#BatemanHorneCenter
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batemanhornecenter.bsky.social
Check out The Basics: Orthostatic Intolerance with Clayton Powers, DPT! Learn about OI, its symptoms, and tips for pacing upright activities.

Watch now: bit.ly/3W9TzNG
#OrthostaticIntolerance #BatemanHorneCenter #ChronicIllness #PatientEducation
January 10, 2025 at 3:36 AM
coastalthinking.bsky.social
💙🧦 #WildSocksForMECFS Awareness
@BatemanHorneCenter 🧦💙

Millions of people live with ME/CFS, a debilitating disease that urgently needs more research, better care, and greater awareness.

Penguin socks 🐧 because @BatemanHorneCenter is a beacon for #pwME #pwLC even in the #SouthernHem 🩵
Wild socks featuring black&white penguins against a blue background
March 26, 2025 at 7:10 AM
amymooney.bsky.social
Honored to join a dedicated team of clinicians, researchers, and individuals with lived experience to create the Clinical Care Guide: Managing ME/CFS, Long COVID & IACCs. A joint project of @batemanhornecenter and @OpenMedF’s MERC program. Access it now! batemanhornecenter.org/clinical-car...
May 9, 2025 at 7:04 PM
batemanhornecenter.bsky.social
Q: What’s the connection between COVID-19 & ME/CFS?
A: Certain infections raise the risk of ME/CFS. Evidence shows SARS-CoV-2 (the virus behind COVID-19) increases that risk 5-fold. Raising awareness is key! 💙

#MECFS #LongCOVID #ChronicIllness #Awareness #BatemanHorneCenter
February 5, 2025 at 7:21 PM
batemanhornecenter.bsky.social
The Fall 2025 BHC Newsletter is out!

Highlights: 10 years of BHC, new research insights, “Coffee with a Clinician,” and our Platinum Transparency Seal.

📖 Read now: https://bit.ly/4onikSe
#MECFS #LongCOVID #BatemanHorneCenter
Fall 2025 Newsletter announcement by Bateman Horne Center, highlighting updates in care, research, and education.
October 21, 2025 at 2:33 PM
batemanhornecenter.bsky.social
4/4 More updates coming soon as we continue this important work with @emergeaustralia.bsky.social to expand patient education and support for #MECFS, #LongCOVID, & IACCs.

Check out the new education modules: loom.ly/TUT-cLw #GlobalCollaboration #BatemanHorneCenter
May 2, 2025 at 2:12 AM
batemanhornecenter.bsky.social
Nearly 350 educational videos.

Designed to help patients, caregivers and providers better understand complex chronic illness.

Explore our channel: https://bit.ly/4ciCQyU
A graphic with the text “Did you know BHC has a YouTube Channel?” at the top. Below is a large red rectangle with a white play button icon representing YouTube. At the bottom, the link reads “YouTube.com/@BatemanHorneCenter.”
April 27, 2026 at 2:45 PM
batemanhornecenter.bsky.social
💥Join the Wild Socks Challenge!
1️⃣ Snap a pic in your wildest socks
2️⃣ Post on social media, tag @BatemanHorneCenter, & use #WildSocksForMECFS
3️⃣ Donate $10 to support ME/CFS research via BHC's Kudoboard! loom.ly/d4vXRFI
Let’s raise awareness together! #WildSocksForMECFS
Kudoboard for Bateman Horne Center | Kudoboard
Kudoboard is an online replacement for the greeting card that you pass around and sign!
loom.ly
March 24, 2025 at 6:39 PM
mia-67198.bsky.social
Merke wie sehr das auch in mir drin ist

Mir hilft phasenweise DXM
BatemanHorneCenter führt das bei PEM auf

DXM wird auch gegen Depression erforscht

-> hab ich also doch 'nur' ne therapieresistente Depression?

Viel größer die Angst, dass Ärzte das als Bestätigung sehen & #mecfs daher ignorieren
bettinagrande.bsky.social Bettina Grande @bettinagrande.bsky.social · Apr 3
2/4
Parallel dazu veröffentlicht der #GBA die „Liste“ verordnungsfähiger Medikamente im Off-Label-Use:

Antidepressiva gegen Fatigue & kognitive Einschränkungen.

Die Deutung:

Wirkt bei B →
also ist B eine Form von A.

Fatigue bei
#PAIS oder #MECFS wird stillschweigend zum Depressions-Äquivalent.
Screenshot G-BA: Vier Wirkstoffe künftig im Off-Label-Use bei Long/Post-COVID verordnungsfähig. (Agomelatin/Vortioxetin): Auszug: Antidepressiva (Agomelatin, Vortioxetin) sollen Off-Label gegen Fatigue, kognitive Einschränkungen und depressive Symptome eingesetzt werden.
April 6, 2026 at 7:07 AM
batemanhornecenter.bsky.social
Following high community interest, we’ve published a deeper look at the Oxaloacetate (OAA) study in ME/CFS.
Learn how targeting cellular energy may support both fatigue and cognition.

🔗 Read the full blog: https://bit.ly/4opeqbw
#MECFS #Oxaloacetate #Research #BatemanHorneCenter
White pills on a blue background with the text: "New Blog Post: Deep Dive into the research behind Oxaloacetate (OAA) and its potential role in ME/CFS."
October 24, 2025 at 9:22 PM
massmecfs.bsky.social
MassME is proud to sign on to this letter encouraging subgroup tracking and analysis in the NIH RECOVER TLC clinical trials for Long COVID.
massmecfs.org/advocacy/nat...

#massmecfs #MEAction #SolveMe #openmedicinefoundation #batemanhornecenter #renegaderesearch #redefiningmecfs #corecommunity
NIH RECOVER TLC clinical trials for Long COVID. - Massachusetts ME/CFS & FM
massmecfs.org
September 17, 2025 at 1:27 PM
emergeaustralia.bsky.social
🌍 Free self-paced learning!

#EmergeAustralia & #BatemanHorneCenter have launched modules for #MECFS, #longCOVID & energy-limiting conditions. 🌿

Practical tools for #pacing, #PEM, orthostatic intolerance and more.

Start here: zurl.co/LLwvF
Free self-paced education tools". Smart phone with Emerge Australia and Bateman Horne Center logos "Setting the standard, elevating care
November 6, 2025 at 9:00 PM
emergeaustralia.bsky.social
🌍 Free self-paced learning!

#EmergeAustralia & #BatemanHorneCenter have launched modules for #MECFS, #longCOVID & energy-limiting conditions. 🌿

Practical tools for #pacing, #PEM, orthostatic intolerance and more.

Start here: zurl.co/LLwvF
Free self-paced education tools". Smart phone with Emerge Australia and Bateman Horne Center logos "Setting the standard, elevating care
December 4, 2025 at 9:00 PM
batemanhornecenter.bsky.social
📢 Join the Wild Socks Challenge! 🎉

In honor of 10 years of Bateman Horne Center, wear your wildest socks, tag @BatemanHorneCenter, challenge a friend, & donate $10 to get on our Wild Socks Digital Bulletin Board! 🔗 loom.ly/d4vXRFI

#WildSocksForMECFS #SockItToMECFS
Kudoboard for Bateman Horne Center | Kudoboard
Kudoboard is an online replacement for the greeting card that you pass around and sign!
loom.ly
March 18, 2025 at 5:12 PM
therecliningpoet.bsky.social
So excited to contribute to this new book created to help medical professionals, educators, caregivers, and others understand what life with myalgic encephalomyelitis is like. #MillionsMissing #pwME #myalgicencephalomyelitis #mecfs #MEAction #BatemanHorneCenter
pillowwriters.bsky.social Pillow Writers @pillowwriters.bsky.social · May 9
Huge congratulations to our WIMEL group on the publication of their incredible book.

What is Myalgic Encephalomyelitis Like? Patient & Caregiver Perspectives

The book is now available to purchase via Amazon.
May 11, 2026 at 1:37 AM
izzyisdia.bsky.social
I put together some info from the batemanhornecenter and some other Long Covid/CFS/PEM resources to give to my doctor who sent me to physical therapy which ended in an over month long crash. She's said before she's willing to read what I send her and I wish I did this when she first suggested PT...
May 2, 2026 at 2:40 PM
emergeaustralia.bsky.social
🌍 Free self-paced learning!

#EmergeAustralia & #BatemanHorneCenter have launched modules for #MECFS, #longCOVID & energy-limiting conditions. 🌿

Practical tools for #pacing, #PEM, orthostatic intolerance and more.

Start here: zurl.co/CHXkr
Graphic promoting free self-paced education tools from Emerge Australia and Bateman Horne Centre. On a light grey background, text reads ‘FREE Self-Paced Education Tools – Emerge Australia & Bateman Horne Centre’. A button says ‘Link in caption’. On the right, a smartphone mock-up displays a webpage titled ‘Setting the Standard, Elevating Care’ with both organisations’ logos.”
July 16, 2026 at 5:00 AM
emergeaustralia.bsky.social
🌍 Free self-paced learning!

#EmergeAustralia & #BatemanHorneCenter have launched modules for #MECFS, #longCOVID & energy-limiting conditions. 🌿

Practical tools for #pacing, #PEM, orthostatic intolerance and more.

Start here: zurl.co/V5gk2
Light grey Emerge Australia and Bateman Horne Centre graphic promoting “FREE Self-Paced Education Tools,” with a “Link in caption” button; on the right, a person wearing headphones studies on a laptop and writes in a notebook while sitting on a bed.
May 1, 2026 at 2:00 AM
emergeaustralia.bsky.social
🌍 Free self-paced learning!

#EmergeAustralia & #BatemanHorneCenter have launched modules for #MECFS, #longCOVID & energy-limiting conditions. 🌿

Practical tools for #pacing, #PEM, orthostatic intolerance and more.

Start here: zurl.co/LLwvF
Graphic promoting free self-paced education tools from Emerge Australia and Bateman Horne Centre. On a light grey background, text reads ‘FREE Self-Paced Education Tools – Emerge Australia & Bateman Horne Centre’. A button says ‘Link in caption’. On the right, a smartphone mock-up displays a webpage titled ‘Setting the Standard, Elevating Care’ with both organisations’ logos.”
February 26, 2026 at 9:00 PM
batemanhornecenter.bsky.social
Our Lunch & Learn is now Peer Perspectives & Connection! 🎉 Join us Thursday, February 20 at 11:30 am MT for our first gathering under the new name.
💬 Connect, share, and grow in this supportive, patient-led space.
#PeerPerspectives #CommunitySupport #BatemanHorneCenter
Cream background with the words, "Peer Perspectives & Connections" in blue font. Under that is a cartoonesk photo of a group of people with their arms around each other facing away from us, the viewer, and they are dressed in bright colors. Under the group of people is a pink background banner with the words, "This is a patient-led, community-focused gathering that takes place vitually every 3rd Thursday of the month."
February 7, 2025 at 5:44 PM
iballesty.mastodon.ie.ap.brid.gy
Original post: https://bsky.app/profile/did:plc:f3bwjyfkge7xrsqnieqknpub/post/3mqqhc2cmtr2a

Crossposted with @openvibe
🌍 Free self-paced learning! #EmergeAustralia & #BatemanHorneCenter have launched modules for #MECFS, #longCOVID & energy-limiting conditions. 🌿 Practical tools for #pacing, #PEM, orthostatic intolerance and more. Start here: zurl.co/CHXkr#EmergeAustralia & #BatemanHorneCenter have launched modules for #MECFS, #longCOVID & energy-limiting conditions. 🌿 Practical tools for #pacing, #PEM, orthostatic intolerance and more. Start here: zurl.co/CHXkr
July 21, 2026 at 5:26 PM
iballesty.bsky.social
Crossposted with @openvibe.social
@emergeaustralia.bsky.social on Bluesky
🌍 Free self-paced learning! #EmergeAustralia & #BatemanHorneCenter have launched modules for #MECFS, #longCOVID & energy-limiting conditions. 🌿 Practical tools for #pacing, #PEM, orthostatic intolerance and more. Start here: zurl.co/CHXkr
bsky.app
July 21, 2026 at 5:26 PM