Everyone with PEM/PENE has dysautonomia but not everyone with dysautonomia may have PEM/PENE.
Pass it on.
Pass it on.
November 17, 2024 at 9:55 AM
Everyone with PEM/PENE has dysautonomia but not everyone with dysautonomia may have PEM/PENE.
Pass it on.
Pass it on.
November 13, 2024 at 4:27 AM
Covid has caused an increase in patients with Dysautonomia, a condition which destroyed my quality of life
Yet at Dysautonomia International’s big fundraiser, there was no mask requirement
Worse, they’re publicly stating masks don’t work & quoting the debunked Cochrane study 🧵
Yet at Dysautonomia International’s big fundraiser, there was no mask requirement
Worse, they’re publicly stating masks don’t work & quoting the debunked Cochrane study 🧵
July 19, 2025 at 3:05 AM
Covid has caused an increase in patients with Dysautonomia, a condition which destroyed my quality of life
Yet at Dysautonomia International’s big fundraiser, there was no mask requirement
Worse, they’re publicly stating masks don’t work & quoting the debunked Cochrane study 🧵
Yet at Dysautonomia International’s big fundraiser, there was no mask requirement
Worse, they’re publicly stating masks don’t work & quoting the debunked Cochrane study 🧵
October is Dysautonomia Awareness Month.
Dysautonomia, also called autonomic dysfunction, is a group of disorders that affect the autonomic nervous system.
Dysautonomia, also called autonomic dysfunction, is a group of disorders that affect the autonomic nervous system.
October 2, 2026 at 1:03 PM
October is Dysautonomia Awareness Month.
Dysautonomia, also called autonomic dysfunction, is a group of disorders that affect the autonomic nervous system.
Dysautonomia, also called autonomic dysfunction, is a group of disorders that affect the autonomic nervous system.
Following September’s “Coffee” with a Clinician on assessing OI and dysautonomia, we’re revisiting an important distinction:
POTS is one type of dysautonomia, but orthostatic intolerance is broader than POTS.
Learn why a “normal” test may not tell the whole story: https://bit.ly/4egSlcU
POTS is one type of dysautonomia, but orthostatic intolerance is broader than POTS.
Learn why a “normal” test may not tell the whole story: https://bit.ly/4egSlcU
October 7, 2026 at 6:06 PM
Following September’s “Coffee” with a Clinician on assessing OI and dysautonomia, we’re revisiting an important distinction:
POTS is one type of dysautonomia, but orthostatic intolerance is broader than POTS.
Learn why a “normal” test may not tell the whole story: https://bit.ly/4egSlcU
POTS is one type of dysautonomia, but orthostatic intolerance is broader than POTS.
Learn why a “normal” test may not tell the whole story: https://bit.ly/4egSlcU
Learn more at www.ehlers-danlos.com/dysautonomia/
Dysautonomia - The Ehlers Danlos Society
www.ehlers-danlos.com
October 2, 2026 at 1:03 PM
Learn more at www.ehlers-danlos.com/dysautonomia/
What if hypermobility is part of the Long COVID puzzle?
Research is finding links between hypermobility, hEDS, dysautonomia and Long COVID.
Maybe COVID doesn’t create every vulnerability,it exposes some of them.
#LongCovid #hEDS #Dysautonomia
longcovidjourney.com/long-covid-h...
Research is finding links between hypermobility, hEDS, dysautonomia and Long COVID.
Maybe COVID doesn’t create every vulnerability,it exposes some of them.
#LongCovid #hEDS #Dysautonomia
longcovidjourney.com/long-covid-h...
Long COVID and Hypermobility: The Overlooked Connection Between hEDS, POTS and Dysautonomia
Research suggests people with hypermobility, hEDS and HSD may be at greater risk of Long COVID. Learn about dysautonomia, POTS, mast cells, shared symptoms and practical management strategies.
longcovidjourney.com
October 7, 2026 at 8:54 PM
What if hypermobility is part of the Long COVID puzzle?
Research is finding links between hypermobility, hEDS, dysautonomia and Long COVID.
Maybe COVID doesn’t create every vulnerability,it exposes some of them.
#LongCovid #hEDS #Dysautonomia
longcovidjourney.com/long-covid-h...
Research is finding links between hypermobility, hEDS, dysautonomia and Long COVID.
Maybe COVID doesn’t create every vulnerability,it exposes some of them.
#LongCovid #hEDS #Dysautonomia
longcovidjourney.com/long-covid-h...
me immediately after opening the page to Familial Dysautonomia
Zara Larsson Shocked
Alt: Zara Larsson Shocked
static.klipy.com
October 5, 2026 at 10:28 AM
me immediately after opening the page to Familial Dysautonomia
November 24, 2024 at 5:45 AM
guy, who was just supposed to be researching dysautonomia, is researching their eastern european heritage again
October 5, 2026 at 10:11 AM
guy, who was just supposed to be researching dysautonomia, is researching their eastern european heritage again
If you’re dealing with Long Covid - there’s a chance you’re also dealing with MCAS and/or POTS/Dysautonomia.
They’re two of the most common comorbids - and can have a devastating impact on quality of life.
New allergies? Alcohol intolerance? Dizziness? Fatigue? Fainting?
A mega 🧵 of resources
They’re two of the most common comorbids - and can have a devastating impact on quality of life.
New allergies? Alcohol intolerance? Dizziness? Fatigue? Fainting?
A mega 🧵 of resources
December 7, 2024 at 3:28 AM
If you’re dealing with Long Covid - there’s a chance you’re also dealing with MCAS and/or POTS/Dysautonomia.
They’re two of the most common comorbids - and can have a devastating impact on quality of life.
New allergies? Alcohol intolerance? Dizziness? Fatigue? Fainting?
A mega 🧵 of resources
They’re two of the most common comorbids - and can have a devastating impact on quality of life.
New allergies? Alcohol intolerance? Dizziness? Fatigue? Fainting?
A mega 🧵 of resources
3.
Consensus: Long COVID includes dysautonomia (POTS), mast cell activation (MCAS), mitochondrial dysfunction, endothelial damage, & more.
This isn’t one disease. It’s a syndrome of syndromes.
Consensus: Long COVID includes dysautonomia (POTS), mast cell activation (MCAS), mitochondrial dysfunction, endothelial damage, & more.
This isn’t one disease. It’s a syndrome of syndromes.
April 21, 2025 at 2:35 AM
3.
Consensus: Long COVID includes dysautonomia (POTS), mast cell activation (MCAS), mitochondrial dysfunction, endothelial damage, & more.
This isn’t one disease. It’s a syndrome of syndromes.
Consensus: Long COVID includes dysautonomia (POTS), mast cell activation (MCAS), mitochondrial dysfunction, endothelial damage, & more.
This isn’t one disease. It’s a syndrome of syndromes.
Dysautonomia, also known as autonomic dysfunction, is a group of disorders that affect the autonomic nervous system (ANS). Many people with #EhlersDanlosSyndrome or #HypermobilitySpectrumDisorder also have a type of #Dysautonomia: www.ehlers-danlos.com/dysautonomia/
Dysautonomia - The Ehlers Danlos Society
www.ehlers-danlos.com
May 29, 2025 at 9:57 AM
Dysautonomia, also known as autonomic dysfunction, is a group of disorders that affect the autonomic nervous system (ANS). Many people with #EhlersDanlosSyndrome or #HypermobilitySpectrumDisorder also have a type of #Dysautonomia: www.ehlers-danlos.com/dysautonomia/
November 8, 2024 at 4:17 AM
October is Dysautonomia Awareness Month. Dysautonomia encompasses conditions that affect the autonomic nervous system, e.g. orthostatic intolerance (including PoTS), and can significantly impact quality of life. People with ME/CFS often report related symptoms.
tinyurl.com/dysauto2026
tinyurl.com/dysauto2026
October 1, 2026 at 8:10 AM
October is Dysautonomia Awareness Month. Dysautonomia encompasses conditions that affect the autonomic nervous system, e.g. orthostatic intolerance (including PoTS), and can significantly impact quality of life. People with ME/CFS often report related symptoms.
tinyurl.com/dysauto2026
tinyurl.com/dysauto2026
My mild case caused fatigue, dysautonomia, tachycardia, and general debility that I've yet to recover from 3 years later.
The powers that be define “mild” Covid as anything that doesn’t kill you or put you in hospital
End up severely disabled? Still “mild”
Die a few months later? Still “mild”
The definition needs to change. People need to be told there’s no such thing as “mild” Covid and any infection can disable
End up severely disabled? Still “mild”
Die a few months later? Still “mild”
The definition needs to change. People need to be told there’s no such thing as “mild” Covid and any infection can disable
This is amazing. TV news doing a report on the epidemic of long COVID, featuring a marathon runner who got a "mild" case and now struggles to walk. And she's wearing a @flomask.bsky.social !
April 19, 2025 at 7:09 AM
My mild case caused fatigue, dysautonomia, tachycardia, and general debility that I've yet to recover from 3 years later.
Y'all, I've been doing walks on the treadmill to try to get my sick body used to walking and not passing out (Long Covid, dysautonomia, POTS) just so I can walk my dog again. It's been so long. Well, we just went on a short walk where he sniffed all the things and this face speaks for itself. 🐾💕🐾
April 17, 2026 at 4:41 PM
Y'all, I've been doing walks on the treadmill to try to get my sick body used to walking and not passing out (Long Covid, dysautonomia, POTS) just so I can walk my dog again. It's been so long. Well, we just went on a short walk where he sniffed all the things and this face speaks for itself. 🐾💕🐾
I feel like everyone with POTS/Dysautonomia needs to get behind the frozen pickle.
Amazing.
Amazing.
January 17, 2026 at 4:21 AM
I feel like everyone with POTS/Dysautonomia needs to get behind the frozen pickle.
Amazing.
Amazing.
Mcas and dysautonomia. The dysautonomia sometimes causes migraine attacks.
October 8, 2026 at 12:33 PM
Mcas and dysautonomia. The dysautonomia sometimes causes migraine attacks.
hey pots/dysautonomia/eds/long covid people remember your electrolytes and compression socks with the heatwave
June 14, 2024 at 5:01 PM
hey pots/dysautonomia/eds/long covid people remember your electrolytes and compression socks with the heatwave
Spit-laugh rating 10/10 #POTS #Dysautonomia
March 8, 2025 at 6:24 PM
Spit-laugh rating 10/10 #POTS #Dysautonomia
The Sick Times: 'Dysautonomia conference centers biomarkers and post-exertional malaise'
Written by Rachel Fairbank
thesicktimes.org/2026/07/28/d...
Written by Rachel Fairbank
thesicktimes.org/2026/07/28/d...
Dysautonomia conference centers biomarkers and post-exertional malaise - The Sick Times
The 14th annual Dysautonomia International conference outside Houston included presentations on the role of autoimmunity in dysautonomia and a biobank initiative for POTS research.
thesicktimes.org
July 28, 2026 at 5:22 PM
The Sick Times: 'Dysautonomia conference centers biomarkers and post-exertional malaise'
Written by Rachel Fairbank
thesicktimes.org/2026/07/28/d...
Written by Rachel Fairbank
thesicktimes.org/2026/07/28/d...
fortunamtely theres always dysautonomia headcanons. everybody clap for dysautonomia headcanons
November 4, 2025 at 5:11 PM
fortunamtely theres always dysautonomia headcanons. everybody clap for dysautonomia headcanons
Many people assume they’re in perimenopause/menopause due to temperature dysregulation and sweating dysfunction
But these are also #dysautonomia issues under #POTS and #OI, caused by Covid and other infections
If hormone labs show no menopause/perimenopause, please see a dysautonomia specialist
But these are also #dysautonomia issues under #POTS and #OI, caused by Covid and other infections
If hormone labs show no menopause/perimenopause, please see a dysautonomia specialist
November 13, 2024 at 11:00 PM
Many people assume they’re in perimenopause/menopause due to temperature dysregulation and sweating dysfunction
But these are also #dysautonomia issues under #POTS and #OI, caused by Covid and other infections
If hormone labs show no menopause/perimenopause, please see a dysautonomia specialist
But these are also #dysautonomia issues under #POTS and #OI, caused by Covid and other infections
If hormone labs show no menopause/perimenopause, please see a dysautonomia specialist