Carrie Marshall - MySeveralWorlds.com
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myseveralworlds.com
Carrie Marshall - MySeveralWorlds.com
@myseveralworlds.com
✒️ I write about life with severe #ChronicPain related to #SpA #PsA #MEcfs #fibromyalgia #APS
🦋 MySeveralWorlds.com
👩‍🦼 #DisabilityAdvocate
🤝 Team Fibro & Spondylitis
🎨 DISABLED ARTIST
🌴 https://linktr.ee/myseveralworlds
Pinned
After a difficult period that took everything from me, I left #Taiwan on Dec 28 and returned to #Canada for support & #MedicalStability. I started a #GoFundMe to cover essentials for my health & treatments which are weighing heavily on me.

Chronically yours,
Carrie 🙏
🔗
gofund.me/1461d308d
Donate to Rebuilding Safely After an Unexpected Return to Canada, organized by Carrie Marshall
My name is Carrie Kellenberger. I'm a chronically ill and disa… Carrie Marshall needs your support for Rebuilding Safely After an Unexpected Return to Canada
gofund.me
"We often tell ourselves or others to be strong. Instead of instilling inspiration... it becomes another standard we have to meet. You don’t have to be strong all the time. One small step forward is still a powerful act." Via @achronicvoice.com
🔗
www.achronicvoice.com/2018/05/13/y...

#ChronicPain
You Don't Have to be Strong, Just a Little Stronger Than Before
Sometimes telling ourselves to be brave invokes fear. Here's why you don't have to be strong, just a little stronger than before.
www.achronicvoice.com
September 15, 2026 at 7:35 PM
"When you wonder why someone lives in pain without ever reaching out, I hope you
can look back to see they reached out a hundred times, and no one reached back."

Credit: Stephanie Bennett-Henry

#PainAwarenessMonth #PAM2026 #MySeveralWorlds
September 15, 2026 at 3:07 PM
Reposted by Carrie Marshall - MySeveralWorlds.com
"The idea of #cleaning has an elevated place in #Japanese #culture, influenced by the concept of do (“way”), which frames the honing of any #skill as a journey of #SelfImprovement.": buff.ly/JssRjeZ

via MonocleMag
#PersonalDevelopment #EducationSystem #japan #school
How Japan’s schools teach life lessons beyond the classroom
There’s far more to Japanese schools than rote learning and cramming. Our Tokyo bureau chief explores the country’s best-in-class approaches...
monocle.com
September 14, 2026 at 2:31 PM
"Like so many Spoonies, I struggle to find words to describe what my life is like living with severe limitations and daily chronic pain."

Credit: Carrie, My Several Worlds

🔗 LINK in comments!

#PainAwarenessMonth #PAM2026 #LetsTalkAboutPain
#MySeveralWorlds #SolvePainTogether
September 14, 2026 at 2:52 PM
In Their Own Words: #MECFS & #Fibromyalgia Patients Describe Their Symptoms @cortjohnson.bsky.social
"I would not wish this illness on my worst enemy (if I had one)... sometimes I wish the naysayers could live in our bodies."
🔗
www.healthrising.org/forums/resou...

#MEAwareness #PainAwarenessMonth
In Their Own Words: Chronic Fatigue Syndrome and Fibromyalgia Patients Describe Their Symptoms
I would not wish this illness on my worst enemy (if I had one), but sometimes I wish the naysayers could live in our bodies for a few days.. The symptoms are taken from a thread on the Health Rising ...
www.healthrising.org
September 13, 2026 at 5:15 PM
When you live with chronic #anxiety, sometimes you just want to switch your brain off. Read what anxiety and #PanicAttacks feel like here, and how friends can be the saving grace
🔗
buff.ly/37pXrBD
The Savagery of Panic Attacks & The Saving Grace of Internet Friends
Anxiety and panic attacks have been plaguing me with the lockdown. But a new pup and internet friends with chronic illness have sustained me.
buff.ly
September 13, 2026 at 5:13 PM
Nerve Pain Referred

Aka why I hurt all the time with axial disease.

ALT TEXT added.

C1
C2
C3
C4
C5
C6
C7
T1
T2
T3
T4
T5
T6
T7
T8
T9
T10
T11
T12
L1
L2
L3
L4
L5
Sacrum
Coccoyx

Credit: MassageNerd

#PainAwarenessMonth #PAM2026 #MySeveralWorlds #LetsTalkAboutPain
September 13, 2026 at 3:22 PM
The Freedom to Move with #Spondylitis. The last time I wrote for @spondylitis I was testing an exoskeleton. Now I’m cruising in a Robooter X40 chair. Read my article on the pros of using a #PowerWheelchair
🔗
spondylitis.org/patient-stor...

#ArthritisAwarenessMonth #PainAwarenessMonth
The Freedom to Move with Spondylitis
Resilience and conviction—being your own advocate—aren’t unique traits, but for those of us navigating health challenges, they’re a way of life. We’re fighters. And that’s something to be proud of, wh...
spondylitis.org
September 13, 2026 at 2:02 AM
Young adults in Singapore: “Even if I were to wear the #disability lanyard, I’m...sceptical people would give up their seat for me.”
Pang is 25. He has #AnkylosingSpondylitis.

We have many similar stories in #Taiwan with 'Who gets a disability seat?'
🔗 www.channelnewsasia.com/cna-insider/...
They’re young, they look healthy, but they need a seat on the train. This is why
These young adults suffer from autoimmune diseases whose symptoms are not often visible, leading to misconceptions and judgement. How do they navigate work, relationships and life in general while end...
www.channelnewsasia.com
September 13, 2026 at 1:53 AM
I had a terrifying hemorrhage on Friday, Sept 5. I was in two ERs with an ambulance transfer. I have #APS. I had a perfect dental extraction. Hours later it resulted in 100+ #clots. I bled for 24 hours. No one knew what to do. No one listened to me.

#AntiphospholipidSyndrome
September 13, 2026 at 1:37 AM
My #insomnia was diagnosed in uni.

"Primary insomnia is a type of chronic insomnia as defined by the ICSD-III. It tends to recur for many years throughout a person’s life. This type of insomnia is usually idiopathic... It can be impacted by stress."
🔗
www.psychiatrictimes.com/view/primary...
Primary Insomnia: A Lifelong Problem | Psychiatric Times
When provided with an array of treatment options, patients tend to feel a sense of ownership by playing a role in their care.
www.psychiatrictimes.com
September 13, 2026 at 1:27 AM
"There is a severe shortage of pain specialists with approximately 30,000 Americans in pain for every board certified pain specialist. This shortage is caused by a difficult path to specializing in pain treatment plus negative public scrutiny."
🔗
www.practicalpainmanagement.com/resources/et...
Can I Call Myself a “Pain Specialist?”
Who defines the role of pain specialists? Inside the legal requirements for practitioners.
www.practicalpainmanagement.com
September 13, 2026 at 1:25 AM
"I'm convinced I was a warrior in a previous life and have carried over all my battle wounds into this life. Why else would everything hurt so much? Plus this sounds cooler."

Credit: unknown

#PainAwarenessMonth #PAM2026 #LetsTalkAboutPain #MySeveralWorlds
September 12, 2026 at 3:43 PM
Non verbal signs of pain:

😟 Facial expressions
🧍‍♀️Body posture.
😭 Crying/sounds of distress
🫥Withdrawal
🤬 Mood changes
😕 Confusion
👐 Hand movements show distress
🥵 Excessive sweating
🔗
MySeveralWorlds.com

#PainAwarenessMonth #PAM2026 #ArthritisAwarenessMonth #MySeveralWorlds #SuicideAwareness
September 11, 2026 at 2:58 PM
Metaphors are keys for opening the doors to understanding, for illustrating concepts that the average person is able to relate to. Despite living w #ChronicIllness for 20+ years, I realise that there is still so much I don’t know about.
🔗
www.achronicvoice.com/2016/04/11/q...

@achronicvoice.com
A Quarterly Reflection: 12 Important Life Lessons I’ve Learned
I was surprised to find that I have learned many important life lessons from writing and blogging — even when I had only started it for 4 months.
buff.ly
September 11, 2026 at 12:55 AM
I smile through the pain…nausea…exhaustion…I have really bad days and those far outnumber the good. They can be absolutely awful… I’d give anything for a cure but since that’s not reality now—I play the hand I was dealt.”
🔗
buff.ly/3vPhveX #CRPS

via @apainprincess.bsky.social

#PAM2026
The Lessons I've Learned From CRPS That I Don't Regret
"Surprisingly, there are upsides to invisible illnesses."
buff.ly
September 11, 2026 at 12:51 AM
"The book of autoimmune disease symptoms and related conditions."

Credit: Bored Panda

❓Guess what I am searching through for tomorrow's appointment with the vascular specialist?

#APS #Edema #PAM2026 #PainAwarenessMonth #AutoimmuneDisease #AntiphospholipidSyndrome #MySeveralWorlds
September 10, 2026 at 3:13 PM
There is a severe shortage of pain specialists w approx 30,000 Americans in pain for every board certified pain specialist. This shortage is caused by a difficult path to specializing in pain treatment & negative public scrutiny.
MySeveralWorlds.com
#PainAwarenessMonth #PAM2026 #LetsTalkAboutPain
September 9, 2026 at 4:08 PM
"#Actions speak louder than words. Where are you focusing your time and energy, and what or whom for? Where do your #priorities lie? If the things you take pride in are all suddenly taken away from you, who are you, then?"
🔗
buff.ly/YnTDkIM

@achronicvoice.com
#SelfIdentity #ChronicIllness
Loss of Identity with Chronic Illness & The Plot Twist: Sharpened Self-Worth
The loss of identity with chronic illness is an inevitable trauma experienced with a new diagnosis. Here's how to regain your self-worth.
buff.ly
September 4, 2026 at 3:14 PM
High intensity #ChronicPainfeels like being wrapped in barbed wire.

When symptoms such as stabbing and electric pain start hitting at high intensity, #depression follows fast and your #MentalHealth spirals. It feels like you are dying. ~Carrie, MySeveralWorlds.com

#PainAwarenessMonth #PAM2026
September 4, 2026 at 3:09 PM
Reposted by Carrie Marshall - MySeveralWorlds.com
Henri #Matisse at work with his assistant cat, 1942
📷: Robert Capa
September 3, 2026 at 2:47 PM
Reposted by Carrie Marshall - MySeveralWorlds.com
“There are millions of #patients who have taken #opioids safely for years… Opioids actually gave them more life, because they were able to work, exercise and function when their pain was properly managed.” buff.ly/44n9aec @PainNewsNetwork.bsky #ChronicPain #CRPS
September 3, 2026 at 12:23 AM
Many thanks to Melissa at @teamfibro (Fibromyalgia National Health Organization) for featuring my journey with #fibromyalgia. Learn top tips for #LifeWithFibromyalgia
🔗
supportfibromyalgia.org/fibromyalgia...

#PainAwarenessMonth #FibroNerds #MySeveralWorlds
#SupportFibro #PAM2026 #TeamFibro
supportfibromyalgia.org
September 4, 2026 at 2:26 AM