#SpendChristmasWithMe
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danielmissailidis.bsky.social
Let’s goooooo (tomorrow!) #SpendChristmasWithME
December 19, 2024 at 11:21 AM
tinakatsaros.bsky.social
Please join the social media campaign and support #pwME this Christmas.

#SpendChristmasWithME

#MECFS #LongCovid #LC

@meresearchuk.bsky.social
December 1, 2024 at 9:26 AM
tinakatsaros.bsky.social
4 days until the #SpendChristmasWithME
campaign begins! 🎄

Please join in however you can! Whether that's joining in on our movie nights or just sharing a message/photo using #SpendChristmasWithME.

Let's bring together #pwME and #pwLC and share how you #SpendChristmasWithME
December 16, 2024 at 2:23 AM
tinakatsaros.bsky.social
Day #5 of #SpendChristmasWithME 🎄

Today's movie recommendations:
- The Nightmare Before Christmas 💀🎄
- Home Alone 🏠

Remember to use #SpendChristmasWithME in any of your posts and interact with other posts!

Let's spend Xmas Eve together from home 🫶🏼

#MECFS #LongCovid
December 23, 2024 at 11:27 PM
tinakatsaros.bsky.social
#SpendChristmasWithME campaign begins tomorrow!

Starting with our first 2 movies:
- The Santa Clause 🎅🏼
- Jingle All The Way 🎄🧸

Remember to use #SpendChristmasWithME in any of your posts and interact with other posts!

Let's spend Xmas together from home 🫶🏼

#MECFS #LongCovid
December 19, 2024 at 6:19 AM
tinakatsaros.bsky.social
Day #4 of #SpendChristmasWithME 🎄

Today's movie recommendations:
- Love Actually ❤️
- The Holiday 🏠

Remember to use #SpendChristmasWithME in any of your posts and interact with other posts!

Let's spend Xmas together from home 🫶🏼

#MECFS #LongCovid
December 22, 2024 at 10:25 PM
tinakatsaros.bsky.social
Honestly, feels

#SpendChristmasWithME
December 21, 2024 at 2:32 PM
madknittrsteaparty.bsky.social
Sending solidarity to everyone with a limiting illness. It's so hard if this week is quiet,& if it isn't. Being left out. Saying no when you'd love to say yes. Being asked to make an effort because it's Christmas when you've already overdone it. Good luck all!
#SpendChristmasWithME
#MECFS #LongCovid
December 24, 2024 at 4:33 PM
nikosuvisto.com
Kenny Burrell - Have Yourself a Soulful Little Christmas (1966) (jazz)

#SpendChristmasWithME
Have Yourself a Soulful Little Christmas
Kenny Burrell · Album · 2003 · 12 songs
open.spotify.com
December 17, 2024 at 3:28 PM
tinakatsaros.bsky.social
Day #2 of #SpendChristmasWithME 🎄

Today's movie recommendations:
- The Polar Express 🚂💺🔔
- Elf 🧝🎅🏼

Remember to use #SpendChristmasWithME in any of your posts and interact with other posts!

Let's spend Xmas together from home 🫶🏼

#MECFS #LongCovid
December 21, 2024 at 1:06 AM
tinakatsaros.bsky.social
Sending my love this Xmas to everyone with #MECFS and #LongCovid, especially those spending the day alone at home or in bed ❤️

I leave you with a gift of hope. Just know, even if you are spending Xmas alone, you are not forgotten and you are not alone 🫶🏼

#SpendChristmasWithME
December 25, 2024 at 1:45 AM
tinakatsaros.bsky.social
Day #3 of #SpendChristmasWithME 🎄

Today's movie recommendations:
- Die Hard 🧨💥
- How The Grinch Stole Christmas 💚

Remember to use #SpendChristmasWithME in any of your posts and interact with other posts!

Let's spend Xmas together from home 🫶🏼

#MECFS #LongCovid
December 22, 2024 at 12:51 AM
tinakatsaros.bsky.social
Bring together #pwME and/or #pwLC this
Christmas 🎄

Share a photo of your Xmas with #MECFS or #LongCovid and enjoy suggested movies knowing that you are not alone and others are watching with you.

See my pinned post to see how you can get involved.

#SpendChristmasWithME
December 2, 2024 at 9:28 AM
nikosuvisto.com
I’ll listen to and share one Christmas themed album every day until Christmas. Today’s album is:

Vince Guaraldi Trio - A Charlie Brown Christmas (2022 Mix) (1965) (jazz)

1/3

#SpendChristmasWithME #MusaSky #MusicSky
A Charlie Brown Christmas (2022 Mix)
Vince Guaraldi Trio · Album · 2022 · 11 songs
open.spotify.com
December 19, 2024 at 12:49 PM
nikosuvisto.com
I’ll listen to and share one Christmas themed album every day until it’s Christmas. Today’s album is:

Various Artists - Stax Christmas (2023) (funk, soul)

1/3

#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid
Stax Christmas
Various Artists · Compilation · 2023 · 12 songs
open.spotify.com
December 23, 2024 at 12:25 PM
nikosuvisto.com
I’ll listen to and share one Christmas themed album every day until Christmas. Today’s album is:

Sharon Jones & The Dap-Kings - It’s A Holiday Soul Party (2015) (soul, funk)

1/3

#SpendChristmasWithME #MusaSky #MusicSky
It's a Holiday Soul Party
open.spotify.com
December 18, 2024 at 3:41 PM
nikosuvisto.com
I’ll listen to and share one Christmas themed album every day until it’s Christmas. Today’s album is:

Jimmy Smith - Christmas Cookin’ (1964) (jazz)

1/4

#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid
Christmas Cookin'
Jimmy Smith · Album · 1964 · 10 songs
open.spotify.com
December 22, 2024 at 12:57 PM
tinakatsaros.bsky.social
Who else is a subtitle watcher? 👀

I refuse to watch things at home without them, although I know this is definitely a controversial opinion. 😬

Enjoying Movie #2 tonight: The Santa Clause 🎅🏼

#SpendChristmasWithME
December 20, 2024 at 1:12 PM
tinakatsaros.bsky.social
Annesley Christmas Party! 🎄

And perfect timing to also celebrate Sarah Annesley and @danielmissailidis.bsky.social’s #LongCovid paper being published! See link below!

t.co/50GmP.flmhd

#SpendChristmasWithME researchers!
December 4, 2024 at 3:26 AM
tomkindlon.bsky.social
ME Research UK:

PhD student @tinakatsaros.bsky.social who is working on research funded by MERUK, has organised a festive online event which will take place from to the 20th – 25th of December, and use the social media hashtag #SpendChristmasWithME. Find out more: tinyurl.com/4z2uc3ta

#MECFS #CFS
- Tina Katsaros - a PhD student working on research funded by ME Research UK, has organised a festive online community event to bring together people with lived experience of ME/CFS and researchers in the field this Christmas. The event will take place from to the 20th - 25th of December, and use the social media hashtag "#SpendChristmasWithME" and there are several ways you can get involved: • Wear something festive - and post a photo if you wish. • Watch a seasonal film from the comfort of your own home: • 20th of December: The Santa Clause & Jingle all the way • 21st of December: The Polar Express & Elf • 22nd of December: Die Hard & How the Grinch Stole Christmas • 23rd of December: Love Actually & The Holiday ⚫ 24th of December: Nightmare before Christmas & Home Alone Listen to your favourite Christmas song and share with the community what it is, and why you chose it. If you are able, donate the cost of your favourite Christmas drink and snack to ME Research UK via PayPal. PayPal: @researchuk ME INFORM. INFLUENCE. INVEST. RESEARCH UK SCC36942
December 3, 2024 at 3:03 PM
nikosuvisto.com
I’ll listen to and share one Christmas themed album every day until Christmas. Today’s album is:

Kelly Finnigan - A Joyful Sound (2020) (soul, R&B, funk)

Kelly Finnigan’s, the frontman of Monophonics, Xmas album is very soulful.

1/3

#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid
A Joyful Sound
open.spotify.com
December 20, 2024 at 3:41 PM
nikosuvisto.com
As a severe #MECFS patient I don’t dress up often, as I’m always just in bed. But I’ve tried to do that if there’s a special occasion, like today! It sure feels nice to put on some proper clothes. So this is my outfit for today’s ”festivities”.

1/3

#SpendChristmasWithME #pwME
A colour image. The author of the post is sitting on a hospital bed. The bed has been lifted to a sitting position. He is wearing a red turtle neck wool jumper, white pants and grey socks. He is signaling the peace sign with his left hand. He is looking at the camera and having a slight smile on his face. Behind him there are some objects on the next bed: electronics and cables and such.
December 24, 2024 at 3:23 PM
tinakatsaros.bsky.social
Shoutout to @nikosuvisto.bsky.social for a great Christmas themed album recommendation 🎶

Niko shared this album as part of the #SpendChristmasWithME campaign here on BlueSky, but thought I would also share it since it’s been on repeat at work last few days 🎷🎄

open.spotify.com/album/2qecyn...
Have Yourself a Soulful Little Christmas
Kenny Burrell · Album · 2003 · 12 songs
open.spotify.com
December 20, 2024 at 1:49 AM
tinakatsaros.bsky.social
Watching How The Grinch Stole Christmas 💚

Rainy night in Melbourne calls for a hot chocolate ☕️ and some of the the gingerbread men that I did remember to put a timer on for when baking in the oven 😂

#SpendChristmasWithME
December 22, 2024 at 11:44 AM
tinakatsaros.bsky.social
"If you look for it, I've got a sneaky feeling you'll find that love actually is all around".

Love actually ❤️

Watching from my bed tonight.

#SpendChristmasWithME
December 23, 2024 at 1:30 PM