Since the FDA can’t communicate with us, then I will help the government do their job. Subscribe to my Substack to get FDA recall alerts until their communication embargo is lifted. This is a matter of public safety.
drrubin.substack.com/p/fda-recall...
drrubin.substack.com/p/fda-recall...
FDA recall roundup (1/25/25)
Since federal agencies have had a pause on communications, what has the FDA recalled since then?
drrubin.substack.com
January 26, 2025 at 8:00 PM
We present an "Update on #InbornErrorsofImmunity" in JACI. Coauthored with Hanna IJspeert, Robyn O'Hehir, Virgil Dalm & Menno van Zelm. A great collaborative effort between Erasmus MC, Monash University Alfred Health. #JMFMelbourne #PrimaryImmunodeficiency
www.jacionline.org/article/S009...
www.jacionline.org/article/S009...
DEFINE_ME
www.jacionline.org
January 11, 2025 at 10:03 PM
We present an "Update on #InbornErrorsofImmunity" in JACI. Coauthored with Hanna IJspeert, Robyn O'Hehir, Virgil Dalm & Menno van Zelm. A great collaborative effort between Erasmus MC, Monash University Alfred Health. #JMFMelbourne #PrimaryImmunodeficiency
www.jacionline.org/article/S009...
www.jacionline.org/article/S009...
I've decided to open up and occasionally post about my experience here. Partly as a means to raise awareness (especially around the value of plasma donation) and to hopefully help others facing a similar diagnosis searching for information. #cvid #raredisease #primaryimmunodeficiency
(5/5)
(5/5)
September 10, 2025 at 1:08 PM
I've decided to open up and occasionally post about my experience here. Partly as a means to raise awareness (especially around the value of plasma donation) and to hopefully help others facing a similar diagnosis searching for information. #cvid #raredisease #primaryimmunodeficiency
(5/5)
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Don’t miss your chance to secure early bird rates for #IPIC2025!
Learn from the world-renowned experts as they present the latest advances in primary immunodeficiency care.
🎟️ Secure your ticket here: ipic2025.com/register-now/
#IPOPI #EarlyBirdRates #PrimaryImmunodeficiency
Learn from the world-renowned experts as they present the latest advances in primary immunodeficiency care.
🎟️ Secure your ticket here: ipic2025.com/register-now/
#IPOPI #EarlyBirdRates #PrimaryImmunodeficiency
February 4, 2025 at 12:05 PM
Don’t miss your chance to secure early bird rates for #IPIC2025!
Learn from the world-renowned experts as they present the latest advances in primary immunodeficiency care.
🎟️ Secure your ticket here: ipic2025.com/register-now/
#IPOPI #EarlyBirdRates #PrimaryImmunodeficiency
Learn from the world-renowned experts as they present the latest advances in primary immunodeficiency care.
🎟️ Secure your ticket here: ipic2025.com/register-now/
#IPOPI #EarlyBirdRates #PrimaryImmunodeficiency
December 3, 2025 at 4:27 AM
I have a #primaryimmunodeficiency. Most vaccines don’t work in my body because I don’t have a functioning immune system. Immunocompromised people depend on “herd immunity”-all the other people who do receive vaccines as a matter of sane public health. Today seems like a good day to mention this.
November 15, 2024 at 2:53 AM
I have a #primaryimmunodeficiency. Most vaccines don’t work in my body because I don’t have a functioning immune system. Immunocompromised people depend on “herd immunity”-all the other people who do receive vaccines as a matter of sane public health. Today seems like a good day to mention this.
#IPIC2025 registration is officially open! Don’t miss your chance to secure early bird rates! 🐦
Learn from world-renowned experts on the latest advances in primary immunodeficiency care.
🎟️Secure your place here: ipic2025.com/register-now/
#IPIC2025 #EarlyBirdRates #PrimaryImmunodeficiency
Learn from world-renowned experts on the latest advances in primary immunodeficiency care.
🎟️Secure your place here: ipic2025.com/register-now/
#IPIC2025 #EarlyBirdRates #PrimaryImmunodeficiency
February 3, 2025 at 11:49 AM
#IPIC2025 registration is officially open! Don’t miss your chance to secure early bird rates! 🐦
Learn from world-renowned experts on the latest advances in primary immunodeficiency care.
🎟️Secure your place here: ipic2025.com/register-now/
#IPIC2025 #EarlyBirdRates #PrimaryImmunodeficiency
Learn from world-renowned experts on the latest advances in primary immunodeficiency care.
🎟️Secure your place here: ipic2025.com/register-now/
#IPIC2025 #EarlyBirdRates #PrimaryImmunodeficiency
A Love Poem for All of My Plasma Heroes 🥰🫶🍞💜
Thank you to everyone who donated plasma to help keep Rye and others alive!
Check out the Plasma Hero website for more information on Plasma Donation: www.plasmahero.org
#donateplasma #plasmadonation #primaryimmunodeficiency #immunedeficiencyfoundation
Thank you to everyone who donated plasma to help keep Rye and others alive!
Check out the Plasma Hero website for more information on Plasma Donation: www.plasmahero.org
#donateplasma #plasmadonation #primaryimmunodeficiency #immunedeficiencyfoundation
February 18, 2026 at 2:13 AM
A Love Poem for All of My Plasma Heroes 🥰🫶🍞💜
Thank you to everyone who donated plasma to help keep Rye and others alive!
Check out the Plasma Hero website for more information on Plasma Donation: www.plasmahero.org
#donateplasma #plasmadonation #primaryimmunodeficiency #immunedeficiencyfoundation
Thank you to everyone who donated plasma to help keep Rye and others alive!
Check out the Plasma Hero website for more information on Plasma Donation: www.plasmahero.org
#donateplasma #plasmadonation #primaryimmunodeficiency #immunedeficiencyfoundation
EP. 2: Hardcore RP 7 Days to Rye! Chat Influences Story [IMMUNE DEFICIENCY FOUNDATION FUNDRAISER] #primaryimmunodeficiency www.twitch.tv/rye_or_die
RYE_or_DIE - Twitch
A quirky, clumsy, plasma vampire spawn. A shoddy marksman who is always down for an adventure. Grade A meat shield! Cursed by the angry snake gods, this plasma vamp with a limited attention span is fo...
www.twitch.tv
December 18, 2024 at 3:14 AM
EP. 2: Hardcore RP 7 Days to Rye! Chat Influences Story [IMMUNE DEFICIENCY FOUNDATION FUNDRAISER] #primaryimmunodeficiency www.twitch.tv/rye_or_die
#PrimaryImmunodeficiency is considered rare, but, like hEDS, experts think its not necessarily rare–Rather its underdiagnosed.
😷 PI is a group of more than 550 Rare, Chronic Conditions.
😷 PI is also called #InbornErrorsOfImmunity (IEI).
🧬 PI is a Genetic Condition: primaryimmune.org/understandin...
😷 PI is a group of more than 550 Rare, Chronic Conditions.
😷 PI is also called #InbornErrorsOfImmunity (IEI).
🧬 PI is a Genetic Condition: primaryimmune.org/understandin...
If you have a primary immunodeficiency, you’ll get sick more often than most people. That’s because your immune system doesn’t have all the tools it needs to fight off germs and other invaders that may cause infections.
December 10, 2025 at 2:25 PM
#PrimaryImmunodeficiency is considered rare, but, like hEDS, experts think its not necessarily rare–Rather its underdiagnosed.
😷 PI is a group of more than 550 Rare, Chronic Conditions.
😷 PI is also called #InbornErrorsOfImmunity (IEI).
🧬 PI is a Genetic Condition: primaryimmune.org/understandin...
😷 PI is a group of more than 550 Rare, Chronic Conditions.
😷 PI is also called #InbornErrorsOfImmunity (IEI).
🧬 PI is a Genetic Condition: primaryimmune.org/understandin...
🌍 💡 As we conclude the second and final day of the Global Stakeholders Summit, we thank everyone who contributed to the thoughtful and forward-looking discussions on the future of PIDs.
#GlobalStakeholdersSummit #PrimaryImmunodeficiency
#GlobalStakeholdersSummit #PrimaryImmunodeficiency
July 1, 2025 at 4:13 PM
🌍 💡 As we conclude the second and final day of the Global Stakeholders Summit, we thank everyone who contributed to the thoughtful and forward-looking discussions on the future of PIDs.
#GlobalStakeholdersSummit #PrimaryImmunodeficiency
#GlobalStakeholdersSummit #PrimaryImmunodeficiency
I enjoyed talking with the Immune Deficiency Foundation regarding my journey to #CVID diagnosis! #PrimaryImmunodeficiency #ChronicIllness #Disability
primaryimmune.org/resources/ne...
primaryimmune.org/resources/ne...
Patient advocacy writer draws on experience with CVID | Immune Deficiency Foundation
Denise Reich uses her medical journey with common variable immune deficiency (CVID) to inform patient advocacy essays she publishes online.
primaryimmune.org
January 25, 2025 at 12:15 AM
I enjoyed talking with the Immune Deficiency Foundation regarding my journey to #CVID diagnosis! #PrimaryImmunodeficiency #ChronicIllness #Disability
primaryimmune.org/resources/ne...
primaryimmune.org/resources/ne...
Survived the night pumped up with antihistamines and corticosteroids. Still in my 72-hr post IVIg state, so taking PRN post-IVIg steroids today just in case. Every time I consumed something yesterday my immune system panicked 😅 May have learned of a pine nut allergy? #ivig #primaryimmunodeficiency
August 6, 2025 at 3:15 PM
Survived the night pumped up with antihistamines and corticosteroids. Still in my 72-hr post IVIg state, so taking PRN post-IVIg steroids today just in case. Every time I consumed something yesterday my immune system panicked 😅 May have learned of a pine nut allergy? #ivig #primaryimmunodeficiency
IPOPI is proud to share the results of our global survey on the long-term effects of COVID-19 in people living with primary immunodeficiencies (PIDs)!
📖 Discover the full publication 👉 lnkd.in/d6yx2uvA
#IPOPI #PrimaryImmunodeficiency #LongCovid
📖 Discover the full publication 👉 lnkd.in/d6yx2uvA
#IPOPI #PrimaryImmunodeficiency #LongCovid
July 8, 2025 at 1:57 PM
IPOPI is proud to share the results of our global survey on the long-term effects of COVID-19 in people living with primary immunodeficiencies (PIDs)!
📖 Discover the full publication 👉 lnkd.in/d6yx2uvA
#IPOPI #PrimaryImmunodeficiency #LongCovid
📖 Discover the full publication 👉 lnkd.in/d6yx2uvA
#IPOPI #PrimaryImmunodeficiency #LongCovid
Thank you to the Immune Deficiency Foundation for making a strong statement regarding that person's nominee for HHS. #HHS #disability #ChronicIllness #PrimaryImmunodeficiency
primaryimmune.org/resources/ne...
primaryimmune.org/resources/ne...
Statement regarding the leadership of the U.S. Department of Health and Human Services | Immune Deficiency Foundation
The appointed leaders of the U.S. Department of Health and Human Services must understand the science and support the importance of vaccines and herd immunity for ensuring the health and well-being of...
primaryimmune.org
December 10, 2024 at 8:54 PM
Thank you to the Immune Deficiency Foundation for making a strong statement regarding that person's nominee for HHS. #HHS #disability #ChronicIllness #PrimaryImmunodeficiency
primaryimmune.org/resources/ne...
primaryimmune.org/resources/ne...
Well, the day has come for my first subcutaneous immunoglobulin infusion. I wasn't too nervous until the box of supplies was delivered.
#chronicIllness #PrimaryImmunodeficiency
#scig #anxious
#chronicIllness #PrimaryImmunodeficiency
#scig #anxious
November 18, 2024 at 6:42 PM
Well, the day has come for my first subcutaneous immunoglobulin infusion. I wasn't too nervous until the box of supplies was delivered.
#chronicIllness #PrimaryImmunodeficiency
#scig #anxious
#chronicIllness #PrimaryImmunodeficiency
#scig #anxious
*IMMUNE DEFICIENCY FOUNDATION FUNDRAISER* #immunedeficiencyfoundation #primaryimmunodeficiency
EP. 1: Hardcore RP 7 Days to Rye! Chat Influences Story >.<
www.twitch.tv/rye_or_die
EP. 1: Hardcore RP 7 Days to Rye! Chat Influences Story >.<
www.twitch.tv/rye_or_die
RYE_or_DIE - Twitch
A quirky, clumsy, plasma vampire spawn. A shoddy marksman who is always down for an adventure. Grade A meat shield! Cursed by the angry snake gods, this plasma vamp with a limited attention span is fo...
www.twitch.tv
December 12, 2024 at 3:06 AM
*IMMUNE DEFICIENCY FOUNDATION FUNDRAISER* #immunedeficiencyfoundation #primaryimmunodeficiency
EP. 1: Hardcore RP 7 Days to Rye! Chat Influences Story >.<
www.twitch.tv/rye_or_die
EP. 1: Hardcore RP 7 Days to Rye! Chat Influences Story >.<
www.twitch.tv/rye_or_die
This week will highlight 7 of the more than 550 types of Primary Immunodeficiencies. PI conditions prevent the immune system from working as it should, so the body has a hard time fighting infection. #PrimaryImmunodeficiency
You may be rare, but you are not alone!
#rareDisease #rareDiseaseAwareness
You may be rare, but you are not alone!
#rareDisease #rareDiseaseAwareness
March 30, 2025 at 1:45 PM
This week will highlight 7 of the more than 550 types of Primary Immunodeficiencies. PI conditions prevent the immune system from working as it should, so the body has a hard time fighting infection. #PrimaryImmunodeficiency
You may be rare, but you are not alone!
#rareDisease #rareDiseaseAwareness
You may be rare, but you are not alone!
#rareDisease #rareDiseaseAwareness
📢 Egypt joins the #PIDLifeIndex! 🎉
A key step toward better PID care, diagnosis & treatment access. 🌍
🔹 Explore: pidlifeindex.ipopi.org
👏 Thank you to all who made this happen!
#PrimaryImmunodeficiency #PIDAwareness #GlobalHealth #IPOPI
A key step toward better PID care, diagnosis & treatment access. 🌍
🔹 Explore: pidlifeindex.ipopi.org
👏 Thank you to all who made this happen!
#PrimaryImmunodeficiency #PIDAwareness #GlobalHealth #IPOPI
March 13, 2025 at 9:01 AM
📢 Egypt joins the #PIDLifeIndex! 🎉
A key step toward better PID care, diagnosis & treatment access. 🌍
🔹 Explore: pidlifeindex.ipopi.org
👏 Thank you to all who made this happen!
#PrimaryImmunodeficiency #PIDAwareness #GlobalHealth #IPOPI
A key step toward better PID care, diagnosis & treatment access. 🌍
🔹 Explore: pidlifeindex.ipopi.org
👏 Thank you to all who made this happen!
#PrimaryImmunodeficiency #PIDAwareness #GlobalHealth #IPOPI
As someone who has a genetic #PrimaryImmunodeficiency, #CVID, I fear for myself. I fear for others with PI, and with other longterm chronic conditions and disability who may not survive RFK's reign of terror and mismanagement.
February 4, 2025 at 9:10 PM
As someone who has a genetic #PrimaryImmunodeficiency, #CVID, I fear for myself. I fear for others with PI, and with other longterm chronic conditions and disability who may not survive RFK's reign of terror and mismanagement.
December 6, 2024 at 7:55 AM
During World PID Week, LASID raises awareness about Inborn Errors of Immunity (IEI) 🧬
Early recognition saves lives: think of PID in recurrent, severe, or unusual infections.
Know the signs. Think PID. Act early.
#WorldPIDWeek #LASID #IEI #PrimaryImmunodeficiency #RareDiseases
Early recognition saves lives: think of PID in recurrent, severe, or unusual infections.
Know the signs. Think PID. Act early.
#WorldPIDWeek #LASID #IEI #PrimaryImmunodeficiency #RareDiseases
April 22, 2026 at 11:35 AM
During World PID Week, LASID raises awareness about Inborn Errors of Immunity (IEI) 🧬
Early recognition saves lives: think of PID in recurrent, severe, or unusual infections.
Know the signs. Think PID. Act early.
#WorldPIDWeek #LASID #IEI #PrimaryImmunodeficiency #RareDiseases
Early recognition saves lives: think of PID in recurrent, severe, or unusual infections.
Know the signs. Think PID. Act early.
#WorldPIDWeek #LASID #IEI #PrimaryImmunodeficiency #RareDiseases
💙 Day 2 of the Latin American PID Patients Meeting brought us closer together – patients, doctors, partners and advocates united in strengthening PID care and awareness.
Thanks to CSL and Grifols for the support.
#IPOPI #PID #LASID2025 #BuenosAires #PrimaryImmunodeficiency #PIDAdvocacy
Thanks to CSL and Grifols for the support.
#IPOPI #PID #LASID2025 #BuenosAires #PrimaryImmunodeficiency #PIDAdvocacy
October 17, 2025 at 8:48 PM
💙 Day 2 of the Latin American PID Patients Meeting brought us closer together – patients, doctors, partners and advocates united in strengthening PID care and awareness.
Thanks to CSL and Grifols for the support.
#IPOPI #PID #LASID2025 #BuenosAires #PrimaryImmunodeficiency #PIDAdvocacy
Thanks to CSL and Grifols for the support.
#IPOPI #PID #LASID2025 #BuenosAires #PrimaryImmunodeficiency #PIDAdvocacy
April is #PIAwareness Month 🧬
Primary immunodeficiencies affect the body’s ability to fight infections — yet many go undiagnosed.
Let’s raise awareness, promote early detection, and support those living with invisible illnesses. 💛
#PrimaryImmunodeficiency #RareDisease
Primary immunodeficiencies affect the body’s ability to fight infections — yet many go undiagnosed.
Let’s raise awareness, promote early detection, and support those living with invisible illnesses. 💛
#PrimaryImmunodeficiency #RareDisease
April 30, 2025 at 4:27 PM
April is #PIAwareness Month 🧬
Primary immunodeficiencies affect the body’s ability to fight infections — yet many go undiagnosed.
Let’s raise awareness, promote early detection, and support those living with invisible illnesses. 💛
#PrimaryImmunodeficiency #RareDisease
Primary immunodeficiencies affect the body’s ability to fight infections — yet many go undiagnosed.
Let’s raise awareness, promote early detection, and support those living with invisible illnesses. 💛
#PrimaryImmunodeficiency #RareDisease