December 30, 2024 at 4:17 PM
Small seed grants lead to massive discoveries! Dr Sun used preliminary data from a study funded by #PSCSupport to secure a prestigious MRC Clinical Research Training Fellowship. He’s now diving deep into genetic drivers of primary sclerosing cholangitis. pscsupport.org.uk/research-wev...
June 28, 2026 at 9:01 AM
Small seed grants lead to massive discoveries! Dr Sun used preliminary data from a study funded by #PSCSupport to secure a prestigious MRC Clinical Research Training Fellowship. He’s now diving deep into genetic drivers of primary sclerosing cholangitis. pscsupport.org.uk/research-wev...
The FARGO Trial is recruiting now, investigating if "good" gut bacteria (FMT) can slow disease progression.
📍Birmingham, London, Oxford + more
⚕️8 weeks of treatment
✅️For those with PSC & IBD.
Find out more: pscsupport.org.uk/find-psc-res... #LetsBeatPSC #PSCSupport #RareDisease
📍Birmingham, London, Oxford + more
⚕️8 weeks of treatment
✅️For those with PSC & IBD.
Find out more: pscsupport.org.uk/find-psc-res... #LetsBeatPSC #PSCSupport #RareDisease
May 5, 2026 at 8:15 AM
The FARGO Trial is recruiting now, investigating if "good" gut bacteria (FMT) can slow disease progression.
📍Birmingham, London, Oxford + more
⚕️8 weeks of treatment
✅️For those with PSC & IBD.
Find out more: pscsupport.org.uk/find-psc-res... #LetsBeatPSC #PSCSupport #RareDisease
📍Birmingham, London, Oxford + more
⚕️8 weeks of treatment
✅️For those with PSC & IBD.
Find out more: pscsupport.org.uk/find-psc-res... #LetsBeatPSC #PSCSupport #RareDisease
🎆Research granted🎆
Grants always carry a sense of responsibility, but receiving one from a patient organization takes this to a whole new level
PSC Support decided to support our project Multiomics data for personalised PSC prognosis
#PSCSupport #AI
#Personnalised_medicine #Hepatology
Grants always carry a sense of responsibility, but receiving one from a patient organization takes this to a whole new level
PSC Support decided to support our project Multiomics data for personalised PSC prognosis
#PSCSupport #AI
#Personnalised_medicine #Hepatology
January 20, 2025 at 8:17 AM
🎆Research granted🎆
Grants always carry a sense of responsibility, but receiving one from a patient organization takes this to a whole new level
PSC Support decided to support our project Multiomics data for personalised PSC prognosis
#PSCSupport #AI
#Personnalised_medicine #Hepatology
Grants always carry a sense of responsibility, but receiving one from a patient organization takes this to a whole new level
PSC Support decided to support our project Multiomics data for personalised PSC prognosis
#PSCSupport #AI
#Personnalised_medicine #Hepatology
Good luck to James at the Blenheim Triathlon, sporting his shiny new goggles! Today is also #WorldTransplantDay, making this challenge extra special as James is a liver transplant recipient. pscsupport.enthuse.com/pf/james-law... #LetsBeatPSC #BlenheimTriathlon #OrganDonation #PSCSupport
June 6, 2026 at 7:00 AM
Good luck to James at the Blenheim Triathlon, sporting his shiny new goggles! Today is also #WorldTransplantDay, making this challenge extra special as James is a liver transplant recipient. pscsupport.enthuse.com/pf/james-law... #LetsBeatPSC #BlenheimTriathlon #OrganDonation #PSCSupport
Our May Helpline slots are now available. Whether you want to chat through a new diagnosis or just need a listening ear, our specialist nurse, Loren, is here for you.
buff.ly/6jqZazn #LetsBeatPSC #PSCSupport #RareDisease #ChronicIllness #Helpline @HelplinesUK
buff.ly/6jqZazn #LetsBeatPSC #PSCSupport #RareDisease #ChronicIllness #Helpline @HelplinesUK
May 1, 2026 at 9:01 AM
Our May Helpline slots are now available. Whether you want to chat through a new diagnosis or just need a listening ear, our specialist nurse, Loren, is here for you.
buff.ly/6jqZazn #LetsBeatPSC #PSCSupport #RareDisease #ChronicIllness #Helpline @HelplinesUK
buff.ly/6jqZazn #LetsBeatPSC #PSCSupport #RareDisease #ChronicIllness #Helpline @HelplinesUK
📢 Live PSC Webinar – Sat 17 May, 3:30pm (BST). Dr Palak Trivedi joins us to discuss the breaking research updates from #EASL2025 – with encouraging news for the PSC community.
🎟️ Register for joining details: us06web.zoom.us/webinar/regi...
#PSCsupport #PSCresearch #LetsBeatPSC #AskTheExpert
🎟️ Register for joining details: us06web.zoom.us/webinar/regi...
#PSCsupport #PSCresearch #LetsBeatPSC #AskTheExpert
May 15, 2025 at 8:01 AM
📢 Live PSC Webinar – Sat 17 May, 3:30pm (BST). Dr Palak Trivedi joins us to discuss the breaking research updates from #EASL2025 – with encouraging news for the PSC community.
🎟️ Register for joining details: us06web.zoom.us/webinar/regi...
#PSCsupport #PSCresearch #LetsBeatPSC #AskTheExpert
🎟️ Register for joining details: us06web.zoom.us/webinar/regi...
#PSCsupport #PSCresearch #LetsBeatPSC #AskTheExpert
Could YOU complete our #20KYourWay Challenge this April? Run, walk, swim or cycle 20 kilometres. Or get creative: knit & sell 20 items, do 20 acts of kindness, or 20 kangaroo jumps a day!🦘 There's no wrong way—just YOUR way!
➡️ buff.ly/ULypQ2a
#LetsBeatPSC #PSCSupport
➡️ buff.ly/ULypQ2a
#LetsBeatPSC #PSCSupport
March 5, 2025 at 12:28 PM
Could YOU complete our #20KYourWay Challenge this April? Run, walk, swim or cycle 20 kilometres. Or get creative: knit & sell 20 items, do 20 acts of kindness, or 20 kangaroo jumps a day!🦘 There's no wrong way—just YOUR way!
➡️ buff.ly/ULypQ2a
#LetsBeatPSC #PSCSupport
➡️ buff.ly/ULypQ2a
#LetsBeatPSC #PSCSupport
Thank you for helping us grow 🌱💙
Your support means the world. By leaving a gift in your will, you can help us keep growing—driving research, support & hope for future generations.
Free will-writing info ⬇️
pscsupport.org.uk/wills/
#PSCSupport #LetsBeatPSC
Your support means the world. By leaving a gift in your will, you can help us keep growing—driving research, support & hope for future generations.
Free will-writing info ⬇️
pscsupport.org.uk/wills/
#PSCSupport #LetsBeatPSC
July 10, 2025 at 6:03 PM
Thank you for helping us grow 🌱💙
Your support means the world. By leaving a gift in your will, you can help us keep growing—driving research, support & hope for future generations.
Free will-writing info ⬇️
pscsupport.org.uk/wills/
#PSCSupport #LetsBeatPSC
Your support means the world. By leaving a gift in your will, you can help us keep growing—driving research, support & hope for future generations.
Free will-writing info ⬇️
pscsupport.org.uk/wills/
#PSCSupport #LetsBeatPSC
This #PBCAwarenessDay we’re shining a light on the differences between PBC and PSC and available support. Both affect the liver but they are distinct diseases. In the UK @PBCFoundation and @PSCSupport are here to help. You're not alone.
➡️ pscsupport.org.uk/psc-and-othe...
#PBCAwareness #PSCAwareness
➡️ pscsupport.org.uk/psc-and-othe...
#PBCAwareness #PSCAwareness
September 14, 2025 at 9:00 AM
This #PBCAwarenessDay we’re shining a light on the differences between PBC and PSC and available support. Both affect the liver but they are distinct diseases. In the UK @PBCFoundation and @PSCSupport are here to help. You're not alone.
➡️ pscsupport.org.uk/psc-and-othe...
#PBCAwareness #PSCAwareness
➡️ pscsupport.org.uk/psc-and-othe...
#PBCAwareness #PSCAwareness
Good luck to #TeamPSCSupport members taking on the London Landmarks Half Marathon! Incredibly, Kelly has run London Marathon and London Landmarks for #PSCSupport. She's running for her husband after his transplant, her two friends who sadly passed away, and to help find a cure.
➡️ buff.ly/08lbTuv
➡️ buff.ly/08lbTuv
April 6, 2025 at 7:00 AM
Good luck to #TeamPSCSupport members taking on the London Landmarks Half Marathon! Incredibly, Kelly has run London Marathon and London Landmarks for #PSCSupport. She's running for her husband after his transplant, her two friends who sadly passed away, and to help find a cure.
➡️ buff.ly/08lbTuv
➡️ buff.ly/08lbTuv
Are there any PSC clinical trials recruiting right now? Why yes, yes there are!
pscsupport.org.uk/find-psc-res... #PSCSupport #LetsBeatPSC #ClinicalTrialsDay2026 #RareDiseaseWarrior #MedicalBreakthrough #ResearchMatters #PatientPower
pscsupport.org.uk/find-psc-res... #PSCSupport #LetsBeatPSC #ClinicalTrialsDay2026 #RareDiseaseWarrior #MedicalBreakthrough #ResearchMatters #PatientPower
May 20, 2026 at 2:00 PM
Are there any PSC clinical trials recruiting right now? Why yes, yes there are!
pscsupport.org.uk/find-psc-res... #PSCSupport #LetsBeatPSC #ClinicalTrialsDay2026 #RareDiseaseWarrior #MedicalBreakthrough #ResearchMatters #PatientPower
pscsupport.org.uk/find-psc-res... #PSCSupport #LetsBeatPSC #ClinicalTrialsDay2026 #RareDiseaseWarrior #MedicalBreakthrough #ResearchMatters #PatientPower
What's the most helpful thing someone has said to you?
Or what's the most helpful thing you've said or done to support someone with PSC?
#LetsBeatPSC #PSCFatigue #Fatigue #ChronicIllness #Support #PSCSupport
Or what's the most helpful thing you've said or done to support someone with PSC?
#LetsBeatPSC #PSCFatigue #Fatigue #ChronicIllness #Support #PSCSupport
October 22, 2025 at 9:02 AM
What's the most helpful thing someone has said to you?
Or what's the most helpful thing you've said or done to support someone with PSC?
#LetsBeatPSC #PSCFatigue #Fatigue #ChronicIllness #Support #PSCSupport
Or what's the most helpful thing you've said or done to support someone with PSC?
#LetsBeatPSC #PSCFatigue #Fatigue #ChronicIllness #Support #PSCSupport
To every friend, family member, healthcare professional, fundraiser & supportive voice who helps someone affected by PSC, thank you. Your kindness makes a world of difference. 🌍 Happy #WorldKindnessDay #LetsBeatPSC #PSCSupport #KindnessMatters
November 13, 2025 at 8:47 AM
To every friend, family member, healthcare professional, fundraiser & supportive voice who helps someone affected by PSC, thank you. Your kindness makes a world of difference. 🌍 Happy #WorldKindnessDay #LetsBeatPSC #PSCSupport #KindnessMatters
Registration is open! Join us Sept 13 in Leeds for our PSC Support Information Day with keynote Dr. Simon Rushbrook. Talks, interactive sessions & community connections.
Save your spot today! buff.ly/2aZkPEc #LetsBeatPSC #PSCSupport
Save your spot today! buff.ly/2aZkPEc #LetsBeatPSC #PSCSupport
August 13, 2025 at 10:26 AM
Registration is open! Join us Sept 13 in Leeds for our PSC Support Information Day with keynote Dr. Simon Rushbrook. Talks, interactive sessions & community connections.
Save your spot today! buff.ly/2aZkPEc #LetsBeatPSC #PSCSupport
Save your spot today! buff.ly/2aZkPEc #LetsBeatPSC #PSCSupport
Living with or supporting someone with PSC can be exhausting, physically and emotionally. Taking time for yourself isn't selfish, it's essential.
How are your squares looking? #SelfCareDay2026 #LetsBeatPSC #PSCSupport #PSC #LiverHealth #SelfCareBingo #ChronicIllnessSupport
How are your squares looking? #SelfCareDay2026 #LetsBeatPSC #PSCSupport #PSC #LiverHealth #SelfCareBingo #ChronicIllnessSupport
July 23, 2026 at 5:15 PM
Living with or supporting someone with PSC can be exhausting, physically and emotionally. Taking time for yourself isn't selfish, it's essential.
How are your squares looking? #SelfCareDay2026 #LetsBeatPSC #PSCSupport #PSC #LiverHealth #SelfCareBingo #ChronicIllnessSupport
How are your squares looking? #SelfCareDay2026 #LetsBeatPSC #PSCSupport #PSC #LiverHealth #SelfCareBingo #ChronicIllnessSupport
The British Transplant Games 2025 have begun! This 4 day event celebrates life, organ donation, and transplantation. Register your decision about organ donation today.
👉 buff.ly/8wYHSZU
#BritishTransplantGames #TransplantGames2025 #OrganDonation #PSCsupport #LetsBeatPSC
👉 buff.ly/8wYHSZU
#BritishTransplantGames #TransplantGames2025 #OrganDonation #PSCsupport #LetsBeatPSC
July 31, 2025 at 7:00 AM
The British Transplant Games 2025 have begun! This 4 day event celebrates life, organ donation, and transplantation. Register your decision about organ donation today.
👉 buff.ly/8wYHSZU
#BritishTransplantGames #TransplantGames2025 #OrganDonation #PSCsupport #LetsBeatPSC
👉 buff.ly/8wYHSZU
#BritishTransplantGames #TransplantGames2025 #OrganDonation #PSCsupport #LetsBeatPSC
If you need a safe space to talk about PSC, our Helpline Nurse is here. Book a confidential call, email, or Zoom pscsupport.org.uk/helpline/.
You are not alone. #PSC #ChronicIllness #LiverDisease #HealthSupport #pscsupportuk #LetsBeatPSC #pscsupport #raredisease #primarysclerosingcholangitis
You are not alone. #PSC #ChronicIllness #LiverDisease #HealthSupport #pscsupportuk #LetsBeatPSC #pscsupport #raredisease #primarysclerosingcholangitis
January 6, 2026 at 6:20 PM
If you need a safe space to talk about PSC, our Helpline Nurse is here. Book a confidential call, email, or Zoom pscsupport.org.uk/helpline/.
You are not alone. #PSC #ChronicIllness #LiverDisease #HealthSupport #pscsupportuk #LetsBeatPSC #pscsupport #raredisease #primarysclerosingcholangitis
You are not alone. #PSC #ChronicIllness #LiverDisease #HealthSupport #pscsupportuk #LetsBeatPSC #pscsupport #raredisease #primarysclerosingcholangitis
PSC is a rare, life-changing liver disease, but stories like Leanne’s show the strength and resilience behind the diagnosis. Read her PSC journey ➡️ buff.ly/tdOt89p and share this post to raise awareness.
#LetsBeatPSC #PSCSupport #InvisibleIllness #RareDisease #PSC
#LetsBeatPSC #PSCSupport #InvisibleIllness #RareDisease #PSC
August 25, 2025 at 9:01 AM
PSC is a rare, life-changing liver disease, but stories like Leanne’s show the strength and resilience behind the diagnosis. Read her PSC journey ➡️ buff.ly/tdOt89p and share this post to raise awareness.
#LetsBeatPSC #PSCSupport #InvisibleIllness #RareDisease #PSC
#LetsBeatPSC #PSCSupport #InvisibleIllness #RareDisease #PSC
15 years into her journey, Parastoo shares what it means to be a mother, professional, and #AutoimmuneWarrior while living with a #RareDisease.
Read her story for #RareDiseaseDay: pscsupport.org.uk/parastoo/
#PSCSupport #ChronicIllness #PSC #LetsBeatPSC #LiverDisease
Read her story for #RareDiseaseDay: pscsupport.org.uk/parastoo/
#PSCSupport #ChronicIllness #PSC #LetsBeatPSC #LiverDisease
February 27, 2026 at 9:47 AM
15 years into her journey, Parastoo shares what it means to be a mother, professional, and #AutoimmuneWarrior while living with a #RareDisease.
Read her story for #RareDiseaseDay: pscsupport.org.uk/parastoo/
#PSCSupport #ChronicIllness #PSC #LetsBeatPSC #LiverDisease
Read her story for #RareDiseaseDay: pscsupport.org.uk/parastoo/
#PSCSupport #ChronicIllness #PSC #LetsBeatPSC #LiverDisease
Got questions about PSC? Book a free, confidential call or Zoom with our specialist nurse, Loren. February slots are now open! 👉 buff.ly/dc8o4zR%F0%9...
#LetsBeatPSC #PSCSupport #RareDisease #ChronicIllness #HelplinesAwarenessDay #LiverDisease #NursingSupport @HelplinesUK
#LetsBeatPSC #PSCSupport #RareDisease #ChronicIllness #HelplinesAwarenessDay #LiverDisease #NursingSupport @HelplinesUK
February 5, 2026 at 8:13 PM
Got questions about PSC? Book a free, confidential call or Zoom with our specialist nurse, Loren. February slots are now open! 👉 buff.ly/dc8o4zR%F0%9...
#LetsBeatPSC #PSCSupport #RareDisease #ChronicIllness #HelplinesAwarenessDay #LiverDisease #NursingSupport @HelplinesUK
#LetsBeatPSC #PSCSupport #RareDisease #ChronicIllness #HelplinesAwarenessDay #LiverDisease #NursingSupport @HelplinesUK
A powerful reminder of the daily reality for those with #PSC and other chronic and invisible illnesses. Find out more about PSC fatigue and strategies to manage it on our website. pscsupport.org.uk/fatigue/ #SpoonieLife #InvisibleIllness #PSCSupport
January 13, 2026 at 10:00 AM
A powerful reminder of the daily reality for those with #PSC and other chronic and invisible illnesses. Find out more about PSC fatigue and strategies to manage it on our website. pscsupport.org.uk/fatigue/ #SpoonieLife #InvisibleIllness #PSCSupport
PSC can be unpredictable. Some days you just can’t do it all, and that’s okay. 💚
Celebrate small wins, rest when you need to, and most importantly, be kind to yourself.
#PSCSupport #LetsBeatPSC #ChronicIllnessAwareness
Celebrate small wins, rest when you need to, and most importantly, be kind to yourself.
#PSCSupport #LetsBeatPSC #ChronicIllnessAwareness
November 16, 2025 at 11:00 AM
PSC can be unpredictable. Some days you just can’t do it all, and that’s okay. 💚
Celebrate small wins, rest when you need to, and most importantly, be kind to yourself.
#PSCSupport #LetsBeatPSC #ChronicIllnessAwareness
Celebrate small wins, rest when you need to, and most importantly, be kind to yourself.
#PSCSupport #LetsBeatPSC #ChronicIllnessAwareness
The UK’s Medicines and Healthcare products Regulatory Agency (MHRA) plans to update rules for rare disease therapies, including PSC. PSC Support helped develop these plans. More info and PSC research updates: buff.ly/t60RqPD #LetsBeatPSC #PSCSupport #PSCResearch
December 21, 2025 at 10:00 AM
The UK’s Medicines and Healthcare products Regulatory Agency (MHRA) plans to update rules for rare disease therapies, including PSC. PSC Support helped develop these plans. More info and PSC research updates: buff.ly/t60RqPD #LetsBeatPSC #PSCSupport #PSCResearch