November 29, 2025 at 3:09 PM
#ableism #medicalgaslighting #medicalmisogyny #mydisabledlifeisworthy #actuallyautistic #chronicallyawesome #lymewarrior #disabilityjustice #healthcare
November 29, 2024 at 4:14 AM
My daughter and I are navigating our new normal: my new diagnosis which requires IV medication for eight hours, every two weeks, for the rest of my life. —"Scarring" by @sherylstein.bsky.social in case you missed it
https://www.fiveminutelit.com/scarring
https://www.fiveminutelit.com/scarring
June 2, 2025 at 8:25 PM
Ready for my close up, Mr. DeMille. #post-op #eye #surgery #ow #pirate 🦜 #chronicallyill #chronicallyawesome #dis
March 25, 2025 at 1:19 AM
Ready for my close up, Mr. DeMille. #post-op #eye #surgery #ow #pirate 🦜 #chronicallyill #chronicallyawesome #dis
Hello, and welcome to today's edition of Stress Baking with Sheryl. Today was particularly tough. Bourbon Blondies.
So yeah. Be sure to underbake so they're nice and gushy.
#rarediseaseday #rarediseaseday2025 #cvid #chronicallyill #chronicallyawesome #dis #slavaukraini
So yeah. Be sure to underbake so they're nice and gushy.
#rarediseaseday #rarediseaseday2025 #cvid #chronicallyill #chronicallyawesome #dis #slavaukraini
February 28, 2025 at 10:38 PM
Hello, and welcome to today's edition of Stress Baking with Sheryl. Today was particularly tough. Bourbon Blondies.
So yeah. Be sure to underbake so they're nice and gushy.
#rarediseaseday #rarediseaseday2025 #cvid #chronicallyill #chronicallyawesome #dis #slavaukraini
So yeah. Be sure to underbake so they're nice and gushy.
#rarediseaseday #rarediseaseday2025 #cvid #chronicallyill #chronicallyawesome #dis #slavaukraini
I know that there are tons of us on social media. Sending out some good vibes to all ⭐️💗
#chronicillness #mademelaugh #spoonies #chronicallyawesome #InvisibleDisabilities #disabled #disabledartist #smileithelps #feelbetterfriday
#chronicillness #mademelaugh #spoonies #chronicallyawesome #InvisibleDisabilities #disabled #disabledartist #smileithelps #feelbetterfriday
March 28, 2026 at 12:39 AM
I know that there are tons of us on social media. Sending out some good vibes to all ⭐️💗
#chronicillness #mademelaugh #spoonies #chronicallyawesome #InvisibleDisabilities #disabled #disabledartist #smileithelps #feelbetterfriday
#chronicillness #mademelaugh #spoonies #chronicallyawesome #InvisibleDisabilities #disabled #disabledartist #smileithelps #feelbetterfriday
About a year ago my left eye developed crazy pressure and I had to have eye surgery. Right eye has decided it is now its turn. 🙁 I have so much to do RN but my body has other ideas. #Dis #writing #chronicallyawesome #chronicallyill #writingcommunity #BookSky 📖
a close up of a person 's eye with a few spots on it
Alt: a close up of a person 's eye with a few spots on it
media.tenor.com
March 12, 2025 at 3:50 PM
About a year ago my left eye developed crazy pressure and I had to have eye surgery. Right eye has decided it is now its turn. 🙁 I have so much to do RN but my body has other ideas. #Dis #writing #chronicallyawesome #chronicallyill #writingcommunity #BookSky 📖
My #Halloween #costume this year is lady who fights highly resistant bacterial infection w/an ER trip & 4 IVs of some really tough-ass antibiotic.
Wanna know scary, boos & ghouls? Antibiotic resistance.
#raredisease #dis #chronicallyill #chronicallyawesome #spooky @ylepidemiologist.bsky.social
Wanna know scary, boos & ghouls? Antibiotic resistance.
#raredisease #dis #chronicallyill #chronicallyawesome #spooky @ylepidemiologist.bsky.social
October 31, 2025 at 3:01 PM
My #Halloween #costume this year is lady who fights highly resistant bacterial infection w/an ER trip & 4 IVs of some really tough-ass antibiotic.
Wanna know scary, boos & ghouls? Antibiotic resistance.
#raredisease #dis #chronicallyill #chronicallyawesome #spooky @ylepidemiologist.bsky.social
Wanna know scary, boos & ghouls? Antibiotic resistance.
#raredisease #dis #chronicallyill #chronicallyawesome #spooky @ylepidemiologist.bsky.social
I have to keep those on for pill reminders... the life of being #ChronicallyAwesome
September 14, 2026 at 11:35 PM
I have to keep those on for pill reminders... the life of being #ChronicallyAwesome
It's been so long since I had a terrible cold/upper respiratory infection that I'd forgotten how much it sucks.
Bleh.
In other news, my body comp at present is about 60% decaf tea. #sick #sickofbeingsick #chronicallyawesome
Bleh.
In other news, my body comp at present is about 60% decaf tea. #sick #sickofbeingsick #chronicallyawesome
February 3, 2025 at 3:53 PM
It's been so long since I had a terrible cold/upper respiratory infection that I'd forgotten how much it sucks.
Bleh.
In other news, my body comp at present is about 60% decaf tea. #sick #sickofbeingsick #chronicallyawesome
Bleh.
In other news, my body comp at present is about 60% decaf tea. #sick #sickofbeingsick #chronicallyawesome
reminder-- get your #vaccinations -- for you AND your family. it not only protects you -- it protects a lot of others, too. #vaccine #vaccination @alt-hhs.altgov.info #dis #chronicallyill #chronicallyawesome #communityimmunity @immunedeficiency.bsky.social
February 9, 2026 at 2:57 PM
reminder-- get your #vaccinations -- for you AND your family. it not only protects you -- it protects a lot of others, too. #vaccine #vaccination @alt-hhs.altgov.info #dis #chronicallyill #chronicallyawesome #communityimmunity @immunedeficiency.bsky.social
I'm sorry you have to be this strong. But know that YOU are VALID.
I face and defeat lupus and Sjogrens symptoms every day. Sometimes I don't win. That's okay. One day at a time. #rarediseaseday #chronicallyawesome #lupus #sjogrens #immunecompromised #chronicillness #spoonie
I face and defeat lupus and Sjogrens symptoms every day. Sometimes I don't win. That's okay. One day at a time. #rarediseaseday #chronicallyawesome #lupus #sjogrens #immunecompromised #chronicillness #spoonie
Last night, the chapel facade of Magdalen College was lit up ahead of #RareDiseaseDay.
A disease is classed as rare when it affects fewer than 1 in 2000 people and there are over 3.5 million people living with a rare condition in the UK alone.
📷 | @oxfordpaediatrics.bsky.social
A disease is classed as rare when it affects fewer than 1 in 2000 people and there are over 3.5 million people living with a rare condition in the UK alone.
📷 | @oxfordpaediatrics.bsky.social
February 28, 2025 at 2:39 PM
I'm sorry you have to be this strong. But know that YOU are VALID.
I face and defeat lupus and Sjogrens symptoms every day. Sometimes I don't win. That's okay. One day at a time. #rarediseaseday #chronicallyawesome #lupus #sjogrens #immunecompromised #chronicillness #spoonie
I face and defeat lupus and Sjogrens symptoms every day. Sometimes I don't win. That's okay. One day at a time. #rarediseaseday #chronicallyawesome #lupus #sjogrens #immunecompromised #chronicillness #spoonie
November 17, 2025 at 2:10 PM
Hi to new #writingcommunity people joining us here on BlueSky! #amquerying #amwriting #amreading #BookSky I'm Sher. I write #WF straddling commercial and #upmarket. I'm obsessed w/music and family and comedy and living fully w/my rare disease. #chronicillness #chronicallyawesome Who are you?
November 7, 2024 at 2:31 PM
Hi to new #writingcommunity people joining us here on BlueSky! #amquerying #amwriting #amreading #BookSky I'm Sher. I write #WF straddling commercial and #upmarket. I'm obsessed w/music and family and comedy and living fully w/my rare disease. #chronicillness #chronicallyawesome Who are you?
I forgot I'd taken the cap off of a protein shake, shook it, and just spent 90 minutes cleaning up the results from my kitchen. Thanks, prednisone.
#Dis #chronicallyill #chronicallyawesome #pneumonia #RSV #mess
#Dis #chronicallyill #chronicallyawesome #pneumonia #RSV #mess
a man in a floral shirt says " this is a disaster " in white letters
ALT: a man in a floral shirt says " this is a disaster " in white letters
media.tenor.com
November 26, 2025 at 4:50 PM
I forgot I'd taken the cap off of a protein shake, shook it, and just spent 90 minutes cleaning up the results from my kitchen. Thanks, prednisone.
#Dis #chronicallyill #chronicallyawesome #pneumonia #RSV #mess
#Dis #chronicallyill #chronicallyawesome #pneumonia #RSV #mess
Sitting in the airport trying not to stare at some of the strange agents. Found this medical mystery article from the WaPo about me and how I was diagnosed with #cvid. Posting in case it helps someone. @immunedeficiency.bsky.social #dis #chronicillness #chronicallyawesome #primaryimmunodeficiency
An unusual coincidence solved the mystery of the scary nosebleeds and low platelet counts
Doctors couldn’t figure out what was causing her scary platelet count, but Sheryl Stein had a theory.
www.washingtonpost.com
December 6, 2025 at 11:29 PM
Sitting in the airport trying not to stare at some of the strange agents. Found this medical mystery article from the WaPo about me and how I was diagnosed with #cvid. Posting in case it helps someone. @immunedeficiency.bsky.social #dis #chronicillness #chronicallyawesome #primaryimmunodeficiency
Today is Rare Disease Day. I am one of millions of people living with a rare disease. Find out more about my condition #cvid
#dis #rarediseaseday #disability #chronicallyill #chronicallyawesome #immunedeficiency #illness @immunedeficiency.bsky.social
#dis #rarediseaseday #disability #chronicallyill #chronicallyawesome #immunedeficiency #illness @immunedeficiency.bsky.social
Common variable immune deficiency (CVID) | Immune Deficiency Foundation
Common variable immune deficiency (CVID), previously known as adult-onset hypogammaglobulinemia, is one of the most frequently diagnosed primary immunodeficiencies. It is characterized by low levels o...
primaryimmune.org
February 28, 2025 at 3:23 PM
Today is Rare Disease Day. I am one of millions of people living with a rare disease. Find out more about my condition #cvid
#dis #rarediseaseday #disability #chronicallyill #chronicallyawesome #immunedeficiency #illness @immunedeficiency.bsky.social
#dis #rarediseaseday #disability #chronicallyill #chronicallyawesome #immunedeficiency #illness @immunedeficiency.bsky.social
I am sharing this in solidarity with everyone that has any chronic illness or disability. We all struggle with something. Let’s all try to understand each other’s reality and apply our empathy.
#FibromyalgiaAwareness #FibroWarrior #ChronicallyAwesome
#DisabledArtist #InvisibleDisability
#FibromyalgiaAwareness #FibroWarrior #ChronicallyAwesome
#DisabledArtist #InvisibleDisability
May 10, 2025 at 8:30 PM
I am sharing this in solidarity with everyone that has any chronic illness or disability. We all struggle with something. Let’s all try to understand each other’s reality and apply our empathy.
#FibromyalgiaAwareness #FibroWarrior #ChronicallyAwesome
#DisabledArtist #InvisibleDisability
#FibromyalgiaAwareness #FibroWarrior #ChronicallyAwesome
#DisabledArtist #InvisibleDisability
It's #WorldPIWeek, muthas. Immunological knowledge keeps me and many others on the right side of the dirt. I will never be able to express enough gratitude to the #Immunology community, but I can try.
#dis #chronicallyill #chronicallyawesome #chronicillness #sick #PI
#dis #chronicallyill #chronicallyawesome #chronicillness #sick #PI
April 29, 2026 at 5:51 PM
It's #WorldPIWeek, muthas. Immunological knowledge keeps me and many others on the right side of the dirt. I will never be able to express enough gratitude to the #Immunology community, but I can try.
#dis #chronicallyill #chronicallyawesome #chronicillness #sick #PI
#dis #chronicallyill #chronicallyawesome #chronicillness #sick #PI
I didn’t hold back on how I’ve been feeling these past few months. #TacomaPhotographer #MyDisabledLifeIsWorthy #ChronicallyAwesome #CapitalismKills #EatTheRich
Meet Roxann Murray - Bold Journey Magazine
We recently connected with Roxann Murray and have shared our conversation below. Hi Roxann,
boldjourney.com
December 23, 2024 at 2:17 AM
I didn’t hold back on how I’ve been feeling these past few months. #TacomaPhotographer #MyDisabledLifeIsWorthy #ChronicallyAwesome #CapitalismKills #EatTheRich
FUN FACT: Some of us manage to contract highly resistant bacterial infections &it's not as fun as you'd think.
Don't overuse #antibiotics fam. It's how we got into this mess. They work on #bacteria. Not in any #virus.
#dis #chronicallyill #chronicallyawesome #raredisease #cvid #PI
Don't overuse #antibiotics fam. It's how we got into this mess. They work on #bacteria. Not in any #virus.
#dis #chronicallyill #chronicallyawesome #raredisease #cvid #PI
Leatylrs Friends GIF
ALT: Leatylrs Friends GIF
media.tenor.com
October 27, 2025 at 11:16 PM
FUN FACT: Some of us manage to contract highly resistant bacterial infections &it's not as fun as you'd think.
Don't overuse #antibiotics fam. It's how we got into this mess. They work on #bacteria. Not in any #virus.
#dis #chronicallyill #chronicallyawesome #raredisease #cvid #PI
Don't overuse #antibiotics fam. It's how we got into this mess. They work on #bacteria. Not in any #virus.
#dis #chronicallyill #chronicallyawesome #raredisease #cvid #PI
I really enjoyed taking the time to read Brittle Joints, a #graphicnovel by Maria Sweeney. She writes a lot of things that I feel when it comes to illness. #ChronicPain #ChronicallyAwesome #DoNoHarm #MyDisabledLifeIsWorthy#USHealthcare
January 16, 2025 at 2:34 AM
I really enjoyed taking the time to read Brittle Joints, a #graphicnovel by Maria Sweeney. She writes a lot of things that I feel when it comes to illness. #ChronicPain #ChronicallyAwesome #DoNoHarm #MyDisabledLifeIsWorthy#USHealthcare
I took The Shortest Australian Trip On Record™ Read all about it in my latest substack post. #travel #splitenz #australia
#sydney #dis #chronicallyill #chronicallyawesome
#sydney #dis #chronicallyill #chronicallyawesome
The Shortest Australian Trip On Record™
This post may take longer to read than the actual trip
sherylstein.substack.com
June 8, 2026 at 3:46 PM
I took The Shortest Australian Trip On Record™ Read all about it in my latest substack post. #travel #splitenz #australia
#sydney #dis #chronicallyill #chronicallyawesome
#sydney #dis #chronicallyill #chronicallyawesome
Today, we get to play the game: Where is my lifesaving medicine that was supposed to be delivered by noon today (sig req)?
A: On a plane in Indianapolis. Maybe the perishable stuff will show up tomorrow? Still cold?
#UnsuckFedex #Chronicallyill #Chronicallyawesome #chronicillness #raredisease
A: On a plane in Indianapolis. Maybe the perishable stuff will show up tomorrow? Still cold?
#UnsuckFedex #Chronicallyill #Chronicallyawesome #chronicillness #raredisease
June 18, 2025 at 4:15 PM
Today, we get to play the game: Where is my lifesaving medicine that was supposed to be delivered by noon today (sig req)?
A: On a plane in Indianapolis. Maybe the perishable stuff will show up tomorrow? Still cold?
#UnsuckFedex #Chronicallyill #Chronicallyawesome #chronicillness #raredisease
A: On a plane in Indianapolis. Maybe the perishable stuff will show up tomorrow? Still cold?
#UnsuckFedex #Chronicallyill #Chronicallyawesome #chronicillness #raredisease