#primaryimmune
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freyschild.bsky.social
Watching wastewater reports as an immunosupressed person makes me feel like Cassandra #chronicillness #primaryimmune
a man is wearing a black sweater and making a funny face .
ALT: a man is wearing a black sweater and making a funny face .
media.tenor.com
November 15, 2024 at 10:29 PM
freyschild.bsky.social
Hey hey it's Infusion Day #scig #ivig #primaryimmune #chronicillness

This is what I mean when I say I'm immunocompromised
Bottle of human Immunoglobulin, suitable for primary Immunodeficiency patients. The liquid in the bottle is translucent and the label is blue and white
November 20, 2024 at 8:36 PM
katesullimmuno.bsky.social
The artificial intelligence meeting is rocking already! #aipi #inbornnerrorsofimmunity #primaryimmune #iei
March 20, 2025 at 12:44 AM
jenjerstevens.bsky.social
Spent rare disease day doing rare disease patient activities like my weekly infusion. #Iamrare #rarediseaseday #primaryimmune #Nord #immunedeficiencyfoundation #wearamask
Smiling white individual with purple hair and a red tshirt in front of a hedge with a freedom60 infusion pump held diagonally across chest
March 1, 2025 at 4:24 AM
freyschild.bsky.social
Still wearing a mask 😷 because even medical personnel won't act right #primaryimmune #chronicillness #immunocompromised
A person in a red fedora, wearing sunglasses and a black linen top. A moldex N95 mask is on their face and they're seated in a car, wearing a seat belt. Behind them is a sunny day, with tree foliage visible through the car window
August 31, 2024 at 2:49 PM
freyschild.bsky.social
Hey hey it's Infusion Day #scig #ivig #primaryimmune #chronicillness #zebra
A picture of IgG infusion bottles in their packaging
November 12, 2025 at 9:51 PM
freyschild.bsky.social
Hey hey it's Infusion Day
I am immunocompromised, and my immune system comes from a bottle. A single dose of this medication costs $2500
I hate capitalism #primaryimmune #chronicillness
An infusion pump dispensing immunogloblulin therapy. The pump is white with blue dials and the syringe is filled with a translucent fluid. A switch is sitting with the pump, decorated with a purple and black wrap covered in stars
February 20, 2024 at 10:19 PM
astephen.bsky.social
Happy to see this out! We analysed the dental #microbiome of children with #primaryimmune deficiencies underwent non-surgical therapy. Prevalence of gum disease was higher in this group and the aim was to look at longitudinal data to see if therapy helped. 1/

onlinelibrary.wiley.com/doi/10.1111/...
Non‐Surgical Periodontal Therapy Modulates Oral Microbiome in Primary Immunodeficient Children
Background and Aim Primary Immunodeficiencies (PIDs) arise from rare genetic defects affecting humoral and cellular immunity, which can lead to reduced dental plaque control. This study aimed to cha.....
onlinelibrary.wiley.com
July 21, 2025 at 1:32 PM