I’m having one of those days. #chronicillness #sjogrens #dsyautonomia

If you have a cardiac condition like #INOCA (often caused by #LongCOVID and possibly #POTS / #dsyautonomia ) that is triggered by the cold, masks give a buffer from breathing the cold air helps prevent flares! #NEISvoid

I’m sorry and feel your pain. I’m 5 years into LC which is now ME/CFS and POTS/Dsyautonomia. You will still do amazing things whichever path you have to take. I’m sorry that the choice isn’t completely yours to make. x

Also, good luck getting a diagnosis. It took me months and I was dismissed as having “anxiety” even by the ER. It took an echocardiogram, a heart monitor patch, lots of self advocation, and finally seeing a knowledgeable cardiologist to get my diagnosis. Too often, dsyautonomia gets dismissed :(

Well it feels like I blinked and Sunday disappeared.

The temperature fluctuations here have been really messing with my dsyautonomia, leading to some really low energy spots for me.

On a positive note, Pokémon is an absolute delight for me now that I don’t feel motion sick while playing!

Playing more Siege X with friends!

Daytime streams will make a return when my Dsyautonomia allows it.

Live at twitch.tv/emma_garnet

No stream tonight.

Will be back tomorrow, just need a day to vibe and crash when I need to.

Dsyautonomia suck ass.

I’m in a bit of an energy rut currently.

I’m slowly learning all the quirks of my Dsyautonomia, it’s not fun but I’ve realised there’s no pushing through days like this.

This flare up will pass with time but until it does there won’t be any streams.

#chronicillness