Serving up these twins for Titty Tuesday 😈💦
#publicflash #tittytuesday #bigtits #womenwithdisabilities #musculardystrophy #myotonicdystrophy #bbw #milf #over30
#publicflash #tittytuesday #bigtits #womenwithdisabilities #musculardystrophy #myotonicdystrophy #bbw #milf #over30
August 12, 2025 at 11:50 PM
Serving up these twins for Titty Tuesday 😈💦
#publicflash #tittytuesday #bigtits #womenwithdisabilities #musculardystrophy #myotonicdystrophy #bbw #milf #over30
#publicflash #tittytuesday #bigtits #womenwithdisabilities #musculardystrophy #myotonicdystrophy #bbw #milf #over30
Wonderful #raredisease breakfast with the #NeuromuscularWA community @perkinsinstitute.bsky.social
#myopathy #IBM #FSHD #CMT #myotonicdystrophy
Stronger together
#myopathy #IBM #FSHD #CMT #myotonicdystrophy
Stronger together
February 28, 2025 at 7:38 AM
Wonderful #raredisease breakfast with the #NeuromuscularWA community @perkinsinstitute.bsky.social
#myopathy #IBM #FSHD #CMT #myotonicdystrophy
Stronger together
#myopathy #IBM #FSHD #CMT #myotonicdystrophy
Stronger together
Wearing our greens in the lab at Biobizkaia for #MyotonicDystrophy awareness day.
@myotonicstrong.bsky.social
@myotonicstrong.bsky.social
September 16, 2025 at 1:17 PM
Wearing our greens in the lab at Biobizkaia for #MyotonicDystrophy awareness day.
@myotonicstrong.bsky.social
@myotonicstrong.bsky.social
At #OTS2025 you may find Alvaro and I presenting the Spanish #MyotonicDystrophy registry. You can read about it at www.dm1spain.com/ or come to posters 008 and 135
October 21, 2025 at 9:22 AM
At #OTS2025 you may find Alvaro and I presenting the Spanish #MyotonicDystrophy registry. You can read about it at www.dm1spain.com/ or come to posters 008 and 135
CMU chemists have developed a precise approach to target RNA, opening the door to potential new treatments for myotonicdystrophy type 1 — the most common adult‑onset muscular dystrophy — and other RNA‑repeat expansion disorders. 🧪 #ChemSky
www.cmu.edu/mcs/news-eve...
www.cmu.edu/mcs/news-eve...
Breakthrough in RNA Research Could Lead to Treatment for Neuromuscular Disorders
Researchers from Carnegie Mellon University have discovered a new way to target RNA that could lead to new treatment options for myotonic dystrophy type 1 (DM1), the most common adult-onset form of mu...
www.cmu.edu
February 3, 2026 at 8:40 PM
CMU chemists have developed a precise approach to target RNA, opening the door to potential new treatments for myotonicdystrophy type 1 — the most common adult‑onset muscular dystrophy — and other RNA‑repeat expansion disorders. 🧪 #ChemSky
www.cmu.edu/mcs/news-eve...
www.cmu.edu/mcs/news-eve...
🚨#RareDiseaseDay is February 28th! 🚨 Join us in raising awareness about #myotonicDystrophy all month long! 💚🔗 Find ways to get started at: www.myotonic.org/rare-disease...
February 7, 2025 at 2:18 PM
🚨#RareDiseaseDay is February 28th! 🚨 Join us in raising awareness about #myotonicDystrophy all month long! 💚🔗 Find ways to get started at: www.myotonic.org/rare-disease...
🌍 This #RareDiseaseDay, the Global Alliance for #myotonicDystrophyAwareness of 60+ orgs unite to advance care & research for #myotonicDystrophy, focusing on: ✅ Educating clinical teams ✅ Enhancing trial readiness 💚 Help us change the future of DM! www.myotonic.org/global-allia...
February 28, 2025 at 8:31 AM
🌍 This #RareDiseaseDay, the Global Alliance for #myotonicDystrophyAwareness of 60+ orgs unite to advance care & research for #myotonicDystrophy, focusing on: ✅ Educating clinical teams ✅ Enhancing trial readiness 💚 Help us change the future of DM! www.myotonic.org/global-allia...
🌍 60+ Global Alliance Organizations Recognize the 5th annual International #MyotonicDystrophy Awareness Day! 💚 We proudly celebrate the remarkable strength & resilience of the DM community around the world. 🌟 Read the full press release at www.myotonic.org/global-allia...
September 15, 2025 at 4:00 AM
🌍 60+ Global Alliance Organizations Recognize the 5th annual International #MyotonicDystrophy Awareness Day! 💚 We proudly celebrate the remarkable strength & resilience of the DM community around the world. 🌟 Read the full press release at www.myotonic.org/global-allia...
What is #MyotonicDystrophy? How does it affect the body? Why is personalized care so important? Watch our NEW animation 🎥 “Understanding Myotonic Dystrophy - The Basics” to learn more! 🌟 Perfect for families and healthcare providers! 💡 Help spread DM awareness - share now! 💚 youtu.be/cVEwn4Hy0kc
Understanding Myotonic Dystrophy – The Basics
YouTube video by Myotonic Dystrophy Foundation
youtu.be
November 28, 2024 at 1:52 AM
What is #MyotonicDystrophy? How does it affect the body? Why is personalized care so important? Watch our NEW animation 🎥 “Understanding Myotonic Dystrophy - The Basics” to learn more! 🌟 Perfect for families and healthcare providers! 💡 Help spread DM awareness - share now! 💚 youtu.be/cVEwn4Hy0kc
Dyne Therapeutics shared new one-year ACHIEVE trial data for z-basivarsen (DYNE-101) in #myotonicDystrophy type 1 (DM1), reporting improvements in function, strength, myotonia, and participant-reported symptoms. Read Dyne’s letter to the DM community at: www.dyne-tx.com/new-one-year...
October 2, 2026 at 11:56 PM
Dyne Therapeutics shared new one-year ACHIEVE trial data for z-basivarsen (DYNE-101) in #myotonicDystrophy type 1 (DM1), reporting improvements in function, strength, myotonia, and participant-reported symptoms. Read Dyne’s letter to the DM community at: www.dyne-tx.com/new-one-year...
Dyne Therapeutics shared new one-year ACHIEVE trial data for z-basivarsen (DYNE-101) in #myotonicDystrophy type 1 (DM1), reporting improvements in function, strength, myotonia, and participant-reported symptoms. Read Dyne’s letter to the DM community at: www.dyne-tx.com/new-one-year...
October 2, 2026 at 11:55 PM
Dyne Therapeutics shared new one-year ACHIEVE trial data for z-basivarsen (DYNE-101) in #myotonicDystrophy type 1 (DM1), reporting improvements in function, strength, myotonia, and participant-reported symptoms. Read Dyne’s letter to the DM community at: www.dyne-tx.com/new-one-year...
Fantastic turnout for today's #MyotonicDystrophy awareness day, and lots of interest in signing up to the registry! Learn more about how our team support #NMD patient and research communities by visiting our website JWMDRC.org/networking/registries
💚💬🧬🤝👀
💚💬🧬🤝👀
March 29, 2025 at 6:07 PM
Fantastic turnout for today's #MyotonicDystrophy awareness day, and lots of interest in signing up to the registry! Learn more about how our team support #NMD patient and research communities by visiting our website JWMDRC.org/networking/registries
💚💬🧬🤝👀
💚💬🧬🤝👀
There's still time to Go #GreenForDM! Raising #myotonicDystrophy awareness is as simple as wearing green 💚 Join the MDF Team and the DM community — post your pic, use #myotonicDystrophy, and tag MDF to show your support on Awareness Day! 💪✨
September 16, 2025 at 12:07 AM
There's still time to Go #GreenForDM! Raising #myotonicDystrophy awareness is as simple as wearing green 💚 Join the MDF Team and the DM community — post your pic, use #myotonicDystrophy, and tag MDF to show your support on Awareness Day! 💪✨
Post Thread
201,901 miles in 365 days: How Patrick Cornell set four world records 👉 Read more on Common Tread: rvz.la/4cC1iMW
#RevZilla #motosky #ironbutt #recordbreaking #motorcycle #myotonicdystrophy
201,901 miles in 365 days: How Patrick Cornell set four world records 👉 Read more on Common Tread: rvz.la/4cC1iMW
#RevZilla #motosky #ironbutt #recordbreaking #motorcycle #myotonicdystrophy
September 8, 2026 at 2:37 PM
Post Thread
201,901 miles in 365 days: How Patrick Cornell set four world records 👉 Read more on Common Tread: rvz.la/4cC1iMW
#RevZilla #motosky #ironbutt #recordbreaking #motorcycle #myotonicdystrophy
201,901 miles in 365 days: How Patrick Cornell set four world records 👉 Read more on Common Tread: rvz.la/4cC1iMW
#RevZilla #motosky #ironbutt #recordbreaking #motorcycle #myotonicdystrophy
For International #MyotonicDystrophy Awareness Day, the Zabezhinsky family helped shine a bright light on DM! 💚 Thanks to their efforts, Target Field and downtown Minneapolis glowed green, while DM was spotlit on live TV! www.myotonic.org/internationa...
September 25, 2026 at 6:40 PM
For International #MyotonicDystrophy Awareness Day, the Zabezhinsky family helped shine a bright light on DM! 💚 Thanks to their efforts, Target Field and downtown Minneapolis glowed green, while DM was spotlit on live TV! www.myotonic.org/internationa...
We support International #MyotonicDystrophy Awareness Day! 💚 Learn more about research & trials conducted by our teams⤵️
#myotonicDystrophy #myotonicDystrophyAwareness
@afm-telethon.bsky.social @afmtelethonpresse.bsky.social @myotonicstrong.bsky.social
www.institut-myologie.org/2025/09/15/j...
#myotonicDystrophy #myotonicDystrophyAwareness
@afm-telethon.bsky.social @afmtelethonpresse.bsky.social @myotonicstrong.bsky.social
www.institut-myologie.org/2025/09/15/j...
Journée Internationale de sensibilisation à la Dystrophie Myotonique - Institut de Myologie
La Journée internationale de sensibilisation aux dystrophies myotoniques a lieu chaque année le 15 septembre. Elle a pour objectif de sensibiliser le corps médical, les responsables politiques et le g...
www.institut-myologie.org
September 15, 2025 at 11:08 AM
We support International #MyotonicDystrophy Awareness Day! 💚 Learn more about research & trials conducted by our teams⤵️
#myotonicDystrophy #myotonicDystrophyAwareness
@afm-telethon.bsky.social @afmtelethonpresse.bsky.social @myotonicstrong.bsky.social
www.institut-myologie.org/2025/09/15/j...
#myotonicDystrophy #myotonicDystrophyAwareness
@afm-telethon.bsky.social @afmtelethonpresse.bsky.social @myotonicstrong.bsky.social
www.institut-myologie.org/2025/09/15/j...
We're excited to announce the release of Understanding #MyotonicDystrophy – Inheritance of Myotonic Dystrophy Type 1 (DM1)! 📢🎥 This animation provides a clear introduction to the genetic inheritance of DM1. 🧬 Share & spread awareness with this valuable resource! 💚✨ www.myotonic.org/understandin...
Understanding Myotonic Dystrophy – Inheritance of Myotonic Dystrophy Type 1 (DM1)
YouTube video by Myotonic Dystrophy Foundation
youtu.be
February 21, 2025 at 6:02 PM
We're excited to announce the release of Understanding #MyotonicDystrophy – Inheritance of Myotonic Dystrophy Type 1 (DM1)! 📢🎥 This animation provides a clear introduction to the genetic inheritance of DM1. 🧬 Share & spread awareness with this valuable resource! 💚✨ www.myotonic.org/understandin...
#Jobopportunity #PhD 🆕🔎Have a look at this new exciting doctoral position in one of our labs @crm-myologie.bsky.social at @institutdemyologie.bsky.social!
Please also share in your networks! 🙏
#Recruitment #DoctoralNetwork #MSCA #PhD #Research #NMD #MyotonicDystrophy #Muscle #Myology
Please also share in your networks! 🙏
#Recruitment #DoctoralNetwork #MSCA #PhD #Research #NMD #MyotonicDystrophy #Muscle #Myology
🚨 PhD Opportunity 🚨
Two PhD available in Paris 🇫🇷 at @crm-myologie.bsky.social, @inserm.fr, @sorbonne-universite.fr and @institutdemyologie.bsky.social on biomarkers of myotonic dystrophy.
👉 More info & apply
🔗 euraxess.ec.europa.eu/jobs/324434
🔗 euraxess.ec.europa.eu/jobs/324426
#Hiring #JobOffer
Two PhD available in Paris 🇫🇷 at @crm-myologie.bsky.social, @inserm.fr, @sorbonne-universite.fr and @institutdemyologie.bsky.social on biomarkers of myotonic dystrophy.
👉 More info & apply
🔗 euraxess.ec.europa.eu/jobs/324434
🔗 euraxess.ec.europa.eu/jobs/324426
#Hiring #JobOffer
DC12: Circulating biomarkers of brain dysfunction in myotonic dystrophy type 1
The ENTRY-DM Doctoral Network, funded under the prestigious Marie Skłodowska-Curie Actions – Doctoral Networks (MSCA-DN) programme, is offering 14 fully funded PhD positions across leading European in...
euraxess.ec.europa.eu
March 20, 2025 at 1:34 PM
#Jobopportunity #PhD 🆕🔎Have a look at this new exciting doctoral position in one of our labs @crm-myologie.bsky.social at @institutdemyologie.bsky.social!
Please also share in your networks! 🙏
#Recruitment #DoctoralNetwork #MSCA #PhD #Research #NMD #MyotonicDystrophy #Muscle #Myology
Please also share in your networks! 🙏
#Recruitment #DoctoralNetwork #MSCA #PhD #Research #NMD #MyotonicDystrophy #Muscle #Myology
Do you know how to recognize a potentially predatory #myotonicDystrophy research opportunity? Many opportunities are legitimate, but not all offer the same protections for your privacy, rights, and personal information. Learn more at: myotonic.org/predatory-re...
September 25, 2026 at 8:26 PM
Do you know how to recognize a potentially predatory #myotonicDystrophy research opportunity? Many opportunities are legitimate, but not all offer the same protections for your privacy, rights, and personal information. Learn more at: myotonic.org/predatory-re...
Exciting new clinical trial results for del-desiran in #myotonicDystrophy type 1 (DM1) showed an approximate 40% reduction in toxic DMPK mRNA in muscle, with associated improvements in myotonia, strength, and mobility.
Read the press release: prn.to/4u0khrA
Read the press release: prn.to/4u0khrA
February 20, 2026 at 2:51 AM
Exciting new clinical trial results for del-desiran in #myotonicDystrophy type 1 (DM1) showed an approximate 40% reduction in toxic DMPK mRNA in muscle, with associated improvements in myotonia, strength, and mobility.
Read the press release: prn.to/4u0khrA
Read the press release: prn.to/4u0khrA
🌍September 15th is International #MyotonicDystrophy Awareness Day! 📢 Raising awareness can be as easy as wearing green. 💚 Learn how your voice can help improve care and change the future of DM: www.myotonic.org/internationa...
August 5, 2025 at 9:17 PM
🌍September 15th is International #MyotonicDystrophy Awareness Day! 📢 Raising awareness can be as easy as wearing green. 💚 Learn how your voice can help improve care and change the future of DM: www.myotonic.org/internationa...
✨ 💚 Discover practical “life hacks” from the #myotonicDystrophy community in our next Ask-the-Expert webinar! 🔗Register & learn new strategies with us: events.zoom.us/ev/AioUdcQWO...
November 13, 2025 at 8:20 PM
✨ 💚 Discover practical “life hacks” from the #myotonicDystrophy community in our next Ask-the-Expert webinar! 🔗Register & learn new strategies with us: events.zoom.us/ev/AioUdcQWO...
🚨#RareDiseaseDay is February 28th! 🚨 Join us in raising awareness about #myotonicDystrophy all month long! 💚🔗 Find ways to get started: www.myotonic.org/rare-disease...
February 9, 2026 at 8:55 PM
🚨#RareDiseaseDay is February 28th! 🚨 Join us in raising awareness about #myotonicDystrophy all month long! 💚🔗 Find ways to get started: www.myotonic.org/rare-disease...
Still trying to get my jacysonne.bsky.social account back, all the sighs.
Jacy Sonne ♿️ (@jacysonne.bsky.social)
Disability Advocacy ♿️ #FMMECFS #Migraineur #POTS #Dystonia #Spoonie #MyotonicDystrophy
Rare brain tumor survivor
Too many med dx to list here
Domestic Violence and the Disabled
Pro: Science
...
jacysonne.bsky.social
November 4, 2025 at 6:36 AM
Still trying to get my jacysonne.bsky.social account back, all the sighs.
✨We’re excited to collaborate with
@thernainstitute.bsky.social to lead the first ever symposium on Newborn Screening for #myotonicDystrophy! 💚 Thank you to all researchers & providers in attendance working to advance care & a cure for DM! 🧬🌐
@thernainstitute.bsky.social to lead the first ever symposium on Newborn Screening for #myotonicDystrophy! 💚 Thank you to all researchers & providers in attendance working to advance care & a cure for DM! 🧬🌐
February 14, 2025 at 5:36 PM
✨We’re excited to collaborate with
@thernainstitute.bsky.social to lead the first ever symposium on Newborn Screening for #myotonicDystrophy! 💚 Thank you to all researchers & providers in attendance working to advance care & a cure for DM! 🧬🌐
@thernainstitute.bsky.social to lead the first ever symposium on Newborn Screening for #myotonicDystrophy! 💚 Thank you to all researchers & providers in attendance working to advance care & a cure for DM! 🧬🌐