#myalgicE
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rfh1955.bsky.social
The Tennessean, US. 13th December 2005.
#mecfs #cfsme #myalgicencephalomyelitis #myalgice
December 13, 2025 at 8:18 AM
tinu.bsky.social
I feel invisible today. #MyalgicE #LongCovid
December 16, 2023 at 4:01 AM
rfh1955.bsky.social
Thirty-six years ago today. The Gazette, Montreal, Canada. 15th November 1988. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
November 15, 2024 at 12:04 PM
rfh1955.bsky.social
The Times, Shreveport, US. 28th February 2024. #longcovid #cfsme #myalgicencephalomyelitis #myalgice
February 28, 2025 at 10:18 PM
momazonrises.bsky.social
#ProudBlue #MomSky

“Before M.E.”

ME/CFS is a debilitating illness with no cure or treatments.

This year for ME Awareness week, we are finishing this sentence.

Before ME, I…?

#BeforeME #HiddenCrisis #MECFS #pwME #MyalgicE

www.cdc.gov/me-cfs/about...
May 13, 2025 at 2:52 AM
anilvanderzee.bsky.social
Sorry?!?

#BPS #harm #trauma #appologize #sorry

#pwme #myalgicE #millionsmissing

PS: subtitles included.

youtu.be/jPIYlYddkUk?...
Sorry?
YouTube video by Anil about ME
youtu.be
January 15, 2025 at 2:37 PM
rfh1955.bsky.social
From Bristol's Evening Post (England) on this day thirty-eight years ago - 7th January 1987. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
January 7, 2025 at 12:15 AM
rfh1955.bsky.social
The Star-Gazette, New York. 4th February 1992. #cfsme #mecfs #myalgice #myalgicencephalomyelitis
February 4, 2025 at 9:15 PM
anilvanderzee.bsky.social
1) This video shows a unique care unit in Norway called Røysumtunet for people with #severeME & very severe ME.

It is one of the only places where the sickest patients can receive specialised care.

We need this everywhere!!

#pwme #myalgicE #millionsmissing #severeME
June 2, 2026 at 6:50 PM
tomkindlon.bsky.social
4/
Legend: The lower the bars are at any time, the less stress your body is under. So orange represents a more stressful period than blue. This is from a Garmin smartwatch.

#ME #MyalgicE #MyalgicEncephalomyelitis
October 7, 2026 at 7:59 PM
rfh1955.bsky.social
The Tennessean, US. 13th December 2005. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
December 13, 2024 at 8:53 PM
rfh1955.bsky.social
The Sunday Times, UK. 4th January 1970. The only news article we could find on Beard/McEvedy's 'Reconsideration'.

#myalgicencephalomyelitis #myalgice #cfsme #myalgice
January 4, 2025 at 12:49 AM
rfh1955.bsky.social
The Evening Standard, London. 8th December 2008. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
December 8, 2024 at 12:47 AM
rfh1955.bsky.social
The Province, British Columbia, Canada. 12th February 2015. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
February 12, 2025 at 11:18 PM
rfh1955.bsky.social
The Hamilton Spectator, Canada. 24th November 1990. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
November 24, 2024 at 12:42 PM
tomkindlon.bsky.social
2/
Photo of Esther Rantzen

#MyalgicE #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Photo of Esther Rantzen
October 3, 2026 at 2:35 PM
anilvanderzee.bsky.social
The full version with English subtitles:

www.facebook.com/reel/9769700...

#pwme #myalgicE #millionsmissing #severeME
www.facebook.com
June 2, 2026 at 6:50 PM
rfh1955.bsky.social
The Chicago Tribune, US. 2nd December 1990. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
December 2, 2024 at 7:09 PM
anilvanderzee.bsky.social
2025 edition.

It never gets old...

#pwme #myalgicE #millionsmissing #millionsmissing #severeME
December 23, 2025 at 8:45 PM
knivesonly.bsky.social
#MECFS #MyalgicE #LongCovid #PwME #PwLC
georgemonbiot.bsky.social George Monbiot @georgemonbiot.bsky.social · Oct 18
This story is one of the most disturbing I've ever covered. It's about how the views of a deeply weird ideological sect affected science, medicine and the media, with devastating impacts on patients. Please read and pass on. This horror has to stop. www.theguardian.com/commentisfre...
Maeve Boothby O’Neill died because of a discredited view of ME. How was this allowed to happen? | George Monbiot
Chronic fatigue syndrome is as physiological as a broken leg. ​We must learn all we can from this tragic case, says Guardian columnist George Monbiot
www.theguardian.com
October 18, 2024 at 7:18 AM
anilvanderzee.bsky.social
Summertime - and the living is easy?

#pwme #myalgicE #millionsmissing #severeME #isolation
May 24, 2026 at 11:34 AM
rfh1955.bsky.social
Thirty years ago today. The Southern Illinoisan, US. 29th November 1994. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
November 29, 2024 at 8:12 PM
anilvanderzee.bsky.social
Today is my birthday...

Please have a read. 📖💙🙏

Nederland: www.doneeramsterdamumc.nl/mecvs

International:

US: www.omf.ngo

Germany: mecfs-research.org

Austria: www.weandmecfs.org

UK: donate.justgiving.com/charity/merg...

#pwme #myalgicE #millionsmissing #severeME
July 2, 2026 at 10:31 AM
rfh1955.bsky.social
On this day thirty-five years ago - the death of Melvin Ramsay.
#myalgice #myalgicencephalomyelitis #cfsme #myalgice
March 29, 2025 at 12:03 PM
anilvanderzee.bsky.social
Austrian minister of Health Johannes Rauch joining the lemon challenge to raise awareness about ME and to stimulate biomedical research. How amazing is that!!

www.instagram.com/share/reel/B...

mecfs-research.org/lemonchallen...

#pwme #myalgicE #millionsmissing #lemonchallengeMEcfs
December 13, 2024 at 10:11 PM