A powerful reminder that no one should navigate #VonWillebrandDisease alone. Part of our year-long campaign marking 100 years of #VWD throughout 2026. Each month, we shine a light on a different aspect of VWD.
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders #RareDisease
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders #RareDisease
October 23, 2026 at 10:31 AM
A powerful reminder that no one should navigate #VonWillebrandDisease alone. Part of our year-long campaign marking 100 years of #VWD throughout 2026. Each month, we shine a light on a different aspect of VWD.
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders #RareDisease
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders #RareDisease
Lourdes Pérez, social worker & manager of the Spanish Haemophilia Federation, explains what the social worker role means for people with #VonWillebrandDisease, & why treating the whole person, physically, emotionally, and mentally, matters. 💙 #VWD100
October 23, 2026 at 10:31 AM
Lourdes Pérez, social worker & manager of the Spanish Haemophilia Federation, explains what the social worker role means for people with #VonWillebrandDisease, & why treating the whole person, physically, emotionally, and mentally, matters. 💙 #VWD100
A powerful reminder that no one should navigate #VonWillebrandDisease alone. Part of our year-long campaign marking 100 years of #VWD throughout 2026. Each month, we shine a light on a different aspect of VWD.
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders
October 23, 2026 at 7:30 AM
A powerful reminder that no one should navigate #VonWillebrandDisease alone. Part of our year-long campaign marking 100 years of #VWD throughout 2026. Each month, we shine a light on a different aspect of VWD.
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders
What would you say to someone newly diagnosed with #VonWillebrandDisease (VWD)? Nicolas Giraud, a patient living with #VWD in France, shares his experience: the importance of self-advocacy, seeking support, & the advice he wishes he had received at diagnosis.🩸 #VWD100 #VWD
October 23, 2026 at 7:30 AM
What would you say to someone newly diagnosed with #VonWillebrandDisease (VWD)? Nicolas Giraud, a patient living with #VWD in France, shares his experience: the importance of self-advocacy, seeking support, & the advice he wishes he had received at diagnosis.🩸 #VWD100 #VWD
📣 For many people with #VonWillebrandDisease, #VonWillebrandFactor replacement is the only effective treatment.🩸If supply runs short, there’s no fallback. 🇪🇺 EHC asks @ema.europa.eu & EU Member States to add #VWF to the EU List of #CriticalMedicines 👉️ buff.ly/bXI486B
October 14, 2026 at 7:30 AM
📣 For many people with #VonWillebrandDisease, #VonWillebrandFactor replacement is the only effective treatment.🩸If supply runs short, there’s no fallback. 🇪🇺 EHC asks @ema.europa.eu & EU Member States to add #VWF to the EU List of #CriticalMedicines 👉️ buff.ly/bXI486B
This is part of our #VWD100 campaign, marking 100 years of #VonWillebrandDisease throughout 2026. Each month, we shine a light on a different aspect of #VWD.
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders #RareDisease
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders #RareDisease
September 30, 2026 at 7:30 AM
This is part of our #VWD100 campaign, marking 100 years of #VonWillebrandDisease throughout 2026. Each month, we shine a light on a different aspect of #VWD.
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders #RareDisease
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders #RareDisease
Awareness starts with knowledge. Consult our #VonWillebrandDisease symptom infographic and share it widely, because the sooner symptoms are recognised, the sooner people can access the care they deserve. 👉 buff.ly/cLvwLRW
September 30, 2026 at 7:30 AM
Awareness starts with knowledge. Consult our #VonWillebrandDisease symptom infographic and share it widely, because the sooner symptoms are recognised, the sooner people can access the care they deserve. 👉 buff.ly/cLvwLRW
Frequent nosebleeds. Easy bruising. Heavy menstrual bleeding. Prolonged bleeding after minor procedures. Symptoms are often dismissed as "normal", but for those living with #VonWillebrandDisease, they shape every aspect of daily life.
September 30, 2026 at 7:30 AM
Frequent nosebleeds. Easy bruising. Heavy menstrual bleeding. Prolonged bleeding after minor procedures. Symptoms are often dismissed as "normal", but for those living with #VonWillebrandDisease, they shape every aspect of daily life.
#VonWillebrandDisease (#VWD) is the most common inherited #BleedingDisorder, yet recognition remains a major challenge, even among healthcare professionals. 🩸
September 30, 2026 at 7:30 AM
#VonWillebrandDisease (#VWD) is the most common inherited #BleedingDisorder, yet recognition remains a major challenge, even among healthcare professionals. 🩸
🎥 Catch up on our webinar on the global prevalence & ethnic diversity of #VonWillebrandDisease with Dr Omid Seidizadeh. 🤝 Co-organised with @erneurobloodnet.bsky.social & @eahad.bsky.social. ▶️ Watch now 👇️ buff.ly/b3UaKWu
Webinar on Updated Global Prevalence of Von Willebrand Disease
Updated Global Prevalence and Ethnic Diversity of Von Willebrand Disease (VWD) Based on Population Genetics Analysis (2026)
This webinar was held as part of ERN-EuroBloodNet's Thursday Webinar…
buff.ly
September 28, 2026 at 10:30 AM
🎥 Catch up on our webinar on the global prevalence & ethnic diversity of #VonWillebrandDisease with Dr Omid Seidizadeh. 🤝 Co-organised with @erneurobloodnet.bsky.social & @eahad.bsky.social. ▶️ Watch now 👇️ buff.ly/b3UaKWu
👉 Read the guide: www.ehc.eu/wp-content/u...
#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
September 17, 2026 at 1:49 PM
Read the new EHC guide for adults with #BleedingDisorders on how to talk about pain with healthcare professionals 👉️ buff.ly/Fejz8aA
#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
September 17, 2026 at 1:00 PM
Read the new EHC guide for adults with #BleedingDisorders on how to talk about pain with healthcare professionals 👉️ buff.ly/Fejz8aA
#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
Thank you to everyone who shared their story with us. ❤️🩹 #WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
September 17, 2026 at 1:00 PM
Thank you to everyone who shared their story with us. ❤️🩹 #WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
Their experiences remind us why speaking up about pain matters & why every conversation about #Pain is a step toward better, safer care. #WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
September 17, 2026 at 1:00 PM
Their experiences remind us why speaking up about pain matters & why every conversation about #Pain is a step toward better, safer care. #WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
👉 Read the guide: buff.ly/Fejz8aA
#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
September 17, 2026 at 10:00 AM
This #WorldPatientSafetyDay, we're marking that principle & we've got something new in the works to help make those conversations easier. Stay tuned. 👀 #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
September 17, 2026 at 7:00 AM
This #WorldPatientSafetyDay, we're marking that principle & we've got something new in the works to help make those conversations easier. Stay tuned. 👀 #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
For more on living with a bleeding disorder, why not explore our archives?
Haemcast is available across podcast platforms, or you can tune in here: https://loom.ly/A4UWu6M
#Haemophilia #VonWillebrandDisease #GlanzmannThrombasthenia #BleedingDisorders #Podcast
#HemeSky #MedSky
Haemcast is available across podcast platforms, or you can tune in here: https://loom.ly/A4UWu6M
#Haemophilia #VonWillebrandDisease #GlanzmannThrombasthenia #BleedingDisorders #Podcast
#HemeSky #MedSky
September 4, 2026 at 8:01 AM
For more on living with a bleeding disorder, why not explore our archives?
Haemcast is available across podcast platforms, or you can tune in here: https://loom.ly/A4UWu6M
#Haemophilia #VonWillebrandDisease #GlanzmannThrombasthenia #BleedingDisorders #Podcast
#HemeSky #MedSky
Haemcast is available across podcast platforms, or you can tune in here: https://loom.ly/A4UWu6M
#Haemophilia #VonWillebrandDisease #GlanzmannThrombasthenia #BleedingDisorders #Podcast
#HemeSky #MedSky
Living with #VonWillebrandDisease? Our #PatientSurvey is open until 7 September 2026! Help improve care & access across Europe 🌍 13 languages available 👉 buff.ly/HRPJBTu
August 17, 2026 at 7:00 AM
Living with #VonWillebrandDisease? Our #PatientSurvey is open until 7 September 2026! Help improve care & access across Europe 🌍 13 languages available 👉 buff.ly/HRPJBTu
The #Haemcast #podcast is taking a summer break, but you can still catch up with all episodes so far in our special collaboration with #LFWBD
🎧 https://loom.ly/A4UWu6M
#haemophilia #VWD #vonWillebrandDisease #BleedingDisorders #families
#HemeSky #MedSky
🎧 https://loom.ly/A4UWu6M
#haemophilia #VWD #vonWillebrandDisease #BleedingDisorders #families
#HemeSky #MedSky
August 11, 2026 at 8:01 AM
The #Haemcast #podcast is taking a summer break, but you can still catch up with all episodes so far in our special collaboration with #LFWBD
🎧 https://loom.ly/A4UWu6M
#haemophilia #VWD #vonWillebrandDisease #BleedingDisorders #families
#HemeSky #MedSky
🎧 https://loom.ly/A4UWu6M
#haemophilia #VWD #vonWillebrandDisease #BleedingDisorders #families
#HemeSky #MedSky
📢 EHC joins @erneurobloodnet.bsky.social & @eahad.bsky.social for a session on the global prevalence & ethnic diversity of #VonWillebrandDisease with Dr Omid Seidizadeh 🗓️ 10 Sept 2026 ⏰ 17:00 CEST 👉️ Register: buff.ly/oVWgIlZ
August 10, 2026 at 8:00 AM
📢 EHC joins @erneurobloodnet.bsky.social & @eahad.bsky.social for a session on the global prevalence & ethnic diversity of #VonWillebrandDisease with Dr Omid Seidizadeh 🗓️ 10 Sept 2026 ⏰ 17:00 CEST 👉️ Register: buff.ly/oVWgIlZ
Living with #VonWillebrandDisease? Our #PatientSurvey is still open until 7 September 2026! Help improve care & access across Europe 🌍 13 languages available 👉 buff.ly/V0pRsXk
July 13, 2026 at 7:30 AM
Living with #VonWillebrandDisease? Our #PatientSurvey is still open until 7 September 2026! Help improve care & access across Europe 🌍 13 languages available 👉 buff.ly/V0pRsXk
#VonWillebrandDisease (VWD) is one of the most common inherited bleeding disorders — yet it has remained under-recognised for 100 years. 🩸
June 24, 2026 at 7:00 AM
#VonWillebrandDisease (VWD) is one of the most common inherited bleeding disorders — yet it has remained under-recognised for 100 years. 🩸
Caught up on #Haemcast? The latest episode looks at the experiences of partners of people living with a bleeding disorder. Search 'Haemcast' #podcast platforms or listen here: https://loom.ly/t0lDAvA
#LFWBD #families #bleedingdisorders #haemophilia #vonWillebrandDisease #HemeSky #BloodSky
#LFWBD #families #bleedingdisorders #haemophilia #vonWillebrandDisease #HemeSky #BloodSky
June 10, 2026 at 8:01 AM
Caught up on #Haemcast? The latest episode looks at the experiences of partners of people living with a bleeding disorder. Search 'Haemcast' #podcast platforms or listen here: https://loom.ly/t0lDAvA
#LFWBD #families #bleedingdisorders #haemophilia #vonWillebrandDisease #HemeSky #BloodSky
#LFWBD #families #bleedingdisorders #haemophilia #vonWillebrandDisease #HemeSky #BloodSky
In next week's NBDF Wednesday Webinar Dr Benjamin Kim from Star Therapeutics will share insights into a once-monthly subcutaneous therapy currently in development for von Willebrand disease (#VWD)!
🕑 Wed May 6 2 PM ET
🔗 Pre-register (FREE): bit.ly/3HfpkAe
#vonWillebranddisease #ClinicalTrial
🕑 Wed May 6 2 PM ET
🔗 Pre-register (FREE): bit.ly/3HfpkAe
#vonWillebranddisease #ClinicalTrial
Welcome! You are invited to join a webinar series: NBDF Wednesday Webinars 2025. After registering, you will receive a confirmation email about joining the webinar.
Welcome to the National Bleeding Disorders Foundation Wednesday Webinars: a series of free educational hour-long webinars (40 min live presentation, followed by 20 min moderated Q&A) that aims to brin...
bit.ly
April 29, 2026 at 7:38 PM
In next week's NBDF Wednesday Webinar Dr Benjamin Kim from Star Therapeutics will share insights into a once-monthly subcutaneous therapy currently in development for von Willebrand disease (#VWD)!
🕑 Wed May 6 2 PM ET
🔗 Pre-register (FREE): bit.ly/3HfpkAe
#vonWillebranddisease #ClinicalTrial
🕑 Wed May 6 2 PM ET
🔗 Pre-register (FREE): bit.ly/3HfpkAe
#vonWillebranddisease #ClinicalTrial