#StandByMEcfs
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To learn more about ME/CFS, check out:
Bateman Horne Center (www.batemanhornecenter.org).
MEAction Network (www.meaction.net),
Open Medicine Foundation (www.omf.ngo),
Solve M.E. (www.solvecfs.org)
#StandByMEcfs #StillSickStillFighting #MillionsMissing
June 4, 2025 at 4:28 AM
minetodo.bsky.social
We are all in this together. #StandByMEcfs
March 19, 2025 at 8:25 PM
minetodo.bsky.social
Stand By ME/CFS!
We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS.
Please lend your voice!
#StandByMEcfs #StillSickStillFighting #MEcfs #TeachMETreatME #EndMEcfs #GlobalVoiceforME #wishtreeforyokoono
#wishtreeforyokoono Wish by Cynthia Johnson (ME/CFS since 2009) #StandByMEcfs
November 20, 2024 at 9:14 PM
minetodo.bsky.social
You are not forgotten

I see your faces,
I know your names,
I remember your stories.

#StandByMEcfs #StillSickStillFighting #MillionsMissing #TeachMETreatME #GlobalVoiceForME #EndMEcfs
Photo description: A hand with End ME/CFS blue bands on wrist. Photo credit: Cynthia Johnson (who has suffered from ME/CFS since 2009).
March 5, 2025 at 9:35 PM
minetodo.bsky.social
World ME Day - May 12, 2025

We need good health care, up-to-date medical education and immediate research funding!
I have suffered from ME/CFS since 2009.
#StandByMEcfs #StillSickStillFighting #MEcfs #EndMEcfs
#MEAction #MillionsMissing #TeachMETreatME #pwME
A floral print chair with a red blanket folded on the top that says: #MEAction Still Here Still Sick.
May 12, 2025 at 7:10 AM
minetodo.bsky.social
You are not forgotten

I see your faces,
I know your names,
I remember your stories.

#StandByMEcfs #StillSickStillFighting #MillionsMissing #UnitedForME #GlobalVoiceForME #EndMEcfs #MEcfs
Photo description: A hand with End ME/CFS blue bands on wrist. Photo credit: Cynthia Johnson (who has suffered from ME/CFS since 2009).
May 2, 2026 at 7:37 PM
minetodo.bsky.social
Please help us take action today!
www.meactions.org
#StandByMEcfs #StillSickStillFighting #MEcfs #pwME
Take Action for ME/CFS
Take action with #MEAction and fight for all people with ME and Long COVID.
www.meactions.org
February 27, 2025 at 5:35 AM
minetodo.bsky.social
Want to give a holiday shout out to all who also suffer from ME/CFS and the people that love us!
To learn more:
MEAction Network (meaction.net),
Bateman Horne Center (batemanhornecenter.org),
Open Medicine Foundation (omf.ngo) and
Solve M.E (solvecfs.org).
#StandByMEcfs #TeachMETreatME
December 21, 2024 at 11:55 PM
minetodo.bsky.social
World M.E. Day - May 12, 2026

The #MillionsMissing from ME/CFS need better health care, up-to-date medical education and research funding now!
I have suffered from ME/CFS since 2009.
#StandByMEcfs #UnitedForME #StillSickStillFighting #pwME
#EndMEcfs #MEcfs #myalgicencephalomyelitis #MEAction
A floral print chair with a red blanket folded on the top that says: #MEAction Still Here Still Sick.
May 11, 2026 at 6:48 PM
minetodo.bsky.social
To learn more about ME/CFS, check out:
Bateman Horne Center (www.batemanhornecenter.org).
MEAction Network (www.meaction.net),
Open Medicine Foundation (www.omf.ngo),
Solve M.E. (www.solvecfs.org)
#StandByMEcfs #StillSickStillFighting #MillionsMissing
May 13, 2025 at 10:44 PM
minetodo.bsky.social
Happy Birthday, Ringo Starr!
Peace and Love✌️💛
#StandByMEcfs
Photo of woman (Cynthia Johnson) wearing a jean jacket going across a crosswalk on a red mobility scooter. The back drop behind her is Abbey Road. #MEcfs since 2009 #StandByMEcfs
July 7, 2025 at 5:55 PM
minetodo.bsky.social
Happy Birthday, Paul McCartney!
Thanks for making our world a little brighter!
#StandByMEcfs
Photo of woman (Cynthia Johnson) wearing a jean jacket going across a crosswalk on a red mobility scooter. The back drop behind her is Abbey Road. #MEcfs since 2009 #StandByMEcfs
June 18, 2025 at 8:02 PM
minetodo.bsky.social
Great group! #StandByMEcfs #UnitedForME
January 14, 2026 at 10:45 PM
minetodo.bsky.social
Stand By ME/CFS!
We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice and become an ally today!
#StandByMEcfs #StillSickStillFighting #MEcfs
#TeachMETreatME #EndMEcfs #GlobalVoiceforME
#wishtreeforyokoono
Wish tag from virtual Wish Tree for Yoko Ono. Cynthia's wish is: Stand By ME/CFS!
January 24, 2025 at 10:17 PM
minetodo.bsky.social
Stand By ME/CFS!
Please take a look at my Stand By ME/CFS video: youtu.be/s9cMmFDI4rk
And become an ally in 2025!
With gratitude, Cynthia 💛

#StandByMEcfs #GlobalVoiceForME #TeachMETreatME
#StillSickStillFighting #MillionsMissing #ForgetMEnot #MEcfs #MyalgicEncephalomyelitis #EndMEcfs
Stand By ME/CFS | Cynthia Johnson, Edge Prize 2023
YouTube video by The Edge Prize
youtu.be
April 5, 2025 at 1:40 AM
minetodo.bsky.social
Stand By ME/CFS!
We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice and become an ally today!

#StandByMEcfs #StillSickStillFighting #MEcfs #pwME
#TeachMETreatME #EndMEcfs #GlobalVoiceforME
#wishtreeforyokoono
Wish tag from virtual Wish Tree for Yoko Ono. Cynthia's wish is: Stand By ME/CFS!
October 13, 2025 at 10:51 PM
minetodo.bsky.social
Dear friends and kind souls:
Please help as you can today! 💛
With gratitude, Cynthia Johnson
#StandByMEcfs #StillSickStillFighting
gofund.me/0d803d22
Donate to Financial Stability for Chronically-Ill Advocate, organized by Shane Johnson
This is a humble request for financial help for my mother, Cynthia John… Shane Johnson needs your support for Financial Stability for Chronically-Ill Advocate
gofund.me
November 18, 2024 at 6:36 AM
minetodo.bsky.social
Severe ME Day - August 8, 2026 #SevereMEday
#StandByMEcfs #StillSickStillFighting #UnitedForME #MEcfs
Image by Cynthia Johnson (ME/CFS since 2009)
Reaching hand on a red and black background in honor of Severe ME Day (August 8, 2026). Image by Cynthia Johnson (ME/CFS since 2009)
August 8, 2026 at 3:06 PM
minetodo.bsky.social
Dear friends and kind souls:
Please help as you can today! 💛
With gratitude, Cynthia Johnson
#StandByMEcfs #StillSickStillFighting
gofund.me/0d803d22
Donate to Financial Stability for Chronically-Ill Advocate, organized by Shane Johnson
This is a humble request for financial help for my mother, Cynthia John… Shane Johnson needs your support for Financial Stability for Chronically-Ill Advocate
gofund.me
December 1, 2024 at 1:02 AM
minetodo.bsky.social
And from their bed😉. #StandByMEcfs
February 14, 2025 at 10:36 PM
minetodo.bsky.social
To learn more about ME/CFS, check out:
Bateman Horne Center (www.batemanhornecenter.org).
MEAction Network (www.meaction.net),
Open Medicine Foundation (www.omf.ngo),
Solve M.E. (www.solvecfs.org)
#StandByMEcfs #StillSickStillFighting #MillionsMissing
December 8, 2025 at 8:07 AM
minetodo.bsky.social
Stand By ME/CFS!
We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice and become an ally today!

#StandByMEcfs #StillSickStillFighting #MEcfs
#TeachMETreatME #EndMEcfs #GlobalVoiceforME
#wishtreeforyokoono
Wish tag from virtual Wish Tree for Yoko Ono. Cynthia's wish is: Stand By ME/CFS!
April 7, 2025 at 6:55 PM
minetodo.bsky.social
Thanks so much, Erin! 💛 #StandByMEcfs #MEAction
March 7, 2025 at 9:36 PM
minetodo.bsky.social
Please join me and many others in signing this letter today!
I have suffered from ME/CFS since 2009.
#FundMERoadMap #StandByMEcfs
meactnet.bsky.social #MEAction Network @meactnet.bsky.social · Nov 14
The last day to sign our letter to the NIH calling on the director to fund the ME/CFS Research Roadmap is this Friday, Nov. 15th!

US signers: bit.ly/FundRoadmapUS

International signers: bit.ly/FundRoadmapG...

It will take all of us to show that we are united!

#PwME #MECFS #LongCovid
Black square with white text and red accents. Text: NIH, fund the ME/CFS Research Roadmap! Deadline to sign 11/15/24.
November 15, 2024 at 5:52 PM
minetodo.bsky.social
World ME Day - May 12, 2025

I have suffered from ME/CFS since 2009.
We need good health care, up-to-date medical education and immediate research funding!
This bipartisan issue impacts people of all ages.
Please help us find the cure soon.
#StandByMEcfs #StillSickStillFighting #MEcfs #EndMEcfs
Photo of woman with ME/CFS on mobility scooter in front of sign: Third Annual Community Symposium on the Molecular Basis of ME/CFS, Saturday, September 7, 2019 The post talks about World ME Day on May 12, 2025 and the need for good health care, up-to-date ME/CFS medical education and immediate research funding. This disease impacts people of all ages. Hoping for a cure soon! #StandByMEcfs #StillSickStillFighting #EndMEcfs (Photo of Cynthia Johnson taken by her son in 2019 at an Open Medicine Foundation event. She has suffered from ME/CFS since 2009)
May 4, 2025 at 11:56 PM