Have you been offered access to a clinical trial for PSC?
This short is from a special PSC Support Ask the Expert session with international PSC experts who mapped out the road to effective treatments.
Full session & extracts: buff.ly/7n8DkNC #LetsBeatPSC #PSCSupport
This short is from a special PSC Support Ask the Expert session with international PSC experts who mapped out the road to effective treatments.
Full session & extracts: buff.ly/7n8DkNC #LetsBeatPSC #PSCSupport
September 13, 2026 at 8:30 AM
Have you been offered access to a clinical trial for PSC?
This short is from a special PSC Support Ask the Expert session with international PSC experts who mapped out the road to effective treatments.
Full session & extracts: buff.ly/7n8DkNC #LetsBeatPSC #PSCSupport
This short is from a special PSC Support Ask the Expert session with international PSC experts who mapped out the road to effective treatments.
Full session & extracts: buff.ly/7n8DkNC #LetsBeatPSC #PSCSupport
With few hills or inclines, Barcelona Marathon course is flat and fast, and suits first time runners, or those going for a PB! Plus it's a great excuse to explore this unique city while raising much needed funds for #PSCSupport.
➡️ runforcharity.com/charity-regi... #LetsBeatPSC #TeamPSCSupport
➡️ runforcharity.com/charity-regi... #LetsBeatPSC #TeamPSCSupport
September 12, 2026 at 8:15 AM
With few hills or inclines, Barcelona Marathon course is flat and fast, and suits first time runners, or those going for a PB! Plus it's a great excuse to explore this unique city while raising much needed funds for #PSCSupport.
➡️ runforcharity.com/charity-regi... #LetsBeatPSC #TeamPSCSupport
➡️ runforcharity.com/charity-regi... #LetsBeatPSC #TeamPSCSupport
An optimistic outlook on the Norucholic acid (NCA) being approved by regulators in the near future.
This is from a special Ask the Expert session with international PSC experts who mapped out the road to effective treatments.
Full session and extracts: buff.ly/7n8DkNC #LetsBeatPSC #PSCSupport
This is from a special Ask the Expert session with international PSC experts who mapped out the road to effective treatments.
Full session and extracts: buff.ly/7n8DkNC #LetsBeatPSC #PSCSupport
September 9, 2026 at 8:46 AM
An optimistic outlook on the Norucholic acid (NCA) being approved by regulators in the near future.
This is from a special Ask the Expert session with international PSC experts who mapped out the road to effective treatments.
Full session and extracts: buff.ly/7n8DkNC #LetsBeatPSC #PSCSupport
This is from a special Ask the Expert session with international PSC experts who mapped out the road to effective treatments.
Full session and extracts: buff.ly/7n8DkNC #LetsBeatPSC #PSCSupport
Lived experience makes research stronger. Our Patient and Public Involvement and Engagement (PPIE) helped shape a new $13.6M PCORI-funded study on PSC symptom support and mental health.
Want to shape future research? Join the #PSCSupport Patient Panel Pool 👇
www.pscsupport.org.uk/pcori-empowe...
Want to shape future research? Join the #PSCSupport Patient Panel Pool 👇
www.pscsupport.org.uk/pcori-empowe...
September 7, 2026 at 8:45 AM
Lived experience makes research stronger. Our Patient and Public Involvement and Engagement (PPIE) helped shape a new $13.6M PCORI-funded study on PSC symptom support and mental health.
Want to shape future research? Join the #PSCSupport Patient Panel Pool 👇
www.pscsupport.org.uk/pcori-empowe...
Want to shape future research? Join the #PSCSupport Patient Panel Pool 👇
www.pscsupport.org.uk/pcori-empowe...
When will we have treatments for PSC itch (pruritus)?
This extract is from a special PSC Support Ask the Expert session with int'l PSC experts who mapped out the road to effective treatments.
Full session and extracts here: buff.ly/7n8DkNC #LetsBeatPSC #PSCSupport
This extract is from a special PSC Support Ask the Expert session with int'l PSC experts who mapped out the road to effective treatments.
Full session and extracts here: buff.ly/7n8DkNC #LetsBeatPSC #PSCSupport
September 6, 2026 at 8:30 AM
When will we have treatments for PSC itch (pruritus)?
This extract is from a special PSC Support Ask the Expert session with int'l PSC experts who mapped out the road to effective treatments.
Full session and extracts here: buff.ly/7n8DkNC #LetsBeatPSC #PSCSupport
This extract is from a special PSC Support Ask the Expert session with int'l PSC experts who mapped out the road to effective treatments.
Full session and extracts here: buff.ly/7n8DkNC #LetsBeatPSC #PSCSupport
🍂 As we head into autumn, let’s talk about the immune system and PSC!
Normally, our immune system shields us from bugs like viruses and bacteria. But in immune-related conditions like PSC, that shield turns inward and damages our own organs. #PSCSupport #PSC (1/3)
Normally, our immune system shields us from bugs like viruses and bacteria. But in immune-related conditions like PSC, that shield turns inward and damages our own organs. #PSCSupport #PSC (1/3)
September 5, 2026 at 9:00 AM
🍂 As we head into autumn, let’s talk about the immune system and PSC!
Normally, our immune system shields us from bugs like viruses and bacteria. But in immune-related conditions like PSC, that shield turns inward and damages our own organs. #PSCSupport #PSC (1/3)
Normally, our immune system shields us from bugs like viruses and bacteria. But in immune-related conditions like PSC, that shield turns inward and damages our own organs. #PSCSupport #PSC (1/3)
Why was less benefit seen when people took Urso (UDCA) on the Norucholic Acid (NCA) trial? This extract is from a special Ask the Expert session with international PSC experts. Full session & extracts here: buff.ly/GvnxfNl #LetsBeatPSC #PSCSupport #LiverTreatment #LiverResearch
September 4, 2026 at 7:58 AM
Why was less benefit seen when people took Urso (UDCA) on the Norucholic Acid (NCA) trial? This extract is from a special Ask the Expert session with international PSC experts. Full session & extracts here: buff.ly/GvnxfNl #LetsBeatPSC #PSCSupport #LiverTreatment #LiverResearch
Happy Bank Holiday Monday! Today is the perfect excuse to squeeze every last drop out of summer:
🌳 Step outside for a gentle walk and some fresh air
🍦 Enjoy a well-deserved treat
💙 Make special memories with your favourite people
#PSCSupport #LetsBeatPSC #PSCAwareness
🌳 Step outside for a gentle walk and some fresh air
🍦 Enjoy a well-deserved treat
💙 Make special memories with your favourite people
#PSCSupport #LetsBeatPSC #PSCAwareness
August 31, 2026 at 8:30 AM
Happy Bank Holiday Monday! Today is the perfect excuse to squeeze every last drop out of summer:
🌳 Step outside for a gentle walk and some fresh air
🍦 Enjoy a well-deserved treat
💙 Make special memories with your favourite people
#PSCSupport #LetsBeatPSC #PSCAwareness
🌳 Step outside for a gentle walk and some fresh air
🍦 Enjoy a well-deserved treat
💙 Make special memories with your favourite people
#PSCSupport #LetsBeatPSC #PSCAwareness
Are fatigue meds on the horizon for PSC?
This extract is from a special Ask the Expert session with international PSC experts. Full session & extracts here: buff.ly/GvnxfNl #LetsBeatPSC #PSCSupport #LiverTreatment #LiverResearch #PSCFatigue
This extract is from a special Ask the Expert session with international PSC experts. Full session & extracts here: buff.ly/GvnxfNl #LetsBeatPSC #PSCSupport #LiverTreatment #LiverResearch #PSCFatigue
August 30, 2026 at 8:45 AM
Are fatigue meds on the horizon for PSC?
This extract is from a special Ask the Expert session with international PSC experts. Full session & extracts here: buff.ly/GvnxfNl #LetsBeatPSC #PSCSupport #LiverTreatment #LiverResearch #PSCFatigue
This extract is from a special Ask the Expert session with international PSC experts. Full session & extracts here: buff.ly/GvnxfNl #LetsBeatPSC #PSCSupport #LiverTreatment #LiverResearch #PSCFatigue
What causes pain in PSC? 🤔
This extract is from a special Ask the Expert session with international PSC experts. Full session & extracts here: buff.ly/GvnxfNl
#LetsBeatPSC #PSCSupport #LiverTreatment #LiverResearch #primarysclerosingcholangitis
This extract is from a special Ask the Expert session with international PSC experts. Full session & extracts here: buff.ly/GvnxfNl
#LetsBeatPSC #PSCSupport #LiverTreatment #LiverResearch #primarysclerosingcholangitis
August 27, 2026 at 8:30 AM
What causes pain in PSC? 🤔
This extract is from a special Ask the Expert session with international PSC experts. Full session & extracts here: buff.ly/GvnxfNl
#LetsBeatPSC #PSCSupport #LiverTreatment #LiverResearch #primarysclerosingcholangitis
This extract is from a special Ask the Expert session with international PSC experts. Full session & extracts here: buff.ly/GvnxfNl
#LetsBeatPSC #PSCSupport #LiverTreatment #LiverResearch #primarysclerosingcholangitis
In a complex disease like PSC, it is clear there will not be a single magic bullet. This extract is from a special Ask the Expert session with international PSC experts. Full session & extracts here: buff.ly/GvnxfNl #LetsBeatPSC #PSCSupport #LiverTreatment #LiverResearch
August 21, 2026 at 9:30 AM
In a complex disease like PSC, it is clear there will not be a single magic bullet. This extract is from a special Ask the Expert session with international PSC experts. Full session & extracts here: buff.ly/GvnxfNl #LetsBeatPSC #PSCSupport #LiverTreatment #LiverResearch
Want to run Hackney Half? 🏃♂️ Public places sell out fast, but we have places on #TeamPSCSupport! Experience East London’s famous flat, fast course and unmatched street-party atmosphere while supporting PSC research. 👇
buff.ly/BgmFkIF
#HackneyHalf #PSCSupport #LetsBeatPSC
buff.ly/BgmFkIF
#HackneyHalf #PSCSupport #LetsBeatPSC
August 15, 2026 at 8:00 AM
Want to run Hackney Half? 🏃♂️ Public places sell out fast, but we have places on #TeamPSCSupport! Experience East London’s famous flat, fast course and unmatched street-party atmosphere while supporting PSC research. 👇
buff.ly/BgmFkIF
#HackneyHalf #PSCSupport #LetsBeatPSC
buff.ly/BgmFkIF
#HackneyHalf #PSCSupport #LetsBeatPSC
The Games are a reminder of the gift of life made possible through organ donors & their families. Please take a moment to talk to your loved ones and register your decision today. 💚 www.organdonation.nhs.uk/register-you...
#BritishTransplantGames #PSCSupport #OrganDonation
#BritishTransplantGames #PSCSupport #OrganDonation
Register your decision
You can opt in or opt out of becoming an organ donor by registering on the NHS Organ Donor Register. Register in minutes!
www.organdonation.nhs.uk
August 6, 2026 at 7:01 AM
The Games are a reminder of the gift of life made possible through organ donors & their families. Please take a moment to talk to your loved ones and register your decision today. 💚 www.organdonation.nhs.uk/register-you...
#BritishTransplantGames #PSCSupport #OrganDonation
#BritishTransplantGames #PSCSupport #OrganDonation
Secure your spot on #TeamPSCSupport for the Great South Run! 🏃♂️
Reg Fee: Just £25
Fundraising Target: £300
Reg deadline: 27th Aug
Race Day: 18th Oct 2026
Grab your place before they're gone: runforcharity.com/charity-regi...
#GreatSouthRun #PSCSupport #LastChance #RunForCharity #LetsBeatPSC
Reg Fee: Just £25
Fundraising Target: £300
Reg deadline: 27th Aug
Race Day: 18th Oct 2026
Grab your place before they're gone: runforcharity.com/charity-regi...
#GreatSouthRun #PSCSupport #LastChance #RunForCharity #LetsBeatPSC
August 2, 2026 at 7:30 AM
Secure your spot on #TeamPSCSupport for the Great South Run! 🏃♂️
Reg Fee: Just £25
Fundraising Target: £300
Reg deadline: 27th Aug
Race Day: 18th Oct 2026
Grab your place before they're gone: runforcharity.com/charity-regi...
#GreatSouthRun #PSCSupport #LastChance #RunForCharity #LetsBeatPSC
Reg Fee: Just £25
Fundraising Target: £300
Reg deadline: 27th Aug
Race Day: 18th Oct 2026
Grab your place before they're gone: runforcharity.com/charity-regi...
#GreatSouthRun #PSCSupport #LastChance #RunForCharity #LetsBeatPSC
Oh we do like to be beside the seaside! 🏃♂️🌊 Join #TeamPSCSupport at Brighton Marathon. 26.2 mile scenic coastal course, lively crowd cheer points and epic seaside finish line!
➡️ buff.ly/xqWixhg
#BrightonMarathon #PSCSupport #RunForCharity
➡️ buff.ly/xqWixhg
#BrightonMarathon #PSCSupport #RunForCharity
August 1, 2026 at 8:30 AM
Oh we do like to be beside the seaside! 🏃♂️🌊 Join #TeamPSCSupport at Brighton Marathon. 26.2 mile scenic coastal course, lively crowd cheer points and epic seaside finish line!
➡️ buff.ly/xqWixhg
#BrightonMarathon #PSCSupport #RunForCharity
➡️ buff.ly/xqWixhg
#BrightonMarathon #PSCSupport #RunForCharity
At 30, a sudden diagnosis turned Matt's life upside down, leading to a battle with PSC and UC. Today, he's sharing his journey to bring a voice to this misunderstood disease and inspire others. #ChronicIllness #RareDisease #PatientStory #PSCSupport #LetsBeatPSC #ThankYouThursday
July 30, 2026 at 8:45 AM
At 30, a sudden diagnosis turned Matt's life upside down, leading to a battle with PSC and UC. Today, he's sharing his journey to bring a voice to this misunderstood disease and inspire others. #ChronicIllness #RareDisease #PatientStory #PSCSupport #LetsBeatPSC #ThankYouThursday
4 days cycling. 2 cities. 2 bikes. Gillian and John are taking on a big challenge: Cycling from London to Paris over the course of 4 days for #PSCSupport!
Donate or share her Enthuse page here: buff.ly/us4sTSm
#LetsBeatPSC #TeamPSCSupport #RareDiseaseCommunity
Donate or share her Enthuse page here: buff.ly/us4sTSm
#LetsBeatPSC #TeamPSCSupport #RareDiseaseCommunity
July 27, 2026 at 7:00 PM
4 days cycling. 2 cities. 2 bikes. Gillian and John are taking on a big challenge: Cycling from London to Paris over the course of 4 days for #PSCSupport!
Donate or share her Enthuse page here: buff.ly/us4sTSm
#LetsBeatPSC #TeamPSCSupport #RareDiseaseCommunity
Donate or share her Enthuse page here: buff.ly/us4sTSm
#LetsBeatPSC #TeamPSCSupport #RareDiseaseCommunity
When your brain has 50 tabs open but none of them are loading... 🌀👀
PSC fatigue isn't just "being tired", and when brain fog joins the party, even the simplest tasks can feel like climbing a mountain. Be gentle with yourself today.
#PSCSupport #BrainFog #ChronicFatigue
PSC fatigue isn't just "being tired", and when brain fog joins the party, even the simplest tasks can feel like climbing a mountain. Be gentle with yourself today.
#PSCSupport #BrainFog #ChronicFatigue
July 27, 2026 at 1:03 PM
When your brain has 50 tabs open but none of them are loading... 🌀👀
PSC fatigue isn't just "being tired", and when brain fog joins the party, even the simplest tasks can feel like climbing a mountain. Be gentle with yourself today.
#PSCSupport #BrainFog #ChronicFatigue
PSC fatigue isn't just "being tired", and when brain fog joins the party, even the simplest tasks can feel like climbing a mountain. Be gentle with yourself today.
#PSCSupport #BrainFog #ChronicFatigue
Learn more at www.pscsupport.org.uk/Overview
Thank you Perspectum Diagnostics for creating this 3D MRCP visualisation for our community.
#PSCSupport #PSCawareness #PrimarySclerosingCholangitis #RareDisease #LiverHealth #MedicalImaging #MRCP #VisibleIllness #LetsBeatPSC #LetsBeatPSC #BileDucts
Thank you Perspectum Diagnostics for creating this 3D MRCP visualisation for our community.
#PSCSupport #PSCawareness #PrimarySclerosingCholangitis #RareDisease #LiverHealth #MedicalImaging #MRCP #VisibleIllness #LetsBeatPSC #LetsBeatPSC #BileDucts
Overview Of PSC – PSC Support
Everything you need to know about PSC, its causes and what will happen
www.pscsupport.org.uk
July 24, 2026 at 9:01 AM
Learn more at www.pscsupport.org.uk/Overview
Thank you Perspectum Diagnostics for creating this 3D MRCP visualisation for our community.
#PSCSupport #PSCawareness #PrimarySclerosingCholangitis #RareDisease #LiverHealth #MedicalImaging #MRCP #VisibleIllness #LetsBeatPSC #LetsBeatPSC #BileDucts
Thank you Perspectum Diagnostics for creating this 3D MRCP visualisation for our community.
#PSCSupport #PSCawareness #PrimarySclerosingCholangitis #RareDisease #LiverHealth #MedicalImaging #MRCP #VisibleIllness #LetsBeatPSC #LetsBeatPSC #BileDucts
Living with or supporting someone with PSC can be exhausting, physically and emotionally. Taking time for yourself isn't selfish, it's essential.
How are your squares looking? #SelfCareDay2026 #LetsBeatPSC #PSCSupport #PSC #LiverHealth #SelfCareBingo #ChronicIllnessSupport
How are your squares looking? #SelfCareDay2026 #LetsBeatPSC #PSCSupport #PSC #LiverHealth #SelfCareBingo #ChronicIllnessSupport
July 23, 2026 at 5:15 PM
Living with or supporting someone with PSC can be exhausting, physically and emotionally. Taking time for yourself isn't selfish, it's essential.
How are your squares looking? #SelfCareDay2026 #LetsBeatPSC #PSCSupport #PSC #LiverHealth #SelfCareBingo #ChronicIllnessSupport
How are your squares looking? #SelfCareDay2026 #LetsBeatPSC #PSCSupport #PSC #LiverHealth #SelfCareBingo #ChronicIllnessSupport
"I'm doing this triathlon, mainly because I can." Four years ago, James had a #livertransplant following 3yrs of terrible symptoms, cirrhosis and worry. Last month, he took on Blenheim Palace Sprint Triathlon, raising £1,316 for #PSCSupport! 🏊♂️🚴♂️🏃♂️ #LetsBeatPSC #TeamPSCSupport
July 18, 2026 at 9:16 AM
"I'm doing this triathlon, mainly because I can." Four years ago, James had a #livertransplant following 3yrs of terrible symptoms, cirrhosis and worry. Last month, he took on Blenheim Palace Sprint Triathlon, raising £1,316 for #PSCSupport! 🏊♂️🚴♂️🏃♂️ #LetsBeatPSC #TeamPSCSupport
The liver is the ultimate multi-tasker, managing hundreds of essential functions every single day, from filtering toxins to processing nutrients. Understanding what the liver does makes it easier to understand what PSC patients go through.
#PSCSupport #LiverDisease #LiverHealth
#PSCSupport #LiverDisease #LiverHealth
July 11, 2026 at 9:30 AM
The liver is the ultimate multi-tasker, managing hundreds of essential functions every single day, from filtering toxins to processing nutrients. Understanding what the liver does makes it easier to understand what PSC patients go through.
#PSCSupport #LiverDisease #LiverHealth
#PSCSupport #LiverDisease #LiverHealth
The ballot results are OUT! If you were lucky enough to score a place in the 2027 London Marathon: CONGRATULATIONS! 🎉 We'd love for you to bring your ballot place to #TeamPSCSupport! Join the team today!
👉 buff.ly/vvDWj0Y
#LondonMarathon #PSCSupport #BallotPlace
👉 buff.ly/vvDWj0Y
#LondonMarathon #PSCSupport #BallotPlace
July 10, 2026 at 9:00 AM
The ballot results are OUT! If you were lucky enough to score a place in the 2027 London Marathon: CONGRATULATIONS! 🎉 We'd love for you to bring your ballot place to #TeamPSCSupport! Join the team today!
👉 buff.ly/vvDWj0Y
#LondonMarathon #PSCSupport #BallotPlace
👉 buff.ly/vvDWj0Y
#LondonMarathon #PSCSupport #BallotPlace
These early safety results open the door for a much larger clinical trial. Read the full update here: pscsupport.org.uk/sabr-psc-tri... 💚 #PSCSupport #PSCResearch #RareDisease (2/2)
A pilot study reveals blocking the IL-17 pathway is safe and feasible for primary sclerosing cholangitis – PSC Support
There are currently no licensed medical treatments available to cure or slow down primary sclerosing cholangitis (PSC). However, laboratory science suggests that a specific part of our immune system,…
pscsupport.org.uk
July 6, 2026 at 9:01 AM
These early safety results open the door for a much larger clinical trial. Read the full update here: pscsupport.org.uk/sabr-psc-tri... 💚 #PSCSupport #PSCResearch #RareDisease (2/2)
Let's replace myths with facts. Learn more: pscsupport.org.uk 💚
#PSCSupport #PrimarySclerosingCholangitis #MythsVsFacts #RareDisease #LetsBeatPSC
#PSCSupport #PrimarySclerosingCholangitis #MythsVsFacts #RareDisease #LetsBeatPSC
July 5, 2026 at 9:01 AM
Let's replace myths with facts. Learn more: pscsupport.org.uk 💚
#PSCSupport #PrimarySclerosingCholangitis #MythsVsFacts #RareDisease #LetsBeatPSC
#PSCSupport #PrimarySclerosingCholangitis #MythsVsFacts #RareDisease #LetsBeatPSC