#IgG4RD,
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oriabe114.bsky.social
🆕 Exciting time to dive into this, especially with the FDA’s recent approval of the first and only treatment, Inebilizumab😀❣️

#IgG4RD #Rheumsky
April 9, 2025 at 9:24 AM
mithurheum.bsky.social
🆕 Visual Abstract with Healio Rheumatology 🟢

🔥 New Therapy for IgG4-Related Disease: INEBILIZUMAB

💉 RCT of inebilizumab (anti-CD19) vs placebo
👥 Adult pts with IgG4-RD involving ≥ 2 organs
📊 Results:⇣flare rate,⇡remission

#IgG4RD #RareDiseases #Rheumatology #Inebilizumab
December 16, 2024 at 6:52 PM
creakyjoints.bsky.social
Today is IgG4-Related Disease Awareness Day 🧬
This rare autoimmune condition can affect multiple organs & is often misdiagnosed as IBS, cancer, pancreatitis & more.
Diagnosis is often delayed. Awareness can change that. 💙
#IgG4RD #RareDisease #CreakyJoints #GHLF
April 4, 2025 at 7:51 PM
juancarlosqvelez.bsky.social
I don’t think it was ordered here, was it @alishueib.bsky.social ? What would be the rationale? No IgG4RD flavor here that I can see…
December 22, 2025 at 8:05 PM
maloehr.bsky.social
Finally also showing the results from the #MITIGATE study in #IgG4RD #igg4ward
#inebilizumab being approved by @fda.gov now for #IgG4RD !
demadaria.bsky.social Enrique de-Madaria @demadaria.bsky.social · Apr 5
Excellent talk by @maloehr.bsky.social on advances in autoimmune pancreatitis during Seoul IPBM 2025!

@myueg.bsky.social
April 5, 2025 at 3:17 AM
myadla.bsky.social
Any Indian data on IgG4RD #ECNeph
May 30, 2025 at 4:41 PM
thesumairafdn.bsky.social
🇨🇦 Montréal, on arrive !

Vous êtes concerné(e) par #CIDP, #IgG4RD, #MG, #MOGAD ou #NMOSD ? Rejoignez-nous le 13 juin : experts, échanges, dernières recherches, communauté.

Inscription gratuite + repas inclus 👉 www.tinyurl.com/TSFMontrealFR
April 30, 2026 at 3:13 PM
jrheumatol.bsky.social
Images in Rheumatology

Renal-Limited IgG4-Related Disease Presenting as Hypodense Lesions Found During Surveillance Imaging in a Patient With High-Grade Urothelial Cell Carcinoma

📖 doi.org/10.3899/jrhe...

#IgG4RD #IgG4RKD #kidneydisease
January 20, 2025 at 3:45 PM
thedaoindex.bsky.social
#Inebilizumab-- anti-CD19 shown efficacious to reduce #IgG4RD flare rates in MITIGATE study. #ACR24 #YearInReview
November 26, 2024 at 5:01 PM
rarediseaseadvisor.bsky.social
A patient with #Colitis associated with immunoglobulin G4-related disease (#IgG4RD) was successfully managed with #Steroids and #Rituximab. Case report in @annalsofim.bsky.social Clinical Cases

Read more: https://bit.ly/3Kpw4hd

#RareDisease #MedTwitter #InternalMedicine
Case Report: IgG4-Related Colitis Managed With Steroids and Rituximab
A 34-year-old male patient with IgG4-related colitis was successfully managed with steroids and rituximab, without the need for colectomy.
www.rarediseaseadvisor.com
December 15, 2025 at 4:08 PM
maloehr.bsky.social
Excellent 💡! A tad short on the #centralorgan AKA #pancreas for my liking. #chronic #pancreatitis #IgG4RD incl. #cholangitis & #AIP
January 4, 2025 at 7:23 AM
checkrare.bsky.social
💡Rare Disease Spotlight: IgG4-RD

Learn more about this rare disease with our latest article checkrare.com/newly-approv...

#CheckRare #RareDisease #IgG4RD #RareAutoimmune #RareSkin
May 20, 2025 at 2:20 PM
steroidsandme.bsky.social
Thanks to IgG4ward!’s dedication, Sam is now featured in their newsletter, website, and community gatherings, providing practical support at your fingertips. Learn more about this great partnership: steroidsandme.com/article/sam-...

#Partners #PatientAdvocacy #PatientSupport #IgG4RD
July 9, 2025 at 7:39 PM
ifaiarthritis.bsky.social
Join us in celebrating IgG4-RD Awareness Day today! IgG4‑Related Disease is rare, complex, and often misunderstood. 💜

AiArthritis has created dedicated tools and resources at: zurl.co/ErwcJ

#IgG4RD #IgG4RDAwarenessDay #RareDiseaseAwareness #ChronicIllness #HealthEducation
April 4, 2026 at 5:30 PM
thesumairafdn.bsky.social
🇨🇦 Montreal Patient Day is here!

Affected by #CIDP, #IgG4RD, #MG, #MOGAD or #NMOSD? Join us June 13 for expert talks, community & support.

Free registration + lunch included. Meet clinicians & patients, learn latest research.

Register: www.eventbrite.com/e/montreal-p...
April 30, 2026 at 3:00 PM
rarediseaseadvisor.bsky.social
📆 4/4 is #IgG4RD Awareness Day

Today we recognize all those affected and share Donna Shipp’s story on the Rare Care podcast. A former nurse, she was misdiagnosed with cancer for 6 months before receiving the correct diagnosis.

🎧 Listen: https://bit.ly/4c9t963

#RareDisease #RareCare #MedSky
4/4 is IgG4-RD Awareness Day. The image promotes an interview with Donna Shipp about their IgG4-RD patient journey. Includes "Rare Care" podcast graphics and the text, "Listen Now.
April 4, 2026 at 8:12 PM
ap-hm.fr
🧬 Publication dans Nature Reviews Rheumatology sur l’ #IgG4RD, #MaladieRare inflammatoire et fibrosante.

Le Pr Schleinitz #APHM y présente les avancées scientifiques et thérapeutiques.

👉 https://fr.ap-hm.fr/site/maladiesrares/actu/nature-reviews-rheumatology-focus-sur-la-maladie-liee-a-l-igg4
Visuel de communication de la Plateforme d’expertise Maladies Rares de l’AP-HM. Fond bleu avec brin d’ADN stylisé à droite. À gauche, le logo des Hôpitaux Universitaires de Marseille et l’inscription “Actualité - Plateforme d’expertise Maladies Rares”. Photo de groupe de l’équipe médicale du centre CERAINOM-IgG4 à l’Hôpital de la Timone (AP-HM). Huit professionnels, dont le Pr Nicolas Schleinitz (au centre), posent en tenue hospitalière dans un couloir du service de médecine interne.
August 12, 2025 at 8:02 AM
rarediseaseadvisor.bsky.social
An increase in #IgG4 levels over time, rather than a single-timepoint IgG4 measurement, can predict relapse in immunoglobulin G4-related disease (IgG4-RD) and guide early treatment intensification.

Read more: https://bit.ly/3Pye8Dj

#RareDisease #IgG4RD #MedSky
IgG4 Surge Trend Can Predict IgG4-RD Relapse
An increase in IgG4 levels over time, rather than a single-timepoint IgG4 measurement, can predict relapse in IgG4-RD, according to recent research.
bit.ly
March 31, 2026 at 3:40 PM
rarediseaseadvisor.bsky.social
Researchers developed a #MachineLearning model that can be used to differentiate between immunoglobulin G4-related disease (#IgG4RD) associated with #Sialadenitis and primary Sjögren’s syndrome (#pSS). Study in International Dental Journal.

Read more: https://bit.ly/3XTW4UI

#RareDisease #MedSky
ML Model Differentiates Between IgG4-Related Sialadenitis, Primary Sjögren's Syndrome
Researchers developed a machine learning model to help differentiate between IgG4-related sialadenitis and primary Sjögren's syndrome.
bit.ly
November 27, 2025 at 5:13 PM
rarediseaseadvisor.bsky.social
A female patient in her 40s was diagnosed with coexisting synovitis, acne, pustulosis, hyperostosis, and osteitis (#SAPHO) syndrome and immunoglobulin G4-related disease (#IgG4RD). Case report published in Clinical & Translational Immunology.

Read here: https://bit.ly/4pUB6RX

#RareDisease #MedSky
Case Report: Concurrent SAPHO Syndrome and IgG4-RD
A middle-aged female patient was concurrently diagnosed with SAPHO syndrome and IgG4-RD and successfully treated with upadacitinib and prednisone.
bit.ly
December 8, 2025 at 4:47 PM
rarediseaseadvisor.bsky.social
The American College of Rheumatology awarded its 2025 Presidential Gold Medal to Dr. Eric Matteson for his achievements and service, working with challenging #AutoimmuneDiseases, from #ANCA-associated vasculitis and #Scleroderma to #PolyarteritisNodosa and #IgG4RD

Read here: https://bit.ly/3KVgf1O
Presidential Medal Follows Lifetime of Work in Rheumatology's Complex Diseases
The American College of Rheumatology awarded its 2025 Presidential Gold Medal to Dr. Eric Matteson for his achievements and service.
bit.ly
December 11, 2025 at 7:25 PM
rarediseaseadvisor.bsky.social
Immunoglobulin G4-related disease (#IgG4RD) is associated with distinct allergen-specific IgE and IgG4 signatures, with certain environmental antigens linked to organ-specific involvement. Study in @allergy-eaaci.bsky.social

Read here: https://bit.ly/43SpXbH

#RareDisease #MedSky
Distinct Allergen-Specific IgE, IgG4 Signatures Define Organ Involvement in IgG4-RD
New research showed that IgG4-RD features distinct allergen-specific IgE and IgG4 signatures, with some environmental antigens tied to organ involvement.
bit.ly
November 25, 2025 at 6:53 PM
ifaiarthritis.bsky.social
What happens when we recognize IgG4‑RD early?

Less organ involvement.

Awareness leads to answers.

Early diagnosis changes outcomes.

Find trusted resources and education at zurl.co/K8uwZ

#IgG4RD #RareDiseaseAwareness #EarlyDiagnosis #PatientEducation
April 7, 2026 at 10:00 PM
ifaiarthritis.bsky.social
For nearly a year, Andy and his wife Kat searched for answers on his journey to an eventual IgG4-related disease (IgG4-RD) diagnosis.

Learn more about Andy and Kat’s journey: zurl.co/yHUo8

#IgG4RD #RareDisease
Turning Up the Volume on IgG4-RD Awareness and Diagnosis
For a disease as rare and complex as IgG4-RD, raising awareness and addressing critical gaps in care requires more than individual efforts—it demands collaboration.
zurl.co
April 2, 2026 at 8:24 PM