We witnessed the health of children deteriorating in 2020,21,22,23,24…
Our voices & reports were ignored.
…and it continues in 2025.
#LongCovidKids
#PaediatricLongCovid
#Childhood
#Parenting
#Family
#LCandME
#HeartHealth
#Cardiology
Our voices & reports were ignored.
…and it continues in 2025.
#LongCovidKids
#PaediatricLongCovid
#Childhood
#Parenting
#Family
#LCandME
#HeartHealth
#Cardiology
These outcomes included;
hypertension
🔺ventricular arrhythmias
🔺myocarditis
🔺heart failure
🔺cardiomyopathy
🔺cardiogenic shock, 🔺thromboembolism
🔺chest pain,
and palpitations, compared to non-infected controls.
hypertension
🔺ventricular arrhythmias
🔺myocarditis
🔺heart failure
🔺cardiomyopathy
🔺cardiogenic shock, 🔺thromboembolism
🔺chest pain,
and palpitations, compared to non-infected controls.
April 12, 2025 at 7:04 AM
We witnessed the health of children deteriorating in 2020,21,22,23,24…
Our voices & reports were ignored.
…and it continues in 2025.
#LongCovidKids
#PaediatricLongCovid
#Childhood
#Parenting
#Family
#LCandME
#HeartHealth
#Cardiology
Our voices & reports were ignored.
…and it continues in 2025.
#LongCovidKids
#PaediatricLongCovid
#Childhood
#Parenting
#Family
#LCandME
#HeartHealth
#Cardiology
🧵🛑 Don't shut the door on us.
Closing Long Covid clinics without training healthcare professionals, & without clear care pathways & long-term plans, risks leaving thousands of children & young people without the support they need.
And if we don't act?👇
#LCandMe #FundOurFuture
Closing Long Covid clinics without training healthcare professionals, & without clear care pathways & long-term plans, risks leaving thousands of children & young people without the support they need.
And if we don't act?👇
#LCandMe #FundOurFuture
March 23, 2025 at 4:51 PM
🧵🛑 Don't shut the door on us.
Closing Long Covid clinics without training healthcare professionals, & without clear care pathways & long-term plans, risks leaving thousands of children & young people without the support they need.
And if we don't act?👇
#LCandMe #FundOurFuture
Closing Long Covid clinics without training healthcare professionals, & without clear care pathways & long-term plans, risks leaving thousands of children & young people without the support they need.
And if we don't act?👇
#LCandMe #FundOurFuture
🚀 Launched on #LongCovidAwarenessDay for the community.
💥1000 signatures on day one.
Can you help us get more today?
you.38degrees.org.uk/petitions/in...
#LCandME
#FundOurFuture
#FundThePlan
💥1000 signatures on day one.
Can you help us get more today?
you.38degrees.org.uk/petitions/in...
#LCandME
#FundOurFuture
#FundThePlan
March 16, 2025 at 7:12 AM
🚀 Launched on #LongCovidAwarenessDay for the community.
💥1000 signatures on day one.
Can you help us get more today?
you.38degrees.org.uk/petitions/in...
#LCandME
#FundOurFuture
#FundThePlan
💥1000 signatures on day one.
Can you help us get more today?
you.38degrees.org.uk/petitions/in...
#LCandME
#FundOurFuture
#FundThePlan
Speaking about the closing Long Covid clinics Molly, age 16 said:
“I really struggled with that because everyone is still suffering, why have they shut it down?" Molly asked.
www.bbc.com/news/article...
#LCandME #ClosingClinics #FundThePlan #FundOurFuture
“I really struggled with that because everyone is still suffering, why have they shut it down?" Molly asked.
www.bbc.com/news/article...
#LCandME #ClosingClinics #FundThePlan #FundOurFuture
April 22, 2025 at 8:33 AM
Speaking about the closing Long Covid clinics Molly, age 16 said:
“I really struggled with that because everyone is still suffering, why have they shut it down?" Molly asked.
www.bbc.com/news/article...
#LCandME #ClosingClinics #FundThePlan #FundOurFuture
“I really struggled with that because everyone is still suffering, why have they shut it down?" Molly asked.
www.bbc.com/news/article...
#LCandME #ClosingClinics #FundThePlan #FundOurFuture
In this video, children and young people with Long Covid share their experiences to help others understand the reality they face every day.
Made in collaboration with young people with lived experience.
#LongCovidKids #LongCovid #YoungVoices #LCandME #CharityFilm
m.youtube.com/watch?v=e0U7...
Made in collaboration with young people with lived experience.
#LongCovidKids #LongCovid #YoungVoices #LCandME #CharityFilm
m.youtube.com/watch?v=e0U7...
Long Covid & Me | Understanding Long Covid In Children And Young People
YouTube video by Long Covid Kids
m.youtube.com
September 2, 2025 at 5:36 AM
In this video, children and young people with Long Covid share their experiences to help others understand the reality they face every day.
Made in collaboration with young people with lived experience.
#LongCovidKids #LongCovid #YoungVoices #LCandME #CharityFilm
m.youtube.com/watch?v=e0U7...
Made in collaboration with young people with lived experience.
#LongCovidKids #LongCovid #YoungVoices #LCandME #CharityFilm
m.youtube.com/watch?v=e0U7...
Help us highlight the growing need for urgent action on Long Covid and M.E.
Please, sign and share with your networks, every signature counts.
#LCandME #FundOurFuture #FundThePlan
you.38degrees.org.uk/petitions/in...
Please, sign and share with your networks, every signature counts.
#LCandME #FundOurFuture #FundThePlan
you.38degrees.org.uk/petitions/in...
March 22, 2025 at 7:36 PM
Help us highlight the growing need for urgent action on Long Covid and M.E.
Please, sign and share with your networks, every signature counts.
#LCandME #FundOurFuture #FundThePlan
you.38degrees.org.uk/petitions/in...
Please, sign and share with your networks, every signature counts.
#LCandME #FundOurFuture #FundThePlan
you.38degrees.org.uk/petitions/in...
@longcovidphysio.bsky.social is pleased to support this essential campaign by @longcovidkids.bsky.social
Better assessment, care, funding and research are urgently needed for the millions of adults and children living with Long COVID and M.E.
#LCandME #FundOurFuture #FundThePlan
Better assessment, care, funding and research are urgently needed for the millions of adults and children living with Long COVID and M.E.
#LCandME #FundOurFuture #FundThePlan
As part of Long Covid Awareness Month, and to mark the fifth anniversary of the first UK lockdown, we have sent an open letter and petition to @wesstreeting.bsky.social & @ashleydaltonmp.bsky.social
#LCandME #FundOurFuture #FundThePlan
www.longcovidkids.org/post/open-le...
#LCandME #FundOurFuture #FundThePlan
www.longcovidkids.org/post/open-le...
March 26, 2025 at 10:59 AM
@longcovidphysio.bsky.social is pleased to support this essential campaign by @longcovidkids.bsky.social
Better assessment, care, funding and research are urgently needed for the millions of adults and children living with Long COVID and M.E.
#LCandME #FundOurFuture #FundThePlan
Better assessment, care, funding and research are urgently needed for the millions of adults and children living with Long COVID and M.E.
#LCandME #FundOurFuture #FundThePlan
This is incredible - let's keep it going?
Keep sharing with your networks, we can do this!
you.38degrees.org.uk/petitions/in...
@ashleydaltonmp.bsky.social Wes Streeting please hear us!
#LCandME #FundOurFuture #FundThePlan
Keep sharing with your networks, we can do this!
you.38degrees.org.uk/petitions/in...
@ashleydaltonmp.bsky.social Wes Streeting please hear us!
#LCandME #FundOurFuture #FundThePlan
March 18, 2025 at 3:38 PM
This is incredible - let's keep it going?
Keep sharing with your networks, we can do this!
you.38degrees.org.uk/petitions/in...
@ashleydaltonmp.bsky.social Wes Streeting please hear us!
#LCandME #FundOurFuture #FundThePlan
Keep sharing with your networks, we can do this!
you.38degrees.org.uk/petitions/in...
@ashleydaltonmp.bsky.social Wes Streeting please hear us!
#LCandME #FundOurFuture #FundThePlan
We received some fab photos over the weekend from young people
with #LongCovid and #MECFS who ask that their voices are heard.
you.38degrees.org.uk/petitions/in...
#LCandME #Cats
with #LongCovid and #MECFS who ask that their voices are heard.
you.38degrees.org.uk/petitions/in...
#LCandME #Cats
March 24, 2025 at 7:29 AM
We received some fab photos over the weekend from young people
with #LongCovid and #MECFS who ask that their voices are heard.
you.38degrees.org.uk/petitions/in...
#LCandME #Cats
with #LongCovid and #MECFS who ask that their voices are heard.
you.38degrees.org.uk/petitions/in...
#LCandME #Cats
We truly appreciate your incredible support!
We've surpassed 10,000 signatures. Let’s keep the momentum going—please share and sign!
you.38degrees.org.uk/p/LCME
#LCandME
#SupportResearch #LongCovidAwareness #MEAdvocacy #HealthEquity #ChildrensHealth #PetitionForChange #HealthcareForAll
We've surpassed 10,000 signatures. Let’s keep the momentum going—please share and sign!
you.38degrees.org.uk/p/LCME
#LCandME
#SupportResearch #LongCovidAwareness #MEAdvocacy #HealthEquity #ChildrensHealth #PetitionForChange #HealthcareForAll
March 19, 2025 at 11:36 AM
We truly appreciate your incredible support!
We've surpassed 10,000 signatures. Let’s keep the momentum going—please share and sign!
you.38degrees.org.uk/p/LCME
#LCandME
#SupportResearch #LongCovidAwareness #MEAdvocacy #HealthEquity #ChildrensHealth #PetitionForChange #HealthcareForAll
We've surpassed 10,000 signatures. Let’s keep the momentum going—please share and sign!
you.38degrees.org.uk/p/LCME
#LCandME
#SupportResearch #LongCovidAwareness #MEAdvocacy #HealthEquity #ChildrensHealth #PetitionForChange #HealthcareForAll
🚨 11,000 voices demanding action!
Long Covid isn’t 'just' fatigue, it can be #PEM, cognitive impairment, autonomic dysfunction, pain, sleep disturbances, respiratory & gut issues and more!
Too many are waiting for treatment.
We need research, funding & care. you.38degrees.org.uk/p/LCME
#LCandME
Long Covid isn’t 'just' fatigue, it can be #PEM, cognitive impairment, autonomic dysfunction, pain, sleep disturbances, respiratory & gut issues and more!
Too many are waiting for treatment.
We need research, funding & care. you.38degrees.org.uk/p/LCME
#LCandME
March 19, 2025 at 9:00 PM
🚨 11,000 voices demanding action!
Long Covid isn’t 'just' fatigue, it can be #PEM, cognitive impairment, autonomic dysfunction, pain, sleep disturbances, respiratory & gut issues and more!
Too many are waiting for treatment.
We need research, funding & care. you.38degrees.org.uk/p/LCME
#LCandME
Long Covid isn’t 'just' fatigue, it can be #PEM, cognitive impairment, autonomic dysfunction, pain, sleep disturbances, respiratory & gut issues and more!
Too many are waiting for treatment.
We need research, funding & care. you.38degrees.org.uk/p/LCME
#LCandME
Now on YOUTUBE:
'Don't Shut The Door On Us'.
#LCandME #FundOurFuture #FundThePlan
youtube.com/shorts/6JRF4...
'Don't Shut The Door On Us'.
#LCandME #FundOurFuture #FundThePlan
youtube.com/shorts/6JRF4...
March 24, 2025 at 9:31 AM
Now on YOUTUBE:
'Don't Shut The Door On Us'.
#LCandME #FundOurFuture #FundThePlan
youtube.com/shorts/6JRF4...
'Don't Shut The Door On Us'.
#LCandME #FundOurFuture #FundThePlan
youtube.com/shorts/6JRF4...
"Thank you for making us kids seen."
A young person sent us this message about our petition, & it meant everything.
This is why we do what we do. No child should feel invisible. Every ✍️ is a step toward recognition, care, & hope.
Keep going. ✊
you.38degrees.org.uk/p/LCME
#LCandME #FundOurFuture
A young person sent us this message about our petition, & it meant everything.
This is why we do what we do. No child should feel invisible. Every ✍️ is a step toward recognition, care, & hope.
Keep going. ✊
you.38degrees.org.uk/p/LCME
#LCandME #FundOurFuture
March 19, 2025 at 7:09 AM
"Thank you for making us kids seen."
A young person sent us this message about our petition, & it meant everything.
This is why we do what we do. No child should feel invisible. Every ✍️ is a step toward recognition, care, & hope.
Keep going. ✊
you.38degrees.org.uk/p/LCME
#LCandME #FundOurFuture
A young person sent us this message about our petition, & it meant everything.
This is why we do what we do. No child should feel invisible. Every ✍️ is a step toward recognition, care, & hope.
Keep going. ✊
you.38degrees.org.uk/p/LCME
#LCandME #FundOurFuture
“Politicians are picking & choosing who should be offered help like children making mindless decisions in a sweet shop, when in an hour, a day, a week or a year’s time, they could be the ones in the position of the very people they are hurting”
Emily-May Stephenson, age 18
#LCandME #YoungVoices
Emily-May Stephenson, age 18
#LCandME #YoungVoices
April 17, 2025 at 6:01 AM
“Politicians are picking & choosing who should be offered help like children making mindless decisions in a sweet shop, when in an hour, a day, a week or a year’s time, they could be the ones in the position of the very people they are hurting”
Emily-May Stephenson, age 18
#LCandME #YoungVoices
Emily-May Stephenson, age 18
#LCandME #YoungVoices
"I really struggled with that, everyone is still suffering, and why are they shut it down"
" it didn't mean the people with Long Covid, all their symptoms didn't just disappear"
Listen to Molly's interview about the closing #LongCovid Clinic in #Dorset on BBC South Today.
#LCandME #ClosingClinics
" it didn't mean the people with Long Covid, all their symptoms didn't just disappear"
Listen to Molly's interview about the closing #LongCovid Clinic in #Dorset on BBC South Today.
#LCandME #ClosingClinics
April 22, 2025 at 9:03 AM
"I really struggled with that, everyone is still suffering, and why are they shut it down"
" it didn't mean the people with Long Covid, all their symptoms didn't just disappear"
Listen to Molly's interview about the closing #LongCovid Clinic in #Dorset on BBC South Today.
#LCandME #ClosingClinics
" it didn't mean the people with Long Covid, all their symptoms didn't just disappear"
Listen to Molly's interview about the closing #LongCovid Clinic in #Dorset on BBC South Today.
#LCandME #ClosingClinics
Skeletal muscle changes in #LongCovid & #MECFS are different to those resulting from inactivity.
A useful thread on this new research.
Please share with anyone who may be interested or
find this helpful in their own advocacy.
threadreaderapp.com/thread/19198...
#LongCovidKids #LCAndMe #SevereME
A useful thread on this new research.
Please share with anyone who may be interested or
find this helpful in their own advocacy.
threadreaderapp.com/thread/19198...
#LongCovidKids #LCAndMe #SevereME
May 7, 2025 at 6:26 AM
Skeletal muscle changes in #LongCovid & #MECFS are different to those resulting from inactivity.
A useful thread on this new research.
Please share with anyone who may be interested or
find this helpful in their own advocacy.
threadreaderapp.com/thread/19198...
#LongCovidKids #LCAndMe #SevereME
A useful thread on this new research.
Please share with anyone who may be interested or
find this helpful in their own advocacy.
threadreaderapp.com/thread/19198...
#LongCovidKids #LCAndMe #SevereME
Read Emily-May’s opinion piece here.
@bigissue.com
www.bigissue.com/opinion/long...
#YoungVoices
#LCandME
@bigissue.com
www.bigissue.com/opinion/long...
#YoungVoices
#LCandME
I'm 18 and bed bound with long Covid
After contracting Covid Emily-May, unlike her friends, did not recover and was left with several debilitating conditions.
www.bigissue.com
April 17, 2025 at 6:01 AM
Read Emily-May’s opinion piece here.
@bigissue.com
www.bigissue.com/opinion/long...
#YoungVoices
#LCandME
@bigissue.com
www.bigissue.com/opinion/long...
#YoungVoices
#LCandME
Volume on… it’s worth it
#Labour
#Starmer
#Welfare
#Disability
#Accessibility
#IDEA
#PIP
#MentalHealth
#LCandME
#Autism
#ADHD
#Labour
#Starmer
#Welfare
#Disability
#Accessibility
#IDEA
#PIP
#MentalHealth
#LCandME
#Autism
#ADHD
March 27, 2025 at 12:29 PM
Volume on… it’s worth it
#Labour
#Starmer
#Welfare
#Disability
#Accessibility
#IDEA
#PIP
#MentalHealth
#LCandME
#Autism
#ADHD
#Labour
#Starmer
#Welfare
#Disability
#Accessibility
#IDEA
#PIP
#MentalHealth
#LCandME
#Autism
#ADHD
NEW
Long Covid and Me: Understanding Long Covid in Children.
In this video, children and young people with Long Covid share their experiences to help others understand the reality they face every day.
#LCandME #LongCovidKids #LongCovidAwareness
www.youtube.com/watch?v=e0U7...
Long Covid and Me: Understanding Long Covid in Children.
In this video, children and young people with Long Covid share their experiences to help others understand the reality they face every day.
#LCandME #LongCovidKids #LongCovidAwareness
www.youtube.com/watch?v=e0U7...
Long Covid & Me | Understanding Long Covid In Children And Young People
YouTube video by Long Covid Kids
www.youtube.com
March 15, 2025 at 8:40 AM
NEW
Long Covid and Me: Understanding Long Covid in Children.
In this video, children and young people with Long Covid share their experiences to help others understand the reality they face every day.
#LCandME #LongCovidKids #LongCovidAwareness
www.youtube.com/watch?v=e0U7...
Long Covid and Me: Understanding Long Covid in Children.
In this video, children and young people with Long Covid share their experiences to help others understand the reality they face every day.
#LCandME #LongCovidKids #LongCovidAwareness
www.youtube.com/watch?v=e0U7...
Please give our video a thumbs up on YouTube!
'Don't shut the door on us' if you support the advocacy of these young people.
www.youtube.com/shorts/6JRF4...
#YoungVoices #YouthAdvocay #FundThePlan #LCandME #FundOurFuture
'Don't shut the door on us' if you support the advocacy of these young people.
www.youtube.com/shorts/6JRF4...
#YoungVoices #YouthAdvocay #FundThePlan #LCandME #FundOurFuture
Don't Shut The Door On Us
YouTube video by Long Covid Kids
www.youtube.com
May 17, 2025 at 1:19 PM
Please give our video a thumbs up on YouTube!
'Don't shut the door on us' if you support the advocacy of these young people.
www.youtube.com/shorts/6JRF4...
#YoungVoices #YouthAdvocay #FundThePlan #LCandME #FundOurFuture
'Don't shut the door on us' if you support the advocacy of these young people.
www.youtube.com/shorts/6JRF4...
#YoungVoices #YouthAdvocay #FundThePlan #LCandME #FundOurFuture
As part of Long Covid Awareness Month, and to mark the fifth anniversary of the first UK lockdown, we have sent an open letter and petition to @wesstreeting.bsky.social & @ashleydaltonmp.bsky.social
#LCandME #FundOurFuture #FundThePlan
www.longcovidkids.org/post/open-le...
#LCandME #FundOurFuture #FundThePlan
www.longcovidkids.org/post/open-le...
March 26, 2025 at 9:29 AM
As part of Long Covid Awareness Month, and to mark the fifth anniversary of the first UK lockdown, we have sent an open letter and petition to @wesstreeting.bsky.social & @ashleydaltonmp.bsky.social
#LCandME #FundOurFuture #FundThePlan
www.longcovidkids.org/post/open-le...
#LCandME #FundOurFuture #FundThePlan
www.longcovidkids.org/post/open-le...
Did you know that the full version of ‘Long Covid and Me’ is on our #YouTube channel?
m.youtube.com/watch?v=e0U7K5…
It’s the 5th video in our Educational Toolkit series #LCandMEM#LongCovidKidsd#LongCovidAwarenessss
m.youtube.com/watch?v=e0U7K5…
It’s the 5th video in our Educational Toolkit series #LCandMEM#LongCovidKidsd#LongCovidAwarenessss
https://m.youtube.com/watch?v=e0U7K5…
March 21, 2025 at 6:34 AM
Did you know that the full version of ‘Long Covid and Me’ is on our #YouTube channel?
m.youtube.com/watch?v=e0U7K5…
It’s the 5th video in our Educational Toolkit series #LCandMEM#LongCovidKidsd#LongCovidAwarenessss
m.youtube.com/watch?v=e0U7K5…
It’s the 5th video in our Educational Toolkit series #LCandMEM#LongCovidKidsd#LongCovidAwarenessss
Our thanks to Jane Ryan @bhattmurphy.bsky.social, legal representative for the Long Covid Groups in the UK COVID Inquiry, and @thereforme.bsky.social for this blog.
'Probing an inconvenient truth'
www.thereforme.uk/p/probing-an...
#LongCovidKids #ThereForME
#LongCovid #CovidInquiry
#LCandME
'Probing an inconvenient truth'
www.thereforme.uk/p/probing-an...
#LongCovidKids #ThereForME
#LongCovid #CovidInquiry
#LCandME
Probing an inconvenient truth
Reflections from the Covid-19 Inquiry
www.thereforme.uk
March 18, 2025 at 9:39 AM
Our thanks to Jane Ryan @bhattmurphy.bsky.social, legal representative for the Long Covid Groups in the UK COVID Inquiry, and @thereforme.bsky.social for this blog.
'Probing an inconvenient truth'
www.thereforme.uk/p/probing-an...
#LongCovidKids #ThereForME
#LongCovid #CovidInquiry
#LCandME
'Probing an inconvenient truth'
www.thereforme.uk/p/probing-an...
#LongCovidKids #ThereForME
#LongCovid #CovidInquiry
#LCandME