#vonwillebranddisease
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ehc-news.bsky.social
#VonWillebrandDisease (#VWD) is the most common inherited #BleedingDisorder, yet recognition remains a major challenge, even among healthcare professionals. 🩸
September 30, 2026 at 7:30 AM
ehc-news.bsky.social
Frequent nosebleeds. Easy bruising. Heavy menstrual bleeding. Prolonged bleeding after minor procedures. Symptoms are often dismissed as "normal", but for those living with #VonWillebrandDisease, they shape every aspect of daily life.
September 30, 2026 at 7:30 AM
ehc-news.bsky.social
Awareness starts with knowledge. Consult our #VonWillebrandDisease symptom infographic and share it widely, because the sooner symptoms are recognised, the sooner people can access the care they deserve. 👉 buff.ly/cLvwLRW
September 30, 2026 at 7:30 AM
ehc-news.bsky.social
This is part of our #VWD100 campaign, marking 100 years of #VonWillebrandDisease throughout 2026. Each month, we shine a light on a different aspect of #VWD.
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders #RareDisease
September 30, 2026 at 7:30 AM
ehc-news.bsky.social
🎥 Catch up on our webinar on the global prevalence & ethnic diversity of #VonWillebrandDisease with Dr Omid Seidizadeh. 🤝 Co-organised with @erneurobloodnet.bsky.social & @eahad.bsky.social. ▶️ Watch now 👇️ buff.ly/b3UaKWu
Webinar on Updated Global Prevalence of Von Willebrand Disease
Updated Global Prevalence and Ethnic Diversity of Von Willebrand Disease (VWD) Based on Population Genetics Analysis (2026) This webinar was held as part of ERN-EuroBloodNet's Thursday Webinar…
buff.ly
September 28, 2026 at 10:30 AM
ehc-news.bsky.social
👉 Read the guide: www.ehc.eu/wp-content/u...

#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
September 17, 2026 at 1:49 PM
ehc-news.bsky.social
👉 Read the guide: buff.ly/Fejz8aA

#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
September 17, 2026 at 10:00 AM
ehc-news.bsky.social
Thank you to everyone who shared their story with us. ❤️‍🩹 #WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
September 17, 2026 at 1:00 PM
ehc-news.bsky.social
Read the new EHC guide for adults with #BleedingDisorders on how to talk about pain with healthcare professionals 👉️ buff.ly/Fejz8aA

#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
September 17, 2026 at 1:00 PM
ehc-news.bsky.social
Their experiences remind us why speaking up about pain matters & why every conversation about #Pain is a step toward better, safer care. #WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
September 17, 2026 at 1:00 PM
ehc-news.bsky.social
This #WorldPatientSafetyDay, we're marking that principle & we've got something new in the works to help make those conversations easier. Stay tuned. 👀 #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
September 17, 2026 at 7:00 AM
haemnet.bsky.social
For more on living with a bleeding disorder, why not explore our archives?

Haemcast is available across podcast platforms, or you can tune in here: https://loom.ly/A4UWu6M

#Haemophilia #VonWillebrandDisease #GlanzmannThrombasthenia #BleedingDisorders #Podcast

#HemeSky #MedSky
September 4, 2026 at 8:01 AM
ehc-news.bsky.social
Living with #VonWillebrandDisease? Our #PatientSurvey is open until 7 September 2026! Help improve care & access across Europe 🌍 13 languages available 👉 buff.ly/HRPJBTu
August 17, 2026 at 7:00 AM
haemnet.bsky.social
The #Haemcast #podcast is taking a summer break, but you can still catch up with all episodes so far in our special collaboration with #LFWBD

🎧 https://loom.ly/A4UWu6M

#haemophilia #VWD #vonWillebrandDisease #BleedingDisorders #families
#HemeSky #MedSky
August 11, 2026 at 8:01 AM
ehc-news.bsky.social
📢 EHC joins @erneurobloodnet.bsky.social & @eahad.bsky.social for a session on the global prevalence & ethnic diversity of #VonWillebrandDisease with Dr Omid Seidizadeh 🗓️ 10 Sept 2026 ⏰ 17:00 CEST 👉️ Register: buff.ly/oVWgIlZ
August 10, 2026 at 8:00 AM
genomenon.com
#VonWillebrandDisease is the most common inherited bleeding disorder but its rare type causes life-threatening hemorrhages due to a near-total absence of #VWF 🧬Access free variant insights on 11 bleeding disorder genes in Mastermind: mastermind.genomenon.com?utm_source=b...
March 19, 2025 at 2:33 PM
ash.edu.hematology.org
HemeTalks Audio Rewind!

Did you catch our episode on Von Willebrand Disease? Test your knowledge! bit.ly/3FgHWzs

Missed it? Listen here: apple.co/4kydArc

#HemeTalksQuiz #VWDInsights #HemeTalks #ASHEducation #Hematology #MedicalEducation #Podcast #MedicalTrivia #VonWillebrandDisease
May 22, 2025 at 10:14 PM
bleedingdisordrsmb.bsky.social
The September issue of the Chapter newsletter is now available. tinyurl.com/nu4599jn
#bleedingdisorders #manitoba #winnipeg #vonwillebranddisease #hemophilia #raredisorder #community #education
September 29, 2025 at 3:44 PM
bleedingdisordrsmb.bsky.social
The CHS-MC Women and Girls e-newsletter is now available! #ThankYouThursday to Milena Pirnat, Cory Prestayko and Dana Beljanic for your help!
tinyurl.com/bddhkznk

#womenshealth #wgbd #bleedingdisorders #vonwillebranddisease #rarebleedingdisorder #hemophiliacarrier #manitoba #winnipeg
March 27, 2025 at 3:53 PM
haemnet.bsky.social
Caught up on #Haemcast? The latest episode looks at the experiences of partners of people living with a bleeding disorder. Search 'Haemcast' #podcast platforms or listen here: https://loom.ly/t0lDAvA

#LFWBD #families #bleedingdisorders #haemophilia #vonWillebrandDisease #HemeSky #BloodSky
June 10, 2026 at 8:01 AM
haemnet.bsky.social
If you're attending #EAHAD2026, don't forget to come and say hello at this evening's welcome and poster reception!
Wednesday 4 February, 6.30-7.30pm

#EAHADCongress #vonWillebrandDisease #FactorVII #women #bleedingdisorders #research #Haemnet #HemeSky #MedSky
February 4, 2026 at 5:05 PM
haemnet.bsky.social
Day 2 of #EAHAD2026 congress! Join us this evening at the welcome reception & poster presentations. Our posters present results from our FVIID 360, VWD 360 and Cinderella studies.

#FactorVII #vonWillebrandDisease #women #bleedingdisorders #research #Haemnet
#HemeSky #MedSky
February 4, 2026 at 7:01 AM
haemnet.bsky.social
Haemnet team is at the #EAHAD2026 Congress in Dublin this week, with posters on #FactorVII deficiency, #vonWillebrandDisease & #bleedingdisorders in women. Come & say hello!

#EAHADCongress #Haemnet #bleedingdisorders #vonWillebrandDisease #FactorVII #research #MedSky #HemeSky
February 2, 2026 at 6:30 AM
haemnet.bsky.social
Being heard and understood? Getting advice and support? Meeting people like you? If you live with a bleeding disorder, what does community mean to you?

#bleedingdisorders #community #livedexperience #research #haemophilia #vonWillebrandDisease #GlanzmannThrombasthenia

#HemeSky #BloodSky
November 13, 2025 at 6:57 AM
haemnet.bsky.social
Seaside staycation or going global? Peak summer holiday time is coming, but we're looking forward to a busy schedule of projects and planning. What are your summer plans?

#GlanzmannThrombasthenia #haemophilia #vonWillebrandDisease #FactorDeficiencies #Haemcast #bleedingdisorders #research
@HemeSky
July 7, 2025 at 9:19 AM