Carrie Marshall - MySeveralWorlds.com
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myseveralworlds.com
Carrie Marshall - MySeveralWorlds.com
@myseveralworlds.com
480 followers 250 following 2K posts
✒️ I write about life with severe #ChronicPain related to #SpA #PsA #MEcfs #fibromyalgia #APS
🦋 MySeveralWorlds.com
👩‍🦼 #DisabilityAdvocate
🤝 Team Fibro & Spondylitis
🎨 DISABLED ARTIST
🌴 https://linktr.ee/myseveralworlds
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myseveralworlds.com
"When you wonder why someone lives in pain without ever reaching out, I hope you
can look back to see they reached out a hundred times, and no one reached back."

Credit: Stephanie Bennett-Henry

#PainAwarenessMonth #PAM2026 #MySeveralWorlds
"When you wonder why someone lives in pain without ever reaching out, I hope you can look back to see they reached out a hundred times, and no one reached back." Credit: Stephanie Bennett-Henry #PainAwarenessMonth #PAM2026 #MySeveralWorlds
September 15, 2026 at 3:07 PM
myseveralworlds.com
"Like so many Spoonies, I struggle to find words to describe what my life is like living with severe limitations and daily chronic pain."

Credit: Carrie, My Several Worlds

🔗 LINK in comments!

#PainAwarenessMonth #PAM2026 #LetsTalkAboutPain
#MySeveralWorlds #SolvePainTogether
"Like so many Spoonies, I struggle to find words to describe what my life is like living with severe limitations and daily chronic pain." Credit: Carrie, My Several Worlds 🔗 LINK in comments! #PainAwarenessMonth #PAM2026 #LetsTalkAboutPain #MySeveralWorlds #SolvePainTogether
September 14, 2026 at 2:52 PM
myseveralworlds.com
Nerve Pain Referred

Aka why I hurt all the time with axial disease.

ALT TEXT added.

C1
C2
C3
C4
C5
C6
C7
T1
T2
T3
T4
T5
T6
T7
T8
T9
T10
T11
T12
L1
L2
L3
L4
L5
Sacrum
Coccoyx

Credit: MassageNerd

#PainAwarenessMonth #PAM2026 #MySeveralWorlds #LetsTalkAboutPain
Nerve Pain Referred C1 - Back of head C2 - Various areas of the head C3 - Side and front of neck C4 - Upper back of neck C5 - Middle of neck and upper part of arms C6 - Lower part of neck, arms, and elbow C7-Lower part of arm and shoulder T1 - Hand, wrist, Fingers, and thyroid T2 Heart, heart valves and coronary arteries T3 - Lungs, bronchial tubes, pleura, and chest T4 - Gall bladder and common duct T5 - Liver and solar plexus T6 - Stomach and mid-back area T7 - Pancreas and duodenum T8 - Spleen and lower mid-back T9 - Adrenal glands T10 - Kidneys T11 - Ureters T12 - Small intestine and upper/lower back L1 - Iliocecal valve and large intestine L2 - Appendix, abdomen and upper leg L3 - Sex organs, uterus, bladder, and knees L4 - Prostate gland and lower back L5 - Sciatic nerve, lower legs, ankles, and feet Sacrum - Hipbones and buttocks Coccoyx - Rectum and anus Credit: MassageNerd.com #PainAwarenessMonth #PAM2026 #MySeveralWorlds #LetsTalkAboutPain
September 13, 2026 at 3:22 PM
myseveralworlds.com
I had a terrifying hemorrhage on Friday, Sept 5. I was in two ERs with an ambulance transfer. I have #APS. I had a perfect dental extraction. Hours later it resulted in 100+ #clots. I bled for 24 hours. No one knew what to do. No one listened to me.

#AntiphospholipidSyndrome
Me in an ambulance with a bag of blood and clots that I was expelling between hospitals.
September 13, 2026 at 1:37 AM
myseveralworlds.com
"I'm convinced I was a warrior in a previous life and have carried over all my battle wounds into this life. Why else would everything hurt so much? Plus this sounds cooler."

Credit: unknown

#PainAwarenessMonth #PAM2026 #LetsTalkAboutPain #MySeveralWorlds
"I'm convinced I was a warrior in a previous life and have carried over all my battle wounds into this life. Why else would everything hurt so much? Plus this sounds cooler." Credit: unknown #PainAwarenessMonth #PAM2026 #LetsTalkAboutPain #MySeveralWorlds
September 12, 2026 at 3:43 PM
myseveralworlds.com
Non verbal signs of pain:

😟 Facial expressions
🧍‍♀️Body posture.
😭 Crying/sounds of distress
🫥Withdrawal
🤬 Mood changes
😕 Confusion
👐 Hand movements show distress
🥵 Excessive sweating
🔗
MySeveralWorlds.com

#PainAwarenessMonth #PAM2026 #ArthritisAwarenessMonth #MySeveralWorlds #SuicideAwareness
Non verbal signs of pain: 😟 Facial expressions 🧍‍♀️Body posture. (Pain patients tend to protect their body by holding their limbs close or move unnaturally in an attempt to protect their body) 😭 Crying and sounds of distress Withdrawal from activity or into silence 🤬 Mood changes - quick to anger, aggression, irritability, and agitation 😕 Confusion 👐 Hand movements can show distress or pain 🥵 Excessive sweating 🔗 MySeveralWorlds.com #PainAwarenessMonth #PAM2026 #ArthritisAwarenessMonth #MySeveralWorlds #SuicideAwareness
September 11, 2026 at 2:58 PM
myseveralworlds.com
"The book of autoimmune disease symptoms and related conditions."

Credit: Bored Panda

❓Guess what I am searching through for tomorrow's appointment with the vascular specialist?

#APS #Edema #PAM2026 #PainAwarenessMonth #AutoimmuneDisease #AntiphospholipidSyndrome #MySeveralWorlds
"The book of autoimmune disease symptoms and related conditions." Credit: Bored Panda ❓Guess what I am searching through for tomorrow's appointment with the vascular specialist? #APS #Edema #PAM2026 #PainAwarenessMonth #AutoimmuneDisease #AntiphospholipidSyndrome #MySeveralWorlds
September 10, 2026 at 3:13 PM
myseveralworlds.com
There is a severe shortage of pain specialists w approx 30,000 Americans in pain for every board certified pain specialist. This shortage is caused by a difficult path to specializing in pain treatment & negative public scrutiny.
MySeveralWorlds.com
#PainAwarenessMonth #PAM2026 #LetsTalkAboutPain
Did You Know? "There is a severe shortage of pain specialists with approximately 30,000 Americans in pain for every board certified pain specialist. This shortage is caused by a difficult path to specializing in pain treatment plus negative public scrutiny." Credit: MySeveral Worlds.com #PainAwarenessMonth #PAM2026 #LifeWithPain #LetsTalkAboutPain
September 9, 2026 at 4:08 PM
myseveralworlds.com
High intensity #ChronicPainfeels like being wrapped in barbed wire.

When symptoms such as stabbing and electric pain start hitting at high intensity, #depression follows fast and your #MentalHealth spirals. It feels like you are dying. ~Carrie, MySeveralWorlds.com

#PainAwarenessMonth #PAM2026
High intensity #ChronicPain feels like being wrapped in barbed wire. When symptoms such as stabbing and electric pain start hitting at high intensity, #depression follows fast and your #MentalHealth spirals. It really feels like you are dying. ~Carrie, MySeveralWorlds.com
September 4, 2026 at 3:09 PM
myseveralworlds.com
Imagine living with several diseases known as the most painful diseases in the world and they are measured as being equal to or higher than the pain experienced during childbirth. The McGill Pain Index built the index on patient responses.
#PainAwarenessMonth #PAM2026 #MySeveralWorlds
Imagine living with several diseases known as the most painful diseases in the world and they are measured as being equal to or higher than the pain experienced during childbirth. Can't imagine it? The McGill Pain Index recognizes it and built the index on patient responses. Here are some of the most painful experiences known to humans. And yes, there are many more. This list is not exhaustive. If you are in pain, your disease or condition is likely represented on the McGill Pain Index which was created in the 70s at McGill University in Canada. #PainAwarenessMonth #PAM2026 #MySeveralWorlds #LifeWithPain #LetsTalkAboutPain
September 3, 2026 at 2:05 PM
myseveralworlds.com
Most of the time I live with high impact, widespread CONSTANT chronic pain. Last week, high impact, widespread INTERMITTENT chronic pain started up. In many ways intermittent pain is worse. It's like drilling into your body many times throughout the day.

#MySeveralWorlds #PAM2026 #LetsTalkAboutPain
I’m talking about the difference between CONSTANT and INTERMITTENT chronic pain for #PainAwarenessMonth. If you use pain or symptom trackers, it’s important to note what kind of pain you’re experiencing. Over time, patterns start to emerge. Those patterns help you build routines that work with your body instead of against it. Here’s a pattern I’ve noticed, which is tied to weather and stress. Most of the time, I live with high-impact, widespread CONSTANT chronic pain. But this week, high-impact, widespread INTERMITTENT pain kicked in. It starts around 9am and then comes and goes for the rest of the day. At some point it will switch to CONSTANT drilling widespread pain again. And honestly? Intermittent pain can feel worse. With constant pain, your brain kind of adapts. It learns to compartmentalize. With intermittent pain, it’s like getting hit over and over again with sharp, acute spikes that never quite let you settle. That’s something I always take note of. New patterns go straight into my notes for my next appointment. As for how I manage it? Same as always: rest, ice, compression, elevation… and more pain patches. 🤷‍♀️ 👉 Follow My Several Worlds for daily updates. #MySeveralWorlds #PAM2026 #ChronicPainIsLike #LetsTalkAboutPain #PainAwareness #PainCounts
September 2, 2026 at 2:46 PM
myseveralworlds.com
"Pain is the #1 symptom for which people consult doctors. Abuse of opioids by pain patients is extremely rare. Not treating people who are in pain is barbaric.
It's unfortunate that so many doctors are so far behind the times." @docbear7.bsky.social

#MySeveralWorlds #PAM2026 #PainAwarenessMonth
September is #PainAwarenessMonth and #ArthritisAwarenessMonth. FRIENDLY REMINDER from Dr. Emmett Smith aka @DocBear "I've said this many times: Pain is the #1 symptom for which people consult doctors. Abuse of opioids by pain patients is extremely rare. Not treating people who are in pain is barbaric. It's unfortunate that so many doctors are so far behind the times as regards these topics." #MySeveralWorlds #PAM2026 #LifeWithPain
September 1, 2026 at 4:06 PM
myseveralworlds.com
Turns out, you travel more with a chronic illness

Mostly to...
✔️ doctor's appointments
✔️ specialists
✔️ bloodwork
✔️ imaging
✔️ the emergency room
✔️ back to bed

Credit: The You Look Fine Club

#MySeveralWorlds #MyChronicLife #ChronicTruths
Turns out, you travel more with a chronic illness Mostly to... ✔️ doctor's appointments ✔️ specialists ✔️ bloodwork ✔️ imaging ✔️ the emergency room ✔️ back to bed Credit: The You Look Fine Club #MySeveralWorlds #MyChronicLife #ChronicTruths
August 31, 2026 at 4:19 PM
myseveralworlds.com
If you have a friend who checks in on you when
you're quiet...

You have a friend who lets you vent about the same thing over and over...

If you have a friend who makes time for you even when they are busy...

If you have a friend who has seen you at your lowest and still loves you...
KEEP THEM!
If you have a friend who checks in on you when You're quiet... Keep them. You have a friend who lets you vent about the same thing over and over... Keep them. If you have a friend who makes time for you even when they are busy... Keep them. If you have a friend who has seen you at your lowest and still loves you... Keep them. Credit: Learning Petals #MySeveralWorlds #LifeReminders #FriendsSupportingFriends
August 30, 2026 at 2:17 PM
myseveralworlds.com
"Sometimes I don't want to have to tell you that I'm not doing well. I just want you to notice."

Credit Unknown

#MySeveralWorlds #MyChronicLife #ButYouDontLookSick
"Sometimes I don't want to have to tell you that I'm not doing well. I just want you to notice." Credit Unknown #MySeveralWorlds #MyChronicLife #ButYouDontLookSick
August 29, 2026 at 2:31 PM
myseveralworlds.com
"Being stuck in bed with #ChronicIllness is NOT the same as a healthy person tired in bed. It may sound and look the same but it is NOT the same. Choosing to stay in bed & being forced to stay in bed are completely different physically & mentally."
@invisiblysicklala
#MySeveralWorlds #ChronicTruths
"Being stuck in bed due to chronic illness is NOT the same as a healthy person relaxing or tired in bed. It may sound and look the same but it does NOT feel the same. Choosing to stay in bed and being forced to stay in bed are completely different physically & mentally." Credit: @invisiblysicklala #MySeveralWorlds #ChronicTruths #LifeWithChronicIllness
August 28, 2026 at 2:52 PM
myseveralworlds.com
Sometimes disabled people do extraordinary things because there is no other alternative.

Sometimes we borrow heavily from tomorrow’s spoons.

At times necessity overrides every smoke signal our bodies are giving us. ~Carrie, #MySeveralWorlds

#PEM #Pacing #DisabilityAwareness
August 28, 2026 at 3:38 AM
myseveralworlds.com
I was using a wheelchair. Paying enormous medical costs. Working while profoundly ill. Asking directly for help and told “We're not there yet.” Years later, I finally understand I had been there all along.
🔗
www.myseveralworlds.com/2026/08/25/c...

#MySeveralWorlds #DisabilityAwareness
Carrie is sitting in a wheelchair looking very sick. She is wearing a blue kitty mask. Text across her banner says 'How Sick Did I Have To Get Before My Disability Was Enough?'
August 28, 2026 at 12:41 AM
myseveralworlds.com
ODD SYMPTOMS OF
FIBROMYALGIA
* Numbness & tingling
* Restless Leg Syndrome
* Interstitial Cystitis
* Paraspinal lumbar tenderness
* Sensitivity to touch
* Excessive sweating
* Skin lumps
* Muscle spasms
* Face/jaw pain
* Digestive issues
@dearfibromyalgia
#MySeveralWorlds #FibroNerds
ODD SYMPTOMS OF FIBROMYALGIA * Numbness and tingling * Restless Leg Syndrome * Interstitial Cystitis * Paraspinal lumbar tenderness * Sensitivity to touch (Allodynia) * Excessive sweating (hyperhidrosis) * Skin lumps (lipomas) * Muscle spasms (dystonia) * Face or jaw pain (like temporomandibular joint syndrome) * Digestive issues (like irritable bowel syndrome, constipation, or bloating) Credit: Dear Fibromyalgia @dear fibromyalgia #MySeveralWorlds #FibroNerds #SupportFibro #TeamFibro #FibromyalgiaAwareness
August 27, 2026 at 3:38 PM
myseveralworlds.com
🐈‍⬛
My black kitty
August 25, 2026 at 2:52 AM
myseveralworlds.com
#Costochondritis

1. Chest pain: Sharp or aching near the breastbone and ribs.
2. Tenderness: Sensitive to touch in the rib cage.
3. Pain with movement
4. Pain spreading
5. Swelling (rare)

Credit: Fibro Colors

#FibromyalgiaWarrior #LifeWithPain #AxSpA #MySeveralWorlds
#Costochondritis 1. Chest pain: Sharp or aching near the breastbone and ribs. 2. Tenderness: Sensitive to touch in the rib cage. 3. Pain with movement: Breathing, coughing, or physical activity worsens it. 4. Pain spreading: May radiate to the back, shoulders, or arms. 5. Swelling (rare): Mild swelling near the affected area. Credit: Fibro Colors Fibromyalgia Awareness #FibromyalgiaWarrior #LifeWithPain #AxSpA #MySeveralWorlds
August 23, 2026 at 3:44 PM
myseveralworlds.com
ACTIVITY
Going out for a walk - 1 Day
Cleaning your room - 6 Hours
Cooking a meal - 2-3 Hours
Doing laundry - 4 Hours
Medical Admin - 8 Hours
Having visitors - 1-2 Days
Running errands - 2 Days
Going out with friends - 4 Days

Credit Unknown
#MySeveralWorlds #Pacing #BoomAndBust #PEM #pwME
The Hidden Costs of Living with a Chronic Illness The minimum recovery time for each activity is beside each activity. ACTIVITY Going out for a walk - 1 Day Cleaning your room - 6 Hours Cooking a meal - 2-3 Hours Doing laundry - 4 Hours Medical Admin - 8 Hours Having visitors - 1-2 Days Running errands - 2 Days Going out with friends - 4 Days Credit Unknown #MySeveralWorlds #Pacing #BoomAndBust #PEM #pwME #LifeWithChronicIllness
August 22, 2026 at 4:18 PM
myseveralworlds.com
"The fibro body can certainly take longer to heal after any trauma, surgery, invasive procedure or accident. It can affect not only muscles, but tendons, ligaments, joints, bones, blood vessels, organs and multiple systems of the body."

#MySeveralWorlds #SupportFibro #TeamFibro #FibroNerds
FIBRO FACTO: "The fibro body can certainly take longer to heal after any trauma, surgery, invasive procedure or accident. Even a simple blood draw can act like a trauma to the fibro body. It can affect not only muscles, but tendons, ligaments, joints, bones, blood vessels, organs and multiple systems of the body." Credit: LIVING SMARTER WITH FIBROMYALGIA.COM © #MySeveralWorlds #SupportFibro #TeamFibro #FibroNerds #LifeWithPain. #FibromyalgiaAwareness
August 21, 2026 at 4:45 PM
myseveralworlds.com
"Being disabled shouldn't equal being poor. Abolish the sub-minimum wage, increase income caps for disability assistance, and establish universal basic income."

Credit: Liberal Jane
Illustration

#MySeveralWorlds #ThePovertyTrap #DisabilityInclusion #DisabilityAwareness
"Being disabled shouldn't equal being poor. Abolish the sub-minimum wage, increase income caps for disability assistance, and establish universal basic income." Credit: Liberal Jane Illustration #MySeveralWorlds #ThePovertyTrap #DisabilityInclusion #DisabilityAwareness
August 18, 2026 at 2:39 PM
myseveralworlds.com
"Nothing happened. My immune system just woke up and chose violence. Again."

Credit: Postwil

#MySeveralWorlds #AutoimmuneDisease #ChronicInflammation
"Nothing happened. My immune system just woke up and chose violence. Again." Credit: Postwil #MySeveralWorlds #AutoimmuneDisease #ChronicInflammation
August 14, 2026 at 5:05 PM