One week to go!
From April 22–29, we come together for World PI Week.
Because access to full care — from early diagnosis to timely treatment and support — cannot wait.
Join us!
Together, we will make this happen.
#WorldPIWeek #AccessToCare #WorldPIWeek2026 #PatientAdvocacy #WeCantWait
From April 22–29, we come together for World PI Week.
Because access to full care — from early diagnosis to timely treatment and support — cannot wait.
Join us!
Together, we will make this happen.
#WorldPIWeek #AccessToCare #WorldPIWeek2026 #PatientAdvocacy #WeCantWait
April 15, 2026 at 11:57 AM
One week to go!
From April 22–29, we come together for World PI Week.
Because access to full care — from early diagnosis to timely treatment and support — cannot wait.
Join us!
Together, we will make this happen.
#WorldPIWeek #AccessToCare #WorldPIWeek2026 #PatientAdvocacy #WeCantWait
From April 22–29, we come together for World PI Week.
Because access to full care — from early diagnosis to timely treatment and support — cannot wait.
Join us!
Together, we will make this happen.
#WorldPIWeek #AccessToCare #WorldPIWeek2026 #PatientAdvocacy #WeCantWait
It's #WorldPIWeek, muthas. Immunological knowledge keeps me and many others on the right side of the dirt. I will never be able to express enough gratitude to the #Immunology community, but I can try.
#dis #chronicallyill #chronicallyawesome #chronicillness #sick #PI
#dis #chronicallyill #chronicallyawesome #chronicillness #sick #PI
April 29, 2026 at 5:51 PM
It's #WorldPIWeek, muthas. Immunological knowledge keeps me and many others on the right side of the dirt. I will never be able to express enough gratitude to the #Immunology community, but I can try.
#dis #chronicallyill #chronicallyawesome #chronicillness #sick #PI
#dis #chronicallyill #chronicallyawesome #chronicillness #sick #PI
70-90% of people with primary immunodeficiencies remain undiagnosed.
Early detection is life-changing, as it enables treatment and self-management. Help to #SeeTheUnseen this #WorldPIWeek and join the conversation! 🤝
Visit bit.ly/4b2wIsw to learn more and take action.
Early detection is life-changing, as it enables treatment and self-management. Help to #SeeTheUnseen this #WorldPIWeek and join the conversation! 🤝
Visit bit.ly/4b2wIsw to learn more and take action.
April 24, 2025 at 1:21 PM
70-90% of people with primary immunodeficiencies remain undiagnosed.
Early detection is life-changing, as it enables treatment and self-management. Help to #SeeTheUnseen this #WorldPIWeek and join the conversation! 🤝
Visit bit.ly/4b2wIsw to learn more and take action.
Early detection is life-changing, as it enables treatment and self-management. Help to #SeeTheUnseen this #WorldPIWeek and join the conversation! 🤝
Visit bit.ly/4b2wIsw to learn more and take action.
🌍 World PI Week 2025 | #SeeTheUnseen
This week, we lift the blindfold on primary immunodeficiencies (PIDs). Watch our video, share the message, and help make us #SeeTheUnseen — for awareness, for access, for all!
#WorldPIWeek #SeeTheUnseen #PrimaryImmunodeficiencies #IPOPI #WorldPIWeek2025
This week, we lift the blindfold on primary immunodeficiencies (PIDs). Watch our video, share the message, and help make us #SeeTheUnseen — for awareness, for access, for all!
#WorldPIWeek #SeeTheUnseen #PrimaryImmunodeficiencies #IPOPI #WorldPIWeek2025
April 21, 2025 at 10:59 PM
🌍 World PI Week 2025 | #SeeTheUnseen
This week, we lift the blindfold on primary immunodeficiencies (PIDs). Watch our video, share the message, and help make us #SeeTheUnseen — for awareness, for access, for all!
#WorldPIWeek #SeeTheUnseen #PrimaryImmunodeficiencies #IPOPI #WorldPIWeek2025
This week, we lift the blindfold on primary immunodeficiencies (PIDs). Watch our video, share the message, and help make us #SeeTheUnseen — for awareness, for access, for all!
#WorldPIWeek #SeeTheUnseen #PrimaryImmunodeficiencies #IPOPI #WorldPIWeek2025
As we observe World PI Week 2025, we are pleased to see IPOPI's Executive Director, @johanprevot.bsky.social, featured in an article by rare disease advocate Tom Larmondra.
📖 Read the full article: linkedin.com/posts/tomlar...
#WorldPIWeek #NewbornScreening #SCID #IPOPI #Screen4Rare
📖 Read the full article: linkedin.com/posts/tomlar...
#WorldPIWeek #NewbornScreening #SCID #IPOPI #Screen4Rare
April 24, 2025 at 9:21 AM
As we observe World PI Week 2025, we are pleased to see IPOPI's Executive Director, @johanprevot.bsky.social, featured in an article by rare disease advocate Tom Larmondra.
📖 Read the full article: linkedin.com/posts/tomlar...
#WorldPIWeek #NewbornScreening #SCID #IPOPI #Screen4Rare
📖 Read the full article: linkedin.com/posts/tomlar...
#WorldPIWeek #NewbornScreening #SCID #IPOPI #Screen4Rare
During #worldpiweek, let’s highlight the importance of registering our patients. We are proud to present the LASID registry! This not only helps us understand our patients better, but also helps us to fight for their access to treatment. In other words, see the unseen!
April 24, 2025 at 5:38 PM
During #worldpiweek, let’s highlight the importance of registering our patients. We are proud to present the LASID registry! This not only helps us understand our patients better, but also helps us to fight for their access to treatment. In other words, see the unseen!
From all over Latin America, we are starting this #worldpiweek to raise awareness! Patients with immunodeficiency are there. To find them, you need to know about them! See the unseen #wearepi
April 22, 2025 at 9:19 PM
From all over Latin America, we are starting this #worldpiweek to raise awareness! Patients with immunodeficiency are there. To find them, you need to know about them! See the unseen #wearepi
From all over Latin America, we are starting this #worldpiweek to raise awareness! Patients with immunodeficiency are there. To find them, you need to know about them! See the unseen #wearepi
April 22, 2025 at 9:18 PM
From all over Latin America, we are starting this #worldpiweek to raise awareness! Patients with immunodeficiency are there. To find them, you need to know about them! See the unseen #wearepi
People with immunodeficiency get the same kinds of infections other people get like ear infections, sinusitis & pneumonia. The difference is their infections occur more frequently, are often more severe & have a greater risk of complications. #PIAwareness #WorldPIWeek
www.aaaai.org/tools-for-th...
www.aaaai.org/tools-for-th...
April 23, 2025 at 7:44 PM
People with immunodeficiency get the same kinds of infections other people get like ear infections, sinusitis & pneumonia. The difference is their infections occur more frequently, are often more severe & have a greater risk of complications. #PIAwareness #WorldPIWeek
www.aaaai.org/tools-for-th...
www.aaaai.org/tools-for-th...
