Got into my wheelchair today and went up to the rooftop which looks over the ocean. 🥰🦼🌊
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #Wheelchair #GotIntoMyWheelchair #WentUpToTheRooftop #LookedAtTheOcean
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #Wheelchair #GotIntoMyWheelchair #WentUpToTheRooftop #LookedAtTheOcean
October 17, 2025 at 9:30 PM
Got into my wheelchair today and went up to the rooftop which looks over the ocean. 🥰🦼🌊
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #Wheelchair #GotIntoMyWheelchair #WentUpToTheRooftop #LookedAtTheOcean
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #Wheelchair #GotIntoMyWheelchair #WentUpToTheRooftop #LookedAtTheOcean
My hands hurt. I’ve FB about 200.
#StiffPersonSyndrome
#StiffPersonSyndrome
December 16, 2025 at 5:16 PM
My hands hurt. I’ve FB about 200.
#StiffPersonSyndrome
#StiffPersonSyndrome
No Link Zone😆
Just saying hi and trying to make 🦋 part of the routine
#StiffPersonSyndrome
#100DaysofCode
#Gaming #GamingMusic
#PC #PCGaming
I didn't say no hashtags 🤣
Have a great one✌🏾😁
Just saying hi and trying to make 🦋 part of the routine
#StiffPersonSyndrome
#100DaysofCode
#Gaming #GamingMusic
#PC #PCGaming
I didn't say no hashtags 🤣
Have a great one✌🏾😁
June 10, 2025 at 1:55 PM
No Link Zone😆
Just saying hi and trying to make 🦋 part of the routine
#StiffPersonSyndrome
#100DaysofCode
#Gaming #GamingMusic
#PC #PCGaming
I didn't say no hashtags 🤣
Have a great one✌🏾😁
Just saying hi and trying to make 🦋 part of the routine
#StiffPersonSyndrome
#100DaysofCode
#Gaming #GamingMusic
#PC #PCGaming
I didn't say no hashtags 🤣
Have a great one✌🏾😁
Gaming with Stiff-Person Syndrome: Season 0
#StiffPersonSyndrome #MarvelRivals #Twitch #NewStreamer #HeroShooter #PC
#GamingCommunity #SPSWarriors #GamingWithAPurpose #disabled #disabledgamer
#StiffPersonSyndrome #MarvelRivals #Twitch #NewStreamer #HeroShooter #PC
#GamingCommunity #SPSWarriors #GamingWithAPurpose #disabled #disabledgamer
December 18, 2024 at 2:36 AM
Gaming with Stiff-Person Syndrome: Season 0
#StiffPersonSyndrome #MarvelRivals #Twitch #NewStreamer #HeroShooter #PC
#GamingCommunity #SPSWarriors #GamingWithAPurpose #disabled #disabledgamer
#StiffPersonSyndrome #MarvelRivals #Twitch #NewStreamer #HeroShooter #PC
#GamingCommunity #SPSWarriors #GamingWithAPurpose #disabled #disabledgamer
Penelope Grace is being a good little nurse for me today. My #stiffpersonsyndrome spasms are so bad they dislocated my AC joint last night. Now I’m sitting here, kinda dopey on drugs, with my three dogs and a heating pad on my neck. I blame my increased spasms and #disability on Trump. #dogs
January 24, 2025 at 6:23 PM
Penelope Grace is being a good little nurse for me today. My #stiffpersonsyndrome spasms are so bad they dislocated my AC joint last night. Now I’m sitting here, kinda dopey on drugs, with my three dogs and a heating pad on my neck. I blame my increased spasms and #disability on Trump. #dogs
Either I've been without my medication for too long or my time is coming to an end.
If this is what dying naturally feels like I'll take assisted suicide. Thank you very much.
#chronicillness #disabled
#stiffpersonsyndrome
If this is what dying naturally feels like I'll take assisted suicide. Thank you very much.
#chronicillness #disabled
#stiffpersonsyndrome
December 6, 2024 at 1:52 AM
Either I've been without my medication for too long or my time is coming to an end.
If this is what dying naturally feels like I'll take assisted suicide. Thank you very much.
#chronicillness #disabled
#stiffpersonsyndrome
If this is what dying naturally feels like I'll take assisted suicide. Thank you very much.
#chronicillness #disabled
#stiffpersonsyndrome
“after giving birth to her first child, Brooke experienced a frightening episode when her legs locked up, making her feel like she was “stuck in cement” and forcing her to crawl to her newborn": buff.ly/I6DmPOS <a href="/hashtag/StiffPersonSyndrome" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#StiffPersonSyndrome #SPS #RareDisease #InvisibleIllness #ChronicIllness
Rare But Real: Brooke H. Life with Stiff Person Syndrome
Welcome to Ashley’s Anatomy, where we aim to share real stories highlighting the experiences of those living with chronic conditions. Every year on February 28th (or 29th in leap years), we recognize…
buff.ly
March 2, 2025 at 12:30 AM
“after giving birth to her first child, Brooke experienced a frightening episode when her legs locked up, making her feel like she was “stuck in cement” and forcing her to crawl to her newborn": buff.ly/I6DmPOS <a href="/hashtag/StiffPersonSyndrome" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#StiffPersonSyndrome #SPS #RareDisease #InvisibleIllness #ChronicIllness
Full Story Here: tinyurl.com/ynaj73tk
On Friday, Céline Dion shared an encouraging post on Instagram to honor International Stiff-Person Awareness Day and show appreciation for her family and those dealing with the disease.
#celinedion #stiffpersonsyndrome #news #celebrity
On Friday, Céline Dion shared an encouraging post on Instagram to honor International Stiff-Person Awareness Day and show appreciation for her family and those dealing with the disease.
#celinedion #stiffpersonsyndrome #news #celebrity
March 20, 2024 at 8:41 PM
Full Story Here: tinyurl.com/ynaj73tk
On Friday, Céline Dion shared an encouraging post on Instagram to honor International Stiff-Person Awareness Day and show appreciation for her family and those dealing with the disease.
#celinedion #stiffpersonsyndrome #news #celebrity
On Friday, Céline Dion shared an encouraging post on Instagram to honor International Stiff-Person Awareness Day and show appreciation for her family and those dealing with the disease.
#celinedion #stiffpersonsyndrome #news #celebrity
When Celine Dion shared that she had Stiff Person Syndrome, we had to look it up.
We know its very rare, but if you live with SPS or know someone who does, please share something you wish people knew 🩵🦓🩵
#stiffpersonsyndrome #raredisease #chronicillness #rarediseases #SPS
We know its very rare, but if you live with SPS or know someone who does, please share something you wish people knew 🩵🦓🩵
#stiffpersonsyndrome #raredisease #chronicillness #rarediseases #SPS
April 5, 2026 at 2:35 PM
When Celine Dion shared that she had Stiff Person Syndrome, we had to look it up.
We know its very rare, but if you live with SPS or know someone who does, please share something you wish people knew 🩵🦓🩵
#stiffpersonsyndrome #raredisease #chronicillness #rarediseases #SPS
We know its very rare, but if you live with SPS or know someone who does, please share something you wish people knew 🩵🦓🩵
#stiffpersonsyndrome #raredisease #chronicillness #rarediseases #SPS
In the ER #stiffpersonsyndrome can suck it!! Wealth equals health in so many countries!! It’s time to take our lives back!
#wealth=health #wealth #health #poverty #middleclass #upperclass #chronicpain #bigpharma #therichgetricher off of our pain. Literally in big Pharma’s case!!!
#wealth=health #wealth #health #poverty #middleclass #upperclass #chronicpain #bigpharma #therichgetricher off of our pain. Literally in big Pharma’s case!!!
December 31, 2024 at 7:06 AM
In the ER #stiffpersonsyndrome can suck it!! Wealth equals health in so many countries!! It’s time to take our lives back!
#wealth=health #wealth #health #poverty #middleclass #upperclass #chronicpain #bigpharma #therichgetricher off of our pain. Literally in big Pharma’s case!!!
#wealth=health #wealth #health #poverty #middleclass #upperclass #chronicpain #bigpharma #therichgetricher off of our pain. Literally in big Pharma’s case!!!
#stiffpersonsyndrome is something i havent really heard of until recent. I can totally understand how #celinedion couldn't move or use her voice. I cant use my hand to draw anymore. My mind still works. I guess that is something. I guess.
June 12, 2026 at 1:47 PM
#stiffpersonsyndrome is something i havent really heard of until recent. I can totally understand how #celinedion couldn't move or use her voice. I cant use my hand to draw anymore. My mind still works. I guess that is something. I guess.
Check it out guys! Got in my motorized wheelchair today and went down to the ocean!
It was a very bumpy ride, but I did it! 😄
#Ocean #Sea #Water #MotorizedWheelchair #SittingByTheOcean #SittingByTheOceanInMyMotorizedWheelchair #StiffPersonSyndrome #SPS #IHaveStiffPersonSyndrome #IHaveSPS
It was a very bumpy ride, but I did it! 😄
#Ocean #Sea #Water #MotorizedWheelchair #SittingByTheOcean #SittingByTheOceanInMyMotorizedWheelchair #StiffPersonSyndrome #SPS #IHaveStiffPersonSyndrome #IHaveSPS
May 3, 2025 at 12:36 AM
Check it out guys! Got in my motorized wheelchair today and went down to the ocean!
It was a very bumpy ride, but I did it! 😄
#Ocean #Sea #Water #MotorizedWheelchair #SittingByTheOcean #SittingByTheOceanInMyMotorizedWheelchair #StiffPersonSyndrome #SPS #IHaveStiffPersonSyndrome #IHaveSPS
It was a very bumpy ride, but I did it! 😄
#Ocean #Sea #Water #MotorizedWheelchair #SittingByTheOcean #SittingByTheOceanInMyMotorizedWheelchair #StiffPersonSyndrome #SPS #IHaveStiffPersonSyndrome #IHaveSPS
#KyvernaTherapeutics has reported new data with its #celltherapy for the rare #autoimmunedisease #stiffpersonsyndrome (SPS), miv-cel, that reinforces its safety as it prepares to complete a rolling FDA filing before the end of this year.
pharmaphorum.com/news/kyverna...
pharmaphorum.com/news/kyverna...
Kyverna builds case for CAR-T in stiff person syndrome
Kyverna has data with miv-cel in stiff person syndrome that shows durable efficacy and safety and seems to sidestep issues flagged with other CAR-Ts.
pharmaphorum.com
September 24, 2026 at 12:25 PM
#KyvernaTherapeutics has reported new data with its #celltherapy for the rare #autoimmunedisease #stiffpersonsyndrome (SPS), miv-cel, that reinforces its safety as it prepares to complete a rolling FDA filing before the end of this year.
pharmaphorum.com/news/kyverna...
pharmaphorum.com/news/kyverna...
helped me as well. 🥰
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #GreatDay #IHadAGreatDayToday #GotIntoMyWheelchair #Wheelchair #WentOutside #HadAnEvenBetterDayThanTheLastTimeIWentOutside #HadAnEvenBetterDay
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#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #GreatDay #IHadAGreatDayToday #GotIntoMyWheelchair #Wheelchair #WentOutside #HadAnEvenBetterDayThanTheLastTimeIWentOutside #HadAnEvenBetterDay
(2/2)
October 25, 2025 at 12:17 AM
Bit more than week ago I was again in occupationL therapy session in live neuron
#stiffpersonsyndrome #liveneuron #geosystem
#stiffpersonsyndrome #liveneuron #geosystem
February 1, 2025 at 1:57 PM
Bit more than week ago I was again in occupationL therapy session in live neuron
#stiffpersonsyndrome #liveneuron #geosystem
#stiffpersonsyndrome #liveneuron #geosystem
Good night. I go to rheumatologist Wednesday to see if the pain in both hands and fingers are part of #StiffPersonSyndrome.
December 18, 2025 at 3:42 AM
Good night. I go to rheumatologist Wednesday to see if the pain in both hands and fingers are part of #StiffPersonSyndrome.
I have been sleeping through the pain. Thank God for that, #stiffpersonsyndrome is flaring like none other!!
December 8, 2024 at 4:13 AM
I have been sleeping through the pain. Thank God for that, #stiffpersonsyndrome is flaring like none other!!
OH MY GOSH GUYS, my brother and sister know how much crap I’m going through with my #StiffPersonSyndrome / #SPS / #MoerschWoltmanSyndrome, so they bought me this Kermit backpack! And I love it so much!
I cried when I saw it! 😭😭😭💖💖💖
I cried when I saw it! 😭😭😭💖💖💖
May 8, 2024 at 11:46 PM
OH MY GOSH GUYS, my brother and sister know how much crap I’m going through with my #StiffPersonSyndrome / #SPS / #MoerschWoltmanSyndrome, so they bought me this Kermit backpack! And I love it so much!
I cried when I saw it! 😭😭😭💖💖💖
I cried when I saw it! 😭😭😭💖💖💖
Thanks again for the follows!
We will be more active on #Bluesky after Christmas ✝️♥️
Twitch.tv/DaSkywatcher
#StiffPersonSyndrome #MarvelRivals
We will be more active on #Bluesky after Christmas ✝️♥️
Twitch.tv/DaSkywatcher
#StiffPersonSyndrome #MarvelRivals
December 20, 2024 at 9:59 AM
Thanks again for the follows!
We will be more active on #Bluesky after Christmas ✝️♥️
Twitch.tv/DaSkywatcher
#StiffPersonSyndrome #MarvelRivals
We will be more active on #Bluesky after Christmas ✝️♥️
Twitch.tv/DaSkywatcher
#StiffPersonSyndrome #MarvelRivals
of my syndrome and how it can’t be reversed/cured. And that made me sad. 😢
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #Rough #RoughDay #RoughDayYesterday #BloodDraw #HadToHaveABloodDrawYesterday #HadToHaveBloodDrawnYesterday #Bloodwork #HadToHaveBloodworkYesterday #ImAHardStick…
(2/3)
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #Rough #RoughDay #RoughDayYesterday #BloodDraw #HadToHaveABloodDrawYesterday #HadToHaveBloodDrawnYesterday #Bloodwork #HadToHaveBloodworkYesterday #ImAHardStick…
(2/3)
September 4, 2025 at 8:39 PM
of my syndrome and how it can’t be reversed/cured. And that made me sad. 😢
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #Rough #RoughDay #RoughDayYesterday #BloodDraw #HadToHaveABloodDrawYesterday #HadToHaveBloodDrawnYesterday #Bloodwork #HadToHaveBloodworkYesterday #ImAHardStick…
(2/3)
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #Rough #RoughDay #RoughDayYesterday #BloodDraw #HadToHaveABloodDrawYesterday #HadToHaveBloodDrawnYesterday #Bloodwork #HadToHaveBloodworkYesterday #ImAHardStick…
(2/3)
ok. Being examined by the doctor hurt, but I dealt with it!
I am a Stiff-Person syndrome warrior! 💪
And love the fight! 💟
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #Neurologist #Neurology #NeurologyAppointment #InPersonNeurologyAppointment #HadAnInPersonAppointmentWithMyNeurologist
(2/2)
I am a Stiff-Person syndrome warrior! 💪
And love the fight! 💟
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #Neurologist #Neurology #NeurologyAppointment #InPersonNeurologyAppointment #HadAnInPersonAppointmentWithMyNeurologist
(2/2)
February 6, 2026 at 9:49 PM
ok. Being examined by the doctor hurt, but I dealt with it!
I am a Stiff-Person syndrome warrior! 💪
And love the fight! 💟
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #Neurologist #Neurology #NeurologyAppointment #InPersonNeurologyAppointment #HadAnInPersonAppointmentWithMyNeurologist
(2/2)
I am a Stiff-Person syndrome warrior! 💪
And love the fight! 💟
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #Neurologist #Neurology #NeurologyAppointment #InPersonNeurologyAppointment #HadAnInPersonAppointmentWithMyNeurologist
(2/2)
I had an awesome OT session today. I did all my exercises with my OT, and she said I’m improving! 😄💖
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #OT #OccupationalTherapy #HadAnAwesomeOTSessionToday #HadAnAwesomeOccupationalTherapySessionToday #DidAllMyExercisesWithMyOT
(1/2)
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #OT #OccupationalTherapy #HadAnAwesomeOTSessionToday #HadAnAwesomeOccupationalTherapySessionToday #DidAllMyExercisesWithMyOT
(1/2)
October 2, 2025 at 11:17 PM
I had an awesome OT session today. I did all my exercises with my OT, and she said I’m improving! 😄💖
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #OT #OccupationalTherapy #HadAnAwesomeOTSessionToday #HadAnAwesomeOccupationalTherapySessionToday #DidAllMyExercisesWithMyOT
(1/2)
#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #OT #OccupationalTherapy #HadAnAwesomeOTSessionToday #HadAnAwesomeOccupationalTherapySessionToday #DidAllMyExercisesWithMyOT
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