Juna
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elljuna.bsky.social
Juna
@elljuna.bsky.social
Tree-hugging socialist and devoted cat mom living the chronic life. #pwME ♿ #AuDHD #Neurodivergent 😷 up to save lives 💕 She/Her
Reposted by Juna
If anyone in Alabama who both protests and takes Covid seriously wants to talk to me about your problems with the bill, my email is [email protected] (reposts appreciated) www.alreporter.com/2026/01/28/d...
House passes bill that would criminalize protesting in a mask without a doctor's note
Anti-masking laws have never been taken up by the U.S. Supreme Court and have had mixed results in lower courts.
www.alreporter.com
January 30, 2026 at 10:45 PM
Reposted by Juna
“ICE agents, get out now because historically, this ends with you hanging from a lamppost and your body paraded through the streets.” - the …we rate dogs guy
January 16, 2026 at 3:49 AM
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🚨Looking for recommendations for a UK doctor with experience in ME/CFS who may be willing to act as an expert witness in a legal case.

Unfortunately, Nigel Speight, William Weir, Claire Taylor, Binita Kane and Dr Bansal are not eligible. DMs open.
January 16, 2026 at 2:43 PM
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Nature: The new vision from the National Institute of Allergy and Infectious Diseases

'NIAID will foster research to better understand long-term
post-infectious & non-infectious inflammatory syndromes..long COVID, chronic Lyme disease, myalgic encephalomyelitis..'

www.nature.com/articles/s41...
The new vision from the National Institute of Allergy and Infectious Diseases (NIAID) - Nature Medicine
Preparing for tomorrow’s threats by enhancing our ability to help patients today.
www.nature.com
January 16, 2026 at 2:40 PM
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Still at $0/$200 for my next month of therapy appointments and I would also really like to maybe order some grocery foods. Brains are hard and I wanna try to bake some cookies and see if it helps.
January 15, 2026 at 6:01 PM
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"We lack such treatment (for ME) not because #ME is some “weird” “mysterious” illness that cant be understood Its because our political medical & scientific institutions have chosen to make ME the lowest-funded illness relative to disease burden by a mile"Nick Joliat
👇
massmecfs.org/members/memb...
Spotlight: MassME Remembers Walker Storz - Massachusetts ME/CFS & FM
Spotlight: MassME Remembers Walker Storz
massmecfs.org
January 11, 2026 at 9:04 AM
Reposted by Juna
For a @motherjones.com article, I am looking to speak to caregivers of disabled individuals who are 14 and older who are on Medicaid re Medicaid work requirement exemptions. My email to reach out is [email protected] and reposts are appreciated.
January 6, 2026 at 7:22 PM
Reposted by Juna
A group of #severeME patients are trying to save Daryna, a young woman from #Ukraine with severe #MECFS, from the bombs & negligence. We want to take her as #refugee to #Germany. We find no help from anyone, including associations & NGO. Would you volunteer to help? Contact me. #pwME
January 6, 2026 at 7:59 PM
Reposted by Juna
CTA — Call Your Congressperson and Urge Them To Vote Against the House Budget Resolution Being Voted on Next Week

It is 11PM on Thursday night and an email from a high ranking Hill healthcare staffer has just hit my inbox: Medicaid faces an "existential" vote in the House, probably Tuesday...
CTA: Medicaid "existential" vote next week | Matthew Cortland
Get more from Matthew Cortland on Patreon
www.patreon.com
February 21, 2025 at 3:59 AM
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February 10, 2025 at 10:16 AM
Reposted by Juna
PBS News wants to hear from those who have been affected by COVID. The more information they have on what COVID has done and is still doing to people, the better.

pbsnewshour.formstack.com/forms/covid
February 10, 2025 at 9:48 AM
Reposted by Juna
If we want to stop Elon Musk from destroying our entire society we have to make sure there is never another billionaire. They can't just be taxed out of existence, we tried that in the 60's and 70's and once they retook political power they dismantled everything

Moreover, ICE must be destroyed
February 9, 2025 at 6:22 PM
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MAGA/MAHA want massive cuts to Medicaid, resulting in catastrophic coverage loss.

Monday, 2/10 @ 4PM ET, we're doing a webinar on how to advocate for Medicaid with the legislative staff of a Member of Congress or U.S. Senator

(This is not geared towards providers/clinicians)

Register ⤵️
Welcome! You are invited to join a meeting: Congressional Medicaid Advocacy Webinar . After registering, you will receive a confirmation email about joining the meeting.
MAGA and MAHA are planning massive cuts to Medicaid that would result in catastrophic coverage losses. So on Monday, February 10th, at 4PM ET, we'll be doing a webinar on how to advocate for Medicaid ...
us02web.zoom.us
February 7, 2025 at 7:17 PM
Reposted by Juna
#MEcfs #LongCovid #NEISvoid hi hive mind, request please: can you point me to any papers or materials for clinicians that evidence or summarise heart and circulatory problems in ME? So, yes, POTS/dysautonomia but also wider, like the findings on preload failure. I have an incredibly patronising...
November 22, 2024 at 10:45 AM
Reposted by Juna
🤔 Community Question FEEDS
There's a tricky issue with the ME hashtag.

If we add #ME to the feed it's too broad & picks up LOTS of random things.
#me/cfs picks up Japanese anime.
#mecfs is ok but we have to include the cfs

We just thought people should be aware of this when #...1/2
November 20, 2024 at 8:27 PM
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I like this blocklist which blocks anyone with “MAGA” in their bio bsky.app/profile/did:...
November 18, 2024 at 12:19 AM
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hey! do you make cool art & sell it? post your art & shop in this thread! crafts, jewelry, prints, whatever! holiday gifting szn is a great time to support indie creators #artsky 🎨🖌️🖼️
November 17, 2024 at 9:05 PM
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November 10 2024 #MutualAidThread! Post your needs here.

Rules:
1. Use Alt Text on images
2. Boost as many posts as you can in this thread
3. Only post once in this thread per day.

#HelpSky #MABoost #FundSky #MutualAid #HelpFolksLive2024
November 10, 2024 at 6:36 AM
Reposted by Juna
This thread is now done for the night! If you visited two hours ago, there are new posts; just keep clicking through to the end.

Goodnight, Newskies and members of the good old #NEISvoid! Sleep well. 😴
✨Welcome, Newskies, to Bsky! ✨

This is going to be a thread of introductory fino. The first thing we're going to do is reply to this post with a "pushpin" icon in the emoji stuff below.

Do that now, and I'll explain why in my next post! (1/?)
October 17, 2024 at 4:18 AM
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For the new twitter friends, here are two of my favorite things about bluesky:

1) if you block someone, they vanish. If they QTd you, it just says "blocked". Nuclear block stops trolls. They hate it.

2) If someone QTs you & you don't like it, you can detach your post from theirs. BRILLIANT TBH?
October 17, 2024 at 2:53 AM
Reposted by Juna
Hi, quick lowdown:

-the For You feed is called Discover here.
-add the Mentions and Quotes feeds to see those.
-You can filter posts by tag, so tag your artwork to make it easier to find.
-use the Sky Follower Bridge plugin to find your twitter moots
-we have video, DMs, pinned posts now
October 17, 2024 at 12:30 AM
Reposted by Juna
Ah, yes, welcome, natural disaster victims, to the victim blaming disabled people get when privileged people don’t want to think about scary things so they make them your fault. The last four years have been full of it.

If you just make flawless choices, bad things can’t happen to you!
September 28, 2024 at 11:02 PM
Reposted by Juna
OnStar has given customers in the areas affected by Hurricane Helene free access to their onboard WiFi capabilities.

If you have a Chevrolet, Buick, GMC, or Cadillac with Onstar system inside, you now have wifi access, even if you don't have an onStar subscription:
www.onstar.com/services/cri...
September 29, 2024 at 4:56 AM