#BrainSurgerySurvivor
Met my $500 goal just in time for the PA #Walk4Hearing. Grateful for everyone’s support for me, other #AcousticNeuroma patients, and other folks with #HearingLoss. If anyone still wants to donate, feel free to share my page. Fundraising continues through December 19.

#BrainSurgerySurvivor
October 27, 2026 at 10:12 PM
New party trick…my skull/scalp is now a barometer. I get a tightness/tingling where the shunt is when it’s going to rain. Feeling it today. #brainsurgerysurvivor #vpshunt #humanbarometer
July 1, 2025 at 3:46 PM
Anxiously awaiting my 7 years post-op MRI results, praying for no tumor regrowth, wearing #TheAirborneToxicEvent #TheLastNightOnEarth shirt for good luck. Listening to #TATE made the MRI more bearable. Treated myself to lunch from POKE-MAN after. 😋

#AcousticNeuromaWarrior
#BrainSurgerySurvivor
June 4, 2026 at 4:04 AM
#HappyNewYear to all!

This #NewYearsEve was the 5 yr anniversary of #NewYears spent at #JohnsHopkins a couple days after Grayson’s successful #BrainSurgery

Grayson is thriving at 5 yrs post surgery & we are so thankful for Dr. Cohen.

Blessings on 2025!

#brainsurgerysurvivor
#CampFamTC
January 1, 2025 at 2:54 PM
Wow, on this day 12 years ago, I was 30 days post-brain surgery, still having nightmares from the pain medication and the staples were still in my scalp. #memories #brainsurgerysurvivor #epilepsy
November 3, 2025 at 10:12 AM
#TIL my neurosurgeon wrote my birthday brain surgery up so I would have a solo room for pre-op and post-op in such a way the hospital couldn’t refuse it or charge me extra for it. Then the hospital waived the bill. Yeah, he’s pretty awesome. #Epilepsy #BrainSurgerySurvivor
May 29, 2025 at 2:25 AM
Ironic that tonight I’m watching Jamie Foxx’s new standup comedy “What Had Happened Was” about him surviving a brain bleed too bc I’ve been there, I know what he went through and today is my 10 year brain surgery anniversary. Congratulations to Jamie Foxx 💗 #brainsurgerysurvivor #BlackSky
December 15, 2024 at 1:17 AM
On this day in Dec 2014 - My October 3 Birthday Brain AVM/Aneurysm removal surgery was declared a SUCCESS by the neurosurgeon 🎉 and I went on to do boot camp, law enforcement officer, law school, Bar exam and attorney.
#epilepsy #brainsurgerysurvivor #LawSky #BlackSky
December 14, 2024 at 9:52 PM
The Bluesky community has been so amazing re: likes and reposts. For a short time I was able to reciprocate, but I’m running out of steam. January 2025 marked 8 years since my brain surgery. I have many deficits. Please bare with me and know I appreciate you!🙏🫶
#raredisease #brainsurgerysurvivor
February 17, 2025 at 7:44 PM