Thank you #EURORDIS for the 2025 Black Pearl Scientific Award. It is so gratifying to witness the vigour exhibited by the rare disease community. Congratulations EURORDIS for your commitment to providing support to those affected by a rare disease. #VASCAPA #HEVAS VASCERN, @vascern.bsky.social ERN
February 25, 2025 at 11:00 AM
Thank you #EURORDIS for the 2025 Black Pearl Scientific Award. It is so gratifying to witness the vigour exhibited by the rare disease community. Congratulations EURORDIS for your commitment to providing support to those affected by a rare disease. #VASCAPA #HEVAS VASCERN, @vascern.bsky.social ERN
estou apaixonado pela lianne has hevas quero escutara discografia dela inteira
September 20, 2024 at 1:35 AM
estou apaixonado pela lianne has hevas quero escutara discografia dela inteira
International Conference on Vascular Anomalies: Translating basic research into new therapies (VAC 2025)! : Exciting program, including novel preclinical models, drugs, and most recent results from clinical trials! lnkd.in/e6_BbzQF. Registrations: lnkd.in/dzTfFVej
#VASCAPA #HEVAS #CMTC #EVBO #ISSVA
#VASCAPA #HEVAS #CMTC #EVBO #ISSVA
January 23, 2025 at 4:07 PM
International Conference on Vascular Anomalies: Translating basic research into new therapies (VAC 2025)! : Exciting program, including novel preclinical models, drugs, and most recent results from clinical trials! lnkd.in/e6_BbzQF. Registrations: lnkd.in/dzTfFVej
#VASCAPA #HEVAS #CMTC #EVBO #ISSVA
#VASCAPA #HEVAS #CMTC #EVBO #ISSVA
It was great to be able to add a small human bit to the story. # VASCAPA #vascern #cmtc #Hevas #vascapa #evbo #navbo
We hope these findings bring us closer to better treatments for this challenging condition. #vascularbiology #PIK3CA #venousmalformation
Huge thanks to our fantastic collaborators Michael Potente, René Hägerling, Friedrich Kapp, @mvikkula.bsky.social, Laurence Boon, @ruibenedito.bsky.social
Huge thanks to our fantastic collaborators Michael Potente, René Hägerling, Friedrich Kapp, @mvikkula.bsky.social, Laurence Boon, @ruibenedito.bsky.social
May 25, 2025 at 6:01 PM
International Conference on Vascular Anomalies: Translating basic research into new therapies (VAC 2025)! : lnkd.in/e6_BbzQF. Don't miss the event. The congress networking dinner nearly sold out! A few seats left for congress participation. lnkd.in/dzTfFVej
#VASCAPA #HEVAS #CMTC #EVBO #ISSVA
#VASCAPA #HEVAS #CMTC #EVBO #ISSVA
February 6, 2025 at 5:23 PM
International Conference on Vascular Anomalies: Translating basic research into new therapies (VAC 2025)! : lnkd.in/e6_BbzQF. Don't miss the event. The congress networking dinner nearly sold out! A few seats left for congress participation. lnkd.in/dzTfFVej
#VASCAPA #HEVAS #CMTC #EVBO #ISSVA
#VASCAPA #HEVAS #CMTC #EVBO #ISSVA
The great #ISSVA debates meeting 2025 meeting has come to an end. Nothing compares to F2F discussions and networking. Looking forward to the ISSVA World Congress 2026 in #Philadelphia #vascapa #hevas #CMTC #VASCERN #LE&RN #ESL #ISL #vascular #lymphatic #syndrome #hemangioma #theranostic #repurposing
April 26, 2025 at 11:00 AM
The great #ISSVA debates meeting 2025 meeting has come to an end. Nothing compares to F2F discussions and networking. Looking forward to the ISSVA World Congress 2026 in #Philadelphia #vascapa #hevas #CMTC #VASCERN #LE&RN #ESL #ISL #vascular #lymphatic #syndrome #hemangioma #theranostic #repurposing
Congratulations Emmanuel on showing how #sirolimus treatment can be adapted. #patients with #slow-#flow #vascular #malformations have #symptom reduction even with #intermittent dosing. A big step forward in the #multimodal management of VAs. #VASCERN #VASCAPA #CMTC #HEVAS #ISSVA #EVDays #Lymph
December 17, 2025 at 7:25 AM
Congratulations Emmanuel on showing how #sirolimus treatment can be adapted. #patients with #slow-#flow #vascular #malformations have #symptom reduction even with #intermittent dosing. A big step forward in the #multimodal management of VAs. #VASCERN #VASCAPA #CMTC #HEVAS #ISSVA #EVDays #Lymph
Our latest review, 'Current and Emerging Pharmacotherapies for Vascular Malformations', is online. First 50 can download the PDF for free via the link. Thank you, Emmanuel Seront, for putting it together! #VASCAPA #HEVAS #CMTC #VASCERN #RADIOORG #EURORDIS #EVBO
www.tandfonline.com/eprint/QGPRV...
www.tandfonline.com/eprint/QGPRV...
March 18, 2026 at 3:06 PM
Great 2 days at #French Society of #Lymphology in Toulouse on lymphatic malformations, lymphoedema and lipedema. Illustrative presentations, pertinent questions and collegial discussions. Humbling to be part of the faculty. #vascapa #hevas #CMTC #Welbio #eshg #revamp #VASCERN #eurordis #lymph #LM
December 5, 2025 at 5:17 PM
Great WCPD with several sessions on vascular anomalies. Launch of the Vascular Anomaly book with M. Cordisco, D. Teplisky and N. Torres as Editors. Happy to meet again the Garrahan Hospital VA-team and many other colleagues, to make progress the care of VAs. #VASCAPA, #HEVAS, #CMTC, #VASCERN, #LE&RN
April 10, 2025 at 6:19 PM
Great WCPD with several sessions on vascular anomalies. Launch of the Vascular Anomaly book with M. Cordisco, D. Teplisky and N. Torres as Editors. Happy to meet again the Garrahan Hospital VA-team and many other colleagues, to make progress the care of VAs. #VASCAPA, #HEVAS, #CMTC, #VASCERN, #LE&RN
I hope these pathways will help both junior and senior physicians to manage these patients , and to those affected by these vascular diseases to obtain faster a definite diagnosis. #vascapa #vascern #cmtc #hevas #vascern #capillary #malformation #evbo #navbo #issva #leducq #theralymph
March 5, 2025 at 7:13 AM
I hope these pathways will help both junior and senior physicians to manage these patients , and to those affected by these vascular diseases to obtain faster a definite diagnosis. #vascapa #vascern #cmtc #hevas #vascern #capillary #malformation #evbo #navbo #issva #leducq #theralymph
Congratulations to all 3 young investigators who received the 1st International Joint Young Investigator/Clinician Awards in #Vascular #Medicine during the virtual #European #Angiology Days 2025 Dr #Annegret Holm, Dr J Mangulabnan, and Dr Anne Miralles-Amora. #VASCERN #VASCA #VASCAPA #HEVAS #CMTC
December 15, 2025 at 1:38 PM
What a beautiful, heartfelt day of remembrance in honour of Dr. John B. Mulliken. Colleagues, patients and friends came together to share their treasured memories. In tribute, Harvard Medical School lowered its flag to half-mast. #VASCERN #VASCAPA #RADIORG #HEVAS #CMTC #Eurordis #Welbio #uclouvain
April 26, 2026 at 10:43 AM
An interesting session on #vascular anomalies at the Society of #Interventional #radiology (#SIR) meeting in Toronto. Met new enthusiastic younger colleagues! #VASCAPA #CMTC #HEVAS #VASCERN
April 12, 2026 at 7:56 PM
An interesting session on #vascular anomalies at the Society of #Interventional #radiology (#SIR) meeting in Toronto. Met new enthusiastic younger colleagues! #VASCAPA #CMTC #HEVAS #VASCERN
Vandaag, op Rare Disease Day, starten we een inzamelactie voor onderzoek. Elke donatie gaat naar de vier samenwerkende Nederlandse expertisecentra en hun gezamenlijke projecten.
Meer info en doneren: hevas.eu/rare-disease...
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Rare Disease Day 2025 - Hevas
Vandaag is het Internationale Rare Disease Day – een dag waarop wereldwijd wordt stilgestaan bij de impact van zeldzame aandoeningen en de mensen die ermee leven. Er bestaan meer dan 6000 verschillend...
hevas.eu
February 28, 2025 at 8:44 AM
Vandaag, op Rare Disease Day, starten we een inzamelactie voor onderzoek. Elke donatie gaat naar de vier samenwerkende Nederlandse expertisecentra en hun gezamenlijke projecten.
Meer info en doneren: hevas.eu/rare-disease...
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It was a great annual #Crick #Rare Disease Conference 2026. Learned so much new, made novel contacts, and of course, discussed #precision #therapies for #vascular, and more specifically, #lymphatic anomalies. Organised by @Veronica K. #VASCERN #vascapa #hevas #eurordis #CMTC
February 24, 2026 at 11:59 AM
It was a great annual #Crick #Rare Disease Conference 2026. Learned so much new, made novel contacts, and of course, discussed #precision #therapies for #vascular, and more specifically, #lymphatic anomalies. Organised by @Veronica K. #VASCERN #vascapa #hevas #eurordis #CMTC
Exciting 1st day at #iDR26 on #drug #repurposing. Academics, companies, funders, policymakers & patients, gathered to discuss how to #repurpose #medicines for #diseases with unmet medical needs, incl. #vascular anomalies. #VASCERN #VASCAPA #HEVAS #CMTC #Eurordis #WELRI #deDuveInstitute #FNRS #ISSVA
May 12, 2026 at 2:48 PM
Exciting 1st day at #iDR26 on #drug #repurposing. Academics, companies, funders, policymakers & patients, gathered to discuss how to #repurpose #medicines for #diseases with unmet medical needs, incl. #vascular anomalies. #VASCERN #VASCAPA #HEVAS #CMTC #Eurordis #WELRI #deDuveInstitute #FNRS #ISSVA
#PIK3R1 and PIK3CA mutations with Capillary Malformation with #DilatedVeins (CMDV) lnkd.in/e2UAUKJr JID cover video lnkd.in/eUSWXYFN features #MRI with #hyperintense slow-flowing blood in dilated veins. A great collaboration within our #VACure and #Leducq networks. #VASCAPA #HEVAS #CMTC #VASCERN
January 22, 2026 at 5:29 PM
#PIK3R1 and PIK3CA mutations with Capillary Malformation with #DilatedVeins (CMDV) lnkd.in/e2UAUKJr JID cover video lnkd.in/eUSWXYFN features #MRI with #hyperintense slow-flowing blood in dilated veins. A great collaboration within our #VACure and #Leducq networks. #VASCAPA #HEVAS #CMTC #VASCERN
Great two sessions this morning at the mammouth size 2025 #AHA on various aspects of lymphatic and vascular situations of interest to cardiologists. Naturally I was addressing the #genetic basis and pathophysiology of #primary #lymphedema. #vascern #eshg #hevas #cmtc #welbio #theralymp #lymph
November 7, 2025 at 6:08 PM
