A1 I’m Raspberry! I’m using Visible for my ME/CFS, POTS, hEDS, and a very long list of other diagnoses. I use she/her pronouns but I don’t really care that much. I love cats, video games, drawing, watercolor, jigsaw puzzles, coding/programming, and House MD. I’m also autistic 🙂 #visibleappchat

A3 #visibleappchat
I have comorbid POTS with my ME/CFS so laying down with my feet propped up against the wall so the blood comes back to my brain helps. That in combination with an ice pack to the forehead or back of my neck really helps. Ice and cold in general can be helpful

Sooooooo I keep hoping I'll have the spoons to do the daily questions etc. But I'm so tired! Does anyone want to take over this account to do it? #visibleapp #visibleappchat

Q6 what are some quiet activities that help you when you need to reduce your pace points for the day? #visibleappchat #visibleapp

Q5 do you have ideas for daily-ish questions for #visibleappchat? What do you think of people volunteering for a certain day of the week (or other schedule) to come up with one? #visibleapp

Q4 how did you hear about #visibleapp? What made you decide to try it, if you have?
#visibleappchat #visibleapp #pacing #mecfs #longcovid #pots #spoonie #chronicillness #chroniclife

Q3 when your heart rate is up, is there anything that helps bring it down quickly? Or at least reduces it a bit?

#visibleappchat #visibleapp #mecfs #longcovid #pots #spoonie #chronicillness #chroniclife

Q2 has anything surprised you that can raise your heart rate? What sorts of things do, if you want to share?
#visibleappchat #visibleapp #mecfs #longcovid #pots #spoonie #chronicillness #chroniclife

Q1 introduce yourself however you feel comfortable (no dx or medical info needed, this is a public forum, unless you want to). Bonus points for pet pics!
#visibleappchat #visibleapp #mecfs #longcovid #pots #spoonie #chroniclife #chronicillness

Using #visibleapp to pace with #mecfs / #longcovid? Join #visibleappchat for daily-ish questions and conversation. #spoonie #chroniclife #chronicillness #pots

I probably should have used #visibleapp too. 😅 #visibleappchat

You can also just click on this account profile to see questions. That's why I made a separate one from my person one, so they won't get so lost #visibleappchat

You can search #visibleappchat and Q1, for instance to find it. It will help conversation if responses use the tag and A1, for instance, for answers, or reply to the original question post. If possible, but also I imagine we are all pretty tired! So don't worry about it if it's too much/forget

#visibleappchat will be a daily/ most days question that you can join at your leisure. The format will be the tag and the question number, like Q1.

I wanted to be more well thought out before starting #visibleappchat but if I do that, I'll never start because omg brain fog and fatigue! So here goes....

A1 Tansi! Hi! I’m a disabled Indigenous keynote speaker/singer. I’m also a trauma-informed personal mentor and virtual event host for Covid-conscious women. 🔗 in my bio. Been using Visible app daily since April 2024 and love it. I’m a 4/5 today after a crash yesterday. Thx for this #VisibleAppChat!

Yes cat purring is scientifically proven to be good for us. 😻 My cat Pixie here. #visibleappchat #longcovid #mecfs