Predicting your own future changes you.
Previvors know this feeling well. At every step our choices must be our own.
#bcsm #medsky #brca #hitpolicy
Previvors know this feeling well. At every step our choices must be our own.
#bcsm #medsky #brca #hitpolicy
December 22, 2024 at 3:52 PM
Predicting your own future changes you.
Previvors know this feeling well. At every step our choices must be our own.
#bcsm #medsky #brca #hitpolicy
Previvors know this feeling well. At every step our choices must be our own.
#bcsm #medsky #brca #hitpolicy
🧬 On #PrevivorDay, it's a meaningful reminder that health care professionals, pt advocates & organizations can help those with inherited GI cancer risk feel informed, heard & supported.
📖 Revisit Michelle Springer’s blog on genetic testing, advocacy & supporting previvors👉🔗
tinyurl.com/33p6mxz9
📖 Revisit Michelle Springer’s blog on genetic testing, advocacy & supporting previvors👉🔗
tinyurl.com/33p6mxz9
September 30, 2026 at 11:24 AM
🧬 On #PrevivorDay, it's a meaningful reminder that health care professionals, pt advocates & organizations can help those with inherited GI cancer risk feel informed, heard & supported.
📖 Revisit Michelle Springer’s blog on genetic testing, advocacy & supporting previvors👉🔗
tinyurl.com/33p6mxz9
📖 Revisit Michelle Springer’s blog on genetic testing, advocacy & supporting previvors👉🔗
tinyurl.com/33p6mxz9
An absolute honor to share that I am writing a book!!! BEYOND THE PINK is a patient-centered guide to breast cancer, w/ a focus on the physical & mental health challenges encountered by younger breast cancer survivors, previvors,& stage 4 thrivers, coming out in 2026! @grandcentralpub.bsky.social
December 12, 2024 at 6:02 PM
An absolute honor to share that I am writing a book!!! BEYOND THE PINK is a patient-centered guide to breast cancer, w/ a focus on the physical & mental health challenges encountered by younger breast cancer survivors, previvors,& stage 4 thrivers, coming out in 2026! @grandcentralpub.bsky.social
FYI, I’m a previvor. It means I decided to get a double mastectomy rather than risk breast cancer.
I’m 3/4 done and waiting on my final reconstructive surgery. In an attempt to find community: Are there any other survivors or previvors that are also Sex Workers?
art by me ✨
I’m 3/4 done and waiting on my final reconstructive surgery. In an attempt to find community: Are there any other survivors or previvors that are also Sex Workers?
art by me ✨
November 18, 2024 at 2:59 AM
FYI, I’m a previvor. It means I decided to get a double mastectomy rather than risk breast cancer.
I’m 3/4 done and waiting on my final reconstructive surgery. In an attempt to find community: Are there any other survivors or previvors that are also Sex Workers?
art by me ✨
I’m 3/4 done and waiting on my final reconstructive surgery. In an attempt to find community: Are there any other survivors or previvors that are also Sex Workers?
art by me ✨
As we close out the National Month of Hope, we honor the strength and resilience of all previvors. 💛💪
#LoveDanielleFilm #NationalMonthOfHope #PrevivorStrong #HopeInAction
#LoveDanielleFilm #NationalMonthOfHope #PrevivorStrong #HopeInAction
April 30, 2025 at 6:14 PM
As we close out the National Month of Hope, we honor the strength and resilience of all previvors. 💛💪
#LoveDanielleFilm #NationalMonthOfHope #PrevivorStrong #HopeInAction
#LoveDanielleFilm #NationalMonthOfHope #PrevivorStrong #HopeInAction
Today is #NationalPrevivorDay, honoring those who have an increased risk or genetic predisposition to developing cancer.
At the Breast Cancer Coalition, we support breast and gynecologic #previvors through a Previvor 101 session.
To learn more, call (585) 473-8177 or email info@bccr.org.
At the Breast Cancer Coalition, we support breast and gynecologic #previvors through a Previvor 101 session.
To learn more, call (585) 473-8177 or email info@bccr.org.
September 30, 2026 at 7:44 PM
Today is #NationalPrevivorDay, honoring those who have an increased risk or genetic predisposition to developing cancer.
At the Breast Cancer Coalition, we support breast and gynecologic #previvors through a Previvor 101 session.
To learn more, call (585) 473-8177 or email info@bccr.org.
At the Breast Cancer Coalition, we support breast and gynecologic #previvors through a Previvor 101 session.
To learn more, call (585) 473-8177 or email info@bccr.org.
All guidelines: Pre-menopausal ppl w/ BRCA mutations who haven’t had breast cancer should get hormone replacement therapy after preventative ovarian cancer surgery.
“Yet in clinical practice” HRT “is frequently withheld, delayed, or never even discussed”
drmennobgyn.substack.com/p/the-silenc...
“Yet in clinical practice” HRT “is frequently withheld, delayed, or never even discussed”
drmennobgyn.substack.com/p/the-silenc...
Are BRCA Previvors getting "More Science and Less Fear"?
We are trading one problem for another when previvors are given substandard care.
drmennobgyn.substack.com
August 16, 2025 at 10:31 PM
All guidelines: Pre-menopausal ppl w/ BRCA mutations who haven’t had breast cancer should get hormone replacement therapy after preventative ovarian cancer surgery.
“Yet in clinical practice” HRT “is frequently withheld, delayed, or never even discussed”
drmennobgyn.substack.com/p/the-silenc...
“Yet in clinical practice” HRT “is frequently withheld, delayed, or never even discussed”
drmennobgyn.substack.com/p/the-silenc...
Previvors, Tom! Previvors use gene testing to be aware of their cancer risk!
March 31, 2026 at 2:56 PM
Previvors, Tom! Previvors use gene testing to be aware of their cancer risk!
October marks Breast Cancer Awareness Month.
The Breasties builds community and offers peer support for people affected by breast and gynecologic cancers.
Sending love to everyone navigating this journey. 💗
Learn more: thebreasties.org
The Breasties builds community and offers peer support for people affected by breast and gynecologic cancers.
Sending love to everyone navigating this journey. 💗
Learn more: thebreasties.org
The Breasties | By Community For Community
The first all-inclusive nonprofit organization that creates community for survivors, previvors, thrivers, and carevivors, impacted by breast and gynecological cancers.
thebreasties.org
October 1, 2026 at 6:22 PM
October marks Breast Cancer Awareness Month.
The Breasties builds community and offers peer support for people affected by breast and gynecologic cancers.
Sending love to everyone navigating this journey. 💗
Learn more: thebreasties.org
The Breasties builds community and offers peer support for people affected by breast and gynecologic cancers.
Sending love to everyone navigating this journey. 💗
Learn more: thebreasties.org
No one should have to face cancer alone. Imerman Angels connects cancer fighters, survivors, previvors, and caregivers with free, personalized, one-on-one support.
Through their unique matching process, anyone can receive the compassion . Paid partnership with Pfizer
www.learnlooklocate.com
Through their unique matching process, anyone can receive the compassion . Paid partnership with Pfizer
www.learnlooklocate.com
November 17, 2024 at 3:08 PM
No one should have to face cancer alone. Imerman Angels connects cancer fighters, survivors, previvors, and caregivers with free, personalized, one-on-one support.
Through their unique matching process, anyone can receive the compassion . Paid partnership with Pfizer
www.learnlooklocate.com
Through their unique matching process, anyone can receive the compassion . Paid partnership with Pfizer
www.learnlooklocate.com
You are very loved - this post keeps coming across my feeds. I found the post-diagnosis, pre-surgery stage to be the most terrifying. Since you mention seeking support, I found Immerman Angels very helpful when I was trying to find any stories about cancer journeys similar to mine.
Imerman Angels
Imerman Angels provides free, one-on-one cancer support and personalized mentoring for all cancer fighters, survivors, previvors and caregivers.
imermanangels.org
June 15, 2026 at 3:34 PM
You are very loved - this post keeps coming across my feeds. I found the post-diagnosis, pre-surgery stage to be the most terrifying. Since you mention seeking support, I found Immerman Angels very helpful when I was trying to find any stories about cancer journeys similar to mine.
For those that don’t know, I’m a previvor. It means I decided to get a double mastectomy rather than risk breast cancer.
I’m 3/4 done and waiting on my finally reconstructive surgery. In an attempt to find community: Are there any other survivors or previvors that are also Sex Workers?
I’m 3/4 done and waiting on my finally reconstructive surgery. In an attempt to find community: Are there any other survivors or previvors that are also Sex Workers?
a pink breast cancer ribbon is crossed over itself
ALT: a pink breast cancer ribbon is crossed over itself
media.tenor.com
November 15, 2024 at 9:18 PM
For those that don’t know, I’m a previvor. It means I decided to get a double mastectomy rather than risk breast cancer.
I’m 3/4 done and waiting on my finally reconstructive surgery. In an attempt to find community: Are there any other survivors or previvors that are also Sex Workers?
I’m 3/4 done and waiting on my finally reconstructive surgery. In an attempt to find community: Are there any other survivors or previvors that are also Sex Workers?
Trinity College published a story about the research Teodora Brnović and I conducted on previvors! Link in comments
September 25, 2026 at 6:38 PM
Trinity College published a story about the research Teodora Brnović and I conducted on previvors! Link in comments
If you need support with any/all cancers, reach out to Imerman Angels
Their mission is to provide comfort and understanding for all cancer fighters, survivors, previvors and caregivers through a personalized, peer-to-peer mentorship program with someone who has been there. #worldcancerday
Their mission is to provide comfort and understanding for all cancer fighters, survivors, previvors and caregivers through a personalized, peer-to-peer mentorship program with someone who has been there. #worldcancerday
February 5, 2025 at 1:27 AM
If you need support with any/all cancers, reach out to Imerman Angels
Their mission is to provide comfort and understanding for all cancer fighters, survivors, previvors and caregivers through a personalized, peer-to-peer mentorship program with someone who has been there. #worldcancerday
Their mission is to provide comfort and understanding for all cancer fighters, survivors, previvors and caregivers through a personalized, peer-to-peer mentorship program with someone who has been there. #worldcancerday
As well, the Journal has a podcast episode (thanks to @kategenetics.bsky.social @naomi-cgc.bsky.social & team!) dedicated to a study of Black previvors' & survivors' experiences with #BreastCancer, listen here: dnadialogues.podbean.com/e/9-black-pr...
#BlackHistoryMonth #AcademicSky 🧪 #GeneChat 2/2
#BlackHistoryMonth #AcademicSky 🧪 #GeneChat 2/2
#9 Black Previvor and Survivor Breast Cancer Genetic Testing Experiences | DNA Dialogues: Conversations in Genetic Counseling Research
In this episode we discuss a research study that focuses on Black women who tested positive for a pathogenic variant associated with an increased risk for breast cancer. You can find the Journal of Ge...
dnadialogues.podbean.com
February 11, 2026 at 4:48 PM
As well, the Journal has a podcast episode (thanks to @kategenetics.bsky.social @naomi-cgc.bsky.social & team!) dedicated to a study of Black previvors' & survivors' experiences with #BreastCancer, listen here: dnadialogues.podbean.com/e/9-black-pr...
#BlackHistoryMonth #AcademicSky 🧪 #GeneChat 2/2
#BlackHistoryMonth #AcademicSky 🧪 #GeneChat 2/2
October is Breast Cancer Awareness Month - a reminder to honor previvors, survivors, and support those with metastatic disease. 💗
#BreastCancerAwarenessMonth #LoveDanielleFilm #BRCA #Previvor #ThanksALotDNA #BreastCancerAwareness
#BreastCancerAwarenessMonth #LoveDanielleFilm #BRCA #Previvor #ThanksALotDNA #BreastCancerAwareness
October 15, 2025 at 7:02 PM
October is Breast Cancer Awareness Month - a reminder to honor previvors, survivors, and support those with metastatic disease. 💗
#BreastCancerAwarenessMonth #LoveDanielleFilm #BRCA #Previvor #ThanksALotDNA #BreastCancerAwareness
#BreastCancerAwarenessMonth #LoveDanielleFilm #BRCA #Previvor #ThanksALotDNA #BreastCancerAwareness
Check out Amy Byer Shainman's interview for #LoveDanielleFilm! 👏
www.omapod.com/p/amy-byer-s...
Omaha Film Fest starts today, don't forget to grab your tickets🎟️
off25.eventive.org/schedule/lov...
#FilmFestivals #BRCA #Filmmakers
www.omapod.com/p/amy-byer-s...
Omaha Film Fest starts today, don't forget to grab your tickets🎟️
off25.eventive.org/schedule/lov...
#FilmFestivals #BRCA #Filmmakers
Amy Byer Shainman on BRCA gene mutation previvors & 'Love, Danielle'
"There's a fine line with humor when you're talking about cancer"
www.omapod.com
March 13, 2025 at 1:30 PM
Check out Amy Byer Shainman's interview for #LoveDanielleFilm! 👏
www.omapod.com/p/amy-byer-s...
Omaha Film Fest starts today, don't forget to grab your tickets🎟️
off25.eventive.org/schedule/lov...
#FilmFestivals #BRCA #Filmmakers
www.omapod.com/p/amy-byer-s...
Omaha Film Fest starts today, don't forget to grab your tickets🎟️
off25.eventive.org/schedule/lov...
#FilmFestivals #BRCA #Filmmakers
I just saw an ad for cancer risk gene testing call its potential customers "previvors" and i think i died a little inside. MBA brain is frightening.
March 31, 2026 at 1:53 PM
I just saw an ad for cancer risk gene testing call its potential customers "previvors" and i think i died a little inside. MBA brain is frightening.
Examining #BRCA Previvors’ #SocialMedia Content Creation as a Form of Self and Community Care: A Qualitative Interview Study.
#hereditarycancer #gyncsm #bcsm #womenshealth #patientexperience
#hereditarycancer #gyncsm #bcsm #womenshealth #patientexperience
Examining BRCA Previvors’ Social Media Content Creation as a Form of Self and Community Care: Qualitative Interview Study
Genetic testing has become a common way of identifying a woman’s risk of developing hereditary breast and ovarian cancer; however, not all medical providers have the necessary information to support p...
pmc.ncbi.nlm.nih.gov
April 7, 2025 at 4:55 PM
Examining #BRCA Previvors’ #SocialMedia Content Creation as a Form of Self and Community Care: A Qualitative Interview Study.
#hereditarycancer #gyncsm #bcsm #womenshealth #patientexperience
#hereditarycancer #gyncsm #bcsm #womenshealth #patientexperience
New in JMIR: Examining BRCA Previvors’ #SocialMedia #hcsm #SoMe Content Creation as a Form of Self and Community Care: Qualitative Interview #Study
Examining BRCA Previvors’ #SocialMedia #hcsm #SoMe Content Creation as a Form of Self and Community Care: Qualitative Interview #Study
Background: Genetic testing has become a common way of identifying a woman’s risk of developing hereditary breast and ovarian #Cancer; however, not all ##Medical providers have the necessary information to support ##Patients interested in genetic testing,…
dlvr.it
March 3, 2025 at 11:21 PM
New in JMIR: Examining BRCA Previvors’ #SocialMedia #hcsm #SoMe Content Creation as a Form of Self and Community Care: Qualitative Interview #Study
Big news! We're proud to announce our partnership with https://imermanangels.org/ — a nonprofit dedicated to connecting cancer fighters, survivors, previvors, and caregivers with one-on-one peer mentors who truly understand what they're going through.
Join us: https://ow.ly/WFu750YLg1t
Join us: https://ow.ly/WFu750YLg1t
April 23, 2026 at 2:20 PM
Big news! We're proud to announce our partnership with https://imermanangels.org/ — a nonprofit dedicated to connecting cancer fighters, survivors, previvors, and caregivers with one-on-one peer mentors who truly understand what they're going through.
Join us: https://ow.ly/WFu750YLg1t
Join us: https://ow.ly/WFu750YLg1t
My guy Johnny Imerman is a f’ing super hero. imermanangels.org
Imerman Angels
Imerman Angels provides free, one-on-one cancer support and personalized mentoring for all cancer fighters, survivors, previvors and caregivers.
imermanangels.org
April 23, 2024 at 1:10 AM
My guy Johnny Imerman is a f’ing super hero. imermanangels.org
Such a challenging situation for you all. If you need the support of a free cancer mentoring community (for your son or family):
imermanangels.org
imermanangels.org
Imerman Angels
Imerman Angels provides free, one-on-one cancer support and personalized mentoring for all cancer fighters, survivors, previvors and caregivers.
imermanangels.org
February 12, 2025 at 1:39 PM
Such a challenging situation for you all. If you need the support of a free cancer mentoring community (for your son or family):
imermanangels.org
imermanangels.org