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franceyme.bsky.social
Illustrator Interrupted
@franceyme.bsky.social
1.7K followers 490 following 650 posts
https://amandafrancey.com/ Australian illustrator, graphic designer, photographer. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
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franceyme.bsky.social
Illustrator Interrupted @franceyme.bsky.social · May 12
ME is not “chronic fatigue.”

It’s a devastating neuroimmune disease that destroys lives, and far too many people are still being dismissed, neglected, and left without hope or proper care.

I wrote this after another tragic loss in the ME community. 💔

amandafrancey.medium.com/the-me-you-d...
The ME You Don’t See
I was motivated to create the below graphic after hearing the heartbreaking news that another beautiful person from the ME community passed…
amandafrancey.medium.com
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lucibee.bsky.social
'Recovery' was always a big problem for the PACE trial, to the extent that they didn't actually mention it at all in the main trial paper in 2011.

Discussion of it was relegated to a later paper in 2013, which also contained a metric tonne of fudge, because they knew they were in trouble over it.
alemmatthees.bsky.social Alem Matthees @alemmatthees.bsky.social · 1d
The #PACEtrial recovery song by the late Graham McPhee uploaded to Youtube around 2014, which along with his more serious videos on the same channel, was used to argue that he was part of an organised campaign of harassment when he submitted a FOIA request for the fitness data from the PACE trial.
6: ME Recovery Song
YouTube video by MEAnalysis
www.youtube.com
October 7, 2026 at 9:49 AM
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chronicillness.bsky.social
Artist: oblyvian on Tumblr
5-panel black-and-white comic strip titled "LIFE by: oblyvian ♡" depicting a interaction between a personified figure labeled "LIFE" and a girl. Panel 1: A rounded figure with the word "LIFE" written on its chest hands a small cookie to a girl with long hair, saying, "I am giving you a cookie." Panel 2: The girl holds the cookie happily with little lines around her head and says, "Yay! Thanks Life!♪" while Life stands by with a smile. Panel 3: Life's smile flattens slightly as it says, "Yes. Now I am going to kick you in the shins." The girl looks confused, holding the cookie with speech bubbles reading "... wha-". Panel 4: Life directly kicks the girl in the shins with a extended leg. The girl expresses shock and pain with a distressed expression. Panel 5: The girl lies flat on the ground looking defeated, saying a small "OK." Life stands cheerfully nearby, holding the cookie again and saying, "I am also taking the cookie back." The bottom right corner reads "FIN".
October 7, 2026 at 6:33 PM
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chronicillness.bsky.social
an old painting and in the painting is a woman (medieval times) shot with an arrow and bleeding asking myself if i can handle this at home and avoid a trip to the ER
October 5, 2026 at 7:30 PM
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valebodi.bsky.social
People with #ME/CFS have been misunderstood for decades: reputable researcher offers surprising advice to those struggling with the illness

Myalgic Encephalomyelitis aka ME/CFS has often been overlooked by doctors and researchers. Geneticist Chris Ponting has revolutionised our understanding
People with chronic fatigue have been misunderstood for decades: reputable researcher offers surprising advice to those struggling with the illness
Chronic fatigue syndrome has often been overlooked by doctors and researchers. Geneticist Chris Ponting has revolutionised our understanding of the disease – and he has a remarkable message for those ...
scienceillustrated.com
October 4, 2026 at 6:53 PM
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davetuller1.bsky.social
This interview with @georgemonbiot.bsky.social has had almost 5,000 views since I posted it yesterday: www.youtube.com/watch?v=Maae...
Interview with George Monbiot about Guardian column on ME/CFS
YouTube video by David M Tuller
www.youtube.com
October 2, 2026 at 6:09 PM
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mecfssd.bsky.social
ME/CFS Care Crisis: @georgemonbiot.bsky.social examines patients’ reports of abandonment, inappropriate treatment and outdated approaches despite updated guidance. www.theguardian.com/commentisfre...
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
www.theguardian.com
September 24, 2026 at 8:15 PM
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anilvanderzee.bsky.social
A blog about the response of many denialist dismissive cognitive dissonance comments on social media whenever they are confronted with very severe ME in the media.

anilvanderzee.com/the-rush-to-...

#pwme #myalgicE #millionsmissing
The rush to dismiss severe ME or Long Covid in the media may harm you or your loved ones in the future. - Anil van der Zee
The last couple of weeks my social media has had a lot more traffic. Partly due to my own story in the media, but also because other people with (very) severe ME or infectious associated chronic illne...
anilvanderzee.com
September 20, 2026 at 4:06 PM
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chronicillness.bsky.social
This is accurate science
1st panel: [pic of eye] sometimes an eyelash gets into the eye 2nd panel: [pic of closed eye] you blink 3rd panel: [pic of eye open] and it disappears 4th panel: [pic of eyeball from the side with a bunch of hair behind it] but where do they go
September 20, 2026 at 6:01 PM
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sailorrooscout.bsky.social
May I remind everyone that there is currently NO cure for rabies.

May I also remind everyone there is absolutely NO scientific proof connecting ANY vaccine that we produce today with autism.

This is true regarding vaccination in both humans AND in dogs.

Vaccinate your pets please.
Worries about vaccination rates in dogs As rabies seems to be spreading more in wildlife, veterinarians are especially worried about vaccine hesitancy spreading among pet owners, a dangerous trend that could lead to more dogs - and their owners - becoming infected. A 2023 study published in the journal Vaccine found in nationally representative sample of Americans that nearly 40% believed canine vaccines were unsafe and 37% believed that vaccines could lead their dogs to develop cognitive issues, such as autism.
September 14, 2026 at 4:00 PM
franceyme.bsky.social
I just lost one of my wireless earbuds, and as I was searching for it, I could smell a burning chemical smell coming from the microwave that was heating my wheat bag 🤦🏻‍♀️
Melted earbud.
August 31, 2026 at 10:02 PM
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katvan62desertrose.bsky.social
August 26, 2026 at 8:46 PM
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tomkindlon.bsky.social
Sick Times: “Hope to outlast the storm”: How severe ME impacts two brothers ** Trigger Warning: Upsetting Content **

thesicktimes.org/2026/08/21/h...

#MECFS #pwME @thesicktimes.org
“Hope to outlast the storm”: How severe ME impacts two brothers Written by sick times – August 21, 2026 Essays documenting the toll that myalgic encephalomyelitis (ME) has taken on one family, from the new book, What Is Myalgic Encephalomyelitis Like? By Matthew, Alexander, and Denise Lopez-Majano
August 26, 2026 at 8:56 PM
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swastrosarah.bsky.social
"Post-exertional malaise I think sounds quite benign as compared to the actual reality of experiencing that. It feels like there is actual poison flowing through my veins"
www.meresearch.org.uk/post-exertio...
PLEASE, pay attention to how #MEKills @england.nhs.uk
Thanks @meresearchuk.bsky.social
Post-exertional malaise (PEM) in ME/CFS
Post-exertional malaise (PEM), the cardinal feature of ME/CFS, is particularly debilitating as it involves the amplification of existing symptoms, alongside the potential appearance of new ones, follo...
www.meresearch.org.uk
August 23, 2026 at 7:13 PM
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tomkindlon.bsky.social
🧵
ME Research UK:

Careers, relationships, family life, hobbies, basic tasks – PEM can tear through it all.

The sheer symptom burden and ripple effects can impact mental health. We urge anyone in distress to consider reaching out to appropriate organisations e.g. Mind (mind.org.uk)
#MEcfs #PwME
1/
Impact of post-exertional malaise (PEM) in ME/CFS "...Disbelief in PEM has cost me my marriage, some friendships, connection with some family members, because being unable to do things without further harming my fragile health has been understood as laziness, being selfish, lacking interest." Response from ME Research UK Symptom Saturday PEM Survey INFORM. INFLUENCE. INVEST. allh RESOArH SCO36942
August 23, 2026 at 4:34 PM
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davetuller1.bsky.social
And now here's a trial of the Lightning Process for Long Covid from Canada's McMaster University. This stuff never ends...
virology.ws/2026/08/22/t...
Trial By Error: Canada's McMaster University Launches Trial of Lightning Process for Long Covid | Virology Blog
By David Tuller, DrPH McMaster University in Hamilton, Ontario, has launched a clinical trial of the Lightning Process (LP), a well-known “mind-body” interv ...
virology.ws
August 22, 2026 at 5:48 PM
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swastrosarah.bsky.social
#Research #ME #LongCovidME
Essential viewing for everyone working on international standardisation in study design.
Especially interesting on 'brain fog' as a meaningless descriptor.
Thank you @investinmeresearch.bsky.social
youtu.be/_Qcu40jtE7k?...
IIMEC18 Dr Vicky Whittemore
YouTube video by InvestinME Research
youtu.be
August 17, 2026 at 6:30 PM
franceyme.bsky.social
Scooby-Doo: The Mystery of the Reflecting Pool
youtu.be/GU_ID0asQ3M?...
Scooby-Doo: The Mystery of the Reflecting Pool | Donald Trump Parody #ScoobyDoo #Satire #DonaldTrump
YouTube video by Midnight Oil Productions (Jason Moore)
youtu.be
August 16, 2026 at 8:46 PM
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tomkindlon.bsky.social
“On BPS [BioPsychoSocial] & disease causation: George Davey Smith’s cautionary tale” by Prof Chris Ponting @cgatist.bsky.social

mecfsresearchreview.me/2026/08/11/o...

#MEcfs #PwME #CFS
On BPS & disease causation: George Davey Smith’s cautionary tale August 11, 2026 Comments 0 Comment Print Friendly, PDF & Email by Professor Chris Ponting A guide to the Biopsychosocial model recently put out by Long Covid Advocacy ultimately brought me to a 2005 book chapter, written by Professor George Davey Smith, entitled The biopsychosocial approach: a note of caution in Biopsychosocial Medicine: An Integrated Approach to Understanding Illness, edited by Peter White and published by Oxford University Press. The chapter is available from a University of Bristol website. I thought the divergence of opinion between Profs Davey Smith and Wessely was sufficiently interesting to write this short commentary.
August 15, 2026 at 8:52 PM
franceyme.bsky.social
Graphic Design 101
Font matters and photo of greeting card with the words, For a Special Aunt, only the A for Aunt looks like a C in this particular script font style.
August 11, 2026 at 8:45 PM
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stevefifield.bsky.social
#pwME #pwLC

In case you were wondering, David Strain has now taken over a position at DWP

www.disabilitynewsservice.com/dwp-faces-qu...
August 9, 2026 at 7:19 PM
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turnoftheshrew.bsky.social
This photography print by Whitney Dafoe sits on my bookshelves in the room in which I spend most of my time. For me it evokes grief & time, the gloom & haze of illness, hope of sun peeking through, the power of nature in a world that continually goes on, a pathway into the unknown. #SevereMEDay
Colored photograph inside a white square frame of a brown railed pathway extending into a foggy horizon, the sun high in the grey sky off to the right. Greenery surrounds the pathway. All colors are muted. The faint reflection of a white woman’s arms and hands can be seen taking a photograph of this photograph.
August 8, 2026 at 6:43 PM
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exceedhergrasp1.bsky.social
Digestion is, IMO, the most important focus of improving care for people with severe ME. Without proper digestion, nutrients are not utilized and medications are not metabolized. There are multiple mechanisms by which digestion potentially fails/slows. 🧪

#SevereMEDay 🧪
GI dysmotility is associated with mortality in critical illness[1] and multimorbidity analyses.[2] Gut issues affects electrolyte availability and can lead to dehydration[1] Malabsorption due to gut endothelial damage [4] Deficiency of nutrients that require gut cofactors e.g. B vitamins, leading to issues with neurotransmitters like dopamine, serotonin, & slowing a plethora of metabolic processes If digestion cannot ‘keep up’ with metabolism, circulating nutrients are chronically low: starvation at a cellular level [Note: the rest of this is citation; stop your screenreader if you like] [1] Ladopoulos T et al. Gastrointestinal dysmotility in critically ill patients. Ann Gastroenterol. 2018;31(3):273-281. doi:10.20524/aog.2018.0250 [2]Carrasco-Ribelles, et al. (2023). Contribution of Frailty to to Multimorbidity Patterns and Trajectories: Longitudinal Dynamic Cohort Study of Aging People. JMIR public health and surveillance [4] Iddrisu I et al. Malnutrition and Gut Microbiota in Chil
August 8, 2024 at 3:11 PM
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colleensteckel.bsky.social
View from the Trenches of #MyalgicEncephalomyelitis latest article covers #SevereME day for 2026.

Includes news and resources.

open.substack.com/pub/colleens...
Recognizing Severe Myalgic Encephalomyelitis
August 8, 2026
open.substack.com
August 8, 2026 at 7:54 PM
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bhanlon15.bsky.social
The Star: "Sheffield woman calls for urgent change in care and support for people with severe ME"

www.thestar.co.uk/your-world/s...
Sheffield woman calls for urgent change in care and support for people with severe ME
Sheffield woman calls for urgent change in care and support for people with severe ME
www.thestar.co.uk
August 6, 2026 at 7:08 PM
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myrabatchelder.bsky.social
This is not okay. Everyone has a right to wear a medical mask.

www.somdnews.com/news/local/m...
Medical masks now require doctor's note in Charles schools
An amendment to the Charles County Public Schools’ student conduct code will prohibit students from wearing medical masks without a doctor’s note or 504 special education plan documenting a medical
www.somdnews.com
July 29, 2026 at 8:01 PM