August 25, 2026 at 4:23 PM
March 18, 2025 at 10:29 PM
Happy #infusionday to me!
Made it to the hospital outpatient clinic. Got my pre-meds. Hooked up to an IV to get Ocrevus, the $74,000-before-insurance medication that is taken every six months.
#MultipleSclerosis #MS #chronicillness
Made it to the hospital outpatient clinic. Got my pre-meds. Hooked up to an IV to get Ocrevus, the $74,000-before-insurance medication that is taken every six months.
#MultipleSclerosis #MS #chronicillness
April 9, 2024 at 2:07 PM
Happy #infusionday to me!
Made it to the hospital outpatient clinic. Got my pre-meds. Hooked up to an IV to get Ocrevus, the $74,000-before-insurance medication that is taken every six months.
#MultipleSclerosis #MS #chronicillness
Made it to the hospital outpatient clinic. Got my pre-meds. Hooked up to an IV to get Ocrevus, the $74,000-before-insurance medication that is taken every six months.
#MultipleSclerosis #MS #chronicillness
April 2, 2024 at 5:15 AM
#infusionday calls for rainbows, mocktails and internally screaming #moronsaregoverningamerica
whoo.hoo.
#cushingsdisease ##adrenalinsufficieny #raredisease
whoo.hoo.
#cushingsdisease ##adrenalinsufficieny #raredisease
January 24, 2025 at 9:18 PM
#infusionday calls for rainbows, mocktails and internally screaming #moronsaregoverningamerica
whoo.hoo.
#cushingsdisease ##adrenalinsufficieny #raredisease
whoo.hoo.
#cushingsdisease ##adrenalinsufficieny #raredisease
February 11, 2025 at 11:28 PM
If you've ever struggled with clothing during treatment, you're not alone. 💙
Infusions, ports, PICC lines, hospital stays, and recovery days come with enough challenges already.
That's why adaptive apparel matters.
#AdaptiveClothing #ChronicIllness #DisabilityCommunity #CancerSupport #InfusionDay
Infusions, ports, PICC lines, hospital stays, and recovery days come with enough challenges already.
That's why adaptive apparel matters.
#AdaptiveClothing #ChronicIllness #DisabilityCommunity #CancerSupport #InfusionDay
June 10, 2026 at 1:42 AM
If you've ever struggled with clothing during treatment, you're not alone. 💙
Infusions, ports, PICC lines, hospital stays, and recovery days come with enough challenges already.
That's why adaptive apparel matters.
#AdaptiveClothing #ChronicIllness #DisabilityCommunity #CancerSupport #InfusionDay
Infusions, ports, PICC lines, hospital stays, and recovery days come with enough challenges already.
That's why adaptive apparel matters.
#AdaptiveClothing #ChronicIllness #DisabilityCommunity #CancerSupport #InfusionDay
DrippppFASTER-iv pump
I’ve got my #ThirdStory
Workshop w/the lovely & Delightful Ms Ana MC
Late this afternoon
And thanks to her & the
Fab nurses ♥️
Helping me today
Women helping
Women
Is The WAY
Let’s GOOOOO
.
🦋🩵
@anamariecox.bsky.social @ohsuknight.bsky.social #InfusionDay
I’ve got my #ThirdStory
Workshop w/the lovely & Delightful Ms Ana MC
Late this afternoon
And thanks to her & the
Fab nurses ♥️
Helping me today
Women helping
Women
Is The WAY
Let’s GOOOOO
.
🦋🩵
@anamariecox.bsky.social @ohsuknight.bsky.social #InfusionDay
February 18, 2025 at 6:47 PM
DrippppFASTER-iv pump
I’ve got my #ThirdStory
Workshop w/the lovely & Delightful Ms Ana MC
Late this afternoon
And thanks to her & the
Fab nurses ♥️
Helping me today
Women helping
Women
Is The WAY
Let’s GOOOOO
.
🦋🩵
@anamariecox.bsky.social @ohsuknight.bsky.social #InfusionDay
I’ve got my #ThirdStory
Workshop w/the lovely & Delightful Ms Ana MC
Late this afternoon
And thanks to her & the
Fab nurses ♥️
Helping me today
Women helping
Women
Is The WAY
Let’s GOOOOO
.
🦋🩵
@anamariecox.bsky.social @ohsuknight.bsky.social #InfusionDay
It's #InfusionDay!
It took 5 tries to get my BP to register this morning. A frequent hassle, but still better than when they had to stick me so many times – thank goodness for this #port! Otherwise, all good, & (7+hrs in) I'm almost done.
(1/2)
#IVIG #infusion #dysautonomia #SSFN #sarcoidosis
It took 5 tries to get my BP to register this morning. A frequent hassle, but still better than when they had to stick me so many times – thank goodness for this #port! Otherwise, all good, & (7+hrs in) I'm almost done.
(1/2)
#IVIG #infusion #dysautonomia #SSFN #sarcoidosis
January 17, 2025 at 9:24 PM
It's #InfusionDay!
It took 5 tries to get my BP to register this morning. A frequent hassle, but still better than when they had to stick me so many times – thank goodness for this #port! Otherwise, all good, & (7+hrs in) I'm almost done.
(1/2)
#IVIG #infusion #dysautonomia #SSFN #sarcoidosis
It took 5 tries to get my BP to register this morning. A frequent hassle, but still better than when they had to stick me so many times – thank goodness for this #port! Otherwise, all good, & (7+hrs in) I'm almost done.
(1/2)
#IVIG #infusion #dysautonomia #SSFN #sarcoidosis
August 9, 2026 at 3:48 PM
It’s #InfusionDay!
Things are going smoothly: #port accessed, hydration & Benadryl to mitigate side effects done, and now the #IVIG is flowing. I wasn’t feeling great this morning (still not), but didn’t want to miss another week.
It feels like it’s been a while since my last infusion.
Things are going smoothly: #port accessed, hydration & Benadryl to mitigate side effects done, and now the #IVIG is flowing. I wasn’t feeling great this morning (still not), but didn’t want to miss another week.
It feels like it’s been a while since my last infusion.
December 13, 2024 at 6:26 PM
It’s #InfusionDay!
Things are going smoothly: #port accessed, hydration & Benadryl to mitigate side effects done, and now the #IVIG is flowing. I wasn’t feeling great this morning (still not), but didn’t want to miss another week.
It feels like it’s been a while since my last infusion.
Things are going smoothly: #port accessed, hydration & Benadryl to mitigate side effects done, and now the #IVIG is flowing. I wasn’t feeling great this morning (still not), but didn’t want to miss another week.
It feels like it’s been a while since my last infusion.
Of course everything has to match the pinstripe pattern – even my coffee cup!
~🦋
#InfusionDay #ALEXandANI #KedsStyle #NYYankees #WearPair #IVIGinStyle #AlwaysCoordinated😘
~🦋
#InfusionDay #ALEXandANI #KedsStyle #NYYankees #WearPair #IVIGinStyle #AlwaysCoordinated😘
March 14, 2025 at 7:50 PM
Of course everything has to match the pinstripe pattern – even my coffee cup!
~🦋
#InfusionDay #ALEXandANI #KedsStyle #NYYankees #WearPair #IVIGinStyle #AlwaysCoordinated😘
~🦋
#InfusionDay #ALEXandANI #KedsStyle #NYYankees #WearPair #IVIGinStyle #AlwaysCoordinated😘
Infusion Day again. Fighting Ulcerative Colitis isn’t just physical—it’s financial too. I’m so thankful for those who’ve helped me stay afloat. 🧡 If you can donate or share: gofund.me/e107462bc #ChronicIllness #UlcerativeColitis #SupportMatters #GoFundMe #InfusionDay
Donate to Help Overcome Financial Struggles with Ulcerative Colitis, organized by William Dankiw
I am a disabled individual coping with Ulcerative Co… William Dankiw needs your support for Help Overcome Financial Struggles with Ulcerative Colitis
gofund.me
October 31, 2025 at 4:56 PM
Infusion Day again. Fighting Ulcerative Colitis isn’t just physical—it’s financial too. I’m so thankful for those who’ve helped me stay afloat. 🧡 If you can donate or share: gofund.me/e107462bc #ChronicIllness #UlcerativeColitis #SupportMatters #GoFundMe #InfusionDay
It's #InfusionDay!
First day with the new dose: 40mg #IVIG every 2wks, down from 30mg 3/4wks, so it's an extra long day. Going ok so far, just super tired & achy (what else is new) – but maybe that means time for a nap!
~🦋
#ChronicIllness #dysautonomia #sarcoidosis #SmallFiberNeuropathy #SpoonieSky
First day with the new dose: 40mg #IVIG every 2wks, down from 30mg 3/4wks, so it's an extra long day. Going ok so far, just super tired & achy (what else is new) – but maybe that means time for a nap!
~🦋
#ChronicIllness #dysautonomia #sarcoidosis #SmallFiberNeuropathy #SpoonieSky
March 14, 2025 at 7:46 PM
It's #InfusionDay!
First day with the new dose: 40mg #IVIG every 2wks, down from 30mg 3/4wks, so it's an extra long day. Going ok so far, just super tired & achy (what else is new) – but maybe that means time for a nap!
~🦋
#ChronicIllness #dysautonomia #sarcoidosis #SmallFiberNeuropathy #SpoonieSky
First day with the new dose: 40mg #IVIG every 2wks, down from 30mg 3/4wks, so it's an extra long day. Going ok so far, just super tired & achy (what else is new) – but maybe that means time for a nap!
~🦋
#ChronicIllness #dysautonomia #sarcoidosis #SmallFiberNeuropathy #SpoonieSky
Adaptive clothing that works with your day—not against it. 💙
Our Raglan & Arm Zip Access Tee features discreet chest & arm access, soft comfort, and everyday style for treatments, recovery, and daily life.
#AdaptiveClothing #ChronicIllness #DisabilityCommunity #InfusionDay #SpoonieThreads
Our Raglan & Arm Zip Access Tee features discreet chest & arm access, soft comfort, and everyday style for treatments, recovery, and daily life.
#AdaptiveClothing #ChronicIllness #DisabilityCommunity #InfusionDay #SpoonieThreads
July 7, 2026 at 1:15 AM
Adaptive clothing that works with your day—not against it. 💙
Our Raglan & Arm Zip Access Tee features discreet chest & arm access, soft comfort, and everyday style for treatments, recovery, and daily life.
#AdaptiveClothing #ChronicIllness #DisabilityCommunity #InfusionDay #SpoonieThreads
Our Raglan & Arm Zip Access Tee features discreet chest & arm access, soft comfort, and everyday style for treatments, recovery, and daily life.
#AdaptiveClothing #ChronicIllness #DisabilityCommunity #InfusionDay #SpoonieThreads
nfusion day outfit tip: Think about access first. 💜
We put together a guide with practical tips for patients + caregivers.
spooniethreads.com/blogs/thespo...
#AdaptiveClothing #InfusionDay #ChronicIllness #CancerSupport
We put together a guide with practical tips for patients + caregivers.
spooniethreads.com/blogs/thespo...
#AdaptiveClothing #InfusionDay #ChronicIllness #CancerSupport
What to Wear on Infusion Days: An Adaptive Clothing Guide
Infusion days can involve a lot of waiting, sitting, monitoring, and medical care. Whether you’re receiving chemotherapy, immunotherapy, hydration, antibiotics, iron, biologic medications, IV fluids, ...
spooniethreads.com
August 28, 2026 at 12:28 AM
nfusion day outfit tip: Think about access first. 💜
We put together a guide with practical tips for patients + caregivers.
spooniethreads.com/blogs/thespo...
#AdaptiveClothing #InfusionDay #ChronicIllness #CancerSupport
We put together a guide with practical tips for patients + caregivers.
spooniethreads.com/blogs/thespo...
#AdaptiveClothing #InfusionDay #ChronicIllness #CancerSupport
It's #InfusionDay!
All going smoothly here: #port accessed (seriously one of the best medical decisions I've ever made); hydration & premeds done (to mitigate side effects); #IVIG flowing now.
~🦋
#ChronicIllness #dysautonomia #neuropathy #RareDisease #sarcoidosis #SmallFiberNeuropathy #SpoonieSky
All going smoothly here: #port accessed (seriously one of the best medical decisions I've ever made); hydration & premeds done (to mitigate side effects); #IVIG flowing now.
~🦋
#ChronicIllness #dysautonomia #neuropathy #RareDisease #sarcoidosis #SmallFiberNeuropathy #SpoonieSky
January 31, 2025 at 8:24 PM
It's #InfusionDay!
All going smoothly here: #port accessed (seriously one of the best medical decisions I've ever made); hydration & premeds done (to mitigate side effects); #IVIG flowing now.
~🦋
#ChronicIllness #dysautonomia #neuropathy #RareDisease #sarcoidosis #SmallFiberNeuropathy #SpoonieSky
All going smoothly here: #port accessed (seriously one of the best medical decisions I've ever made); hydration & premeds done (to mitigate side effects); #IVIG flowing now.
~🦋
#ChronicIllness #dysautonomia #neuropathy #RareDisease #sarcoidosis #SmallFiberNeuropathy #SpoonieSky
It's #InfusionDay!
All went smoothly, from #port access to blood draw, hydration to #IVIG (& more hydration).
So comfy with my fuzzy #IVhoodie; passing the time with #Wicked movie 💚🧹 & #HellsKitchen cast recording 🎶
~🦋
#ChronicIllness #infusion #sarcoidosis #SmallFiberNeuropathy #SpoonieSky
All went smoothly, from #port access to blood draw, hydration to #IVIG (& more hydration).
So comfy with my fuzzy #IVhoodie; passing the time with #Wicked movie 💚🧹 & #HellsKitchen cast recording 🎶
~🦋
#ChronicIllness #infusion #sarcoidosis #SmallFiberNeuropathy #SpoonieSky
February 8, 2025 at 2:43 AM
It's #InfusionDay!
All went smoothly, from #port access to blood draw, hydration to #IVIG (& more hydration).
So comfy with my fuzzy #IVhoodie; passing the time with #Wicked movie 💚🧹 & #HellsKitchen cast recording 🎶
~🦋
#ChronicIllness #infusion #sarcoidosis #SmallFiberNeuropathy #SpoonieSky
All went smoothly, from #port access to blood draw, hydration to #IVIG (& more hydration).
So comfy with my fuzzy #IVhoodie; passing the time with #Wicked movie 💚🧹 & #HellsKitchen cast recording 🎶
~🦋
#ChronicIllness #infusion #sarcoidosis #SmallFiberNeuropathy #SpoonieSky
Heading into infusion day? Feel your best in clothing that puts comfort and access first. Soft fabrics, hidden port openings, arm-access zips, and easy layers = infusion day game-changers. Read more: spooniethreads.com/blogs/thespo...
#InfusionDay #AdaptiveFashion #SpoonieThreads
#InfusionDay #AdaptiveFashion #SpoonieThreads
Stylish & Functional: What to Wear for Infusion Days
Infusion days can already be stressful — your outfit shouldn’t add to it. Choosing clothing that’s both comfortable and functional can make the process smoother, whether you’re at an infusion center, ...
spooniethreads.com
August 19, 2025 at 12:11 AM
Heading into infusion day? Feel your best in clothing that puts comfort and access first. Soft fabrics, hidden port openings, arm-access zips, and easy layers = infusion day game-changers. Read more: spooniethreads.com/blogs/thespo...
#InfusionDay #AdaptiveFashion #SpoonieThreads
#InfusionDay #AdaptiveFashion #SpoonieThreads
It's #InfusionDay!
Blood work today, too. As usual, liver enzymes are elevated enough to keep checking, but not enough to actually do anything about it.
Otherwise, all going smoothly with #port access, hydration, premeds, and #IVIG is flowing now.
🦋
#ChronicIllness #sarcoidosis #SSFN
🧵 continues...
Blood work today, too. As usual, liver enzymes are elevated enough to keep checking, but not enough to actually do anything about it.
Otherwise, all going smoothly with #port access, hydration, premeds, and #IVIG is flowing now.
🦋
#ChronicIllness #sarcoidosis #SSFN
🧵 continues...
March 7, 2025 at 7:01 PM
It's #InfusionDay!
Blood work today, too. As usual, liver enzymes are elevated enough to keep checking, but not enough to actually do anything about it.
Otherwise, all going smoothly with #port access, hydration, premeds, and #IVIG is flowing now.
🦋
#ChronicIllness #sarcoidosis #SSFN
🧵 continues...
Blood work today, too. As usual, liver enzymes are elevated enough to keep checking, but not enough to actually do anything about it.
Otherwise, all going smoothly with #port access, hydration, premeds, and #IVIG is flowing now.
🦋
#ChronicIllness #sarcoidosis #SSFN
🧵 continues...
Been a while... it's #infusionday!
Got about another 30 mins here to finish out my #saphnelo treatment. Keeps the #lupus in check.
Got about another 30 mins here to finish out my #saphnelo treatment. Keeps the #lupus in check.
June 18, 2025 at 9:09 PM
Been a while... it's #infusionday!
Got about another 30 mins here to finish out my #saphnelo treatment. Keeps the #lupus in check.
Got about another 30 mins here to finish out my #saphnelo treatment. Keeps the #lupus in check.
“I love it!!!!!” — Christopher W. 💙
Five exclamation points = we’re listening. 😄
Our Chest & Abdomen Zipper Access Hoodie lets Christopher stay in his hoodie during infusions while keeping treatment access available.
That’s exactly why we make #AdaptiveClothing
#InfusionDay #SpoonieThreads
Five exclamation points = we’re listening. 😄
Our Chest & Abdomen Zipper Access Hoodie lets Christopher stay in his hoodie during infusions while keeping treatment access available.
That’s exactly why we make #AdaptiveClothing
#InfusionDay #SpoonieThreads
September 12, 2026 at 12:04 AM
“I love it!!!!!” — Christopher W. 💙
Five exclamation points = we’re listening. 😄
Our Chest & Abdomen Zipper Access Hoodie lets Christopher stay in his hoodie during infusions while keeping treatment access available.
That’s exactly why we make #AdaptiveClothing
#InfusionDay #SpoonieThreads
Five exclamation points = we’re listening. 😄
Our Chest & Abdomen Zipper Access Hoodie lets Christopher stay in his hoodie during infusions while keeping treatment access available.
That’s exactly why we make #AdaptiveClothing
#InfusionDay #SpoonieThreads
First try easy. Guess my arms were warm enough. #infusionday #ms
November 29, 2024 at 3:43 PM
First try easy. Guess my arms were warm enough. #infusionday #ms
#InfusionDay Remicade @ $31 every 7 weeks keeps my immune system from killing me. Hate to think what it would cost in the USA #medicare
December 9, 2024 at 12:01 AM
#InfusionDay Remicade @ $31 every 7 weeks keeps my immune system from killing me. Hate to think what it would cost in the USA #medicare