August 23, 2025 at 9:13 PM
December 14, 2024 at 6:16 PM
You’re allowed to rest.
You’re allowed to cancel.
You’re allowed to protect your peace — even if everyone else is in “go” mode. 💜
#ChronicIllness #ArthritisAwarenessMonth #RestIsProductive #SpoonieLife #CreakyJoints
You’re allowed to cancel.
You’re allowed to protect your peace — even if everyone else is in “go” mode. 💜
#ChronicIllness #ArthritisAwarenessMonth #RestIsProductive #SpoonieLife #CreakyJoints
May 16, 2025 at 5:34 PM
You’re allowed to rest.
You’re allowed to cancel.
You’re allowed to protect your peace — even if everyone else is in “go” mode. 💜
#ChronicIllness #ArthritisAwarenessMonth #RestIsProductive #SpoonieLife #CreakyJoints
You’re allowed to cancel.
You’re allowed to protect your peace — even if everyone else is in “go” mode. 💜
#ChronicIllness #ArthritisAwarenessMonth #RestIsProductive #SpoonieLife #CreakyJoints
You don’t need permission to:
Rest
~Leave early
~Cancel without guilt
~Say it’s too much
~Use mobility aids
~Take up space
~Redefine what “productive” is
~Protect your peace
Chronic illness doesn’t ask for permission — neither should your boundaries.
#CreakyJoints
Rest
~Leave early
~Cancel without guilt
~Say it’s too much
~Use mobility aids
~Take up space
~Redefine what “productive” is
~Protect your peace
Chronic illness doesn’t ask for permission — neither should your boundaries.
#CreakyJoints
April 17, 2025 at 7:44 AM
You don’t need permission to:
Rest
~Leave early
~Cancel without guilt
~Say it’s too much
~Use mobility aids
~Take up space
~Redefine what “productive” is
~Protect your peace
Chronic illness doesn’t ask for permission — neither should your boundaries.
#CreakyJoints
Rest
~Leave early
~Cancel without guilt
~Say it’s too much
~Use mobility aids
~Take up space
~Redefine what “productive” is
~Protect your peace
Chronic illness doesn’t ask for permission — neither should your boundaries.
#CreakyJoints
The ones pushing through pain.
The ones showing up anyway.
The ones making this community powerful.
WE SEE YOU!
#ItsNotJustArthritis #CreakyJoints #ArthritisAwarenessMonth
The ones showing up anyway.
The ones making this community powerful.
WE SEE YOU!
#ItsNotJustArthritis #CreakyJoints #ArthritisAwarenessMonth
May 30, 2025 at 8:31 AM
The ones pushing through pain.
The ones showing up anyway.
The ones making this community powerful.
WE SEE YOU!
#ItsNotJustArthritis #CreakyJoints #ArthritisAwarenessMonth
The ones showing up anyway.
The ones making this community powerful.
WE SEE YOU!
#ItsNotJustArthritis #CreakyJoints #ArthritisAwarenessMonth
100 followers, 100 reasons to stay on this platform supporting our #CreakyJoints community.
December 6, 2024 at 7:52 AM
100 followers, 100 reasons to stay on this platform supporting our #CreakyJoints community.
GCA is a rare autoimmune disease that causes inflammation in the blood vessels — often leading to headaches, scalp tenderness, jaw pain when chewing, and in some cases, vision loss.
Awareness saves sight.
#GCAAwarenessDay #ChronicIllnessCommunity #InvisibleIllness #AutoimmuneWarrior #CreakyJoints
Awareness saves sight.
#GCAAwarenessDay #ChronicIllnessCommunity #InvisibleIllness #AutoimmuneWarrior #CreakyJoints
October 23, 2025 at 6:27 AM
GCA is a rare autoimmune disease that causes inflammation in the blood vessels — often leading to headaches, scalp tenderness, jaw pain when chewing, and in some cases, vision loss.
Awareness saves sight.
#GCAAwarenessDay #ChronicIllnessCommunity #InvisibleIllness #AutoimmuneWarrior #CreakyJoints
Awareness saves sight.
#GCAAwarenessDay #ChronicIllnessCommunity #InvisibleIllness #AutoimmuneWarrior #CreakyJoints
How to Prepare for Lupus Clinical Trials: Feeling unsure about clinical trials? With the right preparation, you can make informed decisions and have a meaningful experience.
🔗 Explore More: creakyjoints.org/about-arthri...
#LupusWarrior #SupportSystem #ClinicalTrials #LupusAwareness #CreakyJoints
🔗 Explore More: creakyjoints.org/about-arthri...
#LupusWarrior #SupportSystem #ClinicalTrials #LupusAwareness #CreakyJoints
April 10, 2025 at 7:29 PM
How to Prepare for Lupus Clinical Trials: Feeling unsure about clinical trials? With the right preparation, you can make informed decisions and have a meaningful experience.
🔗 Explore More: creakyjoints.org/about-arthri...
#LupusWarrior #SupportSystem #ClinicalTrials #LupusAwareness #CreakyJoints
🔗 Explore More: creakyjoints.org/about-arthri...
#LupusWarrior #SupportSystem #ClinicalTrials #LupusAwareness #CreakyJoints
Just got my new scripts from the doctors. My health is good, just getting old.
#doctor #health #CreakyJoints #WritersLife
#doctor #health #CreakyJoints #WritersLife
August 14, 2025 at 1:44 AM
Just got my new scripts from the doctors. My health is good, just getting old.
#doctor #health #CreakyJoints #WritersLife
#doctor #health #CreakyJoints #WritersLife
🧪 Did you know?
📚 20% of health materials require college-level literacy, and only 2% meet the 6th-grade reading level for patients.
At CreakyJoints, we keep it:
✔️ Clear
✔️ Simple
✔️ Useful
No fancy words, no confusion—just the info you need written for real people. 🧡
#HealthLiteracy #PatientEducation
📚 20% of health materials require college-level literacy, and only 2% meet the 6th-grade reading level for patients.
At CreakyJoints, we keep it:
✔️ Clear
✔️ Simple
✔️ Useful
No fancy words, no confusion—just the info you need written for real people. 🧡
#HealthLiteracy #PatientEducation
CreakyJoints - Arthritis Support, Education, Advocacy and Research
CreakyJoints is a leading support, education, advocacy, and research organization for people living with arthritis and rheumatic disease.
creakyjoints.org
December 10, 2024 at 8:33 AM
🧪 Did you know?
📚 20% of health materials require college-level literacy, and only 2% meet the 6th-grade reading level for patients.
At CreakyJoints, we keep it:
✔️ Clear
✔️ Simple
✔️ Useful
No fancy words, no confusion—just the info you need written for real people. 🧡
#HealthLiteracy #PatientEducation
📚 20% of health materials require college-level literacy, and only 2% meet the 6th-grade reading level for patients.
At CreakyJoints, we keep it:
✔️ Clear
✔️ Simple
✔️ Useful
No fancy words, no confusion—just the info you need written for real people. 🧡
#HealthLiteracy #PatientEducation
“Being in pain is, on its own, exhausting and #ChronicPain can make you chronically exhausted. I have #scoliosis — people don’t understand just how tired chronic pain can make you. When you’re that tired, every single thing is harder.” https://buff.ly/45inHrT @CreakyJoints #fatigue #spoonie
June 24, 2026 at 12:23 AM
“Being in pain is, on its own, exhausting and #ChronicPain can make you chronically exhausted. I have #scoliosis — people don’t understand just how tired chronic pain can make you. When you’re that tired, every single thing is harder.” https://buff.ly/45inHrT @CreakyJoints #fatigue #spoonie
🥧 “Think of movement like a pie — and you’re in charge of the slices.”
Janet Millner explains how a mix of cardio, strength, balance & targeted exercises can help manage axSpA—and why tailoring movement to your needs matters.
🎧 Listen: creakyjoints.org.au/patientprepr...
#axSpA #MovementMatters
Janet Millner explains how a mix of cardio, strength, balance & targeted exercises can help manage axSpA—and why tailoring movement to your needs matters.
🎧 Listen: creakyjoints.org.au/patientprepr...
#axSpA #MovementMatters
Patient PrepRheum Podcast - Creakyjoints Australia
A CreakyJoints Australia podcast series in which patients and doctors explore important and often-misunderstood arthritis topics.
creakyjoints.org.au
August 10, 2025 at 8:25 PM
🥧 “Think of movement like a pie — and you’re in charge of the slices.”
Janet Millner explains how a mix of cardio, strength, balance & targeted exercises can help manage axSpA—and why tailoring movement to your needs matters.
🎧 Listen: creakyjoints.org.au/patientprepr...
#axSpA #MovementMatters
Janet Millner explains how a mix of cardio, strength, balance & targeted exercises can help manage axSpA—and why tailoring movement to your needs matters.
🎧 Listen: creakyjoints.org.au/patientprepr...
#axSpA #MovementMatters
Today is IgG4-Related Disease Awareness Day 🧬
This rare autoimmune condition can affect multiple organs & is often misdiagnosed as IBS, cancer, pancreatitis & more.
Diagnosis is often delayed. Awareness can change that. 💙
#IgG4RD #RareDisease #CreakyJoints #GHLF
This rare autoimmune condition can affect multiple organs & is often misdiagnosed as IBS, cancer, pancreatitis & more.
Diagnosis is often delayed. Awareness can change that. 💙
#IgG4RD #RareDisease #CreakyJoints #GHLF
April 4, 2025 at 7:51 PM
Today is IgG4-Related Disease Awareness Day 🧬
This rare autoimmune condition can affect multiple organs & is often misdiagnosed as IBS, cancer, pancreatitis & more.
Diagnosis is often delayed. Awareness can change that. 💙
#IgG4RD #RareDisease #CreakyJoints #GHLF
This rare autoimmune condition can affect multiple organs & is often misdiagnosed as IBS, cancer, pancreatitis & more.
Diagnosis is often delayed. Awareness can change that. 💙
#IgG4RD #RareDisease #CreakyJoints #GHLF
Excellent #Sjogrens interview by fellow #Sjogrens patient advocate by Cristina Montoya @arthritisdietitian.bsky.social @creakyjoints.bsky.social youtu.be/DpJg62rRkI4?...
S8, Ep 13- What Sjögren’s Really Looks Like: Cristina Montoya on Living, Advocating, and Educating
YouTube video by CreakyJoints
youtu.be
May 2, 2025 at 4:59 PM
Excellent #Sjogrens interview by fellow #Sjogrens patient advocate by Cristina Montoya @arthritisdietitian.bsky.social @creakyjoints.bsky.social youtu.be/DpJg62rRkI4?...
It’s that time of year again; calculating whether our fam has met our medical deductible, or our max out of pocket for the yr. Good news, 1 more Rx order for our son and we’ve met our family max oop for the year! We’ll hit it before end of Jan. #Biologics #CreakyJoints #JSpA #JuvenilleArthritis
January 25, 2025 at 10:26 PM
It’s that time of year again; calculating whether our fam has met our medical deductible, or our max out of pocket for the yr. Good news, 1 more Rx order for our son and we’ve met our family max oop for the year! We’ll hit it before end of Jan. #Biologics #CreakyJoints #JSpA #JuvenilleArthritis
A gentle reminder:
Even if today wasn’t your best, you still made it through.
Give yourself the grace you’d give anyone else. Healing takes time.
#CreakyJoints
Even if today wasn’t your best, you still made it through.
Give yourself the grace you’d give anyone else. Healing takes time.
#CreakyJoints
August 6, 2025 at 12:02 AM
A gentle reminder:
Even if today wasn’t your best, you still made it through.
Give yourself the grace you’d give anyone else. Healing takes time.
#CreakyJoints
Even if today wasn’t your best, you still made it through.
Give yourself the grace you’d give anyone else. Healing takes time.
#CreakyJoints
Busting Myths About Clinical Trials!
Curious about #lupus clinical trials but unsure what’s fact or fiction?
🎙️ Listen Now! creakyjoints.org/clinical-tri...
#LupusAwareness #ClinicalTrials #MythBusting #CreakyJoints #LupusChat
Curious about #lupus clinical trials but unsure what’s fact or fiction?
🎙️ Listen Now! creakyjoints.org/clinical-tri...
#LupusAwareness #ClinicalTrials #MythBusting #CreakyJoints #LupusChat
Clinical Trials Talks
Whether you're thinking about joining a trial or just curious about the process, this podcast offers patient-friendly insights into clinical trials.
creakyjoints.org
March 31, 2025 at 9:41 PM
Busting Myths About Clinical Trials!
Curious about #lupus clinical trials but unsure what’s fact or fiction?
🎙️ Listen Now! creakyjoints.org/clinical-tri...
#LupusAwareness #ClinicalTrials #MythBusting #CreakyJoints #LupusChat
Curious about #lupus clinical trials but unsure what’s fact or fiction?
🎙️ Listen Now! creakyjoints.org/clinical-tri...
#LupusAwareness #ClinicalTrials #MythBusting #CreakyJoints #LupusChat
Join CreakyJoints for the first-ever Giant Cell Arteritis (GCA) Awareness Day on October 23, 2025.
We’re looking for people in the U.S. living with GCA to record a short video.
✔️ You will be compensated for your time.
Click below to sign up.
www.research.net/r/GCASHARE
We’re looking for people in the U.S. living with GCA to record a short video.
✔️ You will be compensated for your time.
Click below to sign up.
www.research.net/r/GCASHARE
September 9, 2025 at 7:30 AM
Join CreakyJoints for the first-ever Giant Cell Arteritis (GCA) Awareness Day on October 23, 2025.
We’re looking for people in the U.S. living with GCA to record a short video.
✔️ You will be compensated for your time.
Click below to sign up.
www.research.net/r/GCASHARE
We’re looking for people in the U.S. living with GCA to record a short video.
✔️ You will be compensated for your time.
Click below to sign up.
www.research.net/r/GCASHARE
Living with PsA? Your voice matters.
Take our 15–20 min survey & help improve care for others like you.
Enter a raffle to win 1 of 5 $300 e-gift cards.
Click here for more info:
www.research.net/r/TNYM279
#PsA #PsoriaticArthritis #PatientVoices #CreakyJoints #AutoimmuneLife
Take our 15–20 min survey & help improve care for others like you.
Enter a raffle to win 1 of 5 $300 e-gift cards.
Click here for more info:
www.research.net/r/TNYM279
#PsA #PsoriaticArthritis #PatientVoices #CreakyJoints #AutoimmuneLife
September 26, 2025 at 1:10 AM
Living with PsA? Your voice matters.
Take our 15–20 min survey & help improve care for others like you.
Enter a raffle to win 1 of 5 $300 e-gift cards.
Click here for more info:
www.research.net/r/TNYM279
#PsA #PsoriaticArthritis #PatientVoices #CreakyJoints #AutoimmuneLife
Take our 15–20 min survey & help improve care for others like you.
Enter a raffle to win 1 of 5 $300 e-gift cards.
Click here for more info:
www.research.net/r/TNYM279
#PsA #PsoriaticArthritis #PatientVoices #CreakyJoints #AutoimmuneLife
Thinking About a Clinical Trial?
Wondering what’s involved? We've got the details on types, phases, risks, & questions to consider.
🔗 Dive in! creakyjoints.org/about-arthri...
#Lupus #ClinicalTrials #LupusAwareness #CreakyJoints #LupusChat
Wondering what’s involved? We've got the details on types, phases, risks, & questions to consider.
🔗 Dive in! creakyjoints.org/about-arthri...
#Lupus #ClinicalTrials #LupusAwareness #CreakyJoints #LupusChat
What You Need to Know About Clinical Trials
Learn about clinical trials, including types, phases, risks, and questions to ask before deciding if a clinical trial is right for you.
creakyjoints.org
March 4, 2025 at 9:58 PM
Thinking About a Clinical Trial?
Wondering what’s involved? We've got the details on types, phases, risks, & questions to consider.
🔗 Dive in! creakyjoints.org/about-arthri...
#Lupus #ClinicalTrials #LupusAwareness #CreakyJoints #LupusChat
Wondering what’s involved? We've got the details on types, phases, risks, & questions to consider.
🔗 Dive in! creakyjoints.org/about-arthri...
#Lupus #ClinicalTrials #LupusAwareness #CreakyJoints #LupusChat
The strongest people we know might be living with invisible pain every day.
May is #ArthritisAwarenessMonth — a reminder to listen, believe, and advocate.
Read 50+ Invisible Truths About Living with Arthritis:
creakyjoints.org/living-with-...
May is #ArthritisAwarenessMonth — a reminder to listen, believe, and advocate.
Read 50+ Invisible Truths About Living with Arthritis:
creakyjoints.org/living-with-...
What Living with Arthritis Is Really Like
Learn about what daily life with arthritis is really like, according to members of the CreakyJoints community.
creakyjoints.org
May 1, 2025 at 9:35 PM
The strongest people we know might be living with invisible pain every day.
May is #ArthritisAwarenessMonth — a reminder to listen, believe, and advocate.
Read 50+ Invisible Truths About Living with Arthritis:
creakyjoints.org/living-with-...
May is #ArthritisAwarenessMonth — a reminder to listen, believe, and advocate.
Read 50+ Invisible Truths About Living with Arthritis:
creakyjoints.org/living-with-...
📣@CreakyJoints has just launched The Lupus Help Center!
Have you thought about participating in a #ClinicalTrial?
If you or a loved one lives with #lupus, be sure to click on the link below to see if you pre-qualify.
creakyjoints.org/lupus-help-c...
Have you thought about participating in a #ClinicalTrial?
If you or a loved one lives with #lupus, be sure to click on the link below to see if you pre-qualify.
creakyjoints.org/lupus-help-c...
April 23, 2025 at 7:41 PM
📣@CreakyJoints has just launched The Lupus Help Center!
Have you thought about participating in a #ClinicalTrial?
If you or a loved one lives with #lupus, be sure to click on the link below to see if you pre-qualify.
creakyjoints.org/lupus-help-c...
Have you thought about participating in a #ClinicalTrial?
If you or a loved one lives with #lupus, be sure to click on the link below to see if you pre-qualify.
creakyjoints.org/lupus-help-c...
High-pain days call for creative coping. 💜
From quirky rituals to unexpected hacks, the little things can make a big difference.
What helps you push through? Drop it below ⬇️
#PainAwarenessMonth #ChronicPain #Arthritis #InvisibleIllness #CreakyJoints
From quirky rituals to unexpected hacks, the little things can make a big difference.
What helps you push through? Drop it below ⬇️
#PainAwarenessMonth #ChronicPain #Arthritis #InvisibleIllness #CreakyJoints
September 3, 2025 at 9:07 PM
High-pain days call for creative coping. 💜
From quirky rituals to unexpected hacks, the little things can make a big difference.
What helps you push through? Drop it below ⬇️
#PainAwarenessMonth #ChronicPain #Arthritis #InvisibleIllness #CreakyJoints
From quirky rituals to unexpected hacks, the little things can make a big difference.
What helps you push through? Drop it below ⬇️
#PainAwarenessMonth #ChronicPain #Arthritis #InvisibleIllness #CreakyJoints
Nearly 1 in 4 U.S. adults live with chronic pain, with arthritis being one of the leading causes. Pain impacts daily life, work, and mental health — yet it remains largely invisible.
Explore resources: creakyjoints.org
#PainAwarenessMonth #ChronicPain #Arthritis #InvisibleIllness #CreakyJoints
Explore resources: creakyjoints.org
#PainAwarenessMonth #ChronicPain #Arthritis #InvisibleIllness #CreakyJoints
September 1, 2025 at 9:01 PM
Nearly 1 in 4 U.S. adults live with chronic pain, with arthritis being one of the leading causes. Pain impacts daily life, work, and mental health — yet it remains largely invisible.
Explore resources: creakyjoints.org
#PainAwarenessMonth #ChronicPain #Arthritis #InvisibleIllness #CreakyJoints
Explore resources: creakyjoints.org
#PainAwarenessMonth #ChronicPain #Arthritis #InvisibleIllness #CreakyJoints
Today is #ClinicalTrialsDay 💉
Clinical research leads to breakthroughs—but it can’t happen without patients.
If you're living with a chronic illness, understanding trials is key. Start here:
🔗 creakyjoints.org/about-arthri...
#CreakyJoints #GHLF #Lupus #Rheumatology #ChronicIllness #PatientVoice
Clinical research leads to breakthroughs—but it can’t happen without patients.
If you're living with a chronic illness, understanding trials is key. Start here:
🔗 creakyjoints.org/about-arthri...
#CreakyJoints #GHLF #Lupus #Rheumatology #ChronicIllness #PatientVoice
What You Need to Know About Clinical Trials
Learn about clinical trials, including types, phases, risks, and questions to ask before deciding if a clinical trial is right for you.
creakyjoints.org
May 20, 2025 at 9:38 PM
Today is #ClinicalTrialsDay 💉
Clinical research leads to breakthroughs—but it can’t happen without patients.
If you're living with a chronic illness, understanding trials is key. Start here:
🔗 creakyjoints.org/about-arthri...
#CreakyJoints #GHLF #Lupus #Rheumatology #ChronicIllness #PatientVoice
Clinical research leads to breakthroughs—but it can’t happen without patients.
If you're living with a chronic illness, understanding trials is key. Start here:
🔗 creakyjoints.org/about-arthri...
#CreakyJoints #GHLF #Lupus #Rheumatology #ChronicIllness #PatientVoice