Princess in the Tower
@apainprincess.bsky.social
Healing Portal for everyone affected by severe #ChronicPain & #ChronicIllness~by a princess with full body #CRPS.
Resources, community, awareness | www.princessinthetower.org
#YouAreNotAlone ~ wishing you support, strength & hope for far kinder days.♥
Resources, community, awareness | www.princessinthetower.org
#YouAreNotAlone ~ wishing you support, strength & hope for far kinder days.♥
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“If opening your eyes, or getting out of bed, or holding a spoon, or combing your hair is the daunting Mount Everest you climb today, that is okay.” ~ Carmen Ambrosia
#MentalHealthMatters #ChronicPain #ChronicIllness #RareDisease
#MentalHealthMatters #ChronicPain #ChronicIllness #RareDisease
“It’s not our place to judge how another copes with their #diagnosis… How [it] affects one person can be drastically different from another—neither are wrong… What you share is for you to determine… None of us owe anyone the full picture of our health.” https://buff.ly/IrXM0b3 #ChronicIllness
September 10, 2026 at 4:23 PM
“It’s not our place to judge how another copes with their #diagnosis… How [it] affects one person can be drastically different from another—neither are wrong… What you share is for you to determine… None of us owe anyone the full picture of our health.” https://buff.ly/IrXM0b3 #ChronicIllness
“What I need you to know when I don’t reply is that I’m doing my best. I know it may not seem it…if your message stays unread. Or worse—read but not responded to. I know you probably think it makes me rude but it’s simply as I have nothing left.” https://buff.ly/4gbE40b #chronicillness #chronicpain
September 10, 2026 at 12:23 AM
“What I need you to know when I don’t reply is that I’m doing my best. I know it may not seem it…if your message stays unread. Or worse—read but not responded to. I know you probably think it makes me rude but it’s simply as I have nothing left.” https://buff.ly/4gbE40b #chronicillness #chronicpain
“The rug’s been pulled out from beneath you—so give yourself time to mourn… You may lose friends [who] don’t “get it.” You may have to adjust…but you’re likely to gain new friends who don’t care if you’ve not been able to blow-dry your hair since 2007.” https://buff.ly/3TDw4vD
September 9, 2026 at 4:23 PM
“The rug’s been pulled out from beneath you—so give yourself time to mourn… You may lose friends [who] don’t “get it.” You may have to adjust…but you’re likely to gain new friends who don’t care if you’ve not been able to blow-dry your hair since 2007.” https://buff.ly/3TDw4vD
“When we live with pain, we soon learn that everything we do comes with a cost… That cost is more pain, often accompanied by #fatigue. That lovely gift for simply having a shower, making a meal or visiting a relative can last for hours, days—even weeks.” https://buff.ly/ICwc4lY #PainAwarenessMonth
September 9, 2026 at 12:23 AM
“When we live with pain, we soon learn that everything we do comes with a cost… That cost is more pain, often accompanied by #fatigue. That lovely gift for simply having a shower, making a meal or visiting a relative can last for hours, days—even weeks.” https://buff.ly/ICwc4lY #PainAwarenessMonth
“So many people don’t know that this is my life. Weekly doctor visits and tests… No matter what, just gotta smile through it… I’m happy just to finally have my #diagnosis.” https://themighty.com/topic/chronic-illness/chronic-disease-photos/ #ChronicIllness #ChronicPain
September 8, 2026 at 7:23 PM
“So many people don’t know that this is my life. Weekly doctor visits and tests… No matter what, just gotta smile through it… I’m happy just to finally have my #diagnosis.” https://themighty.com/topic/chronic-illness/chronic-disease-photos/ #ChronicIllness #ChronicPain
“People with #ChronicPain don’t get a break from feeling tired. We just have to keep going… The pain can be so intense that it just exhausts…physically and mentally.” When Your Chronic Pain Leaves You in a Constant State of Tiredness buff.ly/2QDK9qf #PainAwarenessMonth #RareDiseases
September 7, 2026 at 4:23 PM
“People with #ChronicPain don’t get a break from feeling tired. We just have to keep going… The pain can be so intense that it just exhausts…physically and mentally.” When Your Chronic Pain Leaves You in a Constant State of Tiredness buff.ly/2QDK9qf #PainAwarenessMonth #RareDiseases
“Every #ChronicIllness and pain patient does not know, from day-to-day, how they are going to feel when they wake up and each day has to be taken as it comes. In many cases, they don’t know from minute to minute.” https://cme.sh/19oQre @apainprincess.bsky #PainAwarenessMonth #IntractablePain
September 7, 2026 at 12:23 AM
“Every #ChronicIllness and pain patient does not know, from day-to-day, how they are going to feel when they wake up and each day has to be taken as it comes. In many cases, they don’t know from minute to minute.” https://cme.sh/19oQre @apainprincess.bsky #PainAwarenessMonth #IntractablePain
“We don’t want to sound like we’re complaining… This is why most #chronicillness warriors aren’t vocal about their struggles… but please keep in mind that there’s a huge difference between feeling that way once or feeling that every day of your life.” https://buff.ly/3IaJj0f #PainAwarenessMonth
September 6, 2026 at 4:23 PM
“We don’t want to sound like we’re complaining… This is why most #chronicillness warriors aren’t vocal about their struggles… but please keep in mind that there’s a huge difference between feeling that way once or feeling that every day of your life.” https://buff.ly/3IaJj0f #PainAwarenessMonth
“I’m practically #bedbound so going anywhere is a huge production. Just leaving my house results in a multi-day setback. Having to for multiple days and stay somewhere unfamiliar? It can wreck me.” https://www.disabledginger.com/p/what-if-this-flare-never-ends @broadwaybabyto.bsky.social #disability
September 6, 2026 at 12:23 AM
“I’m practically #bedbound so going anywhere is a huge production. Just leaving my house results in a multi-day setback. Having to for multiple days and stay somewhere unfamiliar? It can wreck me.” https://www.disabledginger.com/p/what-if-this-flare-never-ends @broadwaybabyto.bsky.social #disability
“It’s a very lonely feeling when you truly recognize that your friends and family just simply don’t get it, and you can’t totally expect them to.” How #ChronicPain Made Me Feel Unworthy of Love https://themighty.com/2017/06/chronic-pain-and-being-worthy-of-love/ #PainAwarenessMonth #ChronicIllness
September 5, 2026 at 4:23 PM
“It’s a very lonely feeling when you truly recognize that your friends and family just simply don’t get it, and you can’t totally expect them to.” How #ChronicPain Made Me Feel Unworthy of Love https://themighty.com/2017/06/chronic-pain-and-being-worthy-of-love/ #PainAwarenessMonth #ChronicIllness
“People with chronic pain live through this night after night. It can become a harrowing cycle, since a lack of sleep can ramp up pain levels, which results in another wide-awake night — even when we take our medication.” buff.ly/2yajY29 #PainAwarenessMonth #ChronicPain #Painsomnia
September 5, 2026 at 2:23 PM
“People with chronic pain live through this night after night. It can become a harrowing cycle, since a lack of sleep can ramp up pain levels, which results in another wide-awake night — even when we take our medication.” buff.ly/2yajY29 #PainAwarenessMonth #ChronicPain #Painsomnia
“It’s a very lonely feeling when you truly recognize that your friends and family just simply don’t get it, and you can’t totally expect them to.” How #ChronicPain Made Me Feel Unworthy of Love https://themighty.com/2017/06/chronic-pain-and-being-worthy-of-love/ #PainAwarenessMonth #ChronicIllness
September 4, 2026 at 4:23 PM
“It’s a very lonely feeling when you truly recognize that your friends and family just simply don’t get it, and you can’t totally expect them to.” How #ChronicPain Made Me Feel Unworthy of Love https://themighty.com/2017/06/chronic-pain-and-being-worthy-of-love/ #PainAwarenessMonth #ChronicIllness
“The real hardships come from the repercussions of being in #pain all the time—the exhaustion, mental blur, inability to connect… because of the constant blinding discomfort… Even the simplest things become so complicated.” https://www.theodysseyonline.com/why-does-nobody-understand-that-im-ill/
September 4, 2026 at 12:23 AM
“The real hardships come from the repercussions of being in #pain all the time—the exhaustion, mental blur, inability to connect… because of the constant blinding discomfort… Even the simplest things become so complicated.” https://www.theodysseyonline.com/why-does-nobody-understand-that-im-ill/
“People with #ChronicPain don’t get a break from feeling tired. We just have to keep going… The pain can be so intense that it just exhausts…physically and mentally.” When Your Chronic Pain Leaves You in a Constant State of Tiredness buff.ly/2QDK9qf #PainAwarenessMonth #InvisibleIllness
September 3, 2026 at 4:23 PM
“People with #ChronicPain don’t get a break from feeling tired. We just have to keep going… The pain can be so intense that it just exhausts…physically and mentally.” When Your Chronic Pain Leaves You in a Constant State of Tiredness buff.ly/2QDK9qf #PainAwarenessMonth #InvisibleIllness
“There are millions of #patients who have taken #opioids safely for years… Opioids actually gave them more life, because they were able to work, exercise and function when their pain was properly managed.” buff.ly/44n9aec @PainNewsNetwork.bsky #ChronicPain #CRPS
September 3, 2026 at 12:23 AM
“There are millions of #patients who have taken #opioids safely for years… Opioids actually gave them more life, because they were able to work, exercise and function when their pain was properly managed.” buff.ly/44n9aec @PainNewsNetwork.bsky #ChronicPain #CRPS
“Your pain scale shifts when you have chronic pain. When doctors ask what your pain is on a scale of 1-10, I had to ask, 'your 1-10 or mine?'” 23 Things That Help You Understand What #ChronicPain Is Really Like https://www.buzzfeed.com/anthonyrivas/chronic-pain-all-day-everyday #PainAwarenessMonth
September 2, 2026 at 12:23 AM
“Your pain scale shifts when you have chronic pain. When doctors ask what your pain is on a scale of 1-10, I had to ask, 'your 1-10 or mine?'” 23 Things That Help You Understand What #ChronicPain Is Really Like https://www.buzzfeed.com/anthonyrivas/chronic-pain-all-day-everyday #PainAwarenessMonth
“You don’t ever get a break from chronic pain. #ChronicPain is a vicious cycle, and wears you out to your core. Not only does everything hurt, but you also are always so incredibly tired from not being able to sleep, you don’t get good rest.” buff.ly/2z8ll20 #Painsomnia #PainAwarenessMonth
September 1, 2026 at 4:23 PM
“You don’t ever get a break from chronic pain. #ChronicPain is a vicious cycle, and wears you out to your core. Not only does everything hurt, but you also are always so incredibly tired from not being able to sleep, you don’t get good rest.” buff.ly/2z8ll20 #Painsomnia #PainAwarenessMonth
“As the world outside continues to turn, I remain laid up in the one thing that eases any physical pain. The mental pain it causes however hurts much more.” What It's Really Like to Stay in Bed Due to Pain https://themighty.com/topic/chronic-illness/struggles-of-being-bed-ridden/ #PainAwarenessMonth
August 31, 2026 at 4:23 PM
“As the world outside continues to turn, I remain laid up in the one thing that eases any physical pain. The mental pain it causes however hurts much more.” What It's Really Like to Stay in Bed Due to Pain https://themighty.com/topic/chronic-illness/struggles-of-being-bed-ridden/ #PainAwarenessMonth
“It can feel like #ChronicIllness is like living in a prison. Symptoms imprison you to spending a large amount of time at home… Your world becomes smaller and smaller, leading to loneliness and isolation.” Silent Symptoms https://buff.ly/3IhCuKh @despitepain.bsky #ChronicPain
August 31, 2026 at 12:23 AM
“It can feel like #ChronicIllness is like living in a prison. Symptoms imprison you to spending a large amount of time at home… Your world becomes smaller and smaller, leading to loneliness and isolation.” Silent Symptoms https://buff.ly/3IhCuKh @despitepain.bsky #ChronicPain
“People who are not familiar with #chronicillness often don’t understand that energy levels in people with chronic illness are different from able-bodied people—and our usable hours in a day are different as well.” https://themighty.com/topic/fibromyalgia/chronic-illness-activity-hangover/ #spoonie
August 30, 2026 at 5:23 PM
“People who are not familiar with #chronicillness often don’t understand that energy levels in people with chronic illness are different from able-bodied people—and our usable hours in a day are different as well.” https://themighty.com/topic/fibromyalgia/chronic-illness-activity-hangover/ #spoonie
“The nerves misfire, sending constant #pain signals to the brain. The agony is so intense…it’s measured as one of the most severe on the McGill Pain Index… Yet because this is invisible, the impact on sufferers is not acknowledged or understood.” buff.ly/QLBmOQ2
#CRPS #ChronicPain #ChronicIllness
#CRPS #ChronicPain #ChronicIllness
August 30, 2026 at 10:23 AM
“The nerves misfire, sending constant #pain signals to the brain. The agony is so intense…it’s measured as one of the most severe on the McGill Pain Index… Yet because this is invisible, the impact on sufferers is not acknowledged or understood.” buff.ly/QLBmOQ2
#CRPS #ChronicPain #ChronicIllness
#CRPS #ChronicPain #ChronicIllness
“Look for beauty. No matter how awful it is, there is still beauty…your cat purring, a sunset, time spent with those you love. No matter how bleak you feel, remember there is still beauty… You are so much stronger than you think.” https://themighty.com/topic/fibromyalgia/fibromyalgia-flare-reminders
August 28, 2026 at 4:23 PM
“Look for beauty. No matter how awful it is, there is still beauty…your cat purring, a sunset, time spent with those you love. No matter how bleak you feel, remember there is still beauty… You are so much stronger than you think.” https://themighty.com/topic/fibromyalgia/fibromyalgia-flare-reminders
“I tend to put pressure on myself to ‘power through’ pain to prove that I am capable: But powering through pain can cause more harm than good, and it is okay to not ‘power through’!” Why Do I Pretend To Be Well? #ChronicPain #InvisibleIllness
Why Do I Pretend To Be Well?
Why Do I Pretend To Be Well?
cme.sh
August 26, 2026 at 12:23 AM
“I tend to put pressure on myself to ‘power through’ pain to prove that I am capable: But powering through pain can cause more harm than good, and it is okay to not ‘power through’!” Why Do I Pretend To Be Well? #ChronicPain #InvisibleIllness
“It demands our full attention, and it takes most of our energy—being in pain… Maybe you want to advocate for people with #ChronicPain — Maybe the pain has taught you something that you can put into #writing or #art or #poetry or #music or song.” https://themighty.com/2017/07/hope-and-chronic-pain/
August 25, 2026 at 4:23 PM
“It demands our full attention, and it takes most of our energy—being in pain… Maybe you want to advocate for people with #ChronicPain — Maybe the pain has taught you something that you can put into #writing or #art or #poetry or #music or song.” https://themighty.com/2017/07/hope-and-chronic-pain/
“Being more honest and realistic about my limitations with #chronicillness is also key to learning to love yourself. For the longest time, I felt afraid to tell people how I was feeling.” https://buff.ly/W7IZIiT @carriekellenberger.bsky.social #MentalHealthMatters #YouAreNotAlone
August 25, 2026 at 12:23 AM
“Being more honest and realistic about my limitations with #chronicillness is also key to learning to love yourself. For the longest time, I felt afraid to tell people how I was feeling.” https://buff.ly/W7IZIiT @carriekellenberger.bsky.social #MentalHealthMatters #YouAreNotAlone