Research has the power to move us forward. 🔦
During World FTD Awareness Week, we’re shining a spotlight on research and how our community can help.
The FTD Disorders Registry connects people with opportunities to participate in FTD research.
Explore research opportunities: https://bit.ly/47hm0yl
During World FTD Awareness Week, we’re shining a spotlight on research and how our community can help.
The FTD Disorders Registry connects people with opportunities to participate in FTD research.
Explore research opportunities: https://bit.ly/47hm0yl
October 2, 2026 at 1:23 PM
Research has the power to move us forward. 🔦
During World FTD Awareness Week, we’re shining a spotlight on research and how our community can help.
The FTD Disorders Registry connects people with opportunities to participate in FTD research.
Explore research opportunities: https://bit.ly/47hm0yl
During World FTD Awareness Week, we’re shining a spotlight on research and how our community can help.
The FTD Disorders Registry connects people with opportunities to participate in FTD research.
Explore research opportunities: https://bit.ly/47hm0yl
This year, World FTD Awareness Week poses the question: “What If It’s FTD?”
AFTD (The Association for Frontotemporal Degeneration) is the leading organization focused on helping people and families impacted by FTD and driving research for a cure. Learn more about them at theaftd.org. #endFTD
AFTD (The Association for Frontotemporal Degeneration) is the leading organization focused on helping people and families impacted by FTD and driving research for a cure. Learn more about them at theaftd.org. #endFTD
September 26, 2025 at 2:00 PM
This year, World FTD Awareness Week poses the question: “What If It’s FTD?”
AFTD (The Association for Frontotemporal Degeneration) is the leading organization focused on helping people and families impacted by FTD and driving research for a cure. Learn more about them at theaftd.org. #endFTD
AFTD (The Association for Frontotemporal Degeneration) is the leading organization focused on helping people and families impacted by FTD and driving research for a cure. Learn more about them at theaftd.org. #endFTD
🧠This FTD Awareness Week, we're sharing a preview of our upcoming interview with Jordan and Cian Adams, The FTD Brothers. Thank you to both for speaking with us.
👉Read more about their inspiring work: theftdbrothers.com
#endFTD #spotlightFTD #WorldAlzheimersMonth
👉Read more about their inspiring work: theftdbrothers.com
#endFTD #spotlightFTD #WorldAlzheimersMonth
September 30, 2026 at 7:17 AM
🧠This FTD Awareness Week, we're sharing a preview of our upcoming interview with Jordan and Cian Adams, The FTD Brothers. Thank you to both for speaking with us.
👉Read more about their inspiring work: theftdbrothers.com
#endFTD #spotlightFTD #WorldAlzheimersMonth
👉Read more about their inspiring work: theftdbrothers.com
#endFTD #spotlightFTD #WorldAlzheimersMonth
Sharing your story can help put FTD in the spotlight. 🩵
Download the slide that reflects your connection to FTD, share it on social media, and tag AFTD during World FTD Awareness Week.
Your voice helps others understand FTD.
Learn more and access the Social Media Toolkit: https://bit.ly/3Tw5vLE
Download the slide that reflects your connection to FTD, share it on social media, and tag AFTD during World FTD Awareness Week.
Your voice helps others understand FTD.
Learn more and access the Social Media Toolkit: https://bit.ly/3Tw5vLE
September 29, 2026 at 5:58 PM
Sharing your story can help put FTD in the spotlight. 🩵
Download the slide that reflects your connection to FTD, share it on social media, and tag AFTD during World FTD Awareness Week.
Your voice helps others understand FTD.
Learn more and access the Social Media Toolkit: https://bit.ly/3Tw5vLE
Download the slide that reflects your connection to FTD, share it on social media, and tag AFTD during World FTD Awareness Week.
Your voice helps others understand FTD.
Learn more and access the Social Media Toolkit: https://bit.ly/3Tw5vLE
Today is the start of FTD Awareness Week, an annual campaign dedicated to raising awareness of frontotemporal dementia (FTD) and fostering global community engagement to #endFTD
Read more about the campaign, here: www.worldftdunited.net/awareness2026
Share posts about FTD to help #spotlightFTD
Read more about the campaign, here: www.worldftdunited.net/awareness2026
Share posts about FTD to help #spotlightFTD
September 28, 2026 at 8:54 AM
Today is the start of FTD Awareness Week, an annual campaign dedicated to raising awareness of frontotemporal dementia (FTD) and fostering global community engagement to #endFTD
Read more about the campaign, here: www.worldftdunited.net/awareness2026
Share posts about FTD to help #spotlightFTD
Read more about the campaign, here: www.worldftdunited.net/awareness2026
Share posts about FTD to help #spotlightFTD
For World FTD Awareness Week, we’re putting a Spotlight on FTD Research.
Participants, families, researchers, clinicians, data and collaboration all help move research forward.
ftdregistry.org/press/what-d...
#spotlightFTD #endFTD #FTDResearch
Participants, families, researchers, clinicians, data and collaboration all help move research forward.
ftdregistry.org/press/what-d...
#spotlightFTD #endFTD #FTDResearch
September 30, 2026 at 11:54 AM
For World FTD Awareness Week, we’re putting a Spotlight on FTD Research.
Participants, families, researchers, clinicians, data and collaboration all help move research forward.
ftdregistry.org/press/what-d...
#spotlightFTD #endFTD #FTDResearch
Participants, families, researchers, clinicians, data and collaboration all help move research forward.
ftdregistry.org/press/what-d...
#spotlightFTD #endFTD #FTDResearch
In honor of FTD Awareness Week, we are putting patients in the spotlight. From our Co-Director David Irwin, MD, we want to acknowledge the determination and perseverance of patients and the inspiration you bring to providers to bring all closer to a cure. #spotlightFTD #endFTD
September 28, 2026 at 1:44 PM
In honor of FTD Awareness Week, we are putting patients in the spotlight. From our Co-Director David Irwin, MD, we want to acknowledge the determination and perseverance of patients and the inspiration you bring to providers to bring all closer to a cure. #spotlightFTD #endFTD
For World FTD Awareness Week, we’re putting a Spotlight on the FTD Disorders Registry.
Numbers Have Power. Because FTD is rare, every participant matters.
Learn more or join: www.ftdregistry.org
#spotlightFTD #endFTD
Numbers Have Power. Because FTD is rare, every participant matters.
Learn more or join: www.ftdregistry.org
#spotlightFTD #endFTD
September 29, 2026 at 12:16 PM
For World FTD Awareness Week, we’re putting a Spotlight on the FTD Disorders Registry.
Numbers Have Power. Because FTD is rare, every participant matters.
Learn more or join: www.ftdregistry.org
#spotlightFTD #endFTD
Numbers Have Power. Because FTD is rare, every participant matters.
Learn more or join: www.ftdregistry.org
#spotlightFTD #endFTD
I love how kind everyone is on Bluesky! X is giving #reviewer2 vibes and Bluesky is like a kind reviewer 1! #Academia #endFTD
November 20, 2024 at 12:44 PM
I love how kind everyone is on Bluesky! X is giving #reviewer2 vibes and Bluesky is like a kind reviewer 1! #Academia #endFTD
For World FTD Awareness Week, we’re putting a Spotlight on Participants.
FTD research cannot move forward without people who take part. Every participant adds to what we can learn.
Numbers Have Power.
ftdregistry.org
#spotlightFTD #endFTD #FTDResearch
FTD research cannot move forward without people who take part. Every participant adds to what we can learn.
Numbers Have Power.
ftdregistry.org
#spotlightFTD #endFTD #FTDResearch
October 1, 2026 at 11:32 AM
For World FTD Awareness Week, we’re putting a Spotlight on Participants.
FTD research cannot move forward without people who take part. Every participant adds to what we can learn.
Numbers Have Power.
ftdregistry.org
#spotlightFTD #endFTD #FTDResearch
FTD research cannot move forward without people who take part. Every participant adds to what we can learn.
Numbers Have Power.
ftdregistry.org
#spotlightFTD #endFTD #FTDResearch
In honor of FTD Awareness Week 2026, we are putting researchers in the spotlight. From our Co-Director Corey McMillan, PhD, we want thank those who dedicate their careers to studying FTD. #spotlightFTD #endFTD
Visit our website to get more information on FTD Awareness Week!
Visit our website to get more information on FTD Awareness Week!
October 1, 2026 at 1:42 PM
In honor of FTD Awareness Week 2026, we are putting researchers in the spotlight. From our Co-Director Corey McMillan, PhD, we want thank those who dedicate their careers to studying FTD. #spotlightFTD #endFTD
Visit our website to get more information on FTD Awareness Week!
Visit our website to get more information on FTD Awareness Week!
It's FTD Awareness Week!
We're proud to be a partner in @predictftd.bsky.social project on frontotemporal dementia (FTD) whose mission is to advance early & accurate diagnosis through innovative biomarkers & AI-driven tools enabling personalised care & support www.predictftd.eu
#spotlightFTD #endFTD
We're proud to be a partner in @predictftd.bsky.social project on frontotemporal dementia (FTD) whose mission is to advance early & accurate diagnosis through innovative biomarkers & AI-driven tools enabling personalised care & support www.predictftd.eu
#spotlightFTD #endFTD
PREDICTFTD | Predictive Liquid Biomarkers
PREDICTFTD - accelerating the validation of predictive liquid biomarkers for frontotemporal dementia diagnosis and subclassification.
www.predictftd.eu
September 29, 2026 at 11:19 AM
It's FTD Awareness Week!
We're proud to be a partner in @predictftd.bsky.social project on frontotemporal dementia (FTD) whose mission is to advance early & accurate diagnosis through innovative biomarkers & AI-driven tools enabling personalised care & support www.predictftd.eu
#spotlightFTD #endFTD
We're proud to be a partner in @predictftd.bsky.social project on frontotemporal dementia (FTD) whose mission is to advance early & accurate diagnosis through innovative biomarkers & AI-driven tools enabling personalised care & support www.predictftd.eu
#spotlightFTD #endFTD
For World FTD Awareness Week, we’re putting a Spotlight on Researchers.
Lauren Massimo, PhD, CRNP, FAAN, shares what gives her hope about the future of frontotemporal degeneration research.
#spotlightFTD #endFTD #WorldFTDAwarenessWeek #FTDResearch
Lauren Massimo, PhD, CRNP, FAAN, shares what gives her hope about the future of frontotemporal degeneration research.
#spotlightFTD #endFTD #WorldFTDAwarenessWeek #FTDResearch
October 2, 2026 at 11:38 AM
For World FTD Awareness Week, we’re putting a Spotlight on Researchers.
Lauren Massimo, PhD, CRNP, FAAN, shares what gives her hope about the future of frontotemporal degeneration research.
#spotlightFTD #endFTD #WorldFTDAwarenessWeek #FTDResearch
Lauren Massimo, PhD, CRNP, FAAN, shares what gives her hope about the future of frontotemporal degeneration research.
#spotlightFTD #endFTD #WorldFTDAwarenessWeek #FTDResearch
Front page on @nytimes.com on Christmas Day❤️ Fighting for all those afflicted with FTD and hoping for a world with more understanding, grace and patience towards those who seem “different”. #endftd
December 25, 2024 at 2:34 PM
Front page on @nytimes.com on Christmas Day❤️ Fighting for all those afflicted with FTD and hoping for a world with more understanding, grace and patience towards those who seem “different”. #endftd
In honor of FTD Awareness Week 2026, we are putting clinical research staff in the spotlight! From our Assistant Director and Clinical Research Program and Operations Lead, Dahlia Kamel, MS, we want to thank all staff that work in the field of FTD research. #spotlightFTD #endFTD
September 29, 2026 at 2:08 PM
In honor of FTD Awareness Week 2026, we are putting clinical research staff in the spotlight! From our Assistant Director and Clinical Research Program and Operations Lead, Dahlia Kamel, MS, we want to thank all staff that work in the field of FTD research. #spotlightFTD #endFTD
September 21, 2025 at 8:04 PM
Today, we’re putting the FTD community in the spotlight. 🩵
During World FTD Awareness Week, we’re celebrating everyone living with FTD, supporting a loved one, volunteering, advocating, and working to #endFTD.
Tag someone who has made a difference in your FTD journey.
🔗: https://bit.ly/4AnPMyY
During World FTD Awareness Week, we’re celebrating everyone living with FTD, supporting a loved one, volunteering, advocating, and working to #endFTD.
Tag someone who has made a difference in your FTD journey.
🔗: https://bit.ly/4AnPMyY
September 30, 2026 at 5:45 PM
Today, we’re putting the FTD community in the spotlight. 🩵
During World FTD Awareness Week, we’re celebrating everyone living with FTD, supporting a loved one, volunteering, advocating, and working to #endFTD.
Tag someone who has made a difference in your FTD journey.
🔗: https://bit.ly/4AnPMyY
During World FTD Awareness Week, we’re celebrating everyone living with FTD, supporting a loved one, volunteering, advocating, and working to #endFTD.
Tag someone who has made a difference in your FTD journey.
🔗: https://bit.ly/4AnPMyY
This is our first official post on Bluesky! We are excited to share our research on frontotemporal dementia and related disorders, learn from others, and contribute to the collective quest to #endFTD.
December 10, 2024 at 11:49 PM
This is our first official post on Bluesky! We are excited to share our research on frontotemporal dementia and related disorders, learn from others, and contribute to the collective quest to #endFTD.
In honor of FTD Awareness Week 2026, we are putting care partners in the spotlight. From our Co-Director Lauren Massimo, PhD, CRNP, FAAN, we want recognize the support and hard work of all care partners. #spotlightFTD #endFTD
October 2, 2026 at 2:30 PM
In honor of FTD Awareness Week 2026, we are putting care partners in the spotlight. From our Co-Director Lauren Massimo, PhD, CRNP, FAAN, we want recognize the support and hard work of all care partners. #spotlightFTD #endFTD
In honor of FTD Awareness Week 2026, we are putting research participants in the spotlight! From the Research Staff at the Penn FTD Center, we thank all research participants for your willingness and dedication to FTD research. #spotlightFTD #endFTD
September 30, 2026 at 12:37 PM
In honor of FTD Awareness Week 2026, we are putting research participants in the spotlight! From the Research Staff at the Penn FTD Center, we thank all research participants for your willingness and dedication to FTD research. #spotlightFTD #endFTD
New here 👋 hope to connect with more #FTD researchers and stay up to date on all the cool science in #neurology, #psychiatry and #neuroscience! #endFTD #frontotemporaldementia
November 17, 2024 at 6:21 PM
New here 👋 hope to connect with more #FTD researchers and stay up to date on all the cool science in #neurology, #psychiatry and #neuroscience! #endFTD #frontotemporaldementia
Day 1 of World FTD Awareness Week begins with a Spotlight on FTD.
Frontotemporal degeneration is a group of brain disorders that affect behavior, communication, and movement. 🔦
Join us as we put FTD in the spotlight—and tag someone who should know about FTD. 🩵
Learn more: https://bit.ly/4cSCgZX
Frontotemporal degeneration is a group of brain disorders that affect behavior, communication, and movement. 🔦
Join us as we put FTD in the spotlight—and tag someone who should know about FTD. 🩵
Learn more: https://bit.ly/4cSCgZX
September 28, 2026 at 5:15 PM
Day 1 of World FTD Awareness Week begins with a Spotlight on FTD.
Frontotemporal degeneration is a group of brain disorders that affect behavior, communication, and movement. 🔦
Join us as we put FTD in the spotlight—and tag someone who should know about FTD. 🩵
Learn more: https://bit.ly/4cSCgZX
Frontotemporal degeneration is a group of brain disorders that affect behavior, communication, and movement. 🔦
Join us as we put FTD in the spotlight—and tag someone who should know about FTD. 🩵
Learn more: https://bit.ly/4cSCgZX
Thanks to Dr Sam Page for proclaiming the last week of September FYD Awareness Week. @theaftd.bsky.social #endFTD
August 14, 2026 at 2:43 PM
Thanks to Dr Sam Page for proclaiming the last week of September FYD Awareness Week. @theaftd.bsky.social #endFTD
🧪 🧬 🧫 🔬
"The Genetic Frontotemporal dementia Initiative (GENFI) is a group of research centres across Europe and Canada with expertise in familial frontotemporal dementia (FTD) and is co-ordinated by Professor Jonathan Rohrer .."
www.genfi.org
#spotlightftd #endFTD #worldftdawarenessweek
"The Genetic Frontotemporal dementia Initiative (GENFI) is a group of research centres across Europe and Canada with expertise in familial frontotemporal dementia (FTD) and is co-ordinated by Professor Jonathan Rohrer .."
www.genfi.org
#spotlightftd #endFTD #worldftdawarenessweek
GENFI – The Genetic Frontotemporal Initiative
www.genfi.org
September 29, 2026 at 8:49 PM
🧪 🧬 🧫 🔬
"The Genetic Frontotemporal dementia Initiative (GENFI) is a group of research centres across Europe and Canada with expertise in familial frontotemporal dementia (FTD) and is co-ordinated by Professor Jonathan Rohrer .."
www.genfi.org
#spotlightftd #endFTD #worldftdawarenessweek
"The Genetic Frontotemporal dementia Initiative (GENFI) is a group of research centres across Europe and Canada with expertise in familial frontotemporal dementia (FTD) and is co-ordinated by Professor Jonathan Rohrer .."
www.genfi.org
#spotlightftd #endFTD #worldftdawarenessweek