December 9, 2024 at 11:37 PM
May is Syringomyelia Awareness Month.
This is a video I made about Syringomyelia and how it has affected (aka ruined) my life.
#Disability #ChronicPain #InvisibleDisability
This is a video I made about Syringomyelia and how it has affected (aka ruined) my life.
#Disability #ChronicPain #InvisibleDisability
May 1, 2025 at 6:57 PM
May is Syringomyelia Awareness Month.
This is a video I made about Syringomyelia and how it has affected (aka ruined) my life.
#Disability #ChronicPain #InvisibleDisability
This is a video I made about Syringomyelia and how it has affected (aka ruined) my life.
#Disability #ChronicPain #InvisibleDisability
Just once, I want to wake up without pain.
Just once, I want to wake up feeling refreshed and energetic.
It’s been twenty years.
#spoonie #ChronicPain #disabled #syringomyelia
Just once, I want to wake up feeling refreshed and energetic.
It’s been twenty years.
#spoonie #ChronicPain #disabled #syringomyelia
July 26, 2025 at 5:24 PM
Just once, I want to wake up without pain.
Just once, I want to wake up feeling refreshed and energetic.
It’s been twenty years.
#spoonie #ChronicPain #disabled #syringomyelia
Just once, I want to wake up feeling refreshed and energetic.
It’s been twenty years.
#spoonie #ChronicPain #disabled #syringomyelia
HEY my friend needs brain surgery have you ever had brain surgery me neither it sounds fucking TERRIFYING y'know what else is terrifying? fucking DEBT do you like being in debt? me fucking NEITHER please help my friend have one less thing to worry about while she recovers from SURGERY on her BRAIN 🙏
Donate to Kaye's Fight Against Chiari Malformation-Syringomyelia, organized by Kaye Kunz
My name is Kaye and I have a condition called Chiari Malformation. I … Kaye Kunz needs your support for Kaye's Fight Against Chiari Malformation-Syringomyelia
www.gofundme.com
July 29, 2025 at 2:32 AM
HEY my friend needs brain surgery have you ever had brain surgery me neither it sounds fucking TERRIFYING y'know what else is terrifying? fucking DEBT do you like being in debt? me fucking NEITHER please help my friend have one less thing to worry about while she recovers from SURGERY on her BRAIN 🙏
May is syringomyelia awareness month! #chronicillness
May 2, 2025 at 9:41 PM
May is syringomyelia awareness month! #chronicillness
Dear American syringomyelia, dysautonomia, and pain doctors and specialists:
Please move to Ontario. I need you. Let me be your first patient. Please. If you could collaborate, that would be even better. I’m desperate for competent care.
Please move to Ontario. I need you. Let me be your first patient. Please. If you could collaborate, that would be even better. I’m desperate for competent care.
HALIFAX — Recruiters say there’s been a surge of interest from American doctors considering moving to Canada since the election of the felon in November. #NovaScotia #Canada
Dr. Rohini Patel said in an interview that her firm — CanAm Physician Recruiters — has added 347 new U.S. /1 (thread)
Dr. Rohini Patel said in an interview that her firm — CanAm Physician Recruiters — has added 347 new U.S. /1 (thread)
April 12, 2025 at 8:39 PM
Dear American syringomyelia, dysautonomia, and pain doctors and specialists:
Please move to Ontario. I need you. Let me be your first patient. Please. If you could collaborate, that would be even better. I’m desperate for competent care.
Please move to Ontario. I need you. Let me be your first patient. Please. If you could collaborate, that would be even better. I’m desperate for competent care.
Hey I got Syringomyelia right this week
May 16, 2025 at 12:56 PM
Hey I got Syringomyelia right this week
It’s syringomyelia month! Remember, syringomyelia isn’t just for dogs! 😆
May 2, 2026 at 5:47 PM
It’s syringomyelia month! Remember, syringomyelia isn’t just for dogs! 😆
Several symptoms labeled "psychosomatic" by my doctors are explained by my diagnosis of pernicious anemia, something I became aware of and asked them to look into long ago. They knew docshad been wrong about my EDS, syringomyelia, MCAS etc. in the past but they didn't think THEY could be wrong...
June 18, 2025 at 9:27 PM
Several symptoms labeled "psychosomatic" by my doctors are explained by my diagnosis of pernicious anemia, something I became aware of and asked them to look into long ago. They knew docshad been wrong about my EDS, syringomyelia, MCAS etc. in the past but they didn't think THEY could be wrong...
I will be off for awhile. Found out today my progressive Syringomyelia has created spinal buckling. Surgery on Wednesday doing a cervical fusion then a laminectomy fusion from c2 to t2....very major but without it Im doomed.
Expecting everyone to keep fighting. Jold down the fort for me. Much ❤️
Expecting everyone to keep fighting. Jold down the fort for me. Much ❤️
June 19, 2026 at 6:42 AM
I will be off for awhile. Found out today my progressive Syringomyelia has created spinal buckling. Surgery on Wednesday doing a cervical fusion then a laminectomy fusion from c2 to t2....very major but without it Im doomed.
Expecting everyone to keep fighting. Jold down the fort for me. Much ❤️
Expecting everyone to keep fighting. Jold down the fort for me. Much ❤️
The orthopedic chair my doctor prescribed (and yes, I got reimbursed!) for my EDS, scoliosis, Chiari-Syringomyelia & CCI/AAI has arrived. If this thing works as promised, it's over for all of you.
December 21, 2023 at 6:28 PM
The orthopedic chair my doctor prescribed (and yes, I got reimbursed!) for my EDS, scoliosis, Chiari-Syringomyelia & CCI/AAI has arrived. If this thing works as promised, it's over for all of you.
There’s also Chiari malformation “headaches “ that go misdiagnosed as migraines. That’s why I’m permanently disabled for life bc I was misdiagnosed for years & yrs with migraines etc everything EXCEPT Chiari and syringomyelia
January 25, 2026 at 1:22 PM
There’s also Chiari malformation “headaches “ that go misdiagnosed as migraines. That’s why I’m permanently disabled for life bc I was misdiagnosed for years & yrs with migraines etc everything EXCEPT Chiari and syringomyelia
This person said this knowing full well I have a cancer mutation that causes cancer all over the body, too. And EDS WITH aortic aneurysm ... Chiari-Syringomyelia, epilepsy etc. I don't call any of that "luck."
July 15, 2025 at 3:54 PM
This person said this knowing full well I have a cancer mutation that causes cancer all over the body, too. And EDS WITH aortic aneurysm ... Chiari-Syringomyelia, epilepsy etc. I don't call any of that "luck."
A 1 year old dog should not be in so much pain.
He's in so much pain, folks.
Vets not ruling out IVDD, Tethered Cord Syndrome or Syringomyelia yet folks, but some of these are 'might live a very short life so he's not constantly suffering' levels of pain.
He's in so much pain, folks.
Vets not ruling out IVDD, Tethered Cord Syndrome or Syringomyelia yet folks, but some of these are 'might live a very short life so he's not constantly suffering' levels of pain.
January 9, 2025 at 3:52 AM
A 1 year old dog should not be in so much pain.
He's in so much pain, folks.
Vets not ruling out IVDD, Tethered Cord Syndrome or Syringomyelia yet folks, but some of these are 'might live a very short life so he's not constantly suffering' levels of pain.
He's in so much pain, folks.
Vets not ruling out IVDD, Tethered Cord Syndrome or Syringomyelia yet folks, but some of these are 'might live a very short life so he's not constantly suffering' levels of pain.
As an acupuncturist, I have witnessed some extreme pain, including the most painful Syringomyelia, a neurological disorder that causes a fluid-filled cyst, called a syrinx, to form in the spinal cord. Seriously though, most of my patients are women who wouldn’t dream of killing a UHC CEO.
December 10, 2024 at 2:35 PM
As an acupuncturist, I have witnessed some extreme pain, including the most painful Syringomyelia, a neurological disorder that causes a fluid-filled cyst, called a syrinx, to form in the spinal cord. Seriously though, most of my patients are women who wouldn’t dream of killing a UHC CEO.