#SystemicExertionalIntoleranceDisease, #SEID , #autoimmune, #cysticfibrosis, #dystonia, #parkinsons, #PCOS, #cf, #Raynauds, #Sjogrens, #neuromyelitisOptica, #NMOSD, #narcolepsy, #urticaria, #idiopathichypersomnia, #Psoriasis, #PsoriaticArthritis, #UCTD, #MCTD, #hypersomnia, #CVID, #CPP, #PID,

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Hi #MedSky / #NeuroSky! 👋🏾 My name is Sumaira and I have been living with #NMOSD / #neuromyelitisoptica for 10 years. I started The Sumaira Foundation (TSF) 2 months after my DX & really excited to connect and collaborate with while learning from experts around the world on this platform! 🌏 🌎 🌍

Add my voice too. I woke up one day 11 years ago and couldn't walk. Rare disease blah blah. Things are better, but I'd rather *not* possess a handicap parking pass, if you know what I mean. #neuromyelitisoptica #nmo

Sumaira's 10-year journey living with #NMOSD is featured in @iheartradio.bsky.social's "Symptomatic: A Medical Mystery Podcast" newest episode - Case #24: Sumaira.

Check it out:
podcasts.apple.com/us/podcast/c...

#NeuroSky #neuromyelitisoptica

Throwback to when the @boston.gov was illuminated pink for TSF's #NMO Awareness Month 😍🩷

#NMOSD #neuromyelitisoptica #Boston

Remembering that time when the @empirestatebldng.bsky.social was lit pink & orange to illuminate #NMO Awareness Month with The Sumaira Foundation 🩷😍🧡

To learn more about #neuromyelitisoptica / #NMOSD, visit www.sumairafoundation.org

Meet Whitney and Addison, TSF Ambassadors of Kentucky 🌺

Addison was diagnosed with #NMOSD / #neuromyelitisoptica in 2021 and joins the Foundation as the youngest Ambassador alongside her mother, Whitney, who is her primary caregiver.

Welcome Whitney and Addison!

Dat je ook nog precies weet wanneer dit plaatsvond. In de auto nét op weg naar huis bij een tankstation moeten stoppen, omdat het Erasmus MC al aan de lijn hing. Ik kon kiezen tussen een óf twee weken later en hoewel ik alles vooruit wilde schuiven, toch maar gekozen voor de kortste klap. 💥

#recap

Door de doldwaze dinsdag was ik de #recap van 25 november 2024 gans vergeten! Bij deze…

www.hopkinsmedicine.org/health/condi...

#NMO #NMOSD #NeuromyelitisOptica #NeuromyelitisOpticaSpectrumDisorder #DevicsDisease

Terry Clark, TSF Ambassador for Massachusetts and NMOSD warrior, has once again secured a proclamation declaring March 2026 as #NMOSD Awareness Month.

In recognition of this effort, Governor Maura Healey met with Terry to learn more about #neuromyelitisoptica.

One of the biggest scientific breakthroughs of 2024. #CAR-T therapy for autoimmune disease. Imagine a world where patients can receive 1 treatment and be cured! Looking forward to trials in #multiplesclerosis, #neuromyelitisoptica and #anti-MOGassociateddisorder!

www.nejm.org/doi/full/10....