Dat #chronicpain life, tho.
I have #fibromyalgia, #rheumatoidarthritis, #interstitialcystitis, & #migraines. Who all is in the club?
#disability
I have #fibromyalgia, #rheumatoidarthritis, #interstitialcystitis, & #migraines. Who all is in the club?
#disability
December 13, 2024 at 1:55 AM
Dat #chronicpain life, tho.
I have #fibromyalgia, #rheumatoidarthritis, #interstitialcystitis, & #migraines. Who all is in the club?
#disability
I have #fibromyalgia, #rheumatoidarthritis, #interstitialcystitis, & #migraines. Who all is in the club?
#disability
Having organs REMOVED from my body should not be less painful than my period pain. #EndEndometriosis #Adenomyosis #InterstitialCystitis #WomensHealth #NEISvoid
May 15, 2026 at 12:55 AM
Having organs REMOVED from my body should not be less painful than my period pain. #EndEndometriosis #Adenomyosis #InterstitialCystitis #WomensHealth #NEISvoid
2. About 3 months ago, my #PUR water filter was not sufficient. When heated, it smelled and left a brown film that I could not clean out of my glass water kettle. It was nasty so I switched to bottled water. Since then I have had remission of the #interstitialcystitis. This is a bit disturbing.
September 22, 2026 at 2:55 PM
2. About 3 months ago, my #PUR water filter was not sufficient. When heated, it smelled and left a brown film that I could not clean out of my glass water kettle. It was nasty so I switched to bottled water. Since then I have had remission of the #interstitialcystitis. This is a bit disturbing.
I lurk the r/InterstitialCystitis sub watching for teens who post, because I also developed it at that age, and I would have KILLED for the kind of support someone who remembers that time can give.
June 2, 2025 at 8:37 PM
I lurk the r/InterstitialCystitis sub watching for teens who post, because I also developed it at that age, and I would have KILLED for the kind of support someone who remembers that time can give.
"I am not a lie-in kind of person. I just don’t stay asleep, mostly because my irritated #bladder won’t let me — the joys of having #InterstitialCystitis! But if I do #sleep in, then I let myself do so (within limits).": buff.ly/GRWc01U
by @lowhistamine.bsky.social
#ChronicPain #ChronicIllness
by @lowhistamine.bsky.social
#ChronicPain #ChronicIllness
10 Things I Don't Do as Someone With a Chronic Illness
#1. "I don’t eat whatever I like."
buff.ly
August 2, 2026 at 4:30 PM
"I am not a lie-in kind of person. I just don’t stay asleep, mostly because my irritated #bladder won’t let me — the joys of having #InterstitialCystitis! But if I do #sleep in, then I let myself do so (within limits).": buff.ly/GRWc01U
by @lowhistamine.bsky.social
#ChronicPain #ChronicIllness
by @lowhistamine.bsky.social
#ChronicPain #ChronicIllness
Thanks to Qu Magazine for publishing one of my poems ✨️
#poetry #newpoems #interstitialcystitis #poetrycommuníty #newissue #poems #chronicillness #spooniewriter
#poetry #newpoems #interstitialcystitis #poetrycommuníty #newissue #poems #chronicillness #spooniewriter
March 17, 2026 at 1:01 PM
Thanks to Qu Magazine for publishing one of my poems ✨️
#poetry #newpoems #interstitialcystitis #poetrycommuníty #newissue #poems #chronicillness #spooniewriter
#poetry #newpoems #interstitialcystitis #poetrycommuníty #newissue #poems #chronicillness #spooniewriter
Guys I'm fucking dying #interstitialcystitis spasms are so painful I can't even move to get ice or a heating pad 😭 #chronicillness
July 31, 2025 at 12:33 AM
Guys I'm fucking dying #interstitialcystitis spasms are so painful I can't even move to get ice or a heating pad 😭 #chronicillness
youtu.be/iq0c-tvjilg?...
Yeeeaaah...and then THAT happened.
But don't worry!
A little pain never hurt anybody! 😁
#surgery #chronicpain #interstitialcystitis #gallowshumor #copingwithhumor
Yeeeaaah...and then THAT happened.
But don't worry!
A little pain never hurt anybody! 😁
#surgery #chronicpain #interstitialcystitis #gallowshumor #copingwithhumor
Health Update...
YouTube video by KittyLynnRoseVA
youtu.be
July 3, 2026 at 7:52 PM
youtu.be/iq0c-tvjilg?...
Yeeeaaah...and then THAT happened.
But don't worry!
A little pain never hurt anybody! 😁
#surgery #chronicpain #interstitialcystitis #gallowshumor #copingwithhumor
Yeeeaaah...and then THAT happened.
But don't worry!
A little pain never hurt anybody! 😁
#surgery #chronicpain #interstitialcystitis #gallowshumor #copingwithhumor
"I am not a lie-in kind of person. I just don’t stay asleep, mostly because my irritated bladder won’t let me — the joys of having #InterstitialCystitis! But if I do #sleep in, then I let myself do so (within limits).": buff.ly/3Grmt58
#fibromyalgia #ChronicPain
by @lowhistamine.bsky.social
#fibromyalgia #ChronicPain
by @lowhistamine.bsky.social
10 Things I Don't Do as Someone With a Chronic Illness
#1. "I don’t eat whatever I like."
buff.ly
July 23, 2025 at 6:30 PM
"I am not a lie-in kind of person. I just don’t stay asleep, mostly because my irritated bladder won’t let me — the joys of having #InterstitialCystitis! But if I do #sleep in, then I let myself do so (within limits).": buff.ly/3Grmt58
#fibromyalgia #ChronicPain
by @lowhistamine.bsky.social
#fibromyalgia #ChronicPain
by @lowhistamine.bsky.social
"Our current findings reveal how the sensory arc coordinates interorgan reflexes that may bypass traditionally assumed pathways of sensorimotor regulation."
#MastCells #IBS #InterstitialCystitis #MECFS
www.researchsquare.com/article/rs-6...
#MastCells #IBS #InterstitialCystitis #MECFS
www.researchsquare.com/article/rs-6...
An interorgan neuroimmune circuit promotes visceral hypersensitivity
Visceral pain disorders such as interstitial cystitis/bladder pain syndrome (IC/BPS) and irritable bowel syndrome (IBS) often manifest concurrently in the bladder and colon. Yet, the mechanistic basis...
www.researchsquare.com
March 19, 2025 at 11:32 PM
"Our current findings reveal how the sensory arc coordinates interorgan reflexes that may bypass traditionally assumed pathways of sensorimotor regulation."
#MastCells #IBS #InterstitialCystitis #MECFS
www.researchsquare.com/article/rs-6...
#MastCells #IBS #InterstitialCystitis #MECFS
www.researchsquare.com/article/rs-6...
#InterstitialCystitis is a #ChronicPain condition that severely impacts quality of life and traditional painkillers often don't help. It's a functional disease, meaning symptoms impede functioning without a clear physical (observable) cause.
February 21, 2025 at 2:17 PM
#InterstitialCystitis is a #ChronicPain condition that severely impacts quality of life and traditional painkillers often don't help. It's a functional disease, meaning symptoms impede functioning without a clear physical (observable) cause.
This #UrogynecologyDay we want to recognize the hard work and dedication of the many clinicians to their patients.
____
#HyivyHealth #pelvicfloor #FemTech #endometriosis #pelvicpain #chronicpain #painfulsex #pelvicfloordysfunction #vulvodynia #vaginismus #dyspareunia #interstitialcystitis
____
#HyivyHealth #pelvicfloor #FemTech #endometriosis #pelvicpain #chronicpain #painfulsex #pelvicfloordysfunction #vulvodynia #vaginismus #dyspareunia #interstitialcystitis
February 20, 2025 at 4:10 PM
This #UrogynecologyDay we want to recognize the hard work and dedication of the many clinicians to their patients.
____
#HyivyHealth #pelvicfloor #FemTech #endometriosis #pelvicpain #chronicpain #painfulsex #pelvicfloordysfunction #vulvodynia #vaginismus #dyspareunia #interstitialcystitis
____
#HyivyHealth #pelvicfloor #FemTech #endometriosis #pelvicpain #chronicpain #painfulsex #pelvicfloordysfunction #vulvodynia #vaginismus #dyspareunia #interstitialcystitis
Skimmed through this and I did not see #interstitialcystitis (chronic bladder disease).
October 30, 2024 at 11:22 AM
Skimmed through this and I did not see #interstitialcystitis (chronic bladder disease).
My pee log is full of unfortunate doodles, here’s the latest 😵💫
The people at the Urology office often take it to photo copy the pages and they’ve said that they enjoy the doodles, and so I will persist ( ͡° ͜ʖ ͡°)
#doodle #sketch #interstitialcystitis #chronicillness #spoonie
The people at the Urology office often take it to photo copy the pages and they’ve said that they enjoy the doodles, and so I will persist ( ͡° ͜ʖ ͡°)
#doodle #sketch #interstitialcystitis #chronicillness #spoonie
February 12, 2025 at 8:38 PM
My pee log is full of unfortunate doodles, here’s the latest 😵💫
The people at the Urology office often take it to photo copy the pages and they’ve said that they enjoy the doodles, and so I will persist ( ͡° ͜ʖ ͡°)
#doodle #sketch #interstitialcystitis #chronicillness #spoonie
The people at the Urology office often take it to photo copy the pages and they’ve said that they enjoy the doodles, and so I will persist ( ͡° ͜ʖ ͡°)
#doodle #sketch #interstitialcystitis #chronicillness #spoonie
New Substack post: open.substack.com/pub/tinasewa...
#writing #writingcommunity #health #chronicpain #interstitialcystitis
#writing #writingcommunity #health #chronicpain #interstitialcystitis
Shots fired in the urology war!
(Picture created by Chat GPT 5.)
open.substack.com
August 15, 2025 at 3:07 PM
Doubling my meds has at least helped my sleep. So nice to only get up a few times a night as opposed to 7 or 8. #interstitialcystitis #icwarrior
August 16, 2025 at 11:56 AM
Doubling my meds has at least helped my sleep. So nice to only get up a few times a night as opposed to 7 or 8. #interstitialcystitis #icwarrior
When one has a severe case of #interstitialcystitis and one wants coffee so one can get the f*ck out of bed, one does what they must. After this I add Alkaline drops. Also using mild roast.
April 23, 2026 at 12:14 PM
When one has a severe case of #interstitialcystitis and one wants coffee so one can get the f*ck out of bed, one does what they must. After this I add Alkaline drops. Also using mild roast.
I reached my all-time record yesterday, not even including nighttime…. it’s nearly been 4 years since my diagnosis of Interstitial Cystitis and I’m having a great time 💀
#chronicillness #spoonie #Interstitialcystitis #ic
#chronicillness #spoonie #Interstitialcystitis #ic
March 11, 2025 at 12:47 PM
I reached my all-time record yesterday, not even including nighttime…. it’s nearly been 4 years since my diagnosis of Interstitial Cystitis and I’m having a great time 💀
#chronicillness #spoonie #Interstitialcystitis #ic
#chronicillness #spoonie #Interstitialcystitis #ic
JMIR Formative Res: Sentiments of Individuals with Interstitial Cystitis/Bladder Pain Syndrome Toward Pentosan Polysulfate Sodium: Infodemiology Study #InterstitialCystitis #BladderPain #PentosanPolysulfate #ChronicPain #PatientSupport
Sentiments of Individuals with Interstitial Cystitis/Bladder Pain Syndrome Toward Pentosan Polysulfate Sodium: Infodemiology Study
Background: Interstitial cystitis/bladder pain syndrome (IC/BPS) is a multifactorial, chronic syndrome involving urinary frequency, urgency, and bladder discomfort. These IC/BPS symptoms can significantly impact patients’ quality of life, affecting their…
dlvr.it
January 17, 2025 at 8:36 PM
JMIR Formative Res: Sentiments of Individuals with Interstitial Cystitis/Bladder Pain Syndrome Toward Pentosan Polysulfate Sodium: Infodemiology Study #InterstitialCystitis #BladderPain #PentosanPolysulfate #ChronicPain #PatientSupport
Come chat with us about #kratom tea. This tea is what helps my #interstitialcystitis #fibromyalgia #abdominaladhesions and #kidneystone pain. AND I can function! We all can! #chronicpain x.com/KratomStory/...
a tweety cartoon says it 's thursday
ALT: a tweety cartoon says it 's thursday
media.tenor.com
March 6, 2025 at 4:31 PM
Come chat with us about #kratom tea. This tea is what helps my #interstitialcystitis #fibromyalgia #abdominaladhesions and #kidneystone pain. AND I can function! We all can! #chronicpain x.com/KratomStory/...
Tomorrow at 3 pm est you can join us on twitter while we hang out and talk about how kratom helped us.
It helps my #interstitialcystitis #abdominaladhesion and #kidneystone pain. Sounds impossible! But it actually works better than any #pharma and I'm lucid 😁 x.com/KratomStory/...
It helps my #interstitialcystitis #abdominaladhesion and #kidneystone pain. Sounds impossible! But it actually works better than any #pharma and I'm lucid 😁 x.com/KratomStory/...
x.com
x.com
February 12, 2025 at 10:22 PM
Tomorrow at 3 pm est you can join us on twitter while we hang out and talk about how kratom helped us.
It helps my #interstitialcystitis #abdominaladhesion and #kidneystone pain. Sounds impossible! But it actually works better than any #pharma and I'm lucid 😁 x.com/KratomStory/...
It helps my #interstitialcystitis #abdominaladhesion and #kidneystone pain. Sounds impossible! But it actually works better than any #pharma and I'm lucid 😁 x.com/KratomStory/...
This is how I make up making poor life choices
(Less now that my immune system is a giant sledgehammer of NO BAD DON'T, but still sometimes)
(Meme is IC specific but applies to so many chronic illnesses)
(Less now that my immune system is a giant sledgehammer of NO BAD DON'T, but still sometimes)
(Meme is IC specific but applies to so many chronic illnesses)
May 21, 2024 at 12:27 PM
This is how I make up making poor life choices
(Less now that my immune system is a giant sledgehammer of NO BAD DON'T, but still sometimes)
(Meme is IC specific but applies to so many chronic illnesses)
(Less now that my immune system is a giant sledgehammer of NO BAD DON'T, but still sometimes)
(Meme is IC specific but applies to so many chronic illnesses)
This Urology Awareness Month, we want to share our booklet on Interstitial Cystitis: https://meassociation.org.uk/literature/items/interstitial-cystitis-and-me-cfs/
For more info, please also visit The Urology Foundation: https://www.theurologyfoundation.org/
#pwME #MECFS #InterstitialCystitis
For more info, please also visit The Urology Foundation: https://www.theurologyfoundation.org/
#pwME #MECFS #InterstitialCystitis
September 16, 2025 at 2:10 PM
This Urology Awareness Month, we want to share our booklet on Interstitial Cystitis: https://meassociation.org.uk/literature/items/interstitial-cystitis-and-me-cfs/
For more info, please also visit The Urology Foundation: https://www.theurologyfoundation.org/
#pwME #MECFS #InterstitialCystitis
For more info, please also visit The Urology Foundation: https://www.theurologyfoundation.org/
#pwME #MECFS #InterstitialCystitis
-body aches
-fever
-sore throat
I obviously have a bad UTI. What else would it be?
#ic #uti #interstitialcystitis
-fever
-sore throat
I obviously have a bad UTI. What else would it be?
#ic #uti #interstitialcystitis
February 28, 2026 at 11:42 PM
-body aches
-fever
-sore throat
I obviously have a bad UTI. What else would it be?
#ic #uti #interstitialcystitis
-fever
-sore throat
I obviously have a bad UTI. What else would it be?
#ic #uti #interstitialcystitis