Am Chima
LightNews LightNews
ace9801.bsky.social
Am Chima
@ace9801.bsky.social
110 followers 200 following 200 posts
ME - patient/advocate LC, ME/CFS & more; RACE - human; RELIGION - truth; BIAS - unbiased integrity/evidence based science/reality; AVERSIONS - money, ego & power driven DEMENTORS; ASPIRATIONS - a DEMENTOR-free world & satisfying my “cerebral nerd crushes'!
Posts Replies Media Videos
Reposted by Am Chima
mark-ungrin.bsky.social
CTV news coverage of the errors in health policy and guidance that leave the public unprotected from aerosol disease transmission and long COVID (with @drdavidkeegan.bsky.social and Kerri Bowser) is up. Great to see so much interest!

Below is the UK inquiry cited:

#medsky #scisky #cdnpoli #polisky
September 19, 2026 at 11:04 PM
Reposted by Am Chima
drjenirwin.bsky.social
Thank you,
@drdavidkeegan.bsky.social and
@mark-ungrin.bsky.social !!
September 19, 2026 at 12:25 AM
Reposted by Am Chima
togetherwemask.bsky.social
Watch Long COVID Defense Series IV, featuring:
@robertderosa.bsky.social, Laura Pensiero, Dr. @michaelpelusomd.bsky.social, Dr. Elham Raker, @drdavidkeegan.bsky.social & Dr. @putrinolab.bsky.social, @coresinai.bsky.social, hosted by Team #MaskTogetherAmerica
masktogetheramerica.org/blog/lc-defe...
Long COVID Defense Series IV | 6 Q&A Sessions Featuring: - Robert DeRosa (NIH RECOVER Patient Representative & Long COVID Patient) - Laura Pensiero (Long COVID Patient & Prevention Advocate) - Dr. Michael Peluso (Associate Professor of Medicine, UCSF) - Dr. Elham Raker (Board-certified Pediatrician, Parenting Coach, Founder of Root to Bloom Pediatrics and Coaching, Mom with Child Living with LC) - Dr. David Keegan (Professor of Family Medicine, University of Calgary) - Dr. David Putrino (Director of Rehabilitation Innovation, Mount Sinai Health System) YouTube Link: https://youtu.be/reKw-OxPgEY  Facebook Link: https://www.facebook.com/share/v/1czMWya1nr/ 
September 11, 2026 at 8:44 PM
ace9801.bsky.social
The constant and deliberate reframing of this mass disabling event by our systems globally is exhausting beyond belief.

#LongCOVID #PAIS #IACCIs #MEcfs #pwME

www.thegauntlet.news/p/covid-not-...
COVID is disabling young women, not Tiktok
“Sickfluencers” are merely symptoms of a mass disabling event
www.thegauntlet.news
September 15, 2026 at 8:36 PM
ace9801.bsky.social
I continue to question what the end goal may be in the forces that contrive to bury the realities and implications of COVID and LC especially when the fallout is so much bigger than any one of us!

#LongCOVID #PAIS #IACCIs #MEcfs #pwME
bhanlon15.bsky.social Billy Hanlon @bhanlon15.bsky.social · 15d
MedPage Today: Why Is No One Talking About Long COVID?

— Attention has waned but patients are still suffering

by Jeffrey D. Klausner, MD, MPH, and Lao-Tzu Allan-Blitz, MD, MPH

www.medpagetoday.com/opinion/seco...
Opinion | Why Is No One Talking About Long COVID?
Attention has waned but patients are still suffering
www.medpagetoday.com
September 6, 2026 at 10:08 PM
ace9801.bsky.social
Thank you @longcovidadvoc.com for all that you do in calling out such despicable dismissiveness conduct.

“They” are trying everything and anything to “disappear and discredit” us.

And this type of nonsense is never-ending! 😔

#LongCOVID #PAIS #IACCIs #MEcfs #pwME
longcovidadvoc.com Long Covid Advocacy @longcovidadvoc.com · 16d
Our statement in response to The Telegraph article:

'How having a disability became cool' Young women, named 'sickfluencers', are turning chronic illness into a lifestyle trend & entrenching a culture of economic inactivity.' by Poppy Coburn, featuring Suzanne O'Sullivan.

#longcovid #pwME #POTS
It is disheartening & predictable to see Suzanne O’Sullivan once again given a platform to promote psychosomatic explanations for chronic illness — this time in a Telegraph article attacking disabled people as influenced by social media, identity and attention. There is a fundamental problem with this framework: it creates a self-reinforcing evidential trap. If patients accept a psychosomatic explanation, it confirms the theory. If they reject it, their distress is interpreted as evidence that they are psychologically invested in being ill. If they seek support from other patients, that's “social reinforcement”.
September 6, 2026 at 6:02 PM
ace9801.bsky.social
I strongly believe that the first step in advocacy is awareness.

And I also believe that many whispers can collectively become a loud voice that cannot be easily ignored.

#LongCOVID #PAIS #IACCIs #MEcfs #pwME
broadwaybabyto.bsky.social Kelly @broadwaybabyto.bsky.social · 16d
This is shameful discriminatory and misogynistic reporting.

People aren’t choosing disability to be “cool”.

Young women don’t have to “prove” to you that they’re sick.

Disability rates are skyrocketing because we’ve left a disabling virus rip through the population for over 6 years.
Photo from the telegraph. Red background with a roll of wheelchair stickers on white paper. Text reads “how having a disability became cool”
September 6, 2026 at 5:54 PM
ace9801.bsky.social
When the “science nerd” stands up to the “bully” in the schoolyard!

Thank you @putrinolab.bsky.social for all that you do for this community!

Science nerds rock!

#LongCOVID #PAIS #IACCIs #MEcfs #pwME
September 4, 2026 at 4:11 PM
Reposted by Am Chima
longcovidanswers.bsky.social
Could Some Long COVID Patients Need Someone Else’s #Mitochondria?

Prof @putrinolab.bsky.social discusses different patterns of mitochondrial dysfunction in #LongCOVID &research into whether healthy donor mitochondria could one day be explored for patients with severe dysfunction.
August 31, 2026 at 6:32 PM
Reposted by Am Chima
putrinolab.bsky.social
Delighted to announce some new progress on our #LongCOVID trial with Fareon and their first-in-human microtesla magnetic therapy (MMT) device. As you may recall, we pre-printed the safety/feasibility work not too long ago:

www.medrxiv.org/content/10.6...

In this triple-blind placebo-
1/
Microtesla Magnetic Therapy for cognitive impairment in post-acute sequelae of SARS CoV-2: A randomized controlled feasibility study
Background Cognitive impairment has significant implications for function and quality of life and is common in individuals with post-acute sequelae of SARS CoV-2, also known as long COVID (LC). Emergi...
www.medrxiv.org
August 31, 2026 at 4:48 PM
ace9801.bsky.social
A fantastic article from the Smithsonian Magazine September/October 2026.

Important to remember that LC, ME and other PAISs do not recognize borders…this is a global issue…and we are always stronger together !

#LongCOVID #PAIS #IACCIs #MEcfs #pwME

www.smithsonianmag.com/innovation/m...
For Many Americans, Covid Is Still a Chronic, Disabling Disease. These Scientists Are Working Tirelessly to Bring Them Relief
Long Covid saps the strength and vitality of patients, who have little recourse to fight it. A team of specialists—including an afflicted researcher working mostly from her bed—is looking for answers
www.smithsonianmag.com
August 31, 2026 at 9:25 PM
Reposted by Am Chima
renegaderesearch.bsky.social
Join us for a Research Roundtable this week, "Patients to Researchers: Lived Experience"

Friday, August 14 at 1 pm ET US

#MECFS and #LongCovid patients will discuss their experiences to help researchers improve research projects and trials

Register: us06web.zoom.us/webinar/regi...

1/2 🧵
A purple and blue graphic depicting bubbles with white text. In the upper righthand corner, the Renegade Research logo is depicted. Graphic reads: "Patients to Researchers: Lived Experience Research Roundtable" on Friday, August 14, 2026 at 1 pm ET US. Join us for a free virtual discussion where ME/CFS and Long Covid patients will share experiences to help researcher projects and trials. Register: tinyurl.com/renres-08-14-2026. A QR code with a link for the event is depicted in the lower lefthand corner. The Renegade Research website link, Renegade-Research.org, is depicted in the lower righthand corner.
August 10, 2026 at 8:30 PM
Reposted by Am Chima
maryeilmicdom.bsky.social
Tonight at 5pm UK time
#MECFS
solveme.bsky.social Solve M.E. @solveme.bsky.social · Aug 10
Join Solve's Emily Taylor & reps from Bateman Horne Center, #MEActionhttps://bsky.app/profile/did:plc:hedpcce7vylvdgibxuxjsuzb" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link" target="_blank" rel="noopener" data-link="bsky-mention">#MEAction Network, Open Medicine Foundation (OMF) & the WIMEL Writers for "Coffee with a Clinician" in recognition of #SevereMEAwareness Month. Wed. Aug. 12  |  @9:00 am PT / 12 pm ET.

Register: https://ow.ly/j1AR50ZvWcK
#UnitedForME
Portraits of six healthcare and research professionals, including Solve M.E. President and CEO Emily Taylor, are featured in an ad for a Severe ME/CFS Awareness Month event titled 'Coffee with a Clinician'.
August 12, 2026 at 9:56 AM
Reposted by Am Chima
bhanlon15.bsky.social
Bloomberg: 'Long Covid Study Finds Gut Immune System Struggling to Clear Lingering Virus'

www.bloomberg.com/news/article...
Long Covid Study Finds Gut Immune System Struggling to Clear Lingering Virus
The immune systems of people with long Covid may remain locked in a prolonged battle with remnants of the coronavirus, producing inflammation while failing to effectively eliminate its source, new res...
www.bloomberg.com
August 12, 2026 at 2:23 PM
Reposted by Am Chima
tomkindlon.bsky.social
🧵
Trial By Error: CFS “Recovery” Findings Might Be “Suppressed,” Says Report
By David Tuller

virology.ws/2026/08/11/t...

#MEcfs #PwME #CFS #ME #MyalgicE

1/
Trial By Error: CFS “Recovery” Findings Might Be “Suppressed,” Says Report 10 Comments / By David Tuller / 11 August 2026 By David Tuller, DrPH In the late 1980s, the UK and international health establishments began promoting a recovery narrative regarding what was then called chronic fatigue syndrome. Recovery was attainable, they asserted, through interventions like cognitive behavior therapy and graded exercise therapy. This approach quickly became the standard of care, in the UK and elsewhere. Patients believed this hopeful narrative. Many entered CBT and GET programs with enthusiasm, assured by their providers that these treatments were effective at restoring health. But the studies that touted this purported success, like the PACE trial, turned out to be full of unacceptable methodological and ethical flaws. CBT and GET clearly did not work as advertised. This background on the longstanding hegemony of the recovery narrative in the ME/CFS field is entirely missing from a new publication called “The Recovery Report: What 75 YouTube Interviews Say About Recovery from Chronic Fatigue Syndrome and/or Related Illnesses.” That absence undermines one of the report’s core claims—that the medical establishment has a deep-rooted investment in presenting ME/CFS as an incurable biomedical disorder and is therefore seeking to squelch the message that recovery is possible through so-called “mind-body” approaches.
August 12, 2026 at 2:41 PM
Reposted by Am Chima
longcovid-adri.bsky.social
**HELP US STOP THE MADNESS!!**

Please sign/share far and wide. We can't allow things like these to happen, wasting valuable resources that could be used for actual productive trials @dickzoutman.bsky.social @young.me @jeffgilchrist.bsky.social @exceedhergrasp1.bsky.social @tryangregory.bsky.social
August 6, 2026 at 4:56 PM
ace9801.bsky.social
Please kindly consider signing and circulating. Thank you!
August 6, 2026 at 4:11 PM
Reposted by Am Chima
putrinolab.bsky.social
Anything that publicly earns you praise will always, invariably, earn you hate. This is an immutable law of social media. The trick is to never stop working in good faith to be truly worthy of the praise. That’s what gives you the right to ignore the hate.

Thanks for the love 🙏🏻
August 4, 2026 at 1:46 PM
Reposted by Am Chima
mosssphagnum.bsky.social
Former #canucks who caught #SARSCoV2 now retiring

"... almost one year to the day after the Jets revealed Toews was joining the team following a 2year hiatus from the #NHL to deal with symptoms of #longcovid &chronic inflammatory response syndrome."
#WeAreAllCanucks
www.cbc.ca/news/canada/...
Jonathan Toews calls it a career, retires after 16 NHL seasons | CBC News
Winnipeg's Jonathan Toews, who played for his hometown team last season, announced his retirement Friday after 16 seasons.
www.cbc.ca
June 20, 2026 at 7:32 AM
Reposted by Am Chima
drinfosec.bsky.social
🎯👇
June 9, 2026 at 9:46 PM
Reposted by Am Chima
mecfsresearch.bsky.social
🚀 Now online: First presentation from the International ME/CFS Conference 2026! "Therapeutic trials on ME/CFS and PCS" by Prof. Dr. Carmen Scheibenbogen. More presentations and summaries follow within 30 days. 🔔 #mecfs #postcovid
👉 https://t.ly/LvT0P
Eine Frau im grauen Anzug mit schwarzer Brille lächelt in die Kamera.
June 5, 2026 at 1:30 PM
ace9801.bsky.social
Another great piece eviscerating the controversial Levinovitz WIRED article that just dropped a few days ago.

This along with Todd Davenport’s piece titled “Revisiting the Painful Truth of Long COVID” keeps me going and hopeful.

#LongCOVID
#pwME
#donoHARM
#PEM
longcovidadvoc.com Long Covid Advocacy @longcovidadvoc.com · Jun 3
We have guest writer Dr Elke Hausmann examining the controversial Levinovitz WIRED article which has sparked significant concern for its portrayal of Long Covid, recovery narratives, and brain retraining approaches.

🎙️Audio available
open.substack.com/pub/longcovi...
An abstract, translucent blue and grey spherical structure resembling a complex microscopic organism or digital rendering against a grey background. White text overlaid on the image reads: "Commentary on the Long Covid article by Alan Levinovitz in WIRED magazine By Dr Elke Hausmann." The website address "LONGCOVIDADVOCACY.SUBSTACK.COM" is printed at the bottom left, with a small Substack logo in the bottom right corner.
June 5, 2026 at 3:17 AM
Reposted by Am Chima
covidsociety.ca
In case you missed it, join us for our AGM on June 17.
covidsociety.ca Canadian Covid Society @covidsociety.ca · May 26
Join us on June 17th for the Canadian Covid Society's Annual General Meeting, featuring guest speaker Barry Hunt, a health care advocate who will be sharing his talk "Onward Together: Grassroots Action & Real Change in PPE & Engineered Infection Prevention.”
Register: us06web.zoom.us/webinar/regi...
Graphic with a navy blue background, with teal and white dots in the upper left corner and a maroon triangle in the lower right corner. The Canadian Covid Society logo is in the top right, and there is a photo of Barry Hunt. Text reads: Annual General Meeting Featured guest speaker: Barry Hunt 17 June 2026 7 PM EDT Register Now
June 3, 2026 at 10:42 PM
Reposted by Am Chima
longcovidadvoc.com
Non paywalled article is here. /22
smry.ai/www.wired.co...
Article from wired.com
Read this article from wired.com with Smry
smry.ai
June 1, 2026 at 11:46 PM
ace9801.bsky.social
WIRED needs a crash course in ethical evidential science!

#longCOVID
#pwME
#donoHARM
longcovidadvoc.com Long Covid Advocacy @longcovidadvoc.com · Jun 1
🧵OF KEY CONCERNS

We've now read Alan Levinovitz's WIRED piece on Long Covid.

Our concern isn't that it discusses psychological theories.

Our concern is that it repeatedly conflates criticism of evidence with creating a "climate of fear".

Those are not the same thing. /1
wired.com WIRED @wired.com · Jun 1
Six years since the height of the pandemic, the scientific community remains baffled by long Covid. But there might finally be a way forward for long Covid treatment—if only you were allowed to talk about it.
June 3, 2026 at 4:14 AM