to get into top performing OFSTED schools - for The i Paper. Please comment or email!

#journorequest
#SEND #SENDparent #EHCP #UKEducation #SENDCrisis #UKPolitics
March 24, 2026 at 10:55 AM
Life is tough at the moment

Both my children struggle to attend school

One withdraws to their bedroom
One runs away & absconds

The latter is a far more stressful experience

#SENDparent
November 26, 2025 at 6:01 PM
Eldest has sensory sensitivity leading to anxiety & stress

School offers some adjustments - but he can't access them as he hates comments/ bullying

He won't wear any ear loops/ eardefenders, have tinted glasses to reduce light etc because anything different makes him a target

#SENDparent
May 29, 2025 at 1:10 PM
7/n #autism #SENDparent

Then add to that factors like race, ethnicity, culture, class, gender, level of education by parents... it makes a huge difference.
Professionals owe parents education (hermeneutical justice basically). Sometimes lived experience solidarity is all parents can take. IYKYK..
September 22, 2025 at 6:14 AM
6/n #autism #SENDparent

If we consciously consider autism, intellectual disability, neurology, speech apraxia, and sensory processing we get a much better understanding of needs. This means we can be better at supporting needs.
September 22, 2025 at 5:58 AM
1/n
#autistic #SENDparent
I wish for the thinking around autism to be more precise in spelling out for parents co-occurring cognitive, speech, and sensory issues. Ditto neurological.

Precision in knowledge emancipates parents, improving their advocacy and outcomes thinking, helping their children
September 22, 2025 at 5:44 AM
#SENDcrisis #edpsychs #teachers #SENDparent

Roof - culture change
We owe late Ruth Perry to change culture regarding Ofsted fear. We owe countless SEND children who completed suicides to work on bullying etc. Lives over grades. Lives over jobs.
February 1, 2025 at 9:45 AM
#SENDcrisis #SENDparent #SEND #edpsychs #teachers
Walls - staffing
Exhausted. Teachers, EdPsychs, LA SEND teams, support charities etc.

Staffbneed more SEND training, better employment conditions, retention strategies agreed with unions, more PPA / CPD / supervision time. Staff are Golden Geese.
February 1, 2025 at 9:38 AM
#SENDcrisis #SENDparent #teacher #school #edpsych
Walls - curriculum. Whilst Fronted Adverbials are a thing for 7 yr olds teachers will be losing battles. They need more freedom with the curriculum as they're now scared of Ofsted. Not everything measured counts, not all that counts can be measured.
February 1, 2025 at 9:25 AM
#SENDcrisis #SENDparent #SEND #edpsychs #teachers
Walls - family lived experience p2
As a SEND parent I have experienced parent blame and each time the professionals were completely wrong. Sorry doesn't fix it.
Unfunded system isn't a parent's problem any more than potholes are your car's problem
February 1, 2025 at 9:18 AM
#SENDcrisis #SENDparent #edpsychs #teachers

Walls - family lived experience must be central.
If we believe that it is child first and always then (unless safeguarding), our parents' voice must be central alongside children's own voices. I know my children far better than any professional ever will
February 1, 2025 at 9:13 AM
#SENDcrisis #SEND #EHCP #SENDparent
Foundation - current policy in theory gives us rights and yet we regularly end up at tribunals. Tighten up the policy keeping family at the centre, implement consistently across the country, conduct more frequent funding reviews.
February 1, 2025 at 9:08 AM
#SENDcrisis #SENDparent #edpsychs
As a SEND parent, Trainee EP, & former central gov policy implementation manager, here is my SEND house:
Foundation -> fully funded consistently implemented policy
Walls -> family lived experience, curriculum, staff training, staff retention
Roof -> culture change
February 1, 2025 at 8:58 AM
#SEND #SENDparent #DFE #SENDcrisis #ECHP #autism #disability #education

SEND parents and SEND activists in England, did you contribute to the Education Select committee / DfE "solutions to SEND crisis" consultation? It closed on Thursday.

Besides the obvious more funding what are your thoughts?
February 1, 2025 at 8:50 AM
Emptying my head onto paper - the good, the bad, the random, the real - is how I stay upright, or at least how I get back up faster when life knocks me down.
Whether it's a to-do, a memory, something the kids said, or just how I'm feeling, it all lands here first.
#ParentCarerLife #SENDParent
April 21, 2025 at 10:10 AM
NB - this is in my role at an FE college as Transitions Coordinator - so targeted! #year11 #pta #SENDParent #FECollege
August 23, 2024 at 9:23 AM
A book for every #SENDparent 🤣
November 17, 2024 at 8:20 PM
@libdems.org.uk #LDConf I'm watching online from beautiful East Devon. Question, are we able to speak on a motion online, I did fill out a card but it's not terribly clear. I wish I could, 3 mins on F25 from the perspective of a #SENDPARENT
March 21, 2025 at 6:22 PM
This evening a shout out to my tribe! It may be bloody hard as a #SEND parent but having amazing friends that truly get it makes such a difference! Many are treading the same path as me but some have their own journeys to take, but we all pick each other up when we need to.
Thank you! #SENDparent
June 27, 2026 at 9:37 PM
I agree - it is written to put parents off applying.

Otherwise, it’s ’We have 5 skilled and experienced TAs / our SENDCO would be happy to meet and discuss your child’s needs’… etc

No #SENDparent wants to make their child the ‘test case’ that forces a school into better working practices.
August 26, 2024 at 9:33 AM
Today was a day of two halves...eldest had a meltdown due to unexpected change of plans and lots of being prodded (hospital visit!). Horrible for them. Then lovely festive Afternoon Tea with my husband when they were happily back at school.
#SENDparent #autism #autistic #Christmas
December 18, 2024 at 8:34 PM