#myalgicencephalitis
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lattesdotter.bsky.social
#PublicHealth #TrueHorror #ChronicIllness #MedicalSociolgy #Medicine #ChronicFatigue #ChronicIllness #ME #MyalgicEncephalitis #ChronicFatigueStndrome #CFS
meactnet.bsky.social #MEAction Network @meactnet.bsky.social · 1d
"We need to ask why so many patients have been abandoned, why discredited and dangerous treatments continue to be prescribed and why ignorance and neglect still dominate, in the health system and beyond. In other words, there has seldom been a stronger case for a public inquiry." #MECFS #pwME
georgemonbiot.bsky.social George Monbiot @georgemonbiot.bsky.social · 1d
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2
www.theguardian.com/commentisfre...
September 24, 2026 at 4:10 PM
lattesdotter.bsky.social
#ME #ChronicIllness #MyalgicEncephalitis #Art #Grief
meactnet.bsky.social #MEAction Network @meactnet.bsky.social · Jun 18
Our Severe ME Artists Project 2026 is coming in recognition of #SevereMEday! Full details: https://ow.ly/EeQ950Zehf4

Please note: many people with #SevereME can no longer practice art. Others have been able to find creative ways to continue. We hold space for those grieving. #pwME #artist
Announcement for the Severe ME Artists Project 2026 with a July 24th entry deadline and website details. Background in watercolors using peach, white and minty teal. Text: Severe ME Artists Project 2026 Deadline to enter July 24th Details on our website. #MEAction
June 18, 2026 at 6:00 PM
robbielane87.bsky.social
Now imagine this with ME/CFS

#me/cfs #myalgicencephalitis #chronicfatiguesyndrome #ADHD #adhd #ADHDawareness #me/cfsawareness #chronicillness #PwME #cfs #invisableillnesses
January 26, 2025 at 9:18 PM
musargenteus.bsky.social
Also: see mum? I told you I wasn't just being lazy when I was unable to get out of bed

#millionsmissing
#myalgicencephalitis
#ME/CFS
#sarcoidosis
#myastheniagravis
March 3, 2025 at 7:06 AM
musargenteus.bsky.social
This is why my profile picture is important to me. It's not pretty. It's not carefully curated. But it's the first picture I took in many, many years where I looked more or less like me.

#myastheniagravis
#myalgicencephalitis
#millionsmissing
March 11, 2025 at 10:14 AM
ilovemyself3000.bsky.social
#disability #mecfs #myalgicencephalitis #longcovid #millionsmissing #chronicillness #publichealth #iwillnotgoquietly

Credit u/thesaltpacket in r/cfs.
A bell pepper which appears to be in the fetal position surrounded by the following text as if each is a thought. "Me watching all of the long covid funding get pulled, the ending of 45 studies that were close to being finished, committees canceled that have taken decades of activism to create, one of very few research centers closing at columbia, big pharma declining the use of their drugs in mecfs trials, knowing there's nothing I could possibly do to help this and knowing I don't have the strength to advocate again."
March 28, 2025 at 2:48 AM
carasutra.bsky.social
I thought I had endless energy. I was wrong.

This is how chronic illness, perimenopause, disability and sobriety forced me to be choosy about how my limited spoons are used.

carasutra.com/2026/01/prot...

#ChronicIllness #MentalHealth #MyalgicEncephalitis #Disability #DisabledVoices #Spoonie
How I’m Protecting My Energy In 2026
How I’m protecting my energy in 2026 by learning to listen to myself, respect my limits, and rest. My priorities and what I’m letting go.
carasutra.com
January 29, 2026 at 9:29 PM
grandadalan.bsky.social
I wrote “…my ME/CFS…”. Was going to spell out myalgicencephalitis and forgot to delete the ‘my’ when using abbreviations. ME/Long Covid are devastating. Check Open Medicine Foundation and Stanford University et al. Hope on the horizon.
November 27, 2024 at 9:23 AM
kimk-research.bsky.social
"The results suggest that PI-MECFS may be caused by #immune system dysfunction that is triggered by #infections."

www.nih.gov/news-events/...

#longCovid #myalgicencephalitis #iaci #MECFS #immunocompromised #IgGdeficiency
Insight into mechanisms of ME/CFS
Researchers compared people with post-infectious ME/CFS to those without and found important differences in their brains and other body systems.
www.nih.gov
December 14, 2024 at 12:41 AM