#chiarimalformation
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unremarkableme.bsky.social
#UnremarkableMe #EDS&Chiari
#chronicIllness #EDS #hEDS #Chiarimalformation
June 11, 2025 at 7:06 AM
unremarkableme.bsky.social
#UnremarkableMe #Chronicillness #EhlersDanlos #ChiariMalformation #hEDS #EDS
www.unremarkableMe.com
www.UnremarkableMe.com/Music
June 3, 2025 at 6:48 AM
unremarkableme.bsky.social
#Chronicallyillhumour #UnremarkableMe #EhlersDanlos #ChiariMalformation #EDS #hEDS
June 5, 2025 at 10:06 AM
unremarkableme.bsky.social
#Chronicallyillhumour #UnremarkableMe #EhlersDanlos #ChiariMalformation #EDS #hEDS
June 5, 2025 at 10:04 AM
unremarkableme.bsky.social
UnremarkableMe.com #hEDS
#EDS&Chiari
#ChronicIllness #EDS #POTS #DisabilityAwareness #UnremarkableMe #StillHere #ChiariMalformation
June 16, 2025 at 8:25 AM
unremarkableme.bsky.social
#UnremarkableMe #EDS&Chiari #hEDS #EDS #Chronicillness #ChiariMalformation
June 12, 2025 at 8:28 AM
unremarkableme.bsky.social
#UnremarkableMe #EDS&Chiari
#EDS #ChronicIllness #hEDS
#ChiariMalformation
June 11, 2025 at 6:54 AM
unremarkableme.bsky.social
#Unremarkableme #EDS&Chiari
#EDS #hEDS #ChiariMalformation
#Chronicillness
June 10, 2025 at 8:42 AM
unremarkableme.bsky.social
#UnremarkableMe #EhlersDanlos #ChiariMalformation #hEDDS
#Chronicillness
June 4, 2025 at 9:11 AM
unremarkableme.bsky.social
UnremarkableMe.com #hEDS
#EDS&Chiari
#ChronicIllness #EDS #POTS #DisabilityAwareness #UnremarkableMe #StillHere #ChiariMalformation
June 16, 2025 at 8:14 AM
unremarkableme.bsky.social
#Unremarkableme.com
#EDS #ChronicIllness #UnremarkableMe #EDS&Chiari
#hEDS #ChiariMalformation
June 16, 2025 at 8:06 AM
unremarkableme.bsky.social
#UnremarkableMe #BeKindToYourself #EhlersDanlos
#EDS #hEDS #ChiariMalformation
#chronicillness
June 7, 2025 at 10:21 AM
andrealausell.bsky.social
the life of someone with spina bifida & chiari malformation 🤪
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#wearamask #disabled #disabledlatina #boricua #cubana #spinabifida #chiarimalformation
September 4, 2025 at 4:12 PM
unremarkableme.bsky.social
#UnremarkableMe #EDS&Chiari
#Chronicillness #EDS #hEDS #ChiariMalformation
June 11, 2025 at 7:02 AM
wrenchingcatlover.bsky.social
So eating healthy will magically make my brain go back into my head properly and not descend into my spinal canal? #chiarimalformation
January 12, 2025 at 7:16 PM
unremarkableme.bsky.social
#UnremarkableMe #BeKindToYourself #EhlersDanlos
#EDS #hEDS #ChiariMalformation
#chronicillness
June 7, 2025 at 10:15 AM
unremarkableme.bsky.social
Day 4 in hospital, and all my vain’s are collapsing…. #EDS #ChiariMalformation #CFSleaks
May 5, 2025 at 10:30 AM
tempus-wanderer.bsky.social
New Painting: Chiari Out. This painting honors the medical condition known as the Chiari Malformation type 1, where the brain herniates and compresses out of the skull. Symptoms can include dizziness and headaches among others.

#artseller #chiarimalformation #watercolorpainting #watercolor #brain
October 20, 2025 at 8:47 PM
nicolesylvie.bsky.social
Things that are hard when you’re mentally exhausted #chiarimalformation #chronicpain #chronicillness
June 25, 2025 at 10:31 PM
ehlers-danlos.com
September is #ChiariAwarenessMonth. Dr. Clair Francomano explains the symptoms of Chiari Malformation, when to seek neurological evaluation, and resources for support: youtu.be/iCayugcfB6U?...

#chiarimalformation #PainAwarenessMonth
Doctor Explains Everything You Need to Know About Chiari Malformation
YouTube video by Doctor Clair
youtu.be
September 14, 2026 at 6:51 PM
unremarkableme.bsky.social
UnremarkableMe.com #hEDS
#EDS&Chiari
#ChronicIllness #EDS #POTS #DisabilityAwareness #UnremarkableMe #StillHere #ChiariMalformation
June 16, 2025 at 8:25 AM
unremarkableme.bsky.social
Tired of hearing “There’s no research on that”? Same. So I wrote a guide for becoming your own research detective—without losing your mind #unremarkableme.com
#ChiariMalformation #EDS #EDS&Chiari #ChronicIllness #ChiariMalformation #BeYourOwnAdvocate #hEDS

www.unremarkableme.com/post/how-to-...
How to Hunt Medical Research Without Losing the Plot
By Antonia @ Unremarkable Me(Chronically ill, hilariously tired, and powered by sarcasm and sheer spite.)Let’s be brutally honest for a second.If you live with conditions like Chiari Malformation, Ehl...
www.unremarkableme.com
June 10, 2025 at 9:01 AM
finkshrink.bsky.social
This story is about a colleague's wife- written by their son. It's a remarkable story& important for any physician to know about. Repairing a CSF leak reversed years of devastating symptoms & a diagnosis of #Alzheimers
#sciencesaveslives #medsky
#chiarimalformation @drhowardliu.bsky.social
My Mom Was Diagnosed with Alzheimer’s. Then She Got Better.
My family experienced a miracle last year. It began with a tragedy.
www.thefp.com
February 10, 2025 at 9:32 PM
unremarkableme.bsky.social
Chronic illness doesn’t come with neat story arcs. Sometimes there’s no crisis. No recovery. Just the long middle where staying alive takes everything you have. #EDS #NHS #ChiariMalformation
#ChronicIllness
#InvisibleDisability
#UnremarkableMe

www.unremarkableme.com/post/i-didn-...
I Didn’t Disappear. I Was Busy Surviving
23 December 2025Author: Antonia @UnremarkableMeFor the last six months, Unremarkable Me went quiet.Not in a dramatic, flounce off stage kind of way. There was no announcement, no carefully worded post...
www.unremarkableme.com
January 5, 2026 at 8:01 AM